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Ian

@ipilko.bsky.social
67 followers 75 following 112 posts

Disability rights activist, talking hard to hear truth to power & holding them accountable. Warm polite nag, better w/caffeine. Vale octogenarian 4ever stubborn

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Ian @ipilko.bsky.social · 29/03/2026
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Ian @ipilko.bsky.social · 21/03/2026
Paging @maffygirl.medsky.social just the one!!!
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Ian @ipilko.bsky.social · 02/01/2026
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Ian @ipilko.bsky.social · 25/12/2025
It's officially food coma/couch naps time #Christmas #Christmas2025 #Australia
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Ian @ipilko.bsky.social · 25/12/2025
#bluechristmas #grief #loss for those with a empty seat at the #Christmas table.
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Ian @ipilko.bsky.social · 01/12/2025
I’ll be quiet here for a bit. Had something happen in the past week. Seeking professional support assistance. I put myself out there as a Justice of the Peace (JP) for a number of communities. I’m human and it’s not without significant personal impact on me.
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Ian @ipilko.bsky.social · 30/11/2025
Happy “whamageggen” to all those who celebrate.
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Ian @ipilko.bsky.social · 29/11/2025
I'm human, I volunteer as a justice of the peace (JP), something happened this morning, and I'm hoping the council I was volunteering for has a volunteer equivalent EAP.
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Ian @ipilko.bsky.social · 07/11/2025
Struggling to manage my pain, utter complete exhaustion layered with extreme fatigue. Well beyond tears on the pain scale. This is a multi day flare up.
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Ian @ipilko.bsky.social · 05/11/2025
My body is being a jerk, it’s freaking out my medical team and I.
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Ian @ipilko.bsky.social · 06/10/2025
Looking like I need to move here from The bad place, gosh it REALLY has become a cesspool especially in the last few hours/days. “Freedom of speech” if views aline with platform owner….
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Ian @ipilko.bsky.social · 03/10/2025
on my soapbox again, "Before sending this feedback, I have read your Community Engagement Plan 2025/26 and remind you of your action plan item of inclusion."
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Ian @ipilko.bsky.social · 03/10/2025
Well well well! I’ve been asked if I’m media trained….. well now I actually am! (Apparently i presented in a recent interview as media trained, until today i wasn’t formerly!!!) Watch this space…
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Ian @ipilko.bsky.social · 11/09/2025
So I've finally been able to download my first ever #NDIS forplan from myndisportal. The plan has been written and funded as per the meeting. I am lost of words, that and I can't see from the tears of relief streaming downn my face. Absolutely life changingg.
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Ian @ipilko.bsky.social · 14/08/2025
I have a complicated few days ahead. I’m already having unhelpful trauma/ptsd flash backs. Critical (crunch point) is Saturday afternoon/night. I may or may not post/share, focused on pure survival…
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Ian @ipilko.bsky.social · 01/08/2025
Heading home in tears from the absolute disaster of an evening. Worst accessibility cumulative personal experience anywhere in the world.
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Ian @ipilko.bsky.social · 22/07/2025
You know you've online shopped hard, when Startrack send you a truck with a powered tailgate and the truck reverses in!
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Ian @ipilko.bsky.social · 17/07/2025
I'm trying to find a new #GP in the North Eastern Suburbs of #Adelaide I'm a disability support pensioner with a unique history/case mix. Multiple doctors/specialists say I'm a career standout patient (probably not a good thing) The cost to "interview" to check compatibility...
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Ian @ipilko.bsky.social · 12/07/2025
Only ever had HFC/FTTN @NBN_Australia until a few days ago when I upgraded to "full fibre" #FTTP the low latency of fibre is amazing, the additional speed to handy, but the responsiveness of #EVERYTHING# is impressive. Finally giving my full @Ubiquiti #UNIFI #UDMPRO a solid workout!
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Ian @ipilko.bsky.social · 06/07/2025
Massive day ahead tomorrow going to “suit up” with a neck tie,‘I’ve narrowed it down to these….
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Ian @ipilko.bsky.social · 16/06/2025
How on earth am I so time poor?
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Ian @ipilko.bsky.social · 07/06/2025
"Desserts, Sewing, Business, Management" Did you set this up @liangrhea.bsky.social spotted in @rundlemall #Adelaide #Library #CityOfAdelaide
a Library section "NON FICTON" shelf
Desserts
Sewing
Business
Management
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Ian @ipilko.bsky.social · 07/06/2025
Got myself stuck in a shopping centre/area I’m not familiar with. Managed to get some over the counter support from a pharmacy but yikes…
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Ian @ipilko.bsky.social · 04/06/2025
Had someone recently mention in relation to personal energy/capacity “I’m running on fumes” my only thought of what comes next? I’m not running on fumes I’m looonnnggggg past that!
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Ian @ipilko.bsky.social · 26/05/2025
Took a decent tumble in the early hours of yesterday morning, I've got to find a better way of falling if that's what I'm going to keep doing. I can't sit right now due to pain, it's a pain in the arse! (literally!)
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Ian @ipilko.bsky.social · 22/05/2025
#movinghouse Starting to understand why I'm so mentally and physically beyond exhausted. Month to date, I've driven 1324.7km, not including taxis, plus the two hire-by-the-hour larger vehicles I've used. Ultimate juggling act with chronic health issues, which are made worse by "overdoing it" 1/
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Ian @ipilko.bsky.social · 01/05/2025
Anyone else a Desky fan? I’ve ordered a few samples to physically help me work out what to order. The far left is “Finish: Pheasant” the rest should be fairly clear. The decision fatigue is real, big few weeks ahead!
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Ian @ipilko.bsky.social · 29/04/2025
Very close to literally signing a miracle opportunity. Look forward to sharing the update when it’s actually real.
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Ian @ipilko.bsky.social · 29/04/2025
This seems quite ironically poetic, Would have been even more so had the wheels fallen off!
Photo of a fallen over household garage bin
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Ian @ipilko.bsky.social · 16/04/2025
Don’t begin to think I’m immune to having IT issues. Bought a new label printer for the move and went a bit fancy and started off backfiring. Machine “auto detects” what labels you put in it, until it doesn’t.
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Ian @ipilko.bsky.social · 13/04/2025
I need to move house urgently. I have an inspection of where I hope to move to on Thursday. How I physically move? NFI I can barely self physically move/think right now…. #help
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Ian @ipilko.bsky.social · 26/03/2025
Had 5 paramedics visit me late Monday night (very early AM Tuesday)to extricate me under c-spine precautions after a fall. 2hrs on the floor, Ramped for 3hrs, 10hrs forced laying on my back. Thankfully nothing broken, incredibly sore still.
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Ian @ipilko.bsky.social · 24/03/2025
I'm going to subtweet myself "If I told you, you wouldn't believe me" ain't life fcked.
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Ian @ipilko.bsky.social · 21/03/2025
My life is at polar extremes, I'm both my local council's "Citizen of the Year for 2025" while also "Catagory 1" Registered with #HousingSA (the highest priority category) Housing uncertainty, impacting me ways I didn't know exist.
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Ian @ipilko.bsky.social · 24/02/2025
in a bother, I need to seek care, but pervious trauma is stopping me. Evening thinking of calling that number for help, I get trauma flashback.
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Ian @ipilko.bsky.social · 10/02/2025
Bin night 🙈
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Ian @ipilko.bsky.social · 30/01/2025
Today’s poetry Friday.
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Ian @ipilko.bsky.social · 30/01/2025
Mentally & emotionally, trashed having just read multiple new deficient-based focused reporting about my life. There's got to be a better way of determining systemic support eligibility. Definitely not "ok"
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Ian @ipilko.bsky.social · 29/01/2025
Pro tip, when doing self service photo prints with counter collection, check the damm size you tap on screen. Turns out 12x8 also comes as 12x18' and there's a bit of a size difference. Not to mention Officeworks don't actually sell frames for 12x18' prints!
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Ian @ipilko.bsky.social · 28/01/2025
I rapidly need to find somewhere else to live and I'm not coping with "surviving the day" (most days) right now. Completely overwhelmed breaking point.
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Ian @ipilko.bsky.social · 26/01/2025
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Ian @ipilko.bsky.social · 25/01/2025
Today
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Ian @ipilko.bsky.social · 19/01/2025
“This is presented to someone making an extraordinary contribution to the community” A very odd week for me ahead
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Ian @ipilko.bsky.social · 14/01/2025
Those close to know me will know the context. But how do you personally deal with impostor syndrome in large crowds when you're the centre of attention (introvert who likes to be in the background) I have just over a week to strategise!
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Ian @ipilko.bsky.social · 03/01/2025
Organising a catchup with friends I've not seen in years. As part of the arrangements I'm trying to work out what physical accessibility looks like. I open with "I can walk... however..." Never take walking for granted, I sure don't and I've had to relearn how to multiple times.
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Ian @ipilko.bsky.social · 02/01/2025
Got gifted an amazing Christmas hamper though a local community organisation. It is well put together. I’m trying to cook one of the meals they have included the majority of the ingredients for. I knew it was going to be challenging,‘it’s broken me, I can’t stop crying and I feel absolutely useless.
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Ian @ipilko.bsky.social · 02/01/2025
Happy New Year from the South Australian Government #PWD who hold a Companion Card can get a free #MLAK for access to accessible restrooms especially changing places. Save yourself $25 don't get caught short masterlocksmiths.com.au/mlak-order-f... ping @criprights.bsky.social
masterlocksmiths.com.au
MLAK order form for South Australia Companion Card holders - Master Locksmiths
The South Australian Office for Disability and the South Australian Companion Card are partnering with the Master Locksmiths Association of Australasia (MLAA) to provide one free Master Locksmith Acce...
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Ian @ipilko.bsky.social · 01/01/2025
"I remember last year, like it was only yesterday" ping @drericlevi.bsky.social
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Ian @ipilko.bsky.social · 30/12/2024
Hey @drericlevi.bsky.social When you ask for someone's name, you're essentially asking them what noise you should make to get their attention.
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Ian @ipilko.bsky.social · 25/12/2024
Today can get in the bin, it appears to have broken me
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