iiinova — where your digital self keeps evolving

Reposted by Kristen Honey

The Bulwark @thebulwark.com · 04/01/2025

OpenSecrets is the latest in a series of open-government groups to decline or die off over the last decade—a trend that bodes ill for the health of our politics. ICYMI Daniel Schuman counts the bodies, and looks at revival methods: www.thebulwark.com/p/open-gover...

thebulwark.com

Open-Government Nonprofits Are Dying Off Just When They’re Needed Most

Why it’s happening and what can be done about it.

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Reposted by Kristen Honey

Andrea @downing.bsky.social · 15/10/2023

Hey @julierehmeyer.bsky.social we’re hosting a town hall Tuesday for trapped patient communities on Twitter and FB. If there are more invite codes lmk if you can join us. Thank you so much for the work you have done 🙏 I’d love to talk.

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Reposted by Kristen Honey

Tambre/Well Beyond Ordinary @tambre.bsky.social · 09/10/2023

My 'what I did with my summer' 2023...joined other #advocates to advance awareness of the importance of digital rights for online #patient communities through @lightcollective.bsky.social Register for the October 17th Virtual Town Hall 330-5pm PST today to learn more us02web.zoom.us/webinar/regi...

The Light Collective Virtual Town Hall event invitation. "Advancing the rights of online patient communities." Being held October 17th from 3:30pm to 5pm PST. Artwork shows logos from organizations focused on patient advocacy including GRASP, Breast Cancer Hawaii, Well Beyond Ordinary, Everylife Foundation, For the Breast of Us, People With Empathy, Tigerlily Foundation, Patient Advocate Foundation, Open Notes, Health Hats, Project Life, Looms for Lupus, Alive and Kick'n, Labalaba Foundation, Generation Patient, YSC, BISA, A Fresh Chapter, Here for the Girls, and ACE.

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Reposted by Kristen Honey

Andrea @downing.bsky.social · 15/10/2023

Amazing ❤️

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Reposted by Kristen Honey

Karolin Luger @nucleosomepolice.bsky.social · 09/10/2023

finally our manuscript describing the weird and wonderful binding mode of a bacterial histone is online. www.nature.com/articles/s41...

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Reposted by Kristen Honey

Julie Rehmeyer @julierehmeyer.bsky.social · 09/10/2023

You nailed it: Power in numbers. Power in purpose.

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Reposted by Kristen Honey

Tom Kindlon @tomkindlon.bsky.social · 09/10/2023

This review article provides an overview on diagnosis, evaluation, and management strategies for ME/CFS. Physicians can earn CME credits by reading the article and completing an online test and evaluation afterwards. www.mayoclinicproceedings.org/article/S002... #MEcfs #CFS #MyalgicE #PwME

mayoclinicproceedings.org

Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant...

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Reposted by Kristen Honey

It's ME(Jaime) @exceedhergrasp1.bsky.social · 07/10/2023

We’re particularly proud of the diagrams featured in this paper, which include a review of common symptoms of #MECFS and of PEM, its pathognomonic symptom. (4/)

A diagram of the human body listing symptoms of Me

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 07/10/2023

Concise clinical reviews are also a way to offer CME credit. Medical providers can take the free CME by reading the paper carefully and then answering the case-based questions that follow. #MedEd (3/) www.mayoclinicproceedings.org/article/S002...

mayoclinicproceedings.org

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Kristen Honey @khoney.bsky.social · 09/10/2023

This is excellent 🙌and will help many❣️

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 07/10/2023

Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...

mayoclinicproceedings.org

Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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Reposted by Kristen Honey

It's ME(Jaime) @exceedhergrasp1.bsky.social · 09/10/2023

It’s in the top✨< 1%✨ most shared of all Mayo Clinic publications. It’s the ✨most shared paper✨ amongst its contemporaries at Mayo Clinic Proceedings. It’s in the ✨top 0.2%✨ most shared research products of all time. It’s been live less than a week. tinyurl.com/ywd3kmjs

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Reposted by Kristen Honey

Lavender (she/her) @lavender63.bsky.social · 09/10/2023

I’m looking forward to connecting with the long covid and chronic illness communities here!

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Reposted by Kristen Honey

Proud Leftie @vyonne57.bsky.social · 09/10/2023

Over the last few weeks we have had many newbies from the Chronic Illness community join us through Julie's invite code distribution site. This is now opened up for the disability community. ♿️ If you know someone in the #disability community who needs an invite code or if you have spare codes:

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