iiinova — where your digital self keeps evolving

Reposted by Julie Ellis

crippingbreath.bsky.social @crippingbreath.bsky.social · 05/08/2025

A new blog post from our Community Researcher, Amanda, on living with rare disease: "Having your disease announced as a question, or as a joke, as you lie in a hospital bed, unable to move, is upsetting. It is a trigger to the times you struggled to be believed." sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Blog post #13 Living with Rare Disease with Respiratory Involvement

By Amanda Jones, Community Researcher

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Reposted by Julie Ellis

crippingbreath.bsky.social @crippingbreath.bsky.social · 06/08/2025

Do you use #ventilation (bipap/trach/NIV)? Are you interested in theatre? Are you within reach of London? Would you like to work on, or star in, a new adaption of Romeo & Juliet while adding to research on what it means to be ventilated? Find out more at www.cripticarts.org/R&J

A poster for the project, either black on a white background, or white on a black background. The text says: “www.cripticarts.org/R&J
Casting: Romeo & Juliet - Title roles & design creative - London - 2025-2027
Seeking ventilation users who want to be paid to train, perform, or work on an adaptation of Romeo and Juliet while adding to research into what it means to be living ventilated. No theatre experience required.
Deadline 26th August 2025
Open to anyone who uses bipap/NIV/tracheostomy”
At the bottom are logos for CRIPtic Arts, the Wellcome Trust, University of Sheffield and Arts Council England
The poster contains a photo of Jamie rehearsing or performing. They are wearing a hospital gown and ventilator mask.

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Reposted by Julie Ellis

Centre for Open Thanatology @openthanatology.bsky.social · 10/07/2025

Today we've released a new episode of Open Thanatology Talks! It's titled (How) does the public engage with Advance Care Planning? It's based on one of the panel discussions from our recent conference. open.spotify.com/show/1l3R8lJ... #ThanatologyThursday

open.spotify.com

Open Thanatology Talks!

Podcast · Open Thanatology Talks! · Welcome to Open Thanatology Talks! A podcast produced by Open Thanatology from The Open University in the United Kingdom. Open Thanatology is the Open…

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Reposted by Julie Ellis

Association for the Study of Death and Society @asdsdeath.bsky.social · 10/07/2025

You're all invited to the next in our series of free online #deathstudies events on Weds 16 July. Hear from Maria Papalampropoulou on the invisibility of perinatal bereavement. Book here. deathandsociety.org/etn/the-invi...

The invisibility of perinatal bereavement

Wednesday 16 July, 09:00 BST

Many parents who experience a perinatal loss feel they have no right to express the feeling of loss and grief, unlike those who mourn for socially recognized deaths.

This talk explores how the recognition and acceptance of women’s perinatal loss constitutes the main stage of dealing with perinatal bereavement and how healthcare scientists can take center stage to contribute.

Maria Papalampropoulou Maria is a social worker with women who have experienced gender-based or domestic violence. She is studying for a PhD in the Anthropolgy of Health.

Book here: deathandsociety.org/online-events-series

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Reposted by Julie Ellis

crippingbreath.bsky.social @crippingbreath.bsky.social · 07/07/2025

*New Blog Post!* Cripping Breath abroad: Conference attendance and considering access www.sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Blog post #12 Cripping Breath abroad: Conference attendance and considering access

By Grace Joseph

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Reposted by Julie Ellis

Centre for Open Thanatology @openthanatology.bsky.social · 03/07/2025

Looking for recordings from our past events? We have quite a few in our Open Thanatology Resources page on ORDO: ordo.open.ac.uk/projects/Ope... #ThanatologyThursday

ordo.open.ac.uk

Open Thanatology Resources

cite all items

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Reposted by Julie Ellis

Association for the Study of Death and Society @asdsdeath.bsky.social · 14/06/2025

📣 Check out our monthly online #deathstudies events from this month until the autumn. All free. All welcome. All available to book right here. deathandsociety.org/online-event...

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Reposted by Julie Ellis

the algorithms + miscarriage project @paul-ord.bsky.social · 18/06/2025

Good morning! A friendly wee reminder that The Algorithms + Miscarriage Project is now seeking participants for interview. See poster for details... @tommyscharity.bsky.social @cendeathsociety.bsky.social @asdsdeath.bsky.social @bsatheory.bsky.social #miscarriage #algorithms #onlinesafety

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Reposted by Julie Ellis

Jennie Riley @jen-studies-death.bsky.social · 25/06/2025

After enthusiastic feedback on the pilot, the @asdsdeath.bsky.social PGR/ECR 2025-26 mentoring scheme is open for applications - closing 8/9/2025! Further information is available at deathandsociety.org/mentoring/ - or feel free to get in touch by email.

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Julie Ellis @juliecarmel1.bsky.social · 26/06/2025

Absolutely loved chatting about all things breath with my Cripping Breath colleagues ❤️ Read about how we are reimagining what ‘reading’ together looks like

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Reposted by Julie Ellis

Professor Ruth Penfold-Mounce @deathandculture.bsky.social · 17/06/2025

Do get in touch with Paul if you feel able to contribute to his research

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Reposted by Julie Ellis

Association for the Study of Death and Society @asdsdeath.bsky.social · 19/06/2025

Calling #deathstudies PGRs & Postdocs! Catch up with fellow researchers in a friendly online discussion & support group. 👉 Postdoc group, Wed 25 June, 9:00 BST 👉 PGR group, Thurs 26 June, 18:00 BST Book here. deathandsociety.org/eventsandgro...

deathandsociety.org

Events & Groups – The Association for the Study of Death and Society

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Reposted by Julie Ellis

crippingbreath.bsky.social @crippingbreath.bsky.social · 23/06/2025

A great blog post about Revisiting access and inclusion in research methods by our project friends in the Wellcome Anti-Ableist Research Culture (WAARC) project at the University of Sheffield. www.ncrm.ac.uk/news/show.ph...

ncrm.ac.uk

NCRM News | Revisiting access and inclusion in research methods

As a part of the Wellcome Anti-Ableist Research Cultures (WAARC) project at the University of Sheffield, we have been exploring ways of making research more inclusive and accessible, and considering

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Reposted by Julie Ellis

crippingbreath.bsky.social @crippingbreath.bsky.social · 17/06/2025

...these are conversations we cannot & do not want to avoid [...] we need to find a way to sensitively consider proximity to death and the fragility of life as a reality in our work' - Julie Ellis www.sheffield.ac.uk/cripping-bre... @pathfindersnma.bsky.social @cripticarts.bsky.social

sheffield.ac.uk

Blog post #10 ‘Sitting’ with sadness: death and loss in research

By Julie Ellis

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Reposted by Julie Ellis

crippingbreath.bsky.social @crippingbreath.bsky.social · 18/06/2025

Don't forget - we are recruiting Artist Collaborators! Learn more about this fabulous opportunity here! These artists will participate in a collaborative residency alongside Artist-in-Residence Dr Louise Atkinson. www.sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Artist Collaborator Recruitment

Cripping Breath is recruiting three disabled, chronically ill, and ventilated contemporary artists.

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