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Tony Collier BEM

@ethansgrumps.bsky.social
359 followers 240 following 304 posts

Diagnosed with incurable prostate cancer in May 2017 and given 2 years to live. Now a passionate campaigner to make sure as few men as possible end up like me. Altrincham FC and Man Utd fan

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Tony Collier BEM @ethansgrumps.bsky.social · 01/10/2026
Day 1 of October challenge complete and 5km all run with no walk breaks which is the first time for a long time. If anyone can donate I’d really appreciate it tackleprostate.enthuse.com/pf/move-the-...
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Tony Collier BEM @ethansgrumps.bsky.social · 30/09/2026
A short video about my October fundraising challenge that starts tomorrow raising funds for Tackle Prostate Cancer This is the giving link and I’d be greatly appreciative of any donations. tackleprostate.enthuse.com/pf/move-the-... The challenge terrifies me as the last 9 months has been grim!
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Tony Collier BEM @ethansgrumps.bsky.social · 27/09/2026
That’s awful! How selfish. Hard work keeping cyclists off closed roads at Knutsford 10k this morning!
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Tony Collier BEM @ethansgrumps.bsky.social · 24/09/2026
Had my big jab this morning and already feeling the side effects. It’s my 39th and I hope to have many more, every 12 weeks. For those that don’t know, this drug chemically castrates men by removing testosterone that feeds #prostatecancer It works but the impact is grotesque!
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Tony Collier BEM @ethansgrumps.bsky.social · 24/09/2026
The best!
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Tony Collier BEM @ethansgrumps.bsky.social · 23/09/2026
Thanks Simon
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Reposted by Tony Collier BEM
Simon H @simonh77.bsky.social · 23/09/2026
Think it's about 7.5 years since I met Tony when he launched the first 5k Your Way - Move Against Cancer initiative in the North & he's become a great friend since then. A tireless fund & awareness raiser for #prostatecancer this is his latest endeavour all while living with terminal cancer
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Tony Collier BEM @ethansgrumps.bsky.social · 23/09/2026
I’m taking on a big challenge in October to raise money for @TackleProstate and support more men and their families living with #prostatecancer I’m trying to run 5km, move 10,000 steps or cycle 10km every day. Please donate tackleprostate.enthuse.com/pf/move-the-...
tackleprostate.enthuse.com
Move the Month in October
My challenge is to either run 5km, move 10,000 steps or cycle 10km every day in October. My why is that my experience of living with prostate cancer was that support was pretty awful but then I got in
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Tony Collier BEM @ethansgrumps.bsky.social · 06/09/2026
I met the main man at Tour De 4 today
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Tony Collier BEM @ethansgrumps.bsky.social · 21/08/2026
Since I started to live with incurable cancer it’s always been a challenge to set targets. My initial prognosis wasn’t great and it seemed unlikely that I would see my then 3 year old Grandson become a teenager. Well, today he is 13 so I wrote a blog! runningintocancer.co.uk/2026/08/21/t...
runningintocancer.co.uk
Targets and milestones
When I think back to that horrendous day, Tuesday 9th May 2017, when I received a telephone call from my sports injuries Doctor to tell me he was 99% certain I had prostate cancer, it’s fair to say…
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Tony Collier BEM @ethansgrumps.bsky.social · 27/07/2026
I’ve written another blog. It’s partly about the mental struggles of living with stage 4 cancer but it’s mainly about our holiday in Madeira with lots of lovely photographs and videos. runningintocancer.co.uk/2026/07/27/g...
runningintocancer.co.uk
Glimpses of me/holiday blog
Holidays are meant to be happy but sometimes, when you are living with incurable cancer, they are really challenging! We had a wonderful break starting in Amsterdam to visit my brother in Law and s…
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Tony Collier BEM @ethansgrumps.bsky.social · 27/07/2026
Brilliant to take part in this podcast with some amazing oncologists
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Tony Collier BEM @ethansgrumps.bsky.social · 28/06/2026
Decent player but prone to making stupid mistakes
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Tony Collier BEM @ethansgrumps.bsky.social · 17/06/2026
My article about prostate cancer screening and looking at harms of overtreatment Vs harms of late diagnosis, has had hundreds of views. Had lots of positive comments about its validity and no challenges on its accuracy or content. runningintocancer.co.uk/2026/05/29/p...
runningintocancer.co.uk
Prostate Cancer Screening – Let’s look at the numbers
The UK National Screening Committee (NSC) has reached its decision on screening and the answer was largely that they don’t recommend it. Even for those at the highest risk. Black men over 45 who ha…
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Tony Collier BEM @ethansgrumps.bsky.social · 29/05/2026
I wrote an article about the National Screening Committees decision not to recommend #prostatecancerscreening I’m very happy to hear the views of any experts to correct anything I’ve said or misinterpreted runningintocancer.co.uk/2026/05/29/p...
runningintocancer.co.uk
Prostate Cancer Screening – Let’s look at the numbers
The UK National Screening Committee (NSC) has reached its decision on screening and the answer was largely that they don’t recommend it. Even for those at the highest risk. Black men over 45 who ha…
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Tony Collier BEM @ethansgrumps.bsky.social · 21/04/2026
A lovely write up in local online press www.warrington-worldwide.co.uk/2026/04/20/t...
warrington-worldwide.co.uk
Two men living with incurable Prostate Cancer launch support group
TWO Warrington men living with metastatic incurable prostate cancer have set up the first ever Warrington prostate cancer support group.
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Tony Collier BEM @ethansgrumps.bsky.social · 21/04/2026
Delighted to announce the launch of a #prostatecancer support group for the Warrington area. First meeting on 1st June. More details from warringtonprostate@gmail.com
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Tony Collier BEM @ethansgrumps.bsky.social · 22/01/2026
I’ve written a blog about the hits and misses of living with incurable prostate cancer as well as highlighting some of the things I’ve gained but wish I hadn’t. Why did I write it? Because I want people to read it and make sure they don’t end up like me runningintocancer.co.uk/2026/01/22/t...
runningintocancer.co.uk
The Hits and Misses of living with stage 4 prostate cancer (and a few of the things you gained but wished you hadn’t)
I’ve not blogged about living with stage 4 prostate cancer for a while but I do think people need to understand the consequences of late diagnosis in order that they are aware that they need to be …
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Tony Collier BEM @ethansgrumps.bsky.social · 17/01/2026
AS results from a diagnosis because of screening though and it’s the most important part of reducing harms
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Tony Collier BEM @ethansgrumps.bsky.social · 17/01/2026
Agreed. Using data for black men from the USA where there’s a totally different health care system is nonsense
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Tony Collier BEM @ethansgrumps.bsky.social · 17/01/2026
I don’t believe that the other screening programmes have AS as an option
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Tony Collier BEM @ethansgrumps.bsky.social · 17/01/2026
I actually think it’s quite real and I literally interact with 100’s of men regularly. I do think better comms could help deal with it though. Telling people about the results of the PROTECT trial for example
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Tony Collier BEM @ethansgrumps.bsky.social · 17/01/2026
I’m sure that’s right. There’s already a shortage of radiographers. That’s why I don’t think we’ll get population screening without significant investment but they should have planning first screening for the last decade and haven’t
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Tony Collier BEM @ethansgrumps.bsky.social · 17/01/2026
We won’t get population screening without massive investment. Testing millions of men regularly and then potentially further tests/treatment is just not possible with the current infrastructure
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Tony Collier BEM @ethansgrumps.bsky.social · 17/01/2026
It’s not that easy though. Things have improved as far as overtreatment is concerned but inevitably some men who are told they have cancer, albeit very low grade that may never harm them, will find AS unacceptable and want radical treatment or suffer real stress and anxiety. It’s very nuanced!
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Tony Collier BEM @ethansgrumps.bsky.social · 17/01/2026
The decision to screen men with BRCA without a plan to identify those men is also joke
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Tony Collier BEM @ethansgrumps.bsky.social · 17/01/2026
Informed choice is fatally flawed
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Tony Collier BEM @ethansgrumps.bsky.social · 17/01/2026
Agree re quack meds. Abiraterone is definitely not one of those. It’s very unfortunate that the current informed choice to getting tested is fatally flawed and leads to too many stage 4 dx’s particularly amongst those from poorer socioeconomic backgrounds and ethnic minorities
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Tony Collier BEM @ethansgrumps.bsky.social · 17/01/2026
I know the debate intimately. I’ve responded to the NSC consultation as one of the UK’s leading patient advocates and Trustee of Tackle. It is indeed a very nuanced debate but one that, without fail, never ever considers the harm of late diagnosis. It’s not death alone that needs consideration!
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Tony Collier BEM @ethansgrumps.bsky.social · 17/01/2026
I know lots of people on it. No one seems to experience problems that are any worse than HT. My friend Kev has been on it as long as I have and run 4 Marathon De Sables in 10 years and doing his 5th this year. Significant side effects are quite rare
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Tony Collier BEM @ethansgrumps.bsky.social · 16/01/2026
I’ve been on it 8.5 years and had no worse side effects than I get from Prostap
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Tony Collier BEM @ethansgrumps.bsky.social · 16/01/2026
I was diagnosed stage 4 so too late for surgery. All I’ve had is hormone therapy (Prostap) and Abi. I swerved chemo
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Tony Collier BEM @ethansgrumps.bsky.social · 16/01/2026
I’ve been on Abi for 8.5 years. In that time I’ve run London marathon, completed a 100km ultra marathon, run at least 5km per day for a full year. Like all drugs it has side effects but the positive is I’m still alive when I was given 2 years to live
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Tony Collier BEM @ethansgrumps.bsky.social · 07/01/2026
I started my blog was because I wanted my Grandchildren to know who and what "grumps" was when I've gone. I decided to chronicle the key aspects of my life in Reviews of the previous year and 2025 was epic in many ways so here's my review of 2025. runningintocancer.co.uk/2026/01/07/r...
runningintocancer.co.uk
Review of 2025
HEALTH UPDATE 2025 was a strange year from a health perspective as it was plagued by minor illnesses and viruses that, individually, were something and nothing but cumulatively were a pain. The mos…
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Tony Collier BEM @ethansgrumps.bsky.social · 25/11/2025
My live interview on Granada News last night is about 10 minutes into this www.itv.com/watch/news/w...
itv.com
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Tony Collier BEM @ethansgrumps.bsky.social · 14/11/2025
Sorry to hear of your loss Simon. Condolences to the family
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Reposted by Tony Collier BEM
National Prostate Cancer Audit @npca-natcan.bsky.social · 14/11/2025
🚨The latest National Prostate Cancer Audit Newsletter is OUT, you can read it here www.natcan.org.uk/news/npca-ne... Packed full of news, information and links! Please share it widely. @natcan-news.bsky.social @hqip.bsky.social
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Tony Collier BEM @ethansgrumps.bsky.social · 11/11/2025
I feel very blessed Simon
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Tony Collier BEM @ethansgrumps.bsky.social · 11/11/2025
Back at The Christie Hospital today for my latest prostate cancer test results. After having been given 2 years to live 8.5 years ago my PSA is still undetectable and cancer completely stable. We live to fight another day. KOKO my friends.
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Tony Collier BEM @ethansgrumps.bsky.social · 02/11/2025
#ProstateCancer screening debate is raging. I’ve tried to capture the nuances of the debate in this blog. I accept that I’m biased towards screening but I’ve tried to reflect both sides. runningintocancer.co.uk/2025/11/02/t...
runningintocancer.co.uk
To Screen or not to screen
I’m very much in favour of screening for prostate cancer, as you’d expect given that I was diagnosed with the incurable variety at age 60 and given a worst-case prognosis of two years. Being told t…
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Tony Collier BEM @ethansgrumps.bsky.social · 27/10/2025
Final few tickets available for the Paint Altrincham Blue comedy night supporting @ProstateUK and @TackleProstate. Early bird tickets sold out. Buy yours from Eventbrite using this link www.eventbrite.co.uk/e/pab-comedy...
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Tony Collier BEM @ethansgrumps.bsky.social · 25/10/2025
She is awful
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Tony Collier BEM @ethansgrumps.bsky.social · 25/10/2025
Well Ethan bagged a PB at Wilmslow parkrun of 25:25 as a young 12 year old so I’m now living vicariously through him 😂😂😂🏃🏻‍♂️‍➡️🏃🏻‍♂️‍➡️🏃🏻‍♂️‍➡️
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Tony Collier BEM @ethansgrumps.bsky.social · 24/10/2025
Thanks. Feedback was good so I did my work okay I think
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Tony Collier BEM @ethansgrumps.bsky.social · 19/10/2025
Delighted with my presentation at #ESMO25 for @Medscape. It’s such a privilege to be given the patient voice and make the voices of the thousands of men that @TackleProstate support, heard. Now though I found a beer garden! Won’t be here long cos it’s freezing!
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Tony Collier BEM @ethansgrumps.bsky.social · 17/10/2025
Every single right wing account on Twitter (so that’s 90% of accounts on there) was appalled by the decision to ban! Personally I think it was sensible to protect Villa fans and Birmingham residents given the reputation of their fans!
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Tony Collier BEM @ethansgrumps.bsky.social · 15/10/2025
Delighted with this article published by Tackle Prostate Cancer about the harms of late diagnosis of prostate cancer tackleprostate.org/harms-of-lat...
tackleprostate.org
Tackle Prostate Cancer - We stand alongside everyone affected by prostate cancer.
Considering both sides of the discussion when it comes to a national screening for prostate cancer, but why early diagnosis is important.
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Tony Collier BEM @ethansgrumps.bsky.social · 14/10/2025
Fitting that my article tackleprostate.org/harms-of-lat... on the harms of late diagnosis of #prostatecancer is published today as we’ve been at Westminster for the launch of Prostate Cancer Research’s paper Prostate Cancer Screening: The impact on the NHS which has met with cross party support.
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Tony Collier BEM @ethansgrumps.bsky.social · 08/10/2025
Absolutely brilliant gig from Kane Brown in Manchester tonight. Definitely in my top 3 of the year and maybe top
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Tony Collier BEM @ethansgrumps.bsky.social · 02/10/2025
You’re always on holiday
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