iiinova — where your digital self keeps evolving

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Adam @abrokenbattery.bsky.social · 27/09/2026

“It has sent many people from having mild or moderate cases to severe #MECFS… it has turned people housebound, bedbound. It has completely destroyed their lives.” @georgemonbiot.bsky.social on the harm caused by graded exercise therapy (GET) for #MECFS.

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George Monbiot @georgemonbiot.bsky.social · 24/09/2026

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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callforphaction.bsky.social @callforphaction.bsky.social · 29/08/2026

Yet another reason to #CallForPublicHealthAction 👇 "The risk was markedly elevated in the first 3 months after infection (hazard ratio [HR] 7.77), then declined but remained above baseline through 12 months." Take care of your ❤️ — wear a 😷. www.cell.com/iscience/ful...

cell.com

Thrombotic risk trajectories in patients with coronary artery disease before and during COVID-19

Virology; Disease; Clinical syndrome; Medical research; Risk factor

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Inneiennyfas @inneiennyfas.bsky.social · 19/07/2026

It feels unreal to me that none of these measures have been implemented yet. If this pandemic isn’t enough to make us prioritize these common-sense changes — for our own protection and wellbeing — what will be? #CallForPublicHealthAction #COVIDIsntOver #CleanAir

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Inneiennyfas @inneiennyfas.bsky.social · 06/06/2026

"Current diagnostic coding captured fewer than one-half of the cases, obscuring a substantial chronic disease burden." 👇

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callforphaction.bsky.social @callforphaction.bsky.social · 18/04/2026

Another week and we're still here, demanding an improved response to the current public health crisis. Endurance is vital — don't give up! There is strength in knowing that you're fighting for the right things. #CallForPublicHealthAction

Demonstrating for:

1. Mandatory respiratory protection (FFP2/FFP3/N95/N99) in healthcare and social care to ensure patient safety for all.

2. High-quality air in all schools, other public buildings, and workplaces.

3. Full access to COVID-19 vaccines for all age groups for whom the vaccines are approved.

4. Adequate care and biomedical research for Long COVID, ME/CFS, and other infection-associated chronic conditions.

5. Honest, science-based public education about the short- and long-term risks of infection, and how to best protect each other.

Do you agree? Like, repost or quote-post, tagging #CallForPublicHealthAction

@callforphaction.bsky.social

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nervbueddel @nervbueddel.eurosky.social · 15/03/2026

📣 #callforpublichealthaction Virtual demonstration for #CleanAir + medical care for #PAIS + #ME/CFS! Week 6️⃣2️⃣ It’s #LongCOVIDAwarenessDay. And on this day, we must not forget that the fight for recognition of post-acute infection syndromes + ME has been going on for decades. Reskeet this demo! 🤍

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callforphaction.bsky.social @callforphaction.bsky.social · 15/03/2026

On this #LongCOVIDAwarenessDay we think of those whose lives have been changed beyond recognition by COVID -- those who are invisible and absent from society because they cannot leave their beds or homes. Please give them your support today. #LongCOVIDAwareness #CallForPublicHealthAction

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Inneiennyfas @inneiennyfas.bsky.social · 31/01/2026

📢 #CallForPublicHealthAction I’m also demonstrating for the right to - #CleanAir - #InfectionControl - adequate care & biomedical research for #LongCovid/#MECFS Please make your voice heard for those who are too unwell to protest. #CovidIsNotOver

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Inneiennyfas @inneiennyfas.bsky.social · 19/01/2026

They should call it post-exertional deterioration instead of post-exertional malaise. ‘Malaise’ makes it sound like merely an unpleasant feeling rather than an actual physical blow to the body.

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Inneiennyfas @inneiennyfas.bsky.social · 09/01/2026

"So currently, we are protecting HCWs and their patients against a droplet in an ocean of aerosols. This inadequacy would not be tolerated in any other industry — nor should it be in healthcare." Exactly. Protection from airborne disease is a workers' rights issue. #CallForPublicHealthAction

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Inneiennyfas @inneiennyfas.bsky.social · 06/01/2026

ME/CFS study among the 2025 NIH Research Highlights 👍

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Inneiennyfas @inneiennyfas.bsky.social · 05/01/2026

I’m seeking official or scientific sources stating that reinfections (or infections in general) are a risk factor for deterioration in #MECFS or #LongCOVID. Any tips would be appreciated! 🙏

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Inneiennyfas @inneiennyfas.bsky.social · 05/01/2026

Please sign this petition even if you're not a Swedish citizen! Our very bad national treatment guidelines for #LongCOVID, #MECFS and other post-infectious illnesses need to be withdrawn! There's an English description on the petition web page, and you can sign no matter your nationality.

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nervbueddel @nervbueddel.eurosky.social · 23/11/2025

📣 #callforpublichealthaction Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS! week 5️⃣0️⃣ ❗ Journalism must stop promoting false, outdated medical knowledge about #PAIS and #ME/CFS from dogmatic medical professionals through false balance! This destroys medical progress!

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Adam @abrokenbattery.bsky.social · 21/11/2025

Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.

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callforphaction.bsky.social @callforphaction.bsky.social · 11/10/2025

Well, it doesn't have to be like this. This is a choice we're making by not cleaning the indoor air or informing the public about the need for infection control. Moreover, these numbers also mean a new, year-round baseline of chronic illness. This is not sustainable! #CallForPublicHealthAction

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Freulingskind @freulingskind.bsky.social · 10/10/2025

📢 #CallForPublicHealthAction I’m demonstrating virtually for the right to - #CleanAir - #InfectionControl - adequate care & biomedical research for #LongCovid/#MECFS #CovidIsNotOver #MaskUp #CovidCautious

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nervbueddel @nervbueddel.eurosky.social · 09/10/2025

📣 #callforpublichealthaction Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS! week 4️⃣6️⃣ While governments, for capitalist reasons, fantasize that ME/CFS care is "comprehensively secured," the reality for ME/CFS sufferers is completely different. Support us with Reskeet! 🤍

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George Monbiot @georgemonbiot.bsky.social · 08/10/2025

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...

theguardian.com

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome

Research could offer hope for ME patients – but some experts urge caution and say more studies needed

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Inneiennyfas @inneiennyfas.bsky.social · 06/10/2025

“Study challenges notion that Covid is ‘mild’ for children.” You mean, just like EVERY OTHER STUDY on Covid in children? This shouldn’t be framed as a surprise, or even news, but as established fact. The real question is why we’re still not trying to stop it. www.independent.co.uk/news/health/...

independent.co.uk

Study challenges notion that Covid is ‘mild’ for children

More than 6 million American children suffer from long Covid which can lead to life-threatening complications

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Inneiennyfas @inneiennyfas.bsky.social · 28/09/2025

A presentation that lays out some of the harms associated with the BPS model and the psychologisation of ME, Long COVID, etc., and why criticism of it cannot be reduced to "patients just don't want to be associated with psychological illness".

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callforphaction.bsky.social @callforphaction.bsky.social · 27/09/2025

📢 #CallForPublicHealthAction Acknowledging healthy indoor air as a human right is a huge step in the right direction! 🙏 Above this, we just need a few other things 😉👇

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Inneiennyfas @inneiennyfas.bsky.social · 24/09/2025

#VioletAffleck speaking at the UN meeting "Healthy Indoor Air: A Global Call to Action", saying all the things that need to be said. The knowledge, passion, brains and determination of this young woman are amazing. She should be put in charge of public health everywhere. #CallForPublicHealthAction

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nervbueddel @nervbueddel.eurosky.social · 15/09/2025

📣 #callforpublichealthaction Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS! week 4️⃣3️⃣ It is time for #PAIS and #ME/CFS to be discussed in the social sciences as well. www.blaetter.de/ausgabe/2025... Support us with Reskeet!

blaetter.de

Vulnerabilität als Politikum

Vor 70 Jahren lud Edward Steichen ins Museum of Modern Art ein. Der Direktor für Fotografie hatte mit seinem Team mehr als 500 Arbeiten ausgewählt und präsentierte diese unter dem Titel „The Family of...

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Inneiennyfas @inneiennyfas.bsky.social · 01/09/2025

📢 #CallForPublicHealthAction I'm also demonstrating for the right to clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for LC & ME. Because #CovidIsNotOver and #CovidIsAirborne.

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Inneiennyfas @inneiennyfas.bsky.social · 30/08/2025

Actual public health messaging 👏🙏 It's always been this easy — most authorities just choose not to do it. #MaskUp #COVIDIsntOver

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Galina Esther Shubina, my coffee is my own @galsh.bsky.social · 23/08/2025

I really wish the Swedish press would understand how platforming or referring to Martin Kulldorff is something that only right wing nuts do in US. Yes, he's Swedish. He's also currently sitting in US government platforming RFK Jr's antivax agenda.

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Adam @abrokenbattery.bsky.social · 11/08/2025

🧵For decades, parents of children with #MECFS have faced false accusations of Fabricated or Induced Illness It’s like being committed to a psychiatric hospital when you’re not mad… easy to throw around, very difficult to disprove — Clip - Dr Nigel Speight, Panorama (1999)

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nervbueddel @nervbueddel.eurosky.social · 08/08/2025

Today is #SevereMEday. It commemorates those most severely affected by #ME/cfs. Who suffer the most from the continuing denial of care and stigmatization. Today I wish above all for #moresolidarity and less repression of those not affected. Take a look and show solidarity! #callforpublichealthaction

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Tom Kindlon @tomkindlon.bsky.social · 06/08/2025

New press release: "Key genetic differences found in people with ME/CFS" www.ed.ac.uk/news/key-gen... "At least two of the genetic signals relate to how the body responds to infection" #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Key genetic differences found in people with ME/CFS
Scientists have discovered that people diagnosed with ME/CFS have significant differences in their DNA, offering the first robust evidence that genes contribute to a person’s chance of developing the disease.

Photo: Older woman pictured from behind, sat on a bed looking out of a window

Initial findings have uncovered eight areas of genetic code in people with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) that are markedly different to the DNA of people without the condition.

Results from the landmark DecodeME study, the largest of its kind in the world, provide a major step forward in understanding the biological roots of ME/CFS and suggest that both the immune system and nervous system are involved in its development, experts say.

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nervbueddel @nervbueddel.eurosky.social · 02/08/2025

📣 #callforpublichealthaction Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS! week 3️⃣7️⃣ Viruses can trigger the development of cancer. Therefore, clean the air so no more cloaca to breathe! Reskeets and quote posts are very welcome! 🤍 www.nature.com/articles/d41...

nature.com

‘Sleeping’ cancer cells in the lungs can be roused by COVID and flu

Inflammation from the respiratory infections seems to be the culprit, study in mice finds.

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Магдалена Хорват 😷 @magdalenahorvat.bsky.social · 02/08/2025

💯 #CallForPublicHealthAction & ICYMI this by the awesome @juliadoubleday.bsky.social: "unfortunately, we have a public [...] unaware of the problem, thanks to the tireless efforts of our political leaders [...] who pushed for a 'new normal' of forever COVID" "...what can we do about it anyway?" 👇

thegauntlet.news

What would an adequate COVID response look like?

Ok, COVID is a problem. What can we do about it anyway?

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Inneiennyfas @inneiennyfas.bsky.social · 30/07/2025

Starting to doubt that a treatment or cure will come soon enough for me to witness it, and that's a really sad thought.

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nervbueddel @nervbueddel.eurosky.social · 26/07/2025

📣 #callforpublichealthaction We will not give in and will continue to demonstrate until, for example, the German Society of Neurology finally removes its dogmatic anti-scientific stance on the psychologization of #ME/cfs! Week 3️⃣6️⃣ Reskeets and quote posts are very welcome! 🤍

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Adam @abrokenbattery.bsky.social · 22/07/2025

Full article in the Times My daughter died from ME. This new plan fails her and others like her - Maeve died at 27 from severe myalgic encephalomyelitis. What’s been published after years of waiting is little more than warm words archive.ph/2025.07.21-2...

archive.ph

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Kerstin Sailer @kerstinsailer.bsky.social · 19/07/2025

If we've learnt anything from the Covid pandemic, it should be that we need to continue to look after each other. We demand: 😷 Masks in care spaces 🌬️ Clean air in public buildings 💉 Access to vaccines 🔬 Research 📢 Open communication #LongCovid #CovidIsNotOver #CallForPublicHealthAction

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Inneiennyfas @inneiennyfas.bsky.social · 19/07/2025

🧵Today marks the 1-year anniversary of the #CallForPublicHealthAction demonstration 🥳🎂 and we're celebrating by making a few updates! Most importantly, we've created an account 👇 dedicated to the demonstration, and our plan is to post from this account once a week. >>

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Ani @randiani.bsky.social · 18/07/2025

Day 2️⃣7️⃣2️⃣ and I continue to #CallForPublicHealthAction with friends outside the 🇨🇦 🇸🇪 🇩🇪 🇬🇧 🇺🇲 parliaments for the right to cleaner air, vaccines, evidence-based infection control, public education, and healthcare and biomedical research for PostCovid and ME/CFS! #VirusesNeedYou #WearARespirator

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Freulingskind @freulingskind.bsky.social · 17/07/2025

I’m demonstrating virtually outside the 🇩🇪 @bundestag.de. Day 2️⃣8️⃣4️⃣ 📢 #CallForPublicHealthAction 📢 Demonstration for the right to #CleanAir, vaccines, evidence-based infection control, scientifically sound public education, adequate care & biomedical research for #LongCovid / #MECFS

Image of a demo sign with the text:

1. That respiratory protection (FFP2/FFP3/N95/N99) be made mandatory in healthcare and social care, just as hand hygiene is today, to ensure patient safety for all.
2. That schools and other public buildings be guaranteed the same high standard of air quality that politicians have already arranged for themselves with tax money.
3. That COVID-19 vaccines be made fully available to all age groups for whom the vaccines are approved.
4. Adequate care and biomedical research for Long COVID, ME/CFS, and other infection-associated chronic conditions.
5. Honest, scientifically sound public education about the risks of infection and how best to protect each other.
If you want this too, you can help boost or join the demonstration by quote-tweeting (photo is of course optional!) and tagging #CallForPublicHealthAction @inneiennyfas.bsky.social

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Inneiennyfas @inneiennyfas.bsky.social · 17/07/2025

📢 Online demonstration, day 3️⃣5️⃣3️⃣. #CallForPublicHealthAction Demonstrating outside the 🇸🇪 parliament alongside friends in 🇩🇪🇨🇦🇬🇧🇺🇸, for clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for Long COVID & ME. @sverigesriksdag.bsky.social

Demands:

1) That respiratory protection (FFP2/FFP3/N95/N99) be made mandatory in healthcare and social care, just as hand hygiene is today, to ensure patient safety for all.

2) That schools and other public buildings are guaranteed the same high standard of air quality that members of parliament have arranged for themselves with tax money.

3) That COVID-19 vaccines be made fully available to all age groups for whom the vaccines are approved.

4) Adequate care and biomedical research for Long COVID, ME/CFS, and other infection-associated chronic conditions.

5) Honest, scientifically sound public education about the risks of infection and how best to protect each other.

If you want this too, you can help boost or join the demonstration by quote-tweeting (photo is of course optional!) and tagging #CallForPublicHealthAction

@inneiennyfas.bsky.social

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nervbueddel @nervbueddel.eurosky.social · 16/07/2025

📣 Online demonstration with friends outside the 🇸🇪,🇨🇦,🇬🇧,🇺🇸+🇩🇪 parliaments for #CleanAir and care + biomedical research for #PAIS + #MEcfs! Day 2️⃣8️⃣1️⃣ Why is the silence from the unaffected about PAIS + ME so loud? Are you afraid that it might affect you? #CallForPublicHealthAction Please reskeet us!🤍

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nervbueddel @nervbueddel.eurosky.social · 15/07/2025

📣 Online demonstration with friends outside the 🇸🇪,🇨🇦,🇬🇧,🇺🇸+🇩🇪 parliaments for #CleanAir and care + biomedical research for #PAIS + #MEcfs! Day 2️⃣8️⃣0️⃣ Chronic diseases have increased dramatically since COVID. End the silence and fight for #CleanAir! #CallForPublicHealthAction Support us with reskeet! 🤍

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