iiinova — where your digital self keeps evolving

Reposted by Jo Dainow

Long Covid UK @longcoviduk.bsky.social · 10/12/2024

🎄🎁 If you’re shopping online, why not raise funds for our charity & help us continue vital work - it costs you nothing!! Easy Fundraising partners with 8,000+ brands who donate part of what you spend to a cause of your choice. ➡️ Take a look: www.easyfundraising.org.uk/causes/longc... #LongCovid

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Long Covid UK @longcoviduk.bsky.social · 10/12/2024

📣 We are proud to be selected as the Secretariat for the APPG on #LongCovid. We take with us the voices from the Long Covid community, ensuring focus remains on Long Covid & what is needed to progress Prevention, Awareness, Support & Treatment of this life altering illness.

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Binita Kane @binitakane.bsky.social · 07/12/2024

Looking forward to this one! Dr Dempsey is a leading authority on MCAS. Join us 7pm GMT on Wednesday evening ⬇️

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Long Covid UK @longcoviduk.bsky.social · 15/11/2024

“Globally, accepted estimates have suggested between 65m & 200m people have #LongCovid… between 19.5m & 60m people face years of impairment” Let’s compare with recent global figures from the WHO: 🟠 Dementia: 55m+ 🟠 Rheumatoid arthritis: 18m 🟠 Parkinson’s disease: 8.5m+ 🟠 MS: 1.8m+ #CureLongCovid

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Long Covid UK @longcoviduk.bsky.social · 15/11/2024

We continue to raise #LongCovidAwareness across various social media platforms - Take a look! ⬇️ #LongCovid linktr.ee/longcovidsup...

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Prof Christina Pagel @chrischirp.bsky.social · 19/12/2023

New from Danny Altmann & me in BMJ on Long Covid: where we are, where we should be (loads more trials for treatments!) and where we should have been (factoring in Long Covid from the very start of the pandemic). www.bmj.com/content/383/...

bmj.com

Long covid: where are we, what does it say about our pandemic response, and where next?

The UK Office for National Statistics (ONS) Infection Survey was the best estimate that we had on the number of people experiencing long covid. When it ended in March 2023, there were an estimated 1.7...

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Long Covid UK @longcoviduk.bsky.social · 20/12/2023

🚨From the World Health Organization: “For health workers and health facilities, WHO advises: -Universal masking in health facilities” #LongCovid #LongCovidRuinsLives #ItCouldHappenToYou worldhealthorganizationdepartmentofcommunications.cmail20.com/t/d-e-vkkjyu...

worldhealthorganizationdepartmentofcommunications.cmail20.com

NEW: COVID19 variant of interest JN.1 with update for health workers

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Long Covid UK @longcoviduk.bsky.social · 15/12/2023

📣Join the movement! Write to your MP to urge them to support our campaign calling for a 5-step road map for #LongCovid. Let them know why their support matters!! ➡️ Letter template: www.longcovidgroups.org/it-could-hap... #LongCovidAwareness

Poster with text saying There is no cure for Long Covid. Support our letter to number ten by signing the petition and writing to your M P. Fund and Research and Treat Long Covid. longcovidgroups.org

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Nikki Smith @nikki-s.bsky.social · 10/12/2023

Just goes to show that anyone can get #LongCovid, even the most fit out of all of us. Thank you @oonaghcousins.bsky.social for being a fantastic advocate!

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Long Covid UK @longcoviduk.bsky.social · 11/12/2023

Long Covid Support Advisor Dr Ziyad Al-Aly talked last week in Melbourne about #LongCovid: “It affects nearly every organ system, the kidneys, and the heart, and the brain, and can lead to diabetes, and blood clotting disorders… they deserve treatment yesterday” www1.racgp.org.au/newsgp/clini...

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Long Covid UK @longcoviduk.bsky.social · 11/12/2023

🚨At #covidinquiryuk PM Rishi Sunak apologises: “I wanted to start by saying how deeply sorry I am to all those who lost loved ones and also all those who suffered in the various ways as a result of the actions were taken” We’re still suffering lad, it’s not over!! #LongCovid #ItCouldHappenToYou

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Long Covid UK @longcoviduk.bsky.social · 11/12/2023

🚨More from the UK Covid Inquiry - Sunak is asked about #LongCovid: Q. Do you recall at what time Long Covid presented itself on the Exchequer’s horizon? A. I don’t specifically. I recall in the May plan having a conversation with the CMO about consideration of other health impacts. May! May!!

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Long Covid UK @longcoviduk.bsky.social · 11/12/2023

📣 We’re back at the #CovidInquiryUK today! 🔴 Fund 🟠 Research 🔵 Treat #LongCovid! There is currently NO CURE!! 1.9m of us in the UK are experiencing vastly debilitating effects, including our future workforce of 62,000 children! @RishiSunak #ItCouldHappenToYou

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Long Covid UK @longcoviduk.bsky.social · 11/12/2023

💚 At #CovidInquiryUK the #LongCovidGroups push for answers, along with our fantastic legal team! Thank you to all attending in person & working away behind the scenes (including on social media! 😉) ❤️ Exhausted we may be but we will not stop! #LongCovid #ItCouldHappenToYou

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Long Covid UK @longcoviduk.bsky.social · 11/12/2023

1/2 ♥️ Another busy day at the #CovidInquiry, we are all shattered! Closing statement for the #LongCovidGroups due later this week. We will come together again & will continue to push for: 🔴 Dedicated research funding 🔵 Treatment trials 🟢 #LongCovid awareness campaigns

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Long Covid UK @longcoviduk.bsky.social · 10/12/2023

📣Our amazing Ambassador Oonagh Cousins on BBC5Live: “I was a professional athlete selected for the Olympics. Caught Covid, developed into serious #LongCovid. For months life revolved around trying to get through basic daily tasks. After 3yrs I decided to retire” ➡️Link: www.bbc.co.uk/sounds/play/...

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Long Covid UK @longcoviduk.bsky.social · 06/12/2023

🚨📩Today’s the day we hand-deliver our letter to No.10! We need: ♦️Dedicated research funding ♦️Treatment trials ♦️Public #LongCovid awareness campaigns Help us reach 3000 signatures! ➡️ ✍️Sign here: bit.ly/46Hjjn1 #LongCovidGroups #ItCouldHappenToYou

bit.ly

Urgent Investment for Long Covid: Call to Action for Prime Minister...

Our collective appeal is centred around the urgent need for a clear road map on targeted investment in biomedical and health research. We propose a comprehensive 5-step strategy that...

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Reposted by Jo Dainow

Long Covid UK @longcoviduk.bsky.social · 06/12/2023

📣As Former PM Boris Johnson gives evidence at the UK Covid Inquiry: Our Founding Trustee Natalie Rogers gives a statement on behalf of the #LongCovidGroups: “Evidence heard confirmed #LongCovid has been Sidelined, Disbelieved and Ignored” @longcovidkids.bsky.social @longcovidsos.bsky.social

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Long Covid UK @longcoviduk.bsky.social · 06/12/2023

📣 At UK Covid Inquiry our Ambassador Oonagh Cousins is interviewed with @sammiemc.bsky.social (@longcovidkids.bsky.social) by BBC News on Boris Johnson: “Looking after the health of the Nation is the primary responsibility of our Leaders & he continuously put his ego & self-interest ahead of that”

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Long Covid UK @longcoviduk.bsky.social · 06/12/2023

📣🚨 Let us know if you #SpotTheVan!! Our #LongCovidGroups’ digi-van is in central London raising public awareness on #LongCovid. 🤳Take a photo if you see it and tag us! #ItCouldHappenToYou #covidinquiryUK @longcovidkids.bsky.social @longcovidsos.bsky.social

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Long Covid UK @longcoviduk.bsky.social · 06/12/2023

📣🚨***DELIVERED!!!***🚨 The #LongCovidGroups’s letter has been delivered to No. 10 Downing Street!!! We will keep pushing for: ♦️ Dedicated research funding ♦️ Treatment trials ♦️ Public #LongCovid awareness campaigns ➡️ Read more: you.38degrees.org.uk/petitions/ur...

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Long Covid UK @longcoviduk.bsky.social · 06/12/2023

💚 Wow, what a day!💙 We are shattered but Boris Johnson is back at #covidinquiryUK tomorrow and we will not stop until there is appropriate care, research and support for #LongCovid! Here are a few photos of today, with fantastic charities/organisations working together.

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Long Covid UK @longcoviduk.bsky.social · 07/12/2023

💚Another exhausting day with the #covidinquiryUK but again the #LongCovidGroups and other organisations make a stand! A few photos from today… #LongCovid #ItCouldHappenToYou #BorisTheLiar @longcovidkids.bsky.social @longcovidsos.bsky.social

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Long Covid UK @longcoviduk.bsky.social · 16/10/2023

We've arrived on Bluesky! Please bear with us while we get up and running on here. If you have suggestions on who to follow on here from the Long Covid and wider chronic illness communities please let us know!

Graphic saying Long Covid, Lives Ruined, We need answers.

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tern @1goodtern.bsky.social · 19/09/2023

People think of the pandemic as having been going on for nearly 4 years. Yes, it has. But the mass repeat infection experiment has only really been going for 1¾ years. And its effects are only just starting to truly show.

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Covid Action UK @covidactionuk.bsky.social · 19/09/2023

We are bringing our call for Covid Action (Now!) to Bluesky!

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 19/09/2023

Clinically Vulnerable Families has just made it to BlueSky. Please follow and share if you are interested in staying safe from Covid.

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