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HIV Outcomes - Beyond Viral Suppression

@hivoutcomes.bsky.social
73 followers 151 following 67 posts

We are a pan-European multi-stakeholder initiative focusing on the health-related quality of life of people living with HIV 🔗 hivoutcomes.eu

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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 24/06/2026
The HIV community’s greatest strength is its people. This week we connected our European and National initiatives in Italy, Romania, Netherlands, Poland and UK. 2026 is our 🎈10th anniversary. A decade of impact has been achieved, but it is this continued collaboration that drives real progress.
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 12/06/2026
HIV has never been just about a virus; it is a test of political commitment. As #HLM2026AIDS approaches, the EU faces a defining moment: to reaffirm its leadership and ensure that the UN Political Declaration on HIV/AIDS translates into real progress on the ground. @unaids.org
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 07/05/2026
A real pleasure to welcome AIDS Solidarity Movement to HIV Outcomes. Since 1989, ASM have been at the forefront of Cyprus' HIV response, setting up PrEP and testing points, educating on ART and U=U, providing psychosocial support and relentlessly campaigning against HIV stigma.
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 20/03/2026
As we enter the spring of our 10th anniversary year, it is the perfect moment to look back at the many highlights of the past year. Take a look below ⬇️ or head over to our website www.hivoutcomes.eu/annual-reviews
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 10/02/2026
4️⃣ new good practices! Special Support Staff for Young People Living with HIV 👉 shorturl.at/RIrxB The Fifty over 50 Project 👉 shorturl.at/LW0HU Access to cardiovascular prevention strategies 👉 shorturl.at/PlHm4 MIMO, a community-based and digital psychosocial support platform 👉 shorturl.at/RHBnW
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 27/01/2026
NGOs are vital to the HIV response - ensuring testing, prevention, treatment, counselling, and peer support. But their grants have been cut by the EU Commission. Our MEP Champion, Mr Andriukaitis, asks the question: how do we cover this gap and avoid falling back on the progress we have achieved?
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 22/01/2026
HIV Outcomes welcomes the new Global AIDS Strategy. As a part of the stakeholders consulted, we appreciate its alignment with our asks: 🏥 person-centred care, 📊 better data & community monitoring, 👥 strong community leadership with funding, 🧩 social support in HIV care. 🔗 shorturl.at/l0gat
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 16/01/2026
👋 Big welcome to the Cypriot Presidency @cy2026eu.bsky.social Recently Cyprus has made good progress on HIV prevention & care. Long term care is among its priorities. HIV policies must include comorbidity prevention, long-term care and combatting stigma. Read our policy asks: shorturl.at/z6XEZ
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 19/12/2025
As 2025 comes to a close, thank you to all our partners and colleagues for your collaboration and commitment to improving quality of care and health outcomes. Wishing you a peaceful holiday season and a great start to the new year. We’ll be back soon for our 10-year anniversary.
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 08/12/2025
MEPs call for an EU Action Plan on HIV For the sake of public health, human rights, equality, justice and fair and long term treatment for all, the EU must deliver on its commitment to ending the HIV epidemic by 2030. Read our press release and see the video: www.hivoutcomes.eu/news/meps-ca...
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 05/12/2025
Last WAD spotlight, less than one week to go! MEP Rasmus Nordqvist (Greens/EFA, DK), passionate activist and human rights supporter and MFF shadow rapporteur, will be offering the closing remarks. @rasmusnordqvist.bsky.social 🗓️ 10.12.25 📍 European Parliament InfoHub 🔗 Register: shorturl.at/J1o0Z
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 03/12/2025
We’re honoured to have Christine Stegling, UNAIDS Deputy Executive Director, delivering the keynote at our World AIDS Day event. She will share UNAIDS’ vision for the future ahead of the upcoming 2026–2031 Global AIDS Strategy. 🗓️ 10.12.25 📍 European Parliament InfoHub 🔗 Register: shorturl.at/J1o0Z
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 28/11/2025
Community-led HIV responses save lives. Magdalena Ankiersztejn-Bartczak has spent 20+ years advancing person-centred care and support for people living with HIV in Poland. Come hear her insights at our World AIDS Day event. 🗓️ 10.12.25 📍 EP InfoHub 🔗 Register: shorturl.at/J1o0Z
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 25/11/2025
Meet MEP Krzysztof Śmiszek (S&D, Poland), a champion for social justice, equal rights, and health access. Member of the MEP WG on HIV, he will discuss how equitable policies are key to delivering person-centred care for people living with HIV. 🗓️ 10.12.25 📍 EP InfoHub 🔗 Register: shorturl.at/J1o0Z
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 21/11/2025
For the first time, we have a generation ageing with HIV. Mario has shaped policy and empowered people to improve their quality of life. As our Co-Chair, he inspires us every day. Don’t miss him at our World AIDS Day event! 🗓️ 10.12.25 📍 European Parliament InfoHub 🔗 Register now shorturl.at/J1o0Z
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 20/11/2025
Emma (UK) & Bogdan (RO) grew up with HIV, navigating stigma + gaps in lifelong care HIV/AIDS isn’t history. It affects 40M people worldwide How the EU helps Emma & Bogdan can shape the future of generations living with HIV 🗓️ 10.12.25 📍 European Parliament InfoHub 🔗 Register here shorturl.at/J1o0Z
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 18/11/2025
👏Introducing our host: the Vice-President of the European Palriament, MEP Victor Negrescu A longstanding voice for health and children's rights, MEP Negrescu's keynote speech will reflect the need for an inclusive HIV response. 🗓️ 10.12.25 📍 EP InfoHub 🔗 shorturl.at/J1o0Z @eatgroup.bsky.social
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 13/11/2025
Europe can learn from Romania's prioritisation of long-term care for people living with HIV In its response, few people have been as pioneering as 𝗣𝗿𝗼𝗳. 𝗔𝗱𝗿𝗶𝗮𝗻 𝗦𝘁𝗿𝗲𝗶𝗻𝘂-𝗖𝗲𝗿𝗰𝗲𝗹, President of the Romanian Senate Healthcare Committee 🇷🇴 📍10 Dec, 10:00-12:00, Brussels 🔗 Register here: shorturl.at/J1o0Z
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 13/11/2025
From family planning to menopause, living with HIV as a woman comes with significant yet overlooked challenges. Come hear from Nicoletta Policek, a leading voice for women living with HIV. 🗓️ 10 Dec. 2025 📍 European Parliament InfoHub, Brussels 🔗 Register here: shorturl.at/J1o0Z
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 30/10/2025
An academic leader in HIV, comorbidities, NCDs and healthy ageing, our esteemed co-chair Prof. Caroline Sabin (@ucl.ac.uk) will speak to the need for integrated, evidence-based care models at our World AIDS Day event. 📍10 Dec, 10:00-12:00, Brussels 🔗 Register here: shorturl.at/J1o0Z
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 23/10/2025
Bringing a blend of scientific knowledge, community advocacy and policy action, Amanita Calderon-Cifuentes from @tgeuorg.bsky.social will be joining us as moderator for our upcoming World AIDS Day event👋 🗓️ 10 December 2025 📍 European Parliament InfoHub, Brussels 🔗 Register here: shorturl.at/J1o0Z
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 16/10/2025
HIV Outcomes’ in-country initiatives in 🇮🇹, 🇷🇴, and 🇬🇧 continue to champion recognition of the third sector as an essential part of the HIV response. Want to learn more & share your experiences? Join us for the HIV Outcomes Flash Talks! 📍Community Corner, #EACS2025 🗓 17 Oct, 12:05–12:30
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 10/10/2025
🧠 Today, for #WorldMentalHealthDay, we sound the alarm that the mental health of people living with HIV is heavily affected by stigma, often leading to discrimination, abuse, avoidance of healthcare services, and poorer HRQoL. Action is needed; read more in our Good Practices: tinyurl.com/yj9nt383
hivoutcomes.eu
Compendium of Good Practices
This is the Compendium of Good Practices landing page. Please do not remove it.
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 02/10/2025
🔜𝗪𝗼𝗿𝗹𝗱 𝗔𝗜𝗗𝗦 𝗗𝗮𝘆 𝗰𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲 𝗶𝗻 𝘁𝗵𝗲 𝗘𝘂𝗿𝗼𝗽𝗲𝗮𝗻 𝗣𝗮𝗿𝗹𝗶𝗮𝗺𝗲𝗻𝘁 The EU is at a crossroads. It is a time for 𝗮 𝗻𝗲𝘄 𝗛𝗜𝗩 𝗿𝗲𝘀𝗽𝗼𝗻𝘀𝗲, promoting 𝗲𝗾𝘂𝗶𝘁𝘆 𝗯𝗲𝘁𝘄𝗲𝗲𝗻 𝗴𝗲𝗻𝗱𝗲𝗿𝘀 and across the 𝗹𝗶𝗳𝗲𝘀𝗽𝗮𝗻. 📅 Wednesday 10 December 2025 🕙 10:00 –12:00 CET 📍 European Parliament InfoHub, Brussels 🔗 Register here: shorturl.at/J1o0Z
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 29/09/2025
The #UNAIDS #UNGA side-event on people-centred primary care reminded us that vertical care models are not enough: integration is necessary for dignified, accessible, sustainable care. For people living and ageing with HIV, the inclusion of NCDs & MH in their care is crucial.
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 25/09/2025
Proposals to phase out #UNAIDS by 2026 are threatening decades of progress. With 40 million people living with HIV globally and funding certainty eroding, UNAIDS leadership is vital. There is no time for complacency – the EU must step up to ensure a strong HIV/AIDS response and meet the 2030 goal.
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 18/09/2025
People living with HIV are 2x more likely to develop CVDs and have a 50% higher risk of heart attack. 🫀 The upcoming #EUCardiovascularPlan must recognise and address HIV as a risk factor – read more in our response to the call for evidence: shorturl.at/ERHFV. @ec.europa.eu
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 15/09/2025
Our response to the @ec.europa.eu’s consultation on the European Pillar of Social Rights Action Plan calls for action in 6 key areas important for people living with HIV: 🩺 healthcare, 🕰️ long-term care, 🏥 access to services, 🧑‍🧒 social protection, ♀gender equality, and 💼 work conditions.
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 12/09/2025
☀️ Summer is over – what have we got in store? We're prepping for #EACS2025, to host a HRQoL meeting, and to mark #WorldAIDSDay with a @europarl.europa.eu discussion on gender-informed realities of living w/ HIV across the lifespan. And don't forget to submit your good practices! shorturl.at/rHyNo
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Reposted by HIV Outcomes - Beyond Viral Suppression
National AIDS Trust @nat.org.uk · 01/09/2025
For some people living with HIV, stigma can negatively impact: 🏥💊seeking treatment & attending health appointments 💕relationships 🧠mental health & seeking support for it This doesn't need to happen. Learn more about what we do to tackle this: nat.org.uk/what-we-d...
What is the impact of H.I.V. stigma?
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 14/08/2025
BBC News featured HIV Outcomes UK report, ‘HIV Services at the Crossroads.’ Cutting funding for voluntary services impedes our efforts to end the HIV epidemic by 2030. We cannot allow this trend to continue. Full BBC article and clip 👉 shorturl.at/1ysSM Full report 👉 shorturl.at/P85EK @nat.org.uk
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London HIV charity Positively UK fears more cuts to services
Positively UK, which has supported thousands of people with HIV since 1986, is struggling financially.
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 31/07/2025
📣 Call for Good Practices in HIV Care! Since 2018, our virtual Compendium has showcased practices that make a difference in the lives of people with HIV. Got a standout initiative? Share it & inspire others! 📝 Submit it by 17 September: forms.gle/rbboxnNSQaBd... More info: shorturl.at/7OdKD
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 23/07/2025
1 year since our Call for an EU Action Plan on HIV/AIDS. Since, the global HIV response has been weakened when it needs to be reinforced. People living with HIV cannot be left behind! 🔎 Read more about our priorities and recommendations for EU policymakers: shorturl.at/Xt7Dm #HRQoL #EndHIVStigma
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HIV Outcomes Call to Action | Recommit to ending the AIDS epidemic by 2030: the need for a new EU Action Plan on HIV/AIDS
If Europe is to achieve the UNAIDS 2030 target for ending the HIV/AIDS epidemic, the new European institutions must play their part by renewing the EU’s committment to the fight against HIV/AIDS. H...
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 18/07/2025
Call for Good Practices in HIV Care! We're expanding our Good Practices Compendium and want input! shorturl.at/7OdKD We're looking for innovative ways to improve the HRQoL of people living with HIV. 💡 Help us highlight what works and inspire change across Europe. 📝 Submit here: shorturl.at/rHyNo
forms.gle
Good Practice submission
Thank you for your interest in contributing to the HIV Outcomes Compendium of Good Practices, where we collate examples of initiatives, best practices, research projects and more which contribute to t...
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 08/07/2025
A very touching webinar with EATG spotlighted several initiatives to ensure healthy ageing with HIV. Better communication between patients and clinicians, such as through #PROMs, would help clinicians understand the priorities of people living with HIV, especially the impact of stigma.
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 04/07/2025
Reminder to register to Monday’s webinar! Empowering ageing and older people living with HIV: enduring gaps and emerging opportunities. EATG has put together a really excellent panel, so make sure to tune in at 16:00 CEST. 🔗 Register here: shorturl.at/U0d5P
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 03/07/2025
Great roundtable with EACS at the European Parliament. Europe needs a more unified HIV response, with quality of life, ageing with dignity, mental health and freedom from stigma at its heart. @eacsociety.bsky.social @krzysztofsmiszek.bsky.social @rbiedron.bsky.social @socialistsanddemocrats.eu
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 27/06/2025
Excited to participate in an EATG webinar: Empowering ageing and older people living with HIV: enduring gaps and emerging opportunities. 🗓️ 7 July (4pm CEST) 🔗 shorturl.at/U0d5P People are living longer with HIV. We can empower them to become decision-makers in their own HIV care and ageing journey
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 25/06/2025
We've submitted evidence to @ec.europa.eu's LGBTIQ equality strategy 🏳️‍🌈 shorturl.at/c242S LGBTIQ+ communities are key pillars in the HIV response. We need the Strategy to: 🚫 Address stigma + discrimination 🩺 Promote #HRQoL 🧑‍🧒 Support long-term care 📉 Collect more data 🤝 Involve + sustain communities
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 20/06/2025
Thanks so much for hosting us @nat.org.uk! You and our other in-country initiatives have done some outstanding work in advocating for the health-related quality of life of people living with HIV. Keep up the good work 👏
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 17/06/2025
Exciting day in London, as we hosted our colleagues across Europe, 🇮🇹IT 🇷🇴RO 🇳🇱NL & 🇬🇧UK. We discussed: 👉 the global HIV situation, where funding cuts threaten progress and millions of lives 👉 ongoing voluntary sector research 👉 our upcoming 10th anniversary 👉 Welcomed a new initiative – stay tuned!
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Reposted by HIV Outcomes - Beyond Viral Suppression
Garry Brough @garrybrough.bsky.social · 12/06/2025
Great presentation from James from @nat.org.uk about the findings of the @hivoutcomes.bsky.social research on the financial crisis facing the #HIV voluntary sector, who provide an essential complement to clinical care, particularly in providing #PeerSupport. #NHIVNA2025
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 13/06/2025
𝗣𝗲𝗲𝗿 𝗮𝗻𝗱 𝗰𝗼𝗺𝗺𝘂𝗻𝗶𝘁𝘆 𝘀𝘂𝗽𝗽𝗼𝗿𝘁 𝗰𝗮𝗻 𝗯𝗲 𝗹𝗶𝗳𝗲-𝗰𝗵𝗮𝗻𝗴𝗶𝗻𝗴 – 𝗮𝗻𝗱 𝗶𝘁𝘀 𝗮𝗯𝘀𝗲𝗻𝗰𝗲 𝗱𝗲𝘃𝗮𝘀𝘁𝗮𝘁𝗶𝗻𝗴. In Scotland, as well as across the UK and Europe, life-changing HIV services are under threat. A new report, presented by @nat.org.uk, makes urgent recommendations to protect peer-support provisions. shorturl.at/zyR6u
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 28/05/2025
At #AIDSImpact2025, we hosted a great symposium on how Patient-Reported Outcome Measures (PROMs) drive person-centred HIV care and improve health-related quality of life (HRQoL) Thanks to our superb panellists: Nicoletta Policek, Brian West, Diana Barger, Mario Cascio, Kevin Moody & Richard Harding
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 26/05/2025
Patient-Reported Outcome Measures (PROMs) can substantially improve person-centredness in HIV care by increasing focus on health-related quality of life. At #AIDSImpact TOMORROW, HIV Outcomes and EATG are delivering a symposium in the Grand Auditorium @ 14:30-16:00. Come along! 👉 shorturl.at/C7QFh
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 21/05/2025
🆕 HIV Services at the crossroads: the role of the voluntary sector and needs of communities. A new report, launched at 🇬🇧 UK parliament by @nat.org.uk, sets out urgent recommendations to support the voluntary sector. 💬 "People will only survive and not thrive without them." shorturl.at/NII9T
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 16/05/2025
An excellent Informal HIV Working Group meeting in @europarl.europa.eu. Stigma & discrimination are hindering the global HIV response, esp. in healthcare, where people living with HIV continue to face prejudice. We support @marcangel-mep.bsky.social call for more training and awareness campaigns.
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 14/05/2025
HIV Outcomes had a great focus group discussion with @unaids.org on the 2026-2031 Global AIDS Strategy. 39 million people are living and ageing with HIV. This presents complex 𝗰𝗹𝗶𝗻𝗶𝗰𝗮𝗹, 𝗽𝘀𝘆𝗰𝗵𝗼𝗹𝗼𝗴𝗶𝗰𝗮𝗹 and 𝘀𝗼𝗰𝗶𝗮𝗹 𝗰𝗵𝗮𝗹𝗹𝗲𝗻𝗴𝗲𝘀 to health and well-being, which health systems must address.
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 09/05/2025
See you soon, Casablanca! ☀️ At AIDS Impact 2025 (26-28 May), we'll be leading a session on '𝘛𝘩𝘦 𝘪𝘮𝘱𝘭𝘦𝘮𝘦𝘯𝘵𝘢𝘵𝘪𝘰𝘯 𝘰𝘧 𝘗𝘢𝘵𝘪𝘦𝘯𝘵 𝘙𝘦𝘱𝘰𝘳𝘵𝘦𝘥 𝘖𝘶𝘵𝘤𝘰𝘮𝘦 𝘔𝘦𝘢𝘴𝘶𝘳𝘦𝘴 (𝘗𝘙𝘖𝘔𝘚) 𝘵𝘰 𝘥𝘳𝘪𝘷𝘦 𝘱𝘦𝘳𝘴𝘰𝘯-𝘤𝘦𝘯𝘵𝘳𝘦𝘥𝘯𝘦𝘴𝘴 𝘢𝘯𝘥 𝘪𝘮𝘱𝘳𝘰𝘷𝘦 𝘩𝘦𝘢𝘭𝘵𝘩-𝘳𝘦𝘭𝘢𝘵𝘦𝘥 𝘲𝘶𝘢𝘭𝘪𝘵𝘺-𝘰𝘧-𝘭𝘪𝘧𝘦.' 🗓️ Tuesday 27 May 🕝 2:30-4:00pm 📍 1 Grand Auditorium
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HIV Outcomes - Beyond Viral Suppression @hivoutcomes.bsky.social · 30/04/2025
Mariana Mardarescu and Magdalena Ankiersztejn-Bartczak attended a @ecdc.europa.eu and @poland25eu.bsky.social conference on SDG 3.3. A great opportunity to connect with NGOs, clinicians and experts, share best practices and strengthen collaboration. 🔜 An event report will be published soon...
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