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International Journal of MS Care

@ijmsc.bsky.social
607 followers 180 following 427 posts

Peer-reviewed. Multidisciplinary. Open access. International Journal of MS Care: official journal of the CMSC (ISSN: 1537-2073). Read the latest research: ijmsc.org

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International Journal of MS Care @ijmsc.bsky.social · 16h
Falls involve many factors at once. In this qualitative study, 25 PwMS were interviewed soon after their falls (94 total). The authors suggest taking a broader fall history and building rehab around each person, so they can better judge their risk. doi.org/10.7224/1537... #MultipleSclerosis #falls
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International Journal of MS Care @ijmsc.bsky.social · 09/10/2026
"...we think nothing less complex and showy than a computer or a jet bomber deserves to be called 'technology' at all...as if paper, ink, wheels, knives, clocks, chairs, aspirin pills, were natural objects..." www.ursulakleguin.com/a-rant-about... #NeuroArtFriday #technology #rant
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International Journal of MS Care @ijmsc.bsky.social · 08/10/2026
Optogenetics just earned Deisseroth, Hegemann, and Nagel the Nobel in medicine. In MS research, mouse and cell studies are using it to explore remyelination and light-triggered interferon-beta delivery. Still preclinical, but worth a read. doi.org/10.7224/1537... #MSsky #NeuroSky #Optogenetics
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International Journal of MS Care @ijmsc.bsky.social · 07/10/2026
Ever notice something in clinic and wonder if it's worth writing about? This webinar covers turning everyday observations into publishable research, from finding the gap to writing a first draft. First of 4 on publishing. www.ijmsc.org/view/spark-w... #MSsky #AcademicSky #MSResearch
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International Journal of MS Care @ijmsc.bsky.social · 01/10/2026
Frailty may affect more than mobility in MS. 26 adults with MS aged 60+: 58% were classified as frail. Frail participants scored lower on all 3 BICAMS cognitive tests, and visuospatial memory stayed lower after adjusting for age and disability. doi.org/10.7224/1537... #MSResearch #Frailty
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International Journal of MS Care @ijmsc.bsky.social · 29/09/2026
"In Australia, multiple sclerosis specialist nurses are an integral part of the multidisciplinary health care team for people with MS, but does everyone have access to MS nurse care, and is access associated with improved health outcomes?" www.doi.org/10.7224/1537... #MSNursing #nurses #MSCare
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International Journal of MS Care @ijmsc.bsky.social · 25/09/2026
"Memento, 2015, oil on mother-of-pearl shell on kamagong wood. Shell is 11 inches in longest diameter." www.instagram.com/gregoryhalil... #NeuroArtFriday #MementoMori #anatomy #art
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International Journal of MS Care @ijmsc.bsky.social · 24/09/2026
Lung function in MS tends to hold steady early on, then decline as the disease progresses. Scoping review of 20 studies in IJMSC also found that breathing exercises, respiratory muscle training, and Pilates all improved respiratory outcomes. doi.org/10.7224/1537... #MultipleSclerosis #LungFunction
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International Journal of MS Care @ijmsc.bsky.social · 23/09/2026
From the archives: Can a video game get people with MS moving? In this pilot study, 14 weeks of at-home Wii Fit use improved balance and strength by week 7, but activity levels slipped once check-in calls ended. doi.org/10.7224/1537... #MultipleSclerosis #MSrehab #gamification
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International Journal of MS Care @ijmsc.bsky.social · 22/09/2026
Telerehab isn't a replacement for in-person MS physical therapy: It's a complement. Study of 111 patients at UCSF: hybrid care could improve access, attendance, and treatment completion for people with demyelinating disease. doi.org/10.7224/1537... #MultipleSclerosis #telerehab
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International Journal of MS Care @ijmsc.bsky.social · 21/09/2026
Men were more likely than women to report unmet support needs (24.5% vs 17.0%), and information gaps accounted for most of them: 65.3% of men's unmet needs vs 32.9% of women's. New qualitative study in IJMSC. www.doi.org/10.7224/1537... #MultipleSclerosis #SexAndGender
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International Journal of MS Care @ijmsc.bsky.social · 17/09/2026
Between 2010 and 2020, MS clinicians shifted how they treat cognitive dysfunction. Cognitive remediation referrals went from 31.3% to 60.7%, and willingness to prescribe medication fell from 58.5% to 39%. doi.org/10.7224/1537... #MultipleSclerosis #screening #cognition
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International Journal of MS Care @ijmsc.bsky.social · 15/09/2026
Eight themes shaped MS care in Jackson, MS: race, education, water & food security, employment, transportation, crime, neighborhood, and isolation. The authors' suggestions to affect these? Navigators, transportation vouchers, and broader use of teleneurology. doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 10/09/2026
Evaluating fall risk in a person with multiple sclerosis? Data from this study suggest combining brief cognitive screeners (like SDMT and TMT-A) with fear-of-falling surveys provides a clearer view of balance control. www.doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 08/09/2026
Women with MS reported more severe cannabis withdrawal than men and the gap widened over 28 days of monitored abstinence. Small sample (11 women, 8 men), but symptoms stayed higher throughout: irritability, sleep trouble, tension, nausea, headaches. New short report: www.ijmsc.org/view/sex-dif...
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International Journal of MS Care @ijmsc.bsky.social · 02/09/2026
"The aim of this article is to report a unique case of familial MS from Saudi Arabia with 2 novel variants in the HLA-DRB1 gene that may contribute to the pathogenesis." doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 01/09/2026
"By elucidating how distinct cognitive domains and fall-related concerns relate to postural control under different task demands, this study aims to deepen our understanding of cognitive-balance interactions in MS and inform...assessment and intervention strategies." www.doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 27/08/2026
Among 98 informal caregivers of people with MS, higher resilience tracked with better quality of life and lower caregiver burden. Personality mattered, too, as neuroticism pulled resilience down while extroversion and conscientiousness lifted it. doi.org/10.7224/1537... #resilience #CarePartner #MS
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International Journal of MS Care @ijmsc.bsky.social · 24/08/2026
"The management of walking impairment and fatigue may be appropriate for improving physical health-related quality of life among Black and White people with MS." www.doi.org/10.7224/1537... #MultipleSclerosis #QOL #symptoms
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International Journal of MS Care @ijmsc.bsky.social · 19/08/2026
MS affects both physical and mental well-being, so it's helpful when 1 activity can address both. This pilot study found that vibration training helped with verbal learning and memory while also boosting physical disability scores. doi.org/10.7224/1537... #MultipleSclerosis #rehabilitation
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International Journal of MS Care @ijmsc.bsky.social · 18/08/2026
Could smell track MS disease activity? Scoping review of 9 longitudinal studies finds odor threshold shifts with acute inflammation, while odor discrimination and identification decline with progression. doi.org/10.7224/1537... #MultipleSclerosis #TheNoseKnows
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International Journal of MS Care @ijmsc.bsky.social · 13/08/2026
PwMS face barriers to specialized care, but short-term intensive programs may offer a viable solution. Data show that, by providing condensed education on symptom management and lifestyle tools, these programs significantly improve outcomes compared to traditional care. www.doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 11/08/2026
Why do half-lives matter in MS DMTs? Ofatumumab’s ~16-day half-life can lead to faster B-cell repopulation than IV options. Case study reports significant relapse after just a 4-month gap. doi.org/10.7224/1537... #MultipleSclerosis #ofatumumab
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International Journal of MS Care @ijmsc.bsky.social · 06/08/2026
Aging with MS isn't all downhill, data suggest. In adults 55+ with MS, physical limitations increased over an average 8.3 years of follow-up, but psychosocial well-being held steady or even improved. Study by the NY State MS Consortium. doi.org/10.7224/1537... #aging #MultipleSclerosis #PROMs
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International Journal of MS Care @ijmsc.bsky.social · 05/08/2026
Feeling capable and making movement part of your identity are keys to staying active. In this study, when physical activity felt personally relevant and not generic, participants were more likely to continue. doi.org/10.7224/1537... #MultipleSclerosis #exercise #PhysicalActivity #choice
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International Journal of MS Care @ijmsc.bsky.social · 04/08/2026
MS rehab should last longer than a few months. Study data suggest that while gains start early, the second year of a program can be where the most significant improvements in performance happen, especially for those with higher disability scores. doi.org/10.7224/1537... #MultipleSclerosis #rehab
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International Journal of MS Care @ijmsc.bsky.social · 03/08/2026
Older adults with MS face a compounding effect of aging and disability. Study suggests addressing social determinants of health, structural ageism and ableism, and comorbidities can improve quality of life and care satisfaction. A multidisciplinary model is a priority. www.doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 31/07/2026
2025 3rd place: Webbed mitochondria (James Costanzo). medschool.vanderbilt.edu/basic-scienc... #NeuroArtFriday #FluorescenceFriday
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International Journal of MS Care @ijmsc.bsky.social · 29/07/2026
Manage the modifiable in MS: We can't change disease duration, but we can treat hypertension and obesity. Even if the benefit doesn't show up on an MRI, the long-term data suggests it is one of the best tools to protect quality of life. doi.org/10.7224/1537... #MultipleSclerosis #comorbidity
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International Journal of MS Care @ijmsc.bsky.social · 28/07/2026
More self-management education. Less uncertainty. Study data indicate that multidisciplinary interventions lead to better fatigue management and QOL. The comprehensive aspect improves outcomes for people with MS. www.doi.org/10.7224/1537... #MultipleSclerosis #ComprehensiveCare #QOL
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International Journal of MS Care @ijmsc.bsky.social · 23/07/2026
Study: MS can compromise walking automaticity, so PwMS rely more on conscious cognitive resources. Interventions should real-world stability and include tasks that require shifting attention back and forth between the movement and the environment. doi.org/10.7224/1537... #MultipleSclerosis #walking
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International Journal of MS Care @ijmsc.bsky.social · 20/07/2026
"Comprehensive MS care, whether delivered intensively over 4 days or through an integrated outpatient program, may enhance self-efficacy and quality of life more effectively than standard care alone." www.doi.org/10.7224/1537... #MultipleSclerosis #PersonalizedCare #comprehensive
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International Journal of MS Care @ijmsc.bsky.social · 16/07/2026
The Emerging Role of Optogenetics in Multiple Sclerosis Research: "Possible future applications...include the induction of oligodendrocyte proliferation, myelin synthesis, enhancing the repair of demyelinating processes, and modulating the severity of MS symptoms." doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 15/07/2026
"Qigong and tai chi...are multicomponent forms of exercise, which means that they address not only physical health, but also can address psychological health and cognitive health...these types of movement also integrate relaxation and help with cognition." www.ijmsc.org/view/ijmsc-a... #TaiChi #MS
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International Journal of MS Care @ijmsc.bsky.social · 14/07/2026
"Virtual reality...may provide psychological advantages to traditional rehabilitation services...the CAREN system may be associated with a positive effect on patients’ mood and subsequent QOL while also contributing to effective physical and cognitive rehabilitation." doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 13/07/2026
"A novel battery of self-administered, smartphone application–based neuroperformance tests would allow more frequent, remote assessments of motor and cognitive function in people with multiple sclerosis." www.doi.org/10.7224/1537... #smartphone #neuroperformance #remote #MultipleSclerosis
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International Journal of MS Care @ijmsc.bsky.social · 08/07/2026
"We present 4 models of MS health care delivery and discuss how integrating pharmacy services into an MS multidisciplinary team can potentially increase the efficiency and quality of health care delivery." doi.org/10.7224/1537... #pharmacy #pharmacist #MultipleSclerosis #ComprehensiveCare
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International Journal of MS Care @ijmsc.bsky.social · 07/07/2026
"[There’s] not one prescribed pathway [for] having a pharmacist or a pharmacy team integrated into comprehensive MS care. It has to work for the type of environment and patients and the organization that you are functioning in. There has to be flexibility…" www.ijmsc.org/view/ijmsc-a...
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International Journal of MS Care @ijmsc.bsky.social · 06/07/2026
"This study examined the difference in arterial stiffness between people with MS and controls and whether the difference was accounted for by anxiety, depression, and walking endurance, variables not usually included in other studies of arterial stiffness in MS." www.doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 29/06/2026
Narrative review "discusses how comorbid disease and polypharmacy affect people with MS, strategies to mitigate these negative risks, as well as areas where evidence is lacking and further study is needed to inform optimal treatment strategies for older adults with MS." www.doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 26/06/2026
#NeuroArtFriday #admire #writer #advice
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International Journal of MS Care @ijmsc.bsky.social · 25/06/2026
Restless Legs Syndrome is common in people with MS, affecting ~26%. Symptoms are often worst when falling asleep, but RLS experienced during active daytime hours is also strongly linked to brain fog like slower processing and visual memory challenges. doi.org/10.7224/1537... #MultipleSclerosis #RLS
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International Journal of MS Care @ijmsc.bsky.social · 24/06/2026
Men with MS feel pressure to maintain emotional control which is linked to poorer health-promoting behaviors; those who cope with positive reappraisal focused more on self-care. Socialized gender roles shape MS management and help-seeking behaviors. doi.org/10.7224/1537... #MultipleSclerosis #gender
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International Journal of MS Care @ijmsc.bsky.social · 23/06/2026
"The goal...is...a targeted review of recent literature that focuses on specific end points related to #MS #progression. We then discuss available evidence on key limitations of the EDSS...and highlight some measures that may assist in improving [its] sensitivity...." doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 22/06/2026
"This review discusses the future of optogenetics as a potential treatment for MS. This innovative technology may offer an improved approach to managing [MS], offering refined control over drug delivery, remyelination, and gene therapy." doi.org/10.7224/1537... #optogenetics #MultipleSclerosis
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International Journal of MS Care @ijmsc.bsky.social · 18/06/2026
Rehabilitation nursing is complex involving coordinating care, providing emotional support, and managing situational instability. Research is currently moving toward the development of research-supported nursing consultations to ensure continuous support. doi.org/10.7224/1537... #MultipleSclerosis
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International Journal of MS Care @ijmsc.bsky.social · 16/06/2026
Wearable tracker data show that people with MS remain largely sedentary even during intensive rehab periods. To reach the activity levels needed for long-term health benefits, clinicians should provide specific, tailored advice. doi.org/10.7224/1537... #MultipleSclerosis #PhysicalActivity
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International Journal of MS Care @ijmsc.bsky.social · 11/06/2026
What kind of journal is IJMSC? What kinds of research do we publish? Who is our audience? Hear the details from Editor in Chief Francois Bethoux, MD. Explore more: www.ijmsc.org/research
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International Journal of MS Care @ijmsc.bsky.social · 10/06/2026
MS affects women at a 3:1 ratio, often diagnosed during peak reproductive years. This study finds OBGYN clinicians lack confidence in managing MS-specific issues like contraception for patients with immobility or DMT safety during pregnancy. www.doi.org/10.7224/1537... #MultipleSclerosis #OBGYN
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International Journal of MS Care @ijmsc.bsky.social · 05/06/2026
"My goal is to treat storytelling as a form of care work: collaborative, non-linear, to meet access needs, and grounded in an individual's own language and representation." ~Sal Marx sps.columbia.edu/news/artists... #NeuroArtFriday #care #NarrativeMedicine #voice
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