Reposted by Ben Kopp MD/MPHCF-AIR @emory-choa-cfair.bsky.social · 29/10/2025CF-AIR, CF@LANTA & affiliates had a strong showing at the North American Cystic Fibrosis Conference with 37 speakers & 62 posters. Congrats to Dr. Irina Miralda Molina for winning best abstract in basic science research! We're excited about the knowledge gained & collaborations formed in Seattle! 011
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 27/08/2025Seat belts are a restriction to freedom but have undeniably improved public safety reducing traffic deaths by 45%. we are way overdue to use this framework for gun control with another senseless tragedy today. Improved Mental healthcare access is also key 020
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 10/06/2025latest work: JCI Insight - Annual PM2.5 exposure and clinical, laboratory, and stroke-risk outcomes in pediatric sickle cell disease insight.jci.org/articles/vie...insight.jci.org JCI Insight - Annual PM2.5 exposure and clinical, laboratory, and stroke-risk outcomes in pediatric sickle cell disease 110
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 15/05/2025Our latest work: Altered nasal and oral microbiomes define pediatric sickle cell disease pubmed.ncbi.nlm.nih.gov/40366139/ #SickleCellpubmed.ncbi.nlm.nih.govAltered nasal and oral microbiomes define pediatric sickle cell disease - PubMedThe oral and nasal cavities are susceptible to environmental exposures including pathogenic microbes. In individuals with systemic disorders, antibiotic exposure, changes to the immune system, or chan... 000
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 19/02/2025Nice infographic on the importance of why federal facility and administrative (F&A e.g. indirects) are Extremely important for the life-saving research going on around the country. Indirects matter. Protocols dont work without electricity and safety regulations! @emory-choa-cfair.bsky.social 021
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 12/02/2025New work from the lab! @emory-choa-cfair.bsky.social www.frontiersin.org/journals/imm...frontiersin.orgFrontiers | Proteomics profiling of inflammatory responses to elexacaftor/tezacaftor/ivacaftor in cystic fibrosis 011
Reposted by Ben Kopp MD/MPHAlondra Nelson @alondra.bsky.social · 08/02/2025Research universities are often the largest employers in their region. They are often the primary health care providers to communities. This funding shift will not only reduce US research leadership, it will put working people out of work and reduce healthcare access. 9750662041
Reposted by Ben Kopp MD/MPHStephen Patrick, MD, MPH @stephenwpatrick.bsky.social · 08/02/2025In Georgia- NIH FUNDING: $780 M JOBS SUPPORTED: 11,816 ECONOMIC ACTIVITY SUPPORTED: $2.18 B www.unitedformedicalresearch.org/nih-in-your-...unitedformedicalresearch.orgNIH In Your State - United For Medical ResearchSelect a state on the map to see the impact of NIH funding across America. 6222110
Reposted by Ben Kopp MD/MPHKaren James @kejames.bsky.social · 08/02/2025Look up the impact of NIH funding in your state: www.unitedformedicalresearch.org/nih-in-your-...unitedformedicalresearch.orgNIH In Your State - United For Medical ResearchSelect a state on the map to see the impact of NIH funding across America. 611887
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 03/02/2025Celebrating amazing colleagues on National Women Physicians Day! Let us take time to continue support through struggles up ahead and celebrate accomplishments each and every day! 020
Reposted by Ben Kopp MD/MPHCF-AIR @emory-choa-cfair.bsky.social · 01/02/2025Moments from today's Emory + Children's CF Family Education Day at Arthur M. Blank Hospital. Many thanks to keynote speaker, Dr. Deepika Polineni, of Washington University, St. Louis, for her informative talk on CF Gene Therapies: Where We Are Going and Where We Are Now. 021
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 28/01/2025Staying positive this week with good news: www.frontiersin.org/journals/imm...frontiersin.orgFrontiers | Proteomics profiling of inflammatory responses to elexacaftor/tezacaftor/ivacaftor in cystic fibrosis 042
Reposted by Ben Kopp MD/MPHRobynCohenMD @robyncohenmd.bsky.social · 22/01/2025www.science.org/content/arti...science.orgTrump hits NIH with ‘devastating’ freezes on meetings, travel, communications, and hiringResearchers facing 0107
Reposted by Ben Kopp MD/MPHAmerican Thoracic Society (ATS) @atscommunity.bsky.social · 10/01/2025In the midst of devastating wildfires, ATS member Shazia Jamil, MD, shares tips for protecting yourself and others in @wired.com interview. www.wired.com/story/how-wi...wired.comHow Wildfire Smoke Affects Your Health—And How to Protect YourselfExposure to smoke is dangerous regardless of your health status—so follow these steps to limit the risk. 073
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 10/01/2025Who would have thought? Snow in ATL! Courtesy of L Guglani 021
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 08/01/2025Just testified to the EPA to reduce NOx emissions from industrial sources and protect our kids. Not too late to submit comments! 021
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 07/01/2025Vanzacaftor-tezacaftor-deutivacaftor versus elexacaftor-tezacaftor-ivacaftor in individuals with cystic fibrosis ag… pubmed.ncbi.nlm.nih.gov/39756424/pubmed.ncbi.nlm.nih.govVanzacaftor-tezacaftor-deutivacaftor versus elexacaftor-tezacaftor-ivacaftor in individuals with cystic fibrosis aged 12 years and older (SKYLINE Trials VX20-121-102 and VX20-121-103): results from tw...Vertex Pharmaceuticals. 041
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 20/12/2024Interesting-- Papilledema in Children With Cystic Fibrosis Receiving Elexacaftor/Tezacaftor/Ivacaftor: A Multicenter Case Series pubmed.ncbi.nlm.nih.gov/39704064/pubmed.ncbi.nlm.nih.govPapilledema in Children With Cystic Fibrosis Receiving Elexacaftor/Tezacaftor/Ivacaftor: A Multicenter Case Series - PubMedFollowing the approval of elexacaftor/tezacaftor/ivacaftor (ETI), there have been post-marketing reports and published cases of papilledema and intracranial hypertension in children with cystic fibros... 020
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 16/12/2024It’s a day that ends in “y” so more wasted time switching inhalers for kids with stable asthma because the insurance changed their formulary and are recommending age inappropriate alternatives. Time for medication reform and better health policy! 020
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 12/12/2024Celebrating with CF-AIR today. Nothing like stealing presents from your colleagues to get everyone smiling! @emory-choa-cfair.bsky.social 261
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 11/12/2024Modulators are great, but they dont fix all! #CysticFibrosis Glycemia and Insulin Secretion in Cystic Fibrosis Two Years After Elexacaftor/Tezacaftor/Ivacaftor: PROMISE-ENDO pubmed.ncbi.nlm.nih.gov/39657947/pubmed.ncbi.nlm.nih.govGlycemia and Insulin Secretion in Cystic Fibrosis Two Years After Elexacaftor/Tezacaftor/Ivacaftor: PROMISE-ENDO - PubMedAfter two years of ETI, fasting glucose and HbA1c showed modest decreases. Glucose tolerance varied, and overall measures of insulin secretion did not deteriorate. 032
Reposted by Ben Kopp MD/MPHChristy Sadreameli MD MHS @pedlungdoc.bsky.social · 10/12/2024Check out this interview I got to do about my advocacy work. It was an honor to participate. www.hopkinsmedicine.org/news/article...hopkinsmedicine.org'If We Don't Fight for Them, Who Will?'Pediatric pulmonologist Christy Sadreameli advocates for public policies aimed at protecting vulnerable young lungs. 185
Reposted by Ben Kopp MD/MPHTerri Laguna MD MSCS ATSF @terrilaguna.bsky.social · 10/12/2024If you are pediatric pulmonology physician or advanced practice provider, please reach out so we can add you to our starter pack! Would love to make it easy for everybody to find each other on Bluesky. #PedsPulmSky @ats-peds.bsky.social 4117
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 10/12/2024Lung function improvement on triple modulators: high-resolution, nationwide data from the Danish Cystic Fibrosis Co… pubmed.ncbi.nlm.nih.gov/39655171/pubmed.ncbi.nlm.nih.govLung function improvement on triple modulators: high-resolution, nationwide data from the Danish Cystic Fibrosis Cohort - PubMedUsing high-resolution data from a nationwide real-world setting, our study documents the impact of elexacaftor/tezacaftor/ivacaftor on lung function across subgroups based on age, disease severity and... 001
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 09/12/2024There is something wrong with medication coverage in our country. Just got an estimate of $5000 for high dose vitamin d for my kid! 100
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 27/11/2024pretty cool! Towards in vivo Bronchoscopic Functional CFTR Assessment using a Short Circuit Current Measurement Probe pubmed.ncbi.nlm.nih.gov/39601216/pubmed.ncbi.nlm.nih.govTowards in vivo Bronchoscopic Functional CFTR Assessment using a Short Circuit Current Measurement Probe - PubMedThe epithelial lining of luminal organs provides an immune barrier against external factors and regulates transport of nutrients, ions, and water into the body. Several conditions are associated with ... 031
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 24/11/2024Check out what’s happening in the ATL! CF@LANTA. cfatl.org/about-us @emory-choa-cfair.bsky.socialcfatl.orgCF@LANTAResearch, Care, Education, and Outreach 041
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 22/11/2024Celebration Day 3: Fun with science! Celebrating our new lab logo designed by talented Post-doc Irina! Can you name the different cell types? 021
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 21/11/2024Day 2 of celebrating good things and good people! Congrats to Kymry Jones and Katie Foye for winning the Unsung Hero and Star Awards at Tonight's Pediatrics Ceremony! @emory-choa-cfair.bsky.social 031
Reposted by Ben Kopp MD/MPHDr. Meghan McGarry, MD MAS @drmeghanmcgarry.bsky.social · 20/11/2024Cystic fibrosis community, what do you want to see covered at the 2025 NACFC? Add your idea here: www.surveymonkey.com/r/NACFC2025surveymonkey.comCopy of NACFC 2025: Call for Session IdeasTake this survey powered by surveymonkey.com. Create your own surveys for free. 142
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 20/11/2024Teamwork makes the dream work! Cheers to wonderful colleagues from the cystic fibrosis conference earlier this fall! #Emory #CysticFibrosis 040
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 15/11/2024I hope we are not a giant echo chamber here and can figure out ways to spread rationale solutions, acceptance, and optimism to the masses! #ScienceSolves 040
Ben Kopp MD/MPH @kidslungdoc.bsky.social · 15/11/2024All right blue sky, I made the switch! See you later Twitter! 180