Ian Stedman @istedman.bsky.social · 10/05/2025A couple of Dr Trish Caetano’s slides from today’s presentation at the Garrod Symposium at UBC. Takeaway: drugs for rare diseases can be expensive and budgets are thin [we all know this narrative]. So what do we need to do? 130
Ian Stedman @istedman.bsky.social · 06/02/2025Excited to be in the room as we celebrate @genomecanada.bsky.social’s 25th anniversary today. Of course all six regional Genome Centres also turn 25. And I’m told a big announcement is coming!! 011
Ian Stedman @istedman.bsky.social · 17/12/2024“…announces the launch of a strategic review of government operations and programs with a focus on expanding the use of Al in the public service to improve both efficiency and service delivery. The review will be led by the Al Secretariat…results… Budget 2025.” p176 budget.canada.ca/update-misea... 000
Ian Stedman @istedman.bsky.social · 26/11/2024From a presentation about the Quebec Rare Disease National Plan. See their website: rare.quebec 021
Ian Stedman @istedman.bsky.social · 26/11/2024Happening now at #CORD conference, a powerful panel including some incredible patient advocates! #rarediseases Biba Tinga (Sickle Cell Assoc of Canada), Deanna Badiuk (Acromegaly Can/BC) & Susi Vander Wyk (CureSMA Canada) 000
Ian Stedman @istedman.bsky.social · 26/11/2024Followed by Trish Caetano from Canada’s Drug Agency and Mélanie Caron from INESSS (Institute national d’excellence en santé et en services sociaux - Quebec’s agency for Health Technology Assessment). #raredisease 010
Ian Stedman @istedman.bsky.social · 26/11/2024The Canadian Organization for Rare Disorders conference is underway in Montreal, with Health Canada’s Daniel MacDonald talking about the National Strategy. “95%, 700 days, $321K” 021
Ian Stedman @istedman.bsky.social · 18/11/2024The unstoppable Dr. Catherine Régis bringing us home as we wrap up the day at Queen’s Law. The busy whiteboard is a reflection of a great day of dialogue comparing Brazilian and Canadian approaches to Health AI! 011
Ian Stedman @istedman.bsky.social · 18/11/2024SMU Dedman School of Law Professor @nathancortez.bsky.social walks U.S. carefully through the U.S.’ approach to regulation of medical devices w\ AI. 051
Ian Stedman @istedman.bsky.social · 18/11/2024Queen’s Law Dean (and Canada’s leading health law scholar) Colleen Flood, unpacks some of what she sees as being the real glaring problems in Health Canada’s proposed approach to regulating Health AI. Hopefully HC’s consultation report is released soon! 061
Ian Stedman @istedman.bsky.social · 18/11/2024Dr. Anna Goldenberg, co-lead of AI at SickKids is now leading the discussion at our Queen’s Law workshop comparing Canada’s and Brazil’s approaches to regulating healthcare AI! 030
Ian Stedman @istedman.bsky.social · 18/11/2024Learning now about Brazil’s digital health infrastructure and regulation of health AI. Thanks to Dr. Ana Estrella Haddad, who is Brazil’s National Secretary on Digital Health, Ministry of Health, for such an enlightening presentation! 051
Ian Stedman @istedman.bsky.social · 18/11/2024At Queen’s Law for the day, connecting with colleagues from across Canada and Brazil to discuss the regulation of healthcare AI. The brilliant @teresascassa.bsky.social is getting us started with an overview of Canada’s broader AI regulation efforts! 070
Ian Stedman @istedman.bsky.social · 15/11/2024Very cool to hear @cbcwhitecoat play our episode again yesterday. Those listening will have heard @NightShiftMD mention that an update episode is coming soon. There's lots to talk about in the rare disease space, so please do tune in for the update! (I will post when it is up) 000
Ian Stedman @istedman.bsky.social · 14/11/2024At the Federal Courts tonight for the Inaugural Justice Roger T. Hughes Memorial Lecture in Intellectual Property Law. Professor Pina D’Agostino getting things underway! 000
Ian Stedman @istedman.bsky.social · 02/11/2024PaCER Training program for parents of children with rare disease. Become trained as a parent research partner through the @UCalgary virtual Patient and Community Engagement (PaCER) training certificate program starting Jan 2025! About PaCER program: 000
Ian Stedman @istedman.bsky.social · 07/08/2024I think I found where the big outdoor slide is supposed to go at @YorkUniversity Markham campus. Can you spot it? You may have to zoom in. 000
Ian Stedman @istedman.bsky.social · 25/07/2024Hey @YorkULAPS students, there are still some spots left in Prof @MacSweeneyG's one-of-a-kind Fall seminar on Public Service and Political ethics! If you've read the news lately, you'll know this is a hot topic course & taking it could be your competitive adv'tge on the job mkt! 000
Ian Stedman @istedman.bsky.social · 26/06/2024There’s an ant inside my iMac (3.3 GHZ, i5, 2020) Is this a thing, @Apple? 000
Ian Stedman @istedman.bsky.social · 16/05/2024Minister @VictorFedeli addresses the capacity crowd and has some fun taking jabs at the rowdy (chatty) left side of the room! 000
Ian Stedman @istedman.bsky.social · 15/05/2024At @LifeSciencesON #LSOAwards tonight. Capacity crowd of 600 people! 000
Ian Stedman @istedman.bsky.social · 12/05/2024Best news I've received in a long time! Sending my bank account login information right now! 000
Ian Stedman @istedman.bsky.social · 06/05/2024I attended the wonderful @CAFsociety #FamilyDay event in King City today, w\ my 11yo daughter. We connected w\ other families, clinicians & researchers. Tonight we take our next doses of #Ilaris to treat our #MuckleWellsSyndrome. @CdnANetwork @CanadianRDN @Novartis #RareDisease 000
Ian Stedman @istedman.bsky.social · 05/05/2024What an exciting international research initiative! #ConnectingJA @CanadianRDN @CAFsociety @Marshall_HEcon 000
Ian Stedman @istedman.bsky.social · 05/05/2024The incredible Dr. Deborah Marshall @Marshall_HEcon @UCalgary presenting research results from the PAVE project (about the socioeconomic impact of living with rare disease), alongside 5 wonderful patient partners! @CAFsociety #FamilyDay @CanadianRDN 000
Ian Stedman @istedman.bsky.social · 21/03/2024Celebrating the incredible @OsgoodeNews Prof. Pina D’Agostino tonight. @CIBPAtoronto Woman of the Year!! @YorkUniversity @YorkUPresident @YorkUProvost @ConnectedMinds3 000
Ian Stedman @istedman.bsky.social · 13/03/2024It's finally time! We are looking for 4 #PatientPartners to join our Pan-Canadian Genome Library team. Reach out to me if you have questions. More info and apply here: 000
Ian Stedman @istedman.bsky.social · 07/03/2024Our closing panel, with a few familiar faces! #BracingForImpact2024 @OsgoodeNews @AHGaon @NadineLetson @jon_penney @CIPO_Canada @PartnershipAI & Prof Pina D’Agostino!! @ConnectedMinds3 @CAISatYorkU @YUResearch 000
Ian Stedman @istedman.bsky.social · 07/03/2024Lunchtime keynote on AI Governance by Hon. @DavidLametti at #BracingForImpact2024 000
Ian Stedman @istedman.bsky.social · 07/03/2024Panel 2: “The Future of Works: Media, the Arts, and AI”. #BracingForImpact2024 000
Ian Stedman @istedman.bsky.social · 07/03/2024Panel 1: “Technology for Good? The Societal Impacts of AI and Innovation” #BracingForImpact2024 000
Ian Stedman @istedman.bsky.social · 07/03/2024Bracing for Impact 2024 is underway. Opening remarks complete and now we’re moving on to the first panel! 000
Ian Stedman @istedman.bsky.social · 01/03/2024On top of being in Ottawa for #RareDiseaseDay and the launch of @CanadianRDN, I was also able to grab a bite with Charlie “National Treasure” Feldman!! In case you didn’t know, @ParlCharlie is hilarious+++, and not just when he’s “nerding out” with the Hansard posts :) 🙏🙏🙏CF! 000
Ian Stedman @istedman.bsky.social · 29/02/2024I took an on-stage selfie w\ our fearless & inspirational leader @Genedoc35 during today’s launch of @CanadianRDN! Thank you to all who came in-person and online. Now fill out the web form so we can move onward and upward together! @raredisorders #RareDiseaseDay2024 000
Ian Stedman @istedman.bsky.social · 29/02/2024Please follow Sylvie on Instagram! @raredisorders @CdnANetwork @CanadianRDN @CIHR_IG 000
Ian Stedman @istedman.bsky.social · 29/02/2024The incredible @Maureenchats takes the stage at @raredisorders #RareDiseaseDay2024 Summit. 000
Ian Stedman @istedman.bsky.social · 28/02/2024The Drugs for #RareDiseases Data Landscape, as presented by Tracy Johnson from @CIHI_ICIS at @raredisorders 2024 #RareDiseaseDay conference. #Canada4Rare @CanadianRDN @CdnANetwork 000
Ian Stedman @istedman.bsky.social · 24/02/2024I just realized that I didn’t actually post a true “in action” pic of Prof @effod. Here it is! @LincAlexLawTMU @OttawaHealthLaw 000
Ian Stedman @istedman.bsky.social · 16/01/2024The Canadian Rare Disease Network @CanadianRDN is now on Twitter/X and LinkedIn! We're still building our website, but big things are on the horizon. Please follow us so you can stay up-to-date and get involved :) 000
Ian Stedman @istedman.bsky.social · 25/12/2023We’re still recruiting! 🥳 This holiday szn, please pass around our survey exploring #youth perspectives on #AI in healthcare! #YouthEmpowerment #Bioethics #Research Youth get volunteer hours + their voice heard in this important conversation! redcap.link/ECH-Survey 000
Ian Stedman @istedman.bsky.social · 24/12/2023We’re still recruiting! 🥳 This holiday szn, please pass around our survey exploring #youth perspectives on #AI in healthcare! #YouthEmpowerment #Bioethics #Research Youth get volunteer hours + their voice heard in this important conversation! 000