iiinova — where your digital self keeps evolving

Invisibly Chronic @invisiblychronic.bsky.social · 12/04/2025

Thank you! It's nice to be seen/heard. <3 <3

Invisibly Chronic @invisiblychronic.bsky.social · 12/04/2025

Hi there - to all the nobody who actually sees and reads my posts. Chronic health flares cause brain fog, and ADHD exacerbates it. So here I am four months later remembering that this account even exists. #brainfog #chronicillness #adhd #invisibledisability #i'mnotjustforgetful

1101

Invisibly Chronic @invisiblychronic.bsky.social · 16/12/2024

Far past time, actually. In fact, I switched to the fancy holiday version without even realizing it. #anxiety #mentalillness #exhausting

000

Invisibly Chronic @invisiblychronic.bsky.social · 14/12/2024

Even with jobs we can do on our own hours at home (i do sewing and alterations), there are times chronically ill people can't work because of symptoms flaring up. #chronicillness #ihatefeelingsick #nopto #nauseasucks

010

Invisibly Chronic @invisiblychronic.bsky.social · 10/12/2024

It's led to me learning more about how politics affect this type of thing, to sitting out when I want to be protesting or volunteering or something. Having to advocate for myself uses energy I'd like to put toward others. I think it's made me more determined but fear I'm also less effective.

000

Invisibly Chronic @invisiblychronic.bsky.social · 10/12/2024

Insomnia sucks. And it's far more common with chronic illness and mental illness of all sorts than most people realize. #Insomnia

010

Invisibly Chronic @invisiblychronic.bsky.social · 09/12/2024

Celiac makes it so hard to go out with family and friends. I've been asked to choose a restaurant for Christmas lunch with my family of 16, and while I'm grateful they understand and want to accommodate me, it's a lot of pressure.

010

Reposted by Invisibly Chronic

Sarah Boon - Author @saraheboon.bsky.social · 05/12/2024

There’s something ironic about people claiming some autistic people are “faking their autism”. As many of us were “faking” being normal for so long.

32730114

Invisibly Chronic @invisiblychronic.bsky.social · 05/12/2024

It's a reference to how often chronically ill people have "normal" lab results and our doctors act like it's great news and send us away still having no answers for our symptoms or treatments to help us.

020

Invisibly Chronic @invisiblychronic.bsky.social · 05/12/2024

and yet again I have to cancel something I was looking forward to because my immune system is so busted that a common cold knocks me out for weeks :( #chronicillness #immunesystem #missingoutonlife #beingsicksucks #tiredofsnotnow

000

Invisibly Chronic @invisiblychronic.bsky.social · 05/12/2024

makes me wish it weren't a 6 hour drive for me to get to Michigan!

110

Invisibly Chronic @invisiblychronic.bsky.social · 04/12/2024

A really easy to follow explanation of ADHD thinking and what causes overwhelm and lack of action. #ADHD #ADD #autism #AuDHD #neurodivergent

fb.watch

010

Invisibly Chronic @invisiblychronic.bsky.social · 04/12/2024

One of the affects of having multiple chronic issues, especially when any of them fall under the #autoimmune category, is that it makes acute illnesses (cold, flu, etc.) harder on us. An otherwise healthy person often continues their day as usual, while #chronicillness + sick = absolute exhaustion.

051

Reposted by Invisibly Chronic

Lady Diana @mladydiana.bsky.social · 02/12/2024

From Lupie Linda #Fibro #ChronicIllness

052

Invisibly Chronic @invisiblychronic.bsky.social · 02/12/2024

See also: have family including 3 young grandkids visit for a week and a family of 4 join for a couple evenings. I may not move till Friday.

000

Invisibly Chronic @invisiblychronic.bsky.social · 02/12/2024

Sharing to spread awareness. I have nearly 2 dozen chronic/invisible illnesses, and hadn't heard of this one. So many rare ones like this get overlooked. #chronicillness #disability #invisibleillness

100

Invisibly Chronic @invisiblychronic.bsky.social · 02/12/2024

It will cost you shallow friends who don't share your principles and values, but it will lead you to more like-minded friends and deeper connections with them.

010

Reposted by Invisibly Chronic

MarcoMaps Bernardini @marcomaps.bsky.social · 02/12/2024

Note to non-blind or non-eyesight impaired folks. ALT-TEXT IS NOT A VEHICLE FOR YOUR JOKES. USE ALT-TEXT TO CONVEY PICTURE INFORMATIONS. Stop, that's it.

532072

Invisibly Chronic @invisiblychronic.bsky.social · 02/12/2024

Currently fighting a cold which causes that same effect for me. And then it's hard to eat or take meds because I can't smoke enough to ease the nausea. Here's hoping we can both breathe easier soon.

010

Invisibly Chronic @invisiblychronic.bsky.social · 01/12/2024

Much like deep breathing or gentle consistent movement or elderberry syrup, it can help some aspects, but doesn't cure anything, and especially not chronic illness and genetic disorders.

120

Invisibly Chronic @invisiblychronic.bsky.social · 29/11/2024

Wonderful meatsuits, and I love having them visit, and it is also sometimes overwhelming to my system.

000

Invisibly Chronic @invisiblychronic.bsky.social · 29/11/2024

Oh maybe this is the purpose of the mental box that my therapist wanted me to create, where I can put aside things I can't deal with yet to keep them safe until my next therapy appointment. I don't know if this qualifies but it's at least similar in purpose and action.

020

Invisibly Chronic @invisiblychronic.bsky.social · 29/11/2024

If I started crying right now, I might not stop for a while, and it would make my head hurt more, increase the snot factor by unknown amounts, turn up the nausea again, boost the anxiety of ruining things, and exhaust me. So I step away and try to ignore it.

110

Invisibly Chronic @invisiblychronic.bsky.social · 29/11/2024

And I feel the emotions build and the tears start to form, that burning behind my nose that says I'm gonna cry, but I guess I can be grateful in a way that I've learned over the years how to swallow those tears and push through as often as possible.

110

Invisibly Chronic @invisiblychronic.bsky.social · 29/11/2024

And I'm putting it here because I'm hoping a thread of summing up my day dealing with #chronicillness while family is staying with us and others are joining us in a few hours and I just want to host a nice dinner like i used to.

110

Invisibly Chronic @invisiblychronic.bsky.social · 29/11/2024

Trying so hard not to "ruin" things, but just as I try to get to work again a strong smell turns up the nausea. So I'm hiding again (overstimulation is not helping, and grandkids are sensory output in a meatsuit), and just hoping the food can actually get done close to on time.

210

Invisibly Chronic @invisiblychronic.bsky.social · 29/11/2024

We mask our symptoms & reactions from others all the time. I just realized I'm masking from myself now. #chronicillness is slowing down my cooking for our harvest dinner, & I'm pushing down my feelings because strong emotional reactions will only make the physical things worse right now. #disability

140

Invisibly Chronic @invisiblychronic.bsky.social · 25/11/2024

Why is it so effing hard to shower sometimes? And why don't we talk about how chronic illness affects things like that?

020

Invisibly Chronic @invisiblychronic.bsky.social · 25/11/2024

Just FYI, if you were expecting there to be some sort of schedule or consistency to the posts here, you must not know much about chronic illness. Between feeling bad physically and feeling bad mentally and having poor memory, I just post when I can and think about it. #chronicillness #disability

040

Invisibly Chronic @invisiblychronic.bsky.social · 22/11/2024

When your list of chronic illnesses is so long you can't remember them all, and they get tired of taking turns flaring up so they decide to have a party, but a gathering of chronic illness flares is not a fun party, at least not when your body the venue. #disability #chronicillness

040

Invisibly Chronic @invisiblychronic.bsky.social · 22/11/2024

Audiobooks count as reading. There are so many reasons one might choose audiobooks: to read while driving or running or bicycling; to read while cleaning or cooking or showering; to read without lights on; because they're unable to comfortable hold a book; poor vision; or maybe they just want to.

010

Invisibly Chronic @invisiblychronic.bsky.social · 22/11/2024

I was a psych inpatient for a bit many years ago, and I remember a fellow patient complaining about the safety mirror in her bathroom "because I'm already seeing shit, i don't need a funhouse mirror to make it worse".

000

Reposted by Invisibly Chronic

Invisibly Chronic @invisiblychronic.bsky.social · 20/11/2024

And having multiple ones just makes it all add up in completely unpredictable ways. Hi! You've stumbled upon Invisibly Chronic, where I'll share original and other content related to having Chronic Illnesses which are often also Invisible to those around us. Like it? Share your story in comments!

001

Invisibly Chronic @invisiblychronic.bsky.social · 20/11/2024

001