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KorruptedNerves

@korruptednerves.bsky.social
412 followers 721 following 705 posts

I get on my own nerves. Literally. ♿ Chronic pain. Peripheral neuropathy. Experience:News/Law/Writing/Cats Interests:Politics/History/Science/Games/Cats

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KorruptedNerves @korruptednerves.bsky.social · 10/07/2026
We're always our own harshest critic. I'm sure it was lovely. Most impressively (as a TERRIBLE introvert) you did it! I'm always impressed when fellow "I'd rather be home" peeps follow through! That's absolutely a win. The CV benefit is just icing. Did you enjoy any other part of the conference?
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Amee Vanderpool @girlsreallyrule.bsky.social · 09/07/2026
ICE claims that Araujo drove into one of their SUVs with his van and then tried to run over an agent. There were no marks on the van and KHOU11's Jeremy Rogalski found surveillance footage showing ICE chasing Araujo and cutting him off. Renee Good all over again.
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KorruptedNerves @korruptednerves.bsky.social · 10/07/2026
That's fair. I know my own journey with it has been hard, even to the weird point of it feeling personal when another doctor rejects me. At least I'm stable. I hope you have much better luck going forward!
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KorruptedNerves @korruptednerves.bsky.social · 10/07/2026
I guess I will throw this up in advance: I have enjoyed my time with back with you guys (I had taken a long break for physical and mental health reasons). But...if/when I get hit with any sort of verification, I'm noping out. No matter how innocent, it's the principal of the matter.
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KorruptedNerves @korruptednerves.bsky.social · 10/07/2026
To be clear, my previous "lead" (a neurologist) retired last year and no one seems to think I fit under their purview. I swear I'm not just the world's worst patient
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KorruptedNerves @korruptednerves.bsky.social · 10/07/2026
I'm glad you're taking this so positively I have recently quite literally fallen through the cracks recently as no one agrees who should be stuck with besides my poor pain management clinic. Rare autoimmune that eats nerves (also causing side issues like fatigue and ataxia) "not my department!"
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Don Moynihan @donmoyn.bsky.social · 09/07/2026
"You don’t pressure witnesses to a shooting to self-deport if your goal is to get to the bottom of what happened." In the same way that the government did not investigate the Minnesota shootings, they will not investigate these shootings.
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Adam Keiper @adamkeiper.com · 08/07/2026
On the one hand, I don't know that Rutte, given his job, could have said anything different here, as spineless and cowardly as this makes him seem. On the other hand: Kudos to the reporter who asked this the-emperor-has-no-clothes-and-is-also-batshit-crazy question.
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Nicholas Grossman @nicholasgrossman.bsky.social · 08/07/2026
The US govt, markets, and a lot of media told you there's peace with Iran and shipping is flowing. What's actually happened is the war entered a new phase: the fight for Hormuz. Trump lost his war so badly the US aim now is just to get back to the pre-war status quo. I explain in @ms.now, ICYMI:
ms.now
The U.S.-Iran war just entered a new phase. Here's what's at stake.
Now the conflict is over whether Iran controls the Strait of Hormuz and can charge fees, or if the U.S. can restore the pre-war status quo.
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Hannah BW @hbwhbwhbw.bsky.social · 07/07/2026
a huge win for these brave FL faculty members and a good reminder for the rest of us that sometimes putting your head down and hoping things don’t get worse is not the right strategy. sometimes you need to fight in order to win.
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KorruptedNerves @korruptednerves.bsky.social · 08/07/2026
Yeah, when I got my replacement therapy it destroyed most of my vaccine titers, but they didn't want to re-vax me because they're not entirely sure how I'd react. (I already couldn't get flu shots). So I'm almost entirely dependent upon herd immunity at a time that has ceased to be reliable. Scary.
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Jen Fifield @jenafifield.bsky.social · 07/07/2026
NEW The Justice Department is threatening to prosecute election officials across the country for failing to remove noncitizens from their voter rolls, an escalation of the Trump administration's attempts to prosecute election fraud, according to letters I obtained with Andy Mannix @propublica.org 🧵
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Ronan Farrow @ronanfarrow.bsky.social · 07/07/2026
Private equity is buying America's hospitals and nursing homes. The playbook: pile on debt, sell the building, cut staff. The result, one landmark study found: patient deaths up about 11%. #news #information #privateequity
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András Tóth-Czifra @minczifra.bsky.social · 07/07/2026
The Hungarian public broadcaster is showing this message now, after its news service was temporarily shut down: "Public broadcasters must not lie. We apologize for having done so for years. The public broadcaster will undergo changes to make its news service independent and credible."
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
I'm still shook over that article. I've been there and jumped all those hoops only to be told over and over it wasn't good enough. That I couldn't be that sick, the textbook says I can't be that sick.
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
So I feel extremely fortunate. I've done the appeals and denials. But I got the miracle. It's been 7 years now and afaik it's still only available in America via clinical trial. It's incredibly expensive. But it IS a scientific miracle. I received mine. I can only pray Tiffany can get hers.
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
And it worked! I still have permanent nerve damage, pain, fatigue, inflammation, and small flares. But I'm also able to walk with a cane and don't need massive doses of IVIG every 2 weeks.
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
I had to raise insane sums of money from mostly strangers to go to Mexico to have this hematopoietic stem cell transplant (they quarantine you, give you meds to make stem cells, harvest your blood, look your immune system with chemo, and regrow a hopefully healthy immune system with the stem cells).
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
There was "experimental" treatment (with over 10 years of success at that point!) but only one US Dr was approved to perform it under a clinical trial and I got rejected for being a case with more problems than usual.
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
After awhile, despite dangerous levels of immune suppression it just wasn't enough and I couldn't get into remission and the paralysis was reaching my torso (if it reached my diaphragm it would be fatal).
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
My case is "relapsing/remitting", meaning my immune system would start to destroy nerve cells, I would get treatment to calm my immune system (IVIG mostly) and I would go into temporary remission. But the damage done to the nerves in the meantime is often much more permanent.
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
A fancy way of saying my immune system was eating the nerves in my body, starting with my extremities. Not only was this making the affected limbs unusable, but it HURTS. This doesn't even touch side issues like the chronic fatigue and brain fog.
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
Reading this is like an alternative "what if" nightmare for me. I'm the lucky 1 -in-a-million that got a miracle cure. Science in America was not meeting me where I was at (diagnosis of Chronic Inflammatory Demyelinating Polyneuropathy with Small Fiber Axonal damage).
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
My bad! I'd seen you say you were nervous about it, but I was on the road and didn't spend time to get full context. But I hadn't forgotten about it! I looked for an update (obviously there were none) so I figured I'd just ask.
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
@acerbicotter.bsky.social hey, been offline a lot & was trying to catch up on stuff and was just hoping your presentation went well!
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
Feel bad for the players. They certainly didn't ask to get sucked into the trump/FIFA controversy. Pusilic getting hurt. It sucks for everyone that any advancement we made will be totally drowned out for four years because we looked like overmatched clowns in the last game.
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
Bitter, bitter disappointment. Not that we lost but the utter bonehead moments that contributed to the loss. We hadn't seen that in this version of the USMNT (beyond the last 30 seconds of the meaningless game against Turkey). But with higher stakes the same old team reappeared. Just not good enough
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
and....goal for bad guys. Boo.
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KorruptedNerves @korruptednerves.bsky.social · 07/07/2026
GOOOOAAALLLLL!!?!
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Shani 🫧 (Bluesky hates Palestinians) @mom4medicare4all.blacksky.app · 07/07/2026
This is a huge loss. I visited as a requirement for a documentary research, graduate course to get a copy of the 1980, Chicago public schools’ desegregation consent decree. I didn’t even know it was there before visiting. blockclubchicago.org/2026/07/06/c...
blockclubchicago.org
Chicago National Archives Closure Will Be Loss For Historians, Researchers, Even Deep-Sea Divers
The closure of the South Side center will take place “over the next few years.” The records and documents will be relocated, but it’s unclear where and how many employees are affected.
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KorruptedNerves @korruptednerves.bsky.social · 06/07/2026
Woohoo! You got this! Good luck!
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Joanne Freeman @jbf1755.bsky.social · 06/07/2026
In the well-over 100,000 documents written by founders included in the Founders Online database from the National Archives, no one uses the phrase "God's noble experiment." No one.
Chuck Schumer: "The founding fathers called America God's noble experiment. I believe in all three words to this day: we are one nation under God, we have clung to noble ideals for longer than any other nation, and we are an experiment always changing, trying to make ourselves better.
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KorruptedNerves @korruptednerves.bsky.social · 05/07/2026
*sigh* Looks far too much like Trump's America
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KorruptedNerves @korruptednerves.bsky.social · 04/07/2026
Yeah, for the record I agree with you! Was just trying to make a (somewhat grumpy) joke about how late the local show is going to be. I live amongst many HOAs, and it (mostly) tamps down the local yahoos. But there will certainly be some out tonight after they get good and liquored up
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KorruptedNerves @korruptednerves.bsky.social · 04/07/2026
Lol counter point: 10:30pm is too late to start a show! (Which is what time the closest to me is set to pop off. Past my bedtime!)
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Adam @abrokenbattery.bsky.social · 04/07/2026
“He was a doctor who ran marathons. Now, walking to the bathroom is harder than any marathon he ever ran. In this grade of severity ME is only invisible if people purposefully look away.” Evelien van den Brink calling for biomedical #MECFS research in European Parliament in 2019.
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KorruptedNerves @korruptednerves.bsky.social · 04/07/2026
As for you, my grandparents, who were sort of itenerant farmers (real life okies, though from arkansas and back) used to say "we're rootless so we can hang out in the canopy". So let me know how the view is up there.
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KorruptedNerves @korruptednerves.bsky.social · 04/07/2026
I've lived both here in the South and in Chicago. I like the pace and food here. I prefer the weather and politics (and public transportation, oh how I miss thee) there. And while I may not always like them or agree with them, I understand the people better here.
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KorruptedNerves @korruptednerves.bsky.social · 03/07/2026
I was "fixed" within 24 hours of switching back. No one knows exactly why (best theory is just I'm somehow absorbing the pill faster). But at least I had a resolution! Just the idea that you're having to make such a daily choice makes me nervous. As tribute here's a picture of a calm cat
A tabby cat lies curled on a fluffy cat bed. He has his usual kind of derpy one eye half closed look but he's fine. He just has resting cat face. He looks perpetually grumpy despite being the sweetest boy who enjoys being held like a human and giving hugs
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KorruptedNerves @korruptednerves.bsky.social · 03/07/2026
Closest I can relate is insurance forced me from sublingual opioid to a generic pill. That seemed fine. Two weeks later thought I'd had a heart attack. My O2 level was 85% and stayed that way for 3 months while docs checked me. Could only sleep upright. Despite same dose & drug the pill was problem
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KorruptedNerves @korruptednerves.bsky.social · 03/07/2026
Oh, I'm sorry, I misunderstood that you'd been taking a lower dose without effect. I'm so sorry you're forced into lose-lose situation! I wish I had more than an internet hug of empathy to offer. I can hope you're able to manage your symptoms well and easily?
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KorruptedNerves @korruptednerves.bsky.social · 03/07/2026
I think I watched all of the videos (which is why I was intrigued), I just felt like I was missing some context (like where you were, which you just answered, and what were the little colored lights that you were filming). I was just curious about what I had watched. I hope you're safe and well
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KorruptedNerves @korruptednerves.bsky.social · 03/07/2026
That's awful! My disease is invisible but I generally look awful enough I don't (too often) get outright questioned about being sick. I usually get the more underhanded "Wish I could be disabled and just not work all day". Can't imagine someone whipping out AI to debate my health, though.
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KorruptedNerves @korruptednerves.bsky.social · 03/07/2026
I'm sorry to hear that! Always extra shitty when a med you were stable (but sub-optimal) with changes slightly and totally wrecks things. I'm glad baclofen helped. It's one of the few pills that I have a positive opinion of
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KorruptedNerves @korruptednerves.bsky.social · 03/07/2026
Hey 👋, So please don't take this as me being an asshole. I'm genuinely curious. What am I looking at? Is this where you live? What are the lights? I get from the context clues this is supposed to be some kind of reflection of paranormal activity? Beyond that I'm lost, but intrigued
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The Wolfpack @wolfpack11720.bsky.social · 03/07/2026
Kevin Necessary
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Jonathan Ladd @jonathanmladd.com · 03/07/2026
Our Constitution bans foreign emoluments and names bribery as an impeachable offense. Another case where the problem isn’t the Constitution.
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Ghostly Bree @mostlybree.kitrocha.com · 02/07/2026
We're so starving for consequences we're reading Vatican press releases
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Freedom of the Press Foundation @freedom.press · 02/07/2026
The Supreme Court couldn’t be bothered to correct litigants who think filing a lawsuit gives them permission to commandeer the Fourth Estate and force journalists to burn sources. Fewer whistleblowers will be willing to come forward as a result.
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unraveled @unraveledpress.com · 02/07/2026
Earlier this week, Intelligencer ran a piece called "ICE Won." We definitely don't agree with the title, but its gist—that the normalization of federal police violence is accelerating—is proving accurate. ICE arrests roughly doubled in Chicagoland in June over May. Some more thoughts on that:
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