iiinova — where your digital self keeps evolving

Epilepsy Warrior, RN @epilepsywarriorrn.bsky.social · 18/12/2024

If you didn’t have hope, you wouldn’t have found this post. Keep your hope. An online community counts as a “real community”, and we are here to support each other. #epilepsy #seizures #neurology #chronicillness #hope

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Reposted by Epilepsy Warrior, RN

Brain Ablaze @brainablaze.bsky.social · 11/12/2024

We saw someone on the other platform make the joke that a person with #Epilepsy might swallow their tongue. It's impossible to swallow one's tongue. If you witness a seizure never put something in the person's mouth. -- What's another Epilepsy myth that should be debunked? #EpilepsyAwareness

Nobody is going to swallow their tongue. - Every doctor EVER -- A kid pokes out his tongue over a purple background.

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Epilepsy Warrior, RN @epilepsywarriorrn.bsky.social · 12/12/2024

It’s #Christmas lights season and it is a tough time for #epileptics. It is true not all of us are triggered into a #seizure immediately. However, many of us are still significantly bothered by lights. An accumulation of #sensory overload can increase the risk of a seizure. #epilepsy #neurology ✌️🎄

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Epilepsy Warrior, RN @epilepsywarriorrn.bsky.social · 10/12/2024

1. This one gets real. I was misdiagnosed and written off to psych for 22 years. Then they found the presumably congenital lesion in my brain. It was #seizures and #epilepsy. My world suddenly made sense. If your treatment isn’t working for your diagnosis, kindly ask questions (…)

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Epilepsy Warrior, RN @epilepsywarriorrn.bsky.social · 09/12/2024

This meme is hilarious. 😂 However, for epileptics, this cartoon is not hyperbole. Our thoughts can absolutely feel scrambled and disjointed to this degree. If you feel this way, you’re not alone. This is a common symptom. But hey, let’s have a laugh together. 🤪 #epilepsy #neurology #seizures

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Epilepsy Warrior, RN @epilepsywarriorrn.bsky.social · 30/11/2024

We made it! We got through a stressful holiday! Sadly, all magic comes with a price, and I had a seizure this morning. I’m ok; it was a small focal. It happened. Seeing my fam was worth it. Every day is new & we keep going gallantly. We conquered Thanksgiving & see us prevail. #memoryloss #epilepsy

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Reposted by Epilepsy Warrior, RN

The Notorious EEG (M. Scott Perry MD) @thenotoriouseeg.bsky.social · 28/11/2024

Wishing everyone a happy, healthy, and seizure-free #Thanksgiving 🦃 #EpilepsyAwarenessMonth 💜

Purple and black turkey with a brain serving as the turkey’s body and the label “Happy Thanksgiving” across the top

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Epilepsy Warrior, RN @epilepsywarriorrn.bsky.social · 27/11/2024

For those with memory loss, I see you this #Thanksgiving; the anxiety you have going into tomorrow. Will you: remember faces/names, struggle to reminisce with family while pretending to know the stories, be so overwhelmed you need to leave? It’s ok to feel this anxiety. 💜 #epilepsy #memoryloss

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Epilepsy Warrior, RN @epilepsywarriorrn.bsky.social · 27/11/2024

Having some seizure stuff happening tonight. I realized I’m avoiding calling my doc b/c of the clunky automated phone system - knowing it will take 15 min of verifying identity and 4+ button pushes, wondering I’m worthy of a human answering my call, then being told they will call me back… #epilepsy

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Epilepsy Warrior, RN @epilepsywarriorrn.bsky.social · 26/11/2024

You have to take care of your brain. Listen to what it needs. #epilepsy #seizures #epilepsyawareness

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