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International Journal of MS Care

@ijmsc.bsky.social
598 followers 180 following 416 posts

Peer-reviewed. Multidisciplinary. Open access. International Journal of MS Care: official journal of the CMSC (ISSN: 1537-2073). Read the latest research: ijmsc.org

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International Journal of MS Care @ijmsc.bsky.social · 30/09/2026
What builds confidence to manage life with MS? A 2022 systematic review found nurse-led rehab interventions improved self-efficacy in every included study, with group training showing the most promise. doi.org/10.7224/1537... #MSNurses #MultipleSclerosis #nursing
doi.org
Nursing Interventions Focusing on Self-Efficacy for Patients With Multiple Sclerosis in Rehabilitation: A Systematic Review
"We encourage rehabilitation nurses from around the world to develop and distribute a comprehensive and generally accepted definition of rehabilitation nursing."
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International Journal of MS Care @ijmsc.bsky.social · 29/09/2026
"In Australia, multiple sclerosis specialist nurses are an integral part of the multidisciplinary health care team for people with MS, but does everyone have access to MS nurse care, and is access associated with improved health outcomes?" www.doi.org/10.7224/1537... #MSNursing #nurses #MSCare
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International Journal of MS Care @ijmsc.bsky.social · 25/09/2026
"Memento, 2015, oil on mother-of-pearl shell on kamagong wood. Shell is 11 inches in longest diameter." www.instagram.com/gregoryhalil... #NeuroArtFriday #MementoMori #anatomy #art
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International Journal of MS Care @ijmsc.bsky.social · 24/09/2026
Lung function in MS tends to hold steady early on, then decline as the disease progresses. Scoping review of 20 studies in IJMSC also found that breathing exercises, respiratory muscle training, and Pilates all improved respiratory outcomes. doi.org/10.7224/1537... #MultipleSclerosis #LungFunction
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International Journal of MS Care @ijmsc.bsky.social · 23/09/2026
From the archives: Can a video game get people with MS moving? In this pilot study, 14 weeks of at-home Wii Fit use improved balance and strength by week 7, but activity levels slipped once check-in calls ended. doi.org/10.7224/1537... #MultipleSclerosis #MSrehab #gamification
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International Journal of MS Care @ijmsc.bsky.social · 22/09/2026
Telerehab isn't a replacement for in-person MS physical therapy: It's a complement. Study of 111 patients at UCSF: hybrid care could improve access, attendance, and treatment completion for people with demyelinating disease. doi.org/10.7224/1537... #MultipleSclerosis #telerehab
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International Journal of MS Care @ijmsc.bsky.social · 21/09/2026
Men were more likely than women to report unmet support needs (24.5% vs 17.0%), and information gaps accounted for most of them: 65.3% of men's unmet needs vs 32.9% of women's. New qualitative study in IJMSC. www.doi.org/10.7224/1537... #MultipleSclerosis #SexAndGender
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International Journal of MS Care @ijmsc.bsky.social · 18/09/2026
#NeuroArtFriday #MetaAnalysis #evidence #evolution #research
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International Journal of MS Care @ijmsc.bsky.social · 17/09/2026
Between 2010 and 2020, MS clinicians shifted how they treat cognitive dysfunction. Cognitive remediation referrals went from 31.3% to 60.7%, and willingness to prescribe medication fell from 58.5% to 39%. doi.org/10.7224/1537... #MultipleSclerosis #screening #cognition
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International Journal of MS Care @ijmsc.bsky.social · 15/09/2026
Eight themes shaped MS care in Jackson, MS: race, education, water & food security, employment, transportation, crime, neighborhood, and isolation. The authors' suggestions to affect these? Navigators, transportation vouchers, and broader use of teleneurology. doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 14/09/2026
New CE article: While psychological therapies have direct positive effects on depression, stress, and pain in MS, fatigue management emerged as a key mediator for overall therapy success. Level of education was a moderator. www.doi.org/10.7224/1537... #MultipleSclerosis #Psych #Fatigue #education
doi.org
Mediating and Moderating Factors of the Effect of Psychological Therapies Among People With Multiple Sclerosis
Although psychological therapies demonstrate benefits in people with multiple sclerosis across several domains, this study identifies potential mechanisms of action and characteristics of those likely...
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International Journal of MS Care @ijmsc.bsky.social · 11/09/2026
#NeuroArtFriday #BrainArt #neurons
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International Journal of MS Care @ijmsc.bsky.social · 10/09/2026
Evaluating fall risk in a person with multiple sclerosis? Data from this study suggest combining brief cognitive screeners (like SDMT and TMT-A) with fear-of-falling surveys provides a clearer view of balance control. www.doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 09/09/2026
Black people with MS reported lower fatigue and depression and higher mental HRQOL than White people after controlling for covariates. Study authors note cultural resilience and social support may serve as protective factors. www.ijmsc.org/view/symptom... #MultipleSclerosis #QOL #MentalHealth
ijmsc.org
Symptoms as Correlates of Health-Related Quality of Life in Black and White Individuals With Multiple Sclerosis
The management of walking impairment and fatigue may be appropriate for improving physical health-related quality of life among Black and White people with multiple sclerosis.
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International Journal of MS Care @ijmsc.bsky.social · 08/09/2026
Women with MS reported more severe cannabis withdrawal than men and the gap widened over 28 days of monitored abstinence. Small sample (11 women, 8 men), but symptoms stayed higher throughout: irritability, sleep trouble, tension, nausea, headaches. New short report: www.ijmsc.org/view/sex-dif...
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International Journal of MS Care @ijmsc.bsky.social · 04/09/2026
#NeuroArtFriday #FluorescenceFriday
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International Journal of MS Care @ijmsc.bsky.social · 03/09/2026
"The proximal goal is not to eliminate anxiety...the message is to engage with one's life despite the discomfort." This trial of the transdiagnostic Unified Protocol shows how reducing experiential avoidance can help patients manage the uncertainty of MS. doi.org/10.7224/1537...
doi.org
Two Sides of the Same Coin: A Randomized Clinical Trial of the Unified Protocol for Addressing Depression and Anxiety in People With Multiple Sclerosis
Transdiagnostic interventions, such as the Unified Protocol, address both depression and anxiety and focus on the shared temperamental core of psychological disorders, which have been shown to impact ...
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International Journal of MS Care @ijmsc.bsky.social · 02/09/2026
"The aim of this article is to report a unique case of familial MS from Saudi Arabia with 2 novel variants in the HLA-DRB1 gene that may contribute to the pathogenesis." doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 01/09/2026
"By elucidating how distinct cognitive domains and fall-related concerns relate to postural control under different task demands, this study aims to deepen our understanding of cognitive-balance interactions in MS and inform...assessment and intervention strategies." www.doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 28/08/2026
#NeuroArtFriday #hope #BrainArt #SciArt
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International Journal of MS Care @ijmsc.bsky.social · 27/08/2026
Among 98 informal caregivers of people with MS, higher resilience tracked with better quality of life and lower caregiver burden. Personality mattered, too, as neuroticism pulled resilience down while extroversion and conscientiousness lifted it. doi.org/10.7224/1537... #resilience #CarePartner #MS
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International Journal of MS Care @ijmsc.bsky.social · 25/08/2026
The 2026 RiMS conference centered a question MS clinicians face: restore function, or optimize performance through adaptation? Not competing philosophies, but options whose value shifts with disease stage, reserve, and goals. 128 abstracts now at: www.ijmsc.org/view/rims-20...
ijmsc.org
Rehabilitation in Multiple Sclerosis (RiMS) 2026 Conference Abstracts
The 128 accepted abstracts of the 31st Annual RiMS Conference, held June 11-13, 2026, in Prague: recovery, compensation, and outcomes in MS rehab.
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International Journal of MS Care @ijmsc.bsky.social · 24/08/2026
"The management of walking impairment and fatigue may be appropriate for improving physical health-related quality of life among Black and White people with MS." www.doi.org/10.7224/1537... #MultipleSclerosis #QOL #symptoms
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International Journal of MS Care @ijmsc.bsky.social · 21/08/2026
#NeuroArtFriday #failure #cartoon #ClipArt #SciArt
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International Journal of MS Care @ijmsc.bsky.social · 20/08/2026
July research: vascular physiology, the support networks caregivers rely on, comparative models of comprehensive care delivery, and remote smartphone-based neuroperformance testing. www.ijmsc.org/view/july-20... #MultipleSclerosis #research
ijmsc.org
IJMSC July 2026 Research Roundup
The research published by the International Journal of MS Care in July 2026: vasular comorbidity, care partner support networks, comprehensive care models, clinical testing on a smartphone.
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International Journal of MS Care @ijmsc.bsky.social · 19/08/2026
MS affects both physical and mental well-being, so it's helpful when 1 activity can address both. This pilot study found that vibration training helped with verbal learning and memory while also boosting physical disability scores. doi.org/10.7224/1537... #MultipleSclerosis #rehabilitation
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International Journal of MS Care @ijmsc.bsky.social · 18/08/2026
Could smell track MS disease activity? Scoping review of 9 longitudinal studies finds odor threshold shifts with acute inflammation, while odor discrimination and identification decline with progression. doi.org/10.7224/1537... #MultipleSclerosis #TheNoseKnows
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International Journal of MS Care @ijmsc.bsky.social · 17/08/2026
Managing MS DMTs for older people may not have to be a choice between continuing or stopping: "De-escalation might be accomplished by reducing the dose or administration frequency of the current medication or switching to an alternative with lower risks." www.doi.org/10.7224/1537...
doi.org
Risks and Benefits of Disease-Modifying Therapies in People Aging With Multiple Sclerosis
More data are needed to ascertain the actual risks and benefits of DMT use, discontinuation, and de-escalation in older people with MS.
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International Journal of MS Care @ijmsc.bsky.social · 13/08/2026
PwMS face barriers to specialized care, but short-term intensive programs may offer a viable solution. Data show that, by providing condensed education on symptom management and lifestyle tools, these programs significantly improve outcomes compared to traditional care. www.doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 12/08/2026
Survey data show larger support networks, including everything from hobby groups and physical activity to home care services, were significantly associated with higher resilience in MS care partners. Connection matters. www.doi.org/10.7224/1537... #CarePartner #support #MultipleSclerosis
doi.org
Components of the Support Networks of Multiple Sclerosis Care Partners
Friends and family represent an important component of care partner support networks; care recipients are often ranked among the most important means of support.
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International Journal of MS Care @ijmsc.bsky.social · 11/08/2026
Why do half-lives matter in MS DMTs? Ofatumumab’s ~16-day half-life can lead to faster B-cell repopulation than IV options. Case study reports significant relapse after just a 4-month gap. doi.org/10.7224/1537... #MultipleSclerosis #ofatumumab
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International Journal of MS Care @ijmsc.bsky.social · 10/08/2026
"In the context of MAID, [PwMS]...consider how they will navigate decision-making challenges related to disease progression, are resolute in their desire for self-agency, navigate timing within various decision-making considerations, and lean into hope and positivity...." www.doi.org/10.7224/1537...
doi.org
Perspectives on End of Life and Medical Assistance in Dying From Saskatchewan People With Multiple Sclerosis
Though they fluctuate, hope and positivity comfort people with multiple sclerosis as their circumstances change and they progress toward end-of-life discussions and planning.
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International Journal of MS Care @ijmsc.bsky.social · 07/08/2026
#NeuroArtFriday #CoverArt #brain #neuron
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International Journal of MS Care @ijmsc.bsky.social · 06/08/2026
Aging with MS isn't all downhill, data suggest. In adults 55+ with MS, physical limitations increased over an average 8.3 years of follow-up, but psychosocial well-being held steady or even improved. Study by the NY State MS Consortium. doi.org/10.7224/1537... #aging #MultipleSclerosis #PROMs
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International Journal of MS Care @ijmsc.bsky.social · 05/08/2026
Feeling capable and making movement part of your identity are keys to staying active. In this study, when physical activity felt personally relevant and not generic, participants were more likely to continue. doi.org/10.7224/1537... #MultipleSclerosis #exercise #PhysicalActivity #choice
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International Journal of MS Care @ijmsc.bsky.social · 04/08/2026
MS rehab should last longer than a few months. Study data suggest that while gains start early, the second year of a program can be where the most significant improvements in performance happen, especially for those with higher disability scores. doi.org/10.7224/1537... #MultipleSclerosis #rehab
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International Journal of MS Care @ijmsc.bsky.social · 03/08/2026
Older adults with MS face a compounding effect of aging and disability. Study suggests addressing social determinants of health, structural ageism and ableism, and comorbidities can improve quality of life and care satisfaction. A multidisciplinary model is a priority. www.doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 31/07/2026
2025 3rd place: Webbed mitochondria (James Costanzo). medschool.vanderbilt.edu/basic-scienc... #NeuroArtFriday #FluorescenceFriday
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International Journal of MS Care @ijmsc.bsky.social · 30/07/2026
Comorbidity, Polypharmacy, and Aging Respiratory Function Bladder and Bowel Dysfunction Optogenetics ijmsc.org/view/june-2026 #MSresearch #MultipleSclerosis #ComprehensiveCare
ijmsc.org
IJMSC June 2026 Research Roundup
This month’s issue of IJMSC features research on multidisciplinary approaches to managing multiple sclerosis, ranging from the challenges of aging to futuristic therapeutic technologies.
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International Journal of MS Care @ijmsc.bsky.social · 29/07/2026
Manage the modifiable in MS: We can't change disease duration, but we can treat hypertension and obesity. Even if the benefit doesn't show up on an MRI, the long-term data suggests it is one of the best tools to protect quality of life. doi.org/10.7224/1537... #MultipleSclerosis #comorbidity
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International Journal of MS Care @ijmsc.bsky.social · 28/07/2026
More self-management education. Less uncertainty. Study data indicate that multidisciplinary interventions lead to better fatigue management and QOL. The comprehensive aspect improves outcomes for people with MS. www.doi.org/10.7224/1537... #MultipleSclerosis #ComprehensiveCare #QOL
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International Journal of MS Care @ijmsc.bsky.social · 27/07/2026
"Care partners support many [PwMS]...but little is known about the support they themselves rely on. This study sought to characterize the support networks used by MS care partners & to identify key characteristics associated with support network size." www.doi.org/10.7224/1537... #MultipleSclerosis
doi.org
Components of the Support Networks of Multiple Sclerosis Care Partners
Friends and family represent an important component of care partner support networks; care recipients are often ranked among the most important means of support.
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International Journal of MS Care @ijmsc.bsky.social · 24/07/2026
#NeuroArtFriday #MedEd #brain #WaxModel
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International Journal of MS Care @ijmsc.bsky.social · 23/07/2026
Study: MS can compromise walking automaticity, so PwMS rely more on conscious cognitive resources. Interventions should real-world stability and include tasks that require shifting attention back and forth between the movement and the environment. doi.org/10.7224/1537... #MultipleSclerosis #walking
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International Journal of MS Care @ijmsc.bsky.social · 22/07/2026
Key clinical takeaways IJMSC June 2026: • Aging: Hypertension = 65.4% in PwMS aged 70–74 • Respiratory: Pilates & muscle training improve early decline • Bladder/Bowel: Clinicians must proactively initiate discussions • Optogenetics offers hope for targeted remyelination www.ijmsc.org/view/june-2026
ijmsc.org
IJMSC June 2026 Research Roundup
This month’s issue of IJMSC features research on multidisciplinary approaches to managing multiple sclerosis, ranging from the challenges of aging to futuristic therapeutic technologies.
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International Journal of MS Care @ijmsc.bsky.social · 21/07/2026
How much does exercise actually move the needle on QOL for people with MS? Systematic review and meta-analysis of RCTs: meeting current physical activity guidelines produces clinically significant improvements in physical and mental QOL. www.ijmsc.org/view/physica... #MultipleSclerosis #exercise
ijmsc.org
Impact of Physical Activity Guidelines on Quality of Life in Multiple Sclerosis: A Systematic Review and Meta-Analysis of Randomized Clinical Trials
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International Journal of MS Care @ijmsc.bsky.social · 20/07/2026
"Comprehensive MS care, whether delivered intensively over 4 days or through an integrated outpatient program, may enhance self-efficacy and quality of life more effectively than standard care alone." www.doi.org/10.7224/1537... #MultipleSclerosis #PersonalizedCare #comprehensive
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International Journal of MS Care @ijmsc.bsky.social · 17/07/2026
"...AI, while omnipresent,...vague in its promise and omnivorous in its threatening tone, does not rule...it is perhaps best to think of AI as another set of tools and ideas that authors, publishers, and readers are incorporating into their workflows, but it does not define us." #NeuroArtFriday
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International Journal of MS Care @ijmsc.bsky.social · 16/07/2026
The Emerging Role of Optogenetics in Multiple Sclerosis Research: "Possible future applications...include the induction of oligodendrocyte proliferation, myelin synthesis, enhancing the repair of demyelinating processes, and modulating the severity of MS symptoms." doi.org/10.7224/1537...
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International Journal of MS Care @ijmsc.bsky.social · 15/07/2026
"Qigong and tai chi...are multicomponent forms of exercise, which means that they address not only physical health, but also can address psychological health and cognitive health...these types of movement also integrate relaxation and help with cognition." www.ijmsc.org/view/ijmsc-a... #TaiChi #MS
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