Reposted by CrystalKelly @broadwaybabyto.bsky.social · 06/02/2025Living with disabilities is a masterclass in how to handle gaslighting You get it from everyone. Doctors, family, friends, bosses, colleagues A neverending litany of people telling you “it can’t be THAT bad” or “you should just do this” We are the experts in our bodies. Respect us. Listen to us. 451422304
Reposted by CrystalWoozle @wiredwoozle.bsky.social · 23/12/2024Surely someone with a quiet spare room could use extra income (rent + carer’s allowance). Victoria, Australia. Please share this widely. 🙏 - Urgent needs listed ⬇️ with ALT-text - Article detailing her situation: thecanary.co/global/world... #LongCovid #DV #Housing #Disability #HouseSharing #SaveAnna 0913
Reposted by CrystalAdam @abrokenbattery.bsky.social · 21/11/2024New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment. youtu.be/RiwX9Y0NbiQ?...youtu.beME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)YouTube video by Broken Battery 47473219
Reposted by CrystalKaren Hargrave @karenlhargrave.bsky.social · 12/11/2024I found some time recently to sit down and write for our #ThereForMe blog. In my day job I’ve spent a lot of time lately thinking about narratives. Some thoughts on why #ME and #LongCovid narratives matter - and how we can change them for the better. www.thereforme.uk/p/from-yuppi...thereforme.ukFrom ‘yuppie flu' to ’anti-recovery activists’Why narratives around ME and Long Covid matter – and how to change them 03816
Reposted by CrystalCK DexterHaven 🍂🍁🍂 @ckshowalter.bsky.social · 07/10/2023As Twitter spirals, there’s an effort to help get chronically ill folks moved. If you have spare codes, consider adding them to the form below. It’s really hard for people with certain illnesses to deal with the logistics of moving. This form helps make it a little easier.docs.google.comBlueSky Invites for the Chronic Illness CommunityPlease fill out this form if you're the chronic illness community and you'd like to either (1) donate invite codes or (2) request an invite. 1311079