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Ian Stedman

@istedman.bsky.social
444 followers 360 following 3.9K posts

Assoc. Professor, York University’s School of Public Policy and Administration. University Research Chair in Law, Policy and Personalized Healthcare.

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Ian Stedman @istedman.bsky.social · 10/05/2025
A couple of Dr Trish Caetano’s slides from today’s presentation at the Garrod Symposium at UBC. Takeaway: drugs for rare diseases can be expensive and budgets are thin [we all know this narrative]. So what do we need to do?
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Ian Stedman @istedman.bsky.social · 06/02/2025
Excited to be in the room as we celebrate @genomecanada.bsky.social’s 25th anniversary today. Of course all six regional Genome Centres also turn 25. And I’m told a big announcement is coming!!
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Ian Stedman @istedman.bsky.social · 17/12/2024
“…announces the launch of a strategic review of government operations and programs with a focus on expanding the use of Al in the public service to improve both efficiency and service delivery. The review will be led by the Al Secretariat…results… Budget 2025.” p176 budget.canada.ca/update-misea...
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Ian Stedman @istedman.bsky.social · 26/11/2024
From a presentation about the Quebec Rare Disease National Plan. See their website: rare.quebec
A PowerPoint slide that says: “Recruitment of patient partners and rare disease organizations. Please don’t hesitate to contact me: jade.falardeau@msss.you.qc.ca”
The bottom right corner of the slide has the “Quebec” logo and flag. A screenshot of what appears when you search on Google for the website: https://rare.quebec
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Ian Stedman @istedman.bsky.social · 26/11/2024
Happening now at #CORD conference, a powerful panel including some incredible patient advocates! #rarediseases Biba Tinga (Sickle Cell Assoc of Canada), Deanna Badiuk (Acromegaly Can/BC) & Susi Vander Wyk (CureSMA Canada)
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Ian Stedman @istedman.bsky.social · 26/11/2024
Followed by Trish Caetano from Canada’s Drug Agency and Mélanie Caron from INESSS (Institute national d’excellence en santé et en services sociaux - Quebec’s agency for Health Technology Assessment). #raredisease
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Ian Stedman @istedman.bsky.social · 26/11/2024
The Canadian Organization for Rare Disorders conference is underway in Montreal, with Health Canada’s Daniel MacDonald talking about the National Strategy. “95%, 700 days, $321K”
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Ian Stedman @istedman.bsky.social · 21/11/2024
It happened today.
Screen grab.
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Ian Stedman @istedman.bsky.social · 18/11/2024
The unstoppable Dr. Catherine Régis bringing us home as we wrap up the day at Queen’s Law. The busy whiteboard is a reflection of a great day of dialogue comparing Brazilian and Canadian approaches to Health AI!
Dr Catherine Régis, wearing black pants and a white sweater, stands between a busy white board and a large projection screen as she presents to an audience that can’t be seen on camera. The screen has a slide with the Queen’s Law logo and the words “Welcome” and “Comparison of Brazilian and Canadian Approached to the Regulation of Health AI”.
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Ian Stedman @istedman.bsky.social · 18/11/2024
SMU Dedman School of Law Professor @nathancortez.bsky.social walks U.S. carefully through the U.S.’ approach to regulation of medical devices w\ AI.
Professor Nathan Cortez stands to the right of a large white screen where his slideshow is being projected. He has dark hair and a full beard and is wearing jeans with a blue collared shirt and a dark blue blazer. The image in the screen is a publication from the U.S.’ FDA.
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Ian Stedman @istedman.bsky.social · 18/11/2024
Queen’s Law Dean (and Canada’s leading health law scholar) Colleen Flood, unpacks some of what she sees as being the real glaring problems in Health Canada’s proposed approach to regulating Health AI. Hopefully HC’s consultation report is released soon!
Queen’s Law Dean Colleen Flood stands at front of lecture hall in front of a large screen displaying a slideshow presentation. The slide on the screen is titled “Current gaps in regulation” and includes a list of gaps in Canada’s approach to the regulation of healthcare AI.
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Ian Stedman @istedman.bsky.social · 18/11/2024
Dr. Anna Goldenberg, co-lead of AI at SickKids is now leading the discussion at our Queen’s Law workshop comparing Canada’s and Brazil’s approaches to regulating healthcare AI!
Dr. Anna Goldenberg sits behind a desk with a “Queen’s University Law” banner and in front of a white board where the OECD definition of AI is written in blue marker.
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Ian Stedman @istedman.bsky.social · 18/11/2024
Learning now about Brazil’s digital health infrastructure and regulation of health AI. Thanks to Dr. Ana Estrella Haddad, who is Brazil’s National Secretary on Digital Health, Ministry of Health, for such an enlightening presentation!
Dr. Ana Estrella Haddad, who is Brazil’s National Secretary on Digital Health, Ministry of Health, stands behind a lectern and in front of a PowerPoint presentation projected onto the wall, at Queen’s University Law School. The title on the slide is “Self-declaration of race/colour, social name and address in the App.”
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Ian Stedman @istedman.bsky.social · 18/11/2024
At Queen’s Law for the day, connecting with colleagues from across Canada and Brazil to discuss the regulation of healthcare AI. The brilliant @teresascassa.bsky.social is getting us started with an overview of Canada’s broader AI regulation efforts!
Wearing a green blazer, Professor Teresa Scassa gives an academic talk while standing behind a lectern at Queen’s University Law and in front of a screen displaying her power point presentation. The screen says “Canadian Developments in AI Regulation”.
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Ian Stedman @istedman.bsky.social · 15/11/2024
Very cool to hear @cbcwhitecoat play our episode again yesterday. Those listening will have heard @NightShiftMD mention that an update episode is coming soon. There's lots to talk about in the rare disease space, so please do tune in for the update! (I will post when it is up)
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Ian Stedman @istedman.bsky.social · 14/11/2024
At the Federal Courts tonight for the Inaugural Justice Roger T. Hughes Memorial Lecture in Intellectual Property Law. Professor Pina D’Agostino getting things underway!
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Ian Stedman @istedman.bsky.social · 04/11/2024
New website - check it out!
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Ian Stedman @istedman.bsky.social · 02/11/2024
PaCER Training program for parents of children with rare disease. Become trained as a parent research partner through the @UCalgary virtual Patient and Community Engagement (PaCER) training certificate program starting Jan 2025! About PaCER program:
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Ian Stedman @istedman.bsky.social · 08/08/2024
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Ian Stedman @istedman.bsky.social · 07/08/2024
🤔🛝
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Ian Stedman @istedman.bsky.social · 07/08/2024
I think I found where the big outdoor slide is supposed to go at @YorkUniversity Markham campus. Can you spot it? You may have to zoom in.
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Ian Stedman @istedman.bsky.social · 25/07/2024
Hey @YorkULAPS students, there are still some spots left in Prof @MacSweeneyG's one-of-a-kind Fall seminar on Public Service and Political ethics! If you've read the news lately, you'll know this is a hot topic course & taking it could be your competitive adv'tge on the job mkt!
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Ian Stedman @istedman.bsky.social · 26/06/2024
There’s an ant inside my iMac (3.3 GHZ, i5, 2020) Is this a thing, @Apple?
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Ian Stedman @istedman.bsky.social · 03/06/2024
Link to budget release:
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Ian Stedman @istedman.bsky.social · 16/05/2024
Minister @VictorFedeli addresses the capacity crowd and has some fun taking jabs at the rowdy (chatty) left side of the room!
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Ian Stedman @istedman.bsky.social · 15/05/2024
At @LifeSciencesON #LSOAwards tonight. Capacity crowd of 600 people!
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Ian Stedman @istedman.bsky.social · 12/05/2024
Best news I've received in a long time! Sending my bank account login information right now!
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Ian Stedman @istedman.bsky.social · 06/05/2024
I attended the wonderful @CAFsociety #FamilyDay event in King City today, w\ my 11yo daughter. We connected w\ other families, clinicians & researchers. Tonight we take our next doses of #Ilaris to treat our #MuckleWellsSyndrome. @CdnANetwork @CanadianRDN @Novartis #RareDisease
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Ian Stedman @istedman.bsky.social · 05/05/2024
What an exciting international research initiative! #ConnectingJA @CanadianRDN @CAFsociety @Marshall_HEcon
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Ian Stedman @istedman.bsky.social · 05/05/2024
The incredible Dr. Deborah Marshall @Marshall_HEcon @UCalgary presenting research results from the PAVE project (about the socioeconomic impact of living with rare disease), alongside 5 wonderful patient partners! @CAFsociety #FamilyDay @CanadianRDN
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Ian Stedman @istedman.bsky.social · 08/04/2024
Getting ready for its big day.
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Ian Stedman @istedman.bsky.social · 21/03/2024
Celebrating the incredible @OsgoodeNews Prof. Pina D’Agostino tonight. @CIBPAtoronto Woman of the Year!! @YorkUniversity @YorkUPresident @YorkUProvost @ConnectedMinds3
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Ian Stedman @istedman.bsky.social · 13/03/2024
It's finally time! We are looking for 4 #PatientPartners to join our Pan-Canadian Genome Library team. Reach out to me if you have questions. More info and apply here:
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Ian Stedman @istedman.bsky.social · 07/03/2024
Our closing panel, with a few familiar faces! #BracingForImpact2024 @OsgoodeNews @AHGaon @NadineLetson @jon_penney @CIPO_Canada @PartnershipAI & Prof Pina D’Agostino!! @ConnectedMinds3 @CAISatYorkU @YUResearch
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Ian Stedman @istedman.bsky.social · 07/03/2024
Lunchtime keynote on AI Governance by Hon. @DavidLametti at #BracingForImpact2024
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Ian Stedman @istedman.bsky.social · 07/03/2024
Panel 2: “The Future of Works: Media, the Arts, and AI”. #BracingForImpact2024
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Ian Stedman @istedman.bsky.social · 07/03/2024
Panel 1: “Technology for Good? The Societal Impacts of AI and Innovation” #BracingForImpact2024
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Ian Stedman @istedman.bsky.social · 07/03/2024
Bracing for Impact 2024 is underway. Opening remarks complete and now we’re moving on to the first panel!
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Ian Stedman @istedman.bsky.social · 01/03/2024
On top of being in Ottawa for #RareDiseaseDay and the launch of @CanadianRDN, I was also able to grab a bite with Charlie “National Treasure” Feldman!! In case you didn’t know, @ParlCharlie is hilarious+++, and not just when he’s “nerding out” with the Hansard posts :) 🙏🙏🙏CF!
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Ian Stedman @istedman.bsky.social · 29/02/2024
I took an on-stage selfie w\ our fearless & inspirational leader @Genedoc35 during today’s launch of @CanadianRDN! Thank you to all who came in-person and online. Now fill out the web form so we can move onward and upward together! @raredisorders #RareDiseaseDay2024
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Ian Stedman @istedman.bsky.social · 29/02/2024
Please follow Sylvie on Instagram! @raredisorders @CdnANetwork @CanadianRDN @CIHR_IG
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Ian Stedman @istedman.bsky.social · 29/02/2024
The incredible @Maureenchats takes the stage at @raredisorders #RareDiseaseDay2024 Summit.
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Ian Stedman @istedman.bsky.social · 29/02/2024
Connect with us! #RareDiseaseDay2024
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Ian Stedman @istedman.bsky.social · 28/02/2024
The Drugs for #RareDiseases Data Landscape, as presented by Tracy Johnson from @CIHI_ICIS at @raredisorders 2024 #RareDiseaseDay conference. #Canada4Rare @CanadianRDN @CdnANetwork
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Ian Stedman @istedman.bsky.social · 24/02/2024
I just realized that I didn’t actually post a true “in action” pic of Prof @effod. Here it is! @LincAlexLawTMU @OttawaHealthLaw
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Ian Stedman @istedman.bsky.social · 10/02/2024
Happy Lunar New Year!! 🐉🧧💰🍾😋
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Ian Stedman @istedman.bsky.social · 25/01/2024
Wouldn’t miss it!
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Ian Stedman @istedman.bsky.social · 16/01/2024
The Canadian Rare Disease Network @CanadianRDN is now on Twitter/X and LinkedIn! We're still building our website, but big things are on the horizon. Please follow us so you can stay up-to-date and get involved :)
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Ian Stedman @istedman.bsky.social · 25/12/2023
We’re still recruiting! 🥳 This holiday szn, please pass around our survey exploring #youth perspectives on #AI in healthcare! #YouthEmpowerment #Bioethics #Research Youth get volunteer hours + their voice heard in this important conversation! redcap.link/ECH-Survey
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Ian Stedman @istedman.bsky.social · 24/12/2023
We’re still recruiting! 🥳 This holiday szn, please pass around our survey exploring #youth perspectives on #AI in healthcare! #YouthEmpowerment #Bioethics #Research Youth get volunteer hours + their voice heard in this important conversation!
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