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Kailey

@kaileyh175.bsky.social
97 followers 51 following 74 posts

Epilepsy and RNS advocate! 💜

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Kailey @kaileyh175.bsky.social · 27/12/2024
here’s a sneak peek of my purple Christmas tree!! 💜 i noticed that since last year, one house in my neighborhood did red for AIDS 🫶🏻
Purple decorations on a Christmas tree to spread epilepsy awareness during the holiday season.
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Kailey @kaileyh175.bsky.social · 15/12/2024
can we all collectively agree not to compare #epilepsy to other medical conditions when advocating or spreading awareness? each experience with a medical condition is different 💜
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Kailey @kaileyh175.bsky.social · 11/12/2024
i once got accused of being on drugs (by another person with #epilepsy) because my pupils were dilated 🤦🏻‍♀️ i had just started another medication and got maybe 5-6 hours of sleep
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Kailey @kaileyh175.bsky.social · 01/12/2024
if you shop on Poshmark and watch the lives, please be careful!! they are coming out with unnecessary graphics that strobe and move fast. shop carefully 💜
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Reposted by Kailey
Lori Jaye 🪶🐈‍⬛🇬🇱🥄 @kittypurr1.bsky.social · 27/11/2024
I read the original book, it's an excellent story, if you can't watch the movie you can enjoy the book
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Kailey @kaileyh175.bsky.social · 28/11/2024
if you’re an iPhone user and have auras before a #seizure, ask Siri to time it if you are alone! 💜💜
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Kailey @kaileyh175.bsky.social · 27/11/2024
if you have photosensitive #epilepsy, it may not be best to watch the movie Wicked as there were some flashing lights in the musical/movie 💜
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Kailey @kaileyh175.bsky.social · 24/11/2024
this can be understandable in some cases but having #epilepsy itself can be traumatizing for anyone, especially parents and entire families. keep in mind, not everyone with epilepsy has siblings 💜
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Kailey @kaileyh175.bsky.social · 23/11/2024
if you haven’t yet, please join the #epilepsy feed! my boyfriend and i created it for #epilepsyawareness month for the community on here 💜🫶🏻
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Kailey @kaileyh175.bsky.social · 23/11/2024
yay!! for those wondering where @brainablaze.bsky.social has been in the #Epilepsy feed, we just added them!!! all of their posts will automatically show up 💜
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Kailey @kaileyh175.bsky.social · 22/11/2024
the #epilepsy feed is officially up!!! yay!! my wonderful boyfriend @dkhmora.bsky.social helped create it! have fun raising #epilepsyawareness with me!! 💜
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Kailey @kaileyh175.bsky.social · 22/11/2024
taking your medication(s) for #epilepsy on time is crucial to prevent a seizure and SUDEP! have you ever missed your meds or forgot? 💜
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Briana Mills, LMFT ♿️🏳️‍🌈 @brianamillslmft.bsky.social · 21/11/2024
Disabled people are worth protecting. Period.
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Kailey @kaileyh175.bsky.social · 20/11/2024
planning on writing a blog post about here vs the other place- what main differences do you see or miss? #Epilepsy
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Kailey @kaileyh175.bsky.social · 19/11/2024
DYKT seizures can happen to anyone? it is estimated that 1 in 10 people can have a seizure during their lifetime! 💜
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Kailey @kaileyh175.bsky.social · 19/11/2024
having a Canva pro subscription is not anything to be ashamed or embarrassed about. i just make small graphics to raise #epilepsy awareness time to time 💜🤷🏻‍♀️
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Kailey @kaileyh175.bsky.social · 19/11/2024
a HUGE thank you to @defiantandbeyond.bsky.social!! when i first downloaded this app, they were the first person to show up and i immediately recognized them! 💜💜
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Lorrie @lorrieforseth.bsky.social · 18/11/2024
November is Epilepsy Awareness month in the United States, in Canada the Awareness month is March . You can continue to advocate 365 days a year , for those living with seizures & their families . www.neuropace.com/blog/novembe...
neuropace.com
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Kailey @kaileyh175.bsky.social · 18/11/2024
new here!! i have #epilepsy and blog about it as well to bring awareness to the #disability 💜 this month is epilepsy awareness month and i would be great to meet others with the same disability 🥰
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Kailey @kaileyh175.bsky.social · 18/11/2024
epilepsy friends!!!!! i have an idea- what if we made an #epilepsy feed?! 💜
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AntifaPuddin’Pop @antifapuddinpop.bsky.social · 17/11/2024
Gonna try something to help you build! Reply below w a few words about yourself. Pin and repost this. In a few min return and follow at least ten people you like. Those who are followed, please FB! Find your family! You don't need to be following me to participate. The more reposts the better!
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Kailey @kaileyh175.bsky.social · 17/11/2024
while public #seizures are scary, i made these for #epilepsyawareness month!! Christmas themed screensavers that teach basic seizure first aid 💜 991 AND 999 are included!
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Kailey @kaileyh175.bsky.social · 17/11/2024
finally made the big change from X to this platform!! known as “that girl with epilepsy” on X! very excited to spread #epilepsy awareness on here 💜🫶🏻
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