Institute for Health and Disability Policy Studies @ihdps.bsky.social · 06/10/2026You are not invisible. Share your story at kuhealthsurvey.org ! 010
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 01/10/2026KU-IHDPS is conducting the National Survey on Health and Disability (NSHD). We have partnered with @360directaccess.bsky.social to help participants via ASL. All participant information is confidential. The survey is now open and you can take it at: kuhealthsurvey.org 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 01/10/2026Los responsables de formular políticas afirman que las personas que no figuran en los datos son invisibles... No eres invisible. ¡Comparte tu historia en kuhealthsurvey.org ! 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 01/10/2026Policymakers say people who aren't in data are invisible... You are not invisible! Share your story at kuhealthsurvey.org 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 01/10/2026¡Ya está abierta la Encuesta Nacional sobre Salud y Discapacidad (NSHD) de 2026! ¡No eres invisible! Responde a nuestra encuesta y comparte tu historia. Participe en la encuesta en: kuhealthsurvey.org 011
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 01/10/2026The 2026 National Survey on Health and Disability (NSHD) is open! You are not invisible! Take our survey and share your story. Take the survey at: kuhealthsurvey.org 011
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 29/09/2026The 2026 National Survey on Health and Disability (NSHD) will be launching soon! Stay tuned for opportunities to take and share the survey! ihdps.ku.edu/nshd 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 21/08/2026Thank you everyone who submitted clips to help promote the National Survey on Health and Disability (NSHD)! If you have not sent in a video - we are still accepting clips, they just will not be in the first wave of promo vids! Visit ihdps.ku.edu/video to learn more 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 05/08/2026We are looking for people with disabilities to record short video clips (10 seconds!) to help promote the National Survey on Health and Disability (NSHD) launching this fall. Please submit by August 17 so we have time to edit videos and make them accessible! Visit ihdps.ku.edu/video to learn more 001
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 04/08/2026New publication from IHDPS and RTC:Rural shows that people may be left behind by limited ACS questions – including people with depression, heart conditions, and cancer. Read more at: doi.org/10.1093/resc... 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 14/07/2026Would you or someone you know be willing to record a 10-second video clip (or several!) to help us to promote the NSHD? Visit our video page to learn more: ihdps.ku.edu/video 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 01/06/2026Our newest publication looks at mental healthcare use by people who have intellectual and developmental disabilities (IDD) and serious mental illness (SMI). Read more in Frontiers: tinyurl.com/38d44me6 100
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 26/03/2026Former IHDPS Director Jean Hall has been chosen by the Kansas Commission on Disability Concerns as their Tuesday Trailblazer for her work on health insurance and other disability research. www.facebook.com/share/p/1BX9... 010
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 04/11/2025New journal article from IHDPS explores whether having a proxy leads to people with disabilities being incorrectly represented in survey data. Read the full article at: www.frontiersin.org/journals/res... #DisabilityResearch #DisabilityData 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 28/10/2025Datasets from Transportation, Labor, and Commerce departments connect employers with talented Americans with disabilities. #DisabilityData #ResearchMatters (Links in comments) - Post 2 of 2 320
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 28/10/2025U.S. Chief Data Scientist @denicewross.bsky.social worked with the Disability Health Equity Research Network (DHERN) to show the connection between disability data to real outcomes for people with disabilities. #DisabilityData #ResearchMatters (Links in comments) - Post 1 of 2 310
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 23/10/2025We are at the last day of Center on KTDRR 's 2025 Virtual Knowledge Translation (KT) Conference this year, and are learning about lots of great KT resources! One is a pilot project in Nigeria presented by Charles Chibuisi Ehiemere - Familia Solutions. More info in comments. 100
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 14/10/2025The new journal article from IHDPS shows a link between transportation access and better social connectivity and health for people with disabilities. Read more in the Journals of Transport and Health: doi.org/10.1016/j.jth.2025.102165 #DisabilityResearch #DisabilityHealth #DisabilityTransport 010
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 26/08/2025Sign up for our newsletter at: tinyurl.com/ycxepyzk #DisabilityResearch 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 21/08/2025IHDPS is launching a newsletter! Sign up at: tinyurl.com/ycxepyzk 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 19/08/2025NIDILRR funds disability research across the U.S., including many IHDPS projects! Learn more about NIDILRR through @lurieinstitute.bsky.social 's explainer series: tinyurl.com/bdh5jsj7 #NIDILRR #DisabilityResearch 011
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 14/08/2025Researchers from Brown University have used data from the National Survey on Health and Disability (NSHD) to examine loneliness in adults with disabilities Read the new article in the Annals of Internal Medicine: doi.org/10.7326/ANNA... #DisabilityResearch 001
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 12/08/2025A new article from IHDPS and the Icahn School of Medicine at Mount Sinai reports that people with TBIs have poorer physical and mental health but were not more likely to be unemployed than their peers Read more - links in comments. 210
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 07/08/2025Interested in disability research? Sign up for our newsletter to get disability research news, resources, and other opportunities! Sign up at: tinyurl.com/ycxepyzk 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 05/08/2025The 2025 National Survey on Health and Disability (NSHD) is now closed! While we look at the information people have shared, we invite you to sign up for our newsletter to stay in the loop about disability research news, resources, and other opportunities: tinyurl.com/ycxepyzk 010
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 31/07/2025The National Survey on Health and Disability closes today - share your voice before it's too late! Take the NSHD online: kuhealthsurvey.org or call: 1 855 556 6328 #DisabilityResearch #ShareYourVoice 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 29/07/2025The NSHD closes soon - share your voice before it's too late! Take the NSHD online: kuhealthsurvey.org or call: 1 855 556 6328 #DisabilityResearch #ShareYourVoice 010
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 24/07/2025There is still time during Disability Pride Month to share your story by taking the NSHD! Take the NSHD online: kuhealthsurvey.org or call: 1 855 556 6328 #DisabilityResearch #ShareYourVoice #DisabilityPrideMonth 021
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 22/07/2025There is still time during Disability Pride Month to share your story by taking the NSHD! Take the NSHD online: kuhealthsurvey.org or call: 1 855 556 6328 #DisabilityResearch #ShareYourVoice #DisabilityPrideMonth 021
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 17/07/2025The NSHD is closing soon - but there is still time to share your voice! Take the NSHD online: kuhealthsurvey.org or call: 1 855 556 6328 #DisabilityResearch #ShareYourVoice 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 15/07/2025The NSHD is closing soon - but there is still time to share your voice! Take the NSHD online: kuhealthsurvey.org or call: 1 855 556 6328 #DisabilityResearch #ShareYourVoice 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 14/07/2025Two articles from former IHDPS Director Jean Hall and fellow disability researchers dive into how we count people with disabilities in the U.S. Published by @healthaffairs.bsky.social Links in comments below #DisabilityResearch 200
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 10/07/2025The NSHD is closing soon - but there is still time to share your voice! Take the NSHD online: kuhealthsurvey.org or call: 1 855 556 6328 #DisabilityResearch #ShareYourVoice 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 08/07/2025The NSHD is closing soon - but there is still time to share your voice! Take the NSHD online: kuhealthsurvey.org or call: 1 855 556 6328 #DisabilityResearch #ShareYourVoice 011
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 03/07/2025Interested in findings from the National Survey on Health and Disability kuhealthsurvey.org ? Read about differences in care and insurance access for adults with I/DD: tinyurl.com/56dkkfbk 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 01/07/2025We need adults of all genders to take the NSHD - but we are especially lacking men's voices! Do you know disability advocates? Tell them about our survey! Take the NSHD online: kuhealthsurvey.org or call: 1 855 556 6328 #DisabilityResearch #ShareYourVoice 001
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 30/06/2025Interested in research from the National Survey on Health and Disability kuhealthsurvey.org ? Read about how some counting methods may be missing people with mental illness in a new paper - tinyurl.com/55nvpdkz 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 27/06/2025We need adults of all ages to take the NSHD - but we are especially lacking voices from people under 35! Please tell disability advocates you know about the NSHD! Take the NSHD online: kuhealthsurvey.org or call: 1 855 556 6328 #DisabilityResearch #ShareYourVoice 011
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 24/06/2025We need people all over the U.S. to take the NSHD - but we are especially lacking voices from Mississippi! Do you know disability advocates in Mississippi? Send them a message about our survey! Take the NSHD online: kuhealthsurvey.org or call: 1 855 556 6328 #DisabilityResearch #ShareYourVoice 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 17/06/2025What assistive technology do you use? What accommodations do you need? Tell us by taking the NSHD at: kuhealthsurvey.org #AssisstiveTechnology #DisabilityResearch 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 12/06/2025What disabilities or health conditions do you have? When did they start? Tell us by taking the NSHD at: kuhealthsurvey.org #Disability #DisabilityResearch 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 11/06/2025The NSHD asks people if they work for pay, including self-employment Are you employed? Do you work for someone else or are you self-employed? Tell us by taking the NSHD at: kuhealthsurvey.org #DisabilityEmployment #DisabilityResearch 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 06/06/2025Interested in research findings from the National Survey on Health and Disability? Find journal articles and plain language summaries at: ihdps.ku.edu/nshd-publications You can still take the NSHD at: kuhealthsurvey.org #DisabilityResearch #HealthResearch 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 03/06/2025How healthy are you overall? Tell us by taking the NSHD: kuhealthsurvey.org #DisabilityHealth #health #HealthyLifestyle #HealthResearch 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 02/06/2025"I'm in Hell …": Experiences of Unmet Health Care Needs Among People with Pre-Existing Disability and Long COVID from IHDPS and @kumedcenter.bsky.social has been published in the Journal of Health Care for the Poor and Underserved Read it at: muse.jhu.edu/article/959114 020
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 28/05/2025Does Medicaid or other insurance cover your healthcare needs? Tell us by taking the NSHD: kuhealthsurvey.org #MedicaidMatters #health #DisabilityHealth 010
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 22/05/2025What are your healthcare needs? Is there anything you need that you are unable to get due to insurance denials or other barriers? Tell us by taking the NSHD: kuhealthsurvey.org #DisabilityHealth #InsuranceCoverage #medicine #DisabilityResearch 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 20/05/2025Personal assistance needs are often unmet. Do you use PAS? Do you need PAS but don't get it? Tell us by taking the NSHD: kuhealthsurvey.org #DisabilityHealth #PersonalAssistance 000
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 15/05/2025People with disabilities can be at risk of developing secondary conditions from certain diseases. Tell us about your health by taking the NSHD at: kuhealthsurvey.org #disability #DisabilityHealth 121
Institute for Health and Disability Policy Studies @ihdps.bsky.social · 13/05/2025Is the transportation you need always available? Is it accessible? Tell us by taking the NSHD: kuhealthsurvey.org #AccessibleTransportation #AccessibleTransport 000