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European MS Platform @emspofficial.bsky.social · 3h

🧠 Save the date! The EMSP Annual Conference returns on 24-25 April 2027 in Lisbon, Portugal, co-hosted with Portugese MS Society, SPEM Join patients, caregivers, researchers, clinicians and policymakers for important conversations on brain health, innovation and advocacy. #EMSP2027

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European MS Platform @emspofficial.bsky.social · 4h

Moving more is one of the easiest ways to support brain health, but with MS, NMOSD or MOGAD, fatigue, heat and relapse worries can get in the way. Prof. Philipp Zimmer, @tu-dortmund.de & advocate Janneke Benders on how to start and keep going. 13 Oct · 16:00 CEST Register bit.ly/4i3b9NL

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European MS Platform @emspofficial.bsky.social · 09/10/2026

We are back this new episode focused on Artificial Intelligence in Healthcare Management. We will deep dive into how AI tools are impacting healthcare, the shift from "Dr. Google" to "Dr. AI," the practical opportunities and safety challenges. lets-talk-ms.castos.com/episodes/s03...

lets-talk-ms.castos.com

S03E02 | Artificial Intelligence in Healthcare Management

We are continuing Season 3 with a brand-new episode on Artificial Intelligence in Healthcare Management. Hosts Anna Revilla and Elisabeth Kasilingam are joined by Stijn Denissen and Joke Tsuta for a…

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European MS Platform @emspofficial.bsky.social · 08/10/2026

#WorldSightDay 👁️ For many people with MS, NMOSD and MOGAD, the first symptoms appear in the eyes. NMOSD and MOGAD are often misdiagnosed as MS, and delays can mean permanent vision loss. EMSP's new #MSBarometer will bring the first Europe-wide data on their care. Coming 2027.

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European MS Platform @emspofficial.bsky.social · 06/10/2026

Today is #EuropeanCarersDay. For people with MS, specialist nurses are at the heart of care, yet 66% spend most of their time on admin tasks. Join us at the @europarl.europa.eu on 1 Dec to discuss solutions for Europe's health workforce 👉 bit.ly/4egA671 #MSNurses #HealthWorkforce

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European MS Platform @emspofficial.bsky.social · 30/09/2026

EMSP's MS Barometer points to the same inequality in access to care across Europe. Learn more about IMSS and the Barometer: bit.ly/4xXIOOK bit.ly/4xPqpnf

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European MS Platform @emspofficial.bsky.social · 30/09/2026

"If real-world evidence excludes lived experience, it is only a partial view of the real world." Our CEO Elisabeth Kasilingam at #EFNA2026 IMSS data show people with MS face an average of 14 symptoms, yet many report limited access to personalised care. #PatientData

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European MS Platform @emspofficial.bsky.social · 23/09/2026

Only 48% of people with MS are in work across the European countries that report data. MS is usually diagnosed between 20 and 40 — peak career years. Our CEO @lili_ @eumsplatform speaks on brain health and employment today at #IFDM2026 in Edinburgh. #MultipleSclerosis

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European MS Platform @emspofficial.bsky.social · 22/09/2026

Running faster isn't only about training harder. It's about wasting less. Part two of coach Guillaume Lodini's #EMSPRun2026 series: technique — posture, stride and breathing. Register 👉️ emsp.org/events/emspr...

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European MS Platform @emspofficial.bsky.social · 11/09/2026

Running will never be the same as before, but she keeps pushing herself. On 18 Oct she runs the Antwerp Marathon with EMSP. Join her. Register- emsp.org/events/emspr... #EMSPRun2026

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European MS Platform @emspofficial.bsky.social · 11/09/2026

Runner spotlight: Meet Elodie Devos. A PhD student in Communication Sciences, passionate about amplifying diverse voices in research At 19, her legs went numb. After a long search and many visits to the doctor, the diagnosis came: Multiple Sclerosis.

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European MS Platform @emspofficial.bsky.social · 08/09/2026

The hardest run of the year isn't the marathon. It's the first one back after summer. Join coach Guillaume Lodini for a three-part series to get you ready for #EMSPRun2026. Part one: the three pillars of marathon prep — consistency, intervals, strength. Register for the Run 👉️ bit.ly/4zSwukV

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European MS Platform @emspofficial.bsky.social · 03/09/2026

Meet Eline-Sofie Lende Her first MS attack came working her shift on a hospital ward. She was 23. This October she runs the Antwerp Marathon with the EMSP Team, fundraising for young people living with MS, NMOSD and MOGAD. Join her: emsp.org/events/emspr... #MSRun2026 #BrainHealth #RunforaCause

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European MS Platform @emspofficial.bsky.social · 01/09/2026

EMSP is heading to @ACTRIMS in October! We'll be carrying the voices of people with MS, NMOSD and MOGAD into Patient Community Day on 23 Oct and you'll find us at our booth all week. Come talk MS Barometer, Research and capacity building for patient community. youtu.be/F1zn78q1iWc

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EMSP at ECTRIMS 2025: Advancing Patient-Centred Research

At ECTRIMS 2025 in Barcelona, EMSP CEO, Elisabeth Kasilingam discusses why empowering and informing the patient community is essential for advancing meaningful research and influencing policies that…

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European MS Platform @emspofficial.bsky.social · 31/07/2026

EMSP's first strategic meeting with our newly elected Executive Committee has wrapped up! 💙 Two days of meaningful discussions, shared vision, and renewed commitment to serving the MS, NMOSD & MOGAD communities across Europe #MS #NMOSD #MOGAD #StrongerTogether

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European MS Platform @emspofficial.bsky.social · 22/07/2026

Time matters in MS: early diagnosis + timely treatment prevent irreversible disability. Yet access across Europe remains a postcode lottery. This #WorldBrainDay, the 7th #MSBarometer is underway — now including NMO & MOGAD for the first time. 📊https://emsp.org/projects/ms-barometer-2025-2027/

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European MS Platform @emspofficial.bsky.social · 22/07/2026

🧬 New insights into EBV and multiple sclerosis (MS) EBV-MS researchers found that MS is linked to stronger EBV-specific immune responses, reduced by anti-CD20 therapy. The findings support future EBV-targeted vaccines and antiviral approaches. Read the paper: buff.ly/LOEmoR0

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CD4+ T cells reactive to Epstein-Barr virus late lytic antigens are enriched in individuals with multiple sclerosis

CD4+ T cells in MS preferentially recognize EBV viral particles rather than latent antigens, and responses are reduced by B cell–targeting therapies.

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European MS Platform @emspofficial.bsky.social · 16/07/2026

🧬 New BEHIND-MS research: Family history of MS is linked to genetic risk and traits related to vitamin D and body weight, but not faster early disease progression. 📖 Van Luijn M. et al. (2026) #MultipleSclerosis #MSResearch #BEHINDMS #HaDEA

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European MS Platform @emspofficial.bsky.social · 14/07/2026

Thank you to our vibrant @eumsyouth community for their active participation, endless energy, and valuable contributions in making these monthly catch-ups so delightful! See you in the next one. #randomcoffee #ypn

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European MS Platform @emspofficial.bsky.social · 14/07/2026

Nutrition can't cause MS. And it can't cure it. But it shapes fatigue, bowel symptoms, inflammation, cardiovascular risk — and quality of life. Dietitian Sophie Pratt and Marjolijn Oranje on what actually works, in the new Let's Talk MS. 🎧 bit.ly/3RuVUDS #LetsTalkMS #MSPodcast

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European MS Platform @emspofficial.bsky.social · 13/07/2026

Can we prevent MS before symptoms appear? As part of the WISDOM project, Prof. Bernhard Hemmer explores how EBV, genetics and biomarkers could help identify risk earlier. Read more: buff.ly/AQDPzwW #WISDOM #HorizonEU

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WISDOM - Wisdom Horizon Project

Read the latest blog posts, insights, and updates from the WISDOM research team.

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European MS Platform @emspofficial.bsky.social · 09/07/2026

Yesterday EMSP presented the #MSBarometer at the European Charcot Foundation's MS Initiatives meeting. A first for 2025–2027: NMO & MOGAD join MS in the Barometer — long-missing pan-European data, finally in view. 📊 Thank you #EuropeanCharcot for the warm exchange! #MSBarometer2027

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European MS Platform @emspofficial.bsky.social · 06/07/2026

516 patients per nurse That's the average caseload MS nurses reported in our 2024 survey. Join our live webinar on smarter workload strategies for MS nurses, with Mavis Ayer (UK) & Francesco Pastore (Italy). 🗓 Wed 8 July, 4pm CEST Register: msnursepro.org/webinars/427...

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European MS Platform @emspofficial.bsky.social · 29/06/2026

How do we ease the workload on MS nurses without compromising care? Our upcoming webinar tackles one of MS care's most pressing challenges growing caseloads, admin burden & fragmented care—and what real change looks like. Join us. Register now 👇 bit.ly/4oWNzoX

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European MS Platform @emspofficial.bsky.social · 23/06/2026

4/ 💚 Every euro raised funds EMSP's work, especially programmes for young people living with MS and related disorders. Register & start fundraising 👉 emsp.org/events/emspr...

emsp.org

EMSP Awareness Run - EMSP

EMSP Awareness Run 2026 is back Join the EMSP Awareness Run Participate in the EMSP Awareness Run and connect with...

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European MS Platform @emspofficial.bsky.social · 23/06/2026

3/ 🤝 The power of community. Join us at the Trek Antwerp Marathon or run, roll or walk from your own city. Thousands of people, many countries, one goal: a world without MS. You never run alone.

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European MS Platform @emspofficial.bsky.social · 23/06/2026

2/ 🧠 Movement is brain health. For people living with MS, NMOSD & MOGAD, regular exercise supports cognition and mental health. Every step is a step for your brain.

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European MS Platform @emspofficial.bsky.social · 23/06/2026

Need a reason to register for the EMSP Awareness Run 2026? Here are three. 🧵 #MSAwareness #EMSPRun26

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European MS Platform @emspofficial.bsky.social · 19/06/2026

Lace up! 🏃‍♀️🦽 The EMSP Awareness Run is back. Run, roll, or walk for people living with MS, NMO & MOGAD. 📍 Antwerp Marathon, 18 Oct 2026 🌍 Or fundraise from anywhere 👉 Register: emsp.org/events/emspr... 💙 #AwarenessRun #MultipleSclerosis #EmspRun

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European MS Platform @emspofficial.bsky.social · 11/06/2026

Our Community Coordinator Anna Revilla Bruñol was in Seville for PEOF 2026, bringing the voices of young people with MS, NMOSD & MOGAD into discussions on patient engagement. Read her takeaways: bit.ly/3S4Ktme 18–35? Join the YPN 👉 bit.ly/4utxYy8

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European MS Platform @emspofficial.bsky.social · 03/06/2026

Welcome to the team, Delphine Sartiaux — our new Fundraising & Development Manager! Delphine brings rich experience in fundraising, strategic partnerships & international stakeholder engagement across global health NGOs. Delighted to have her on board 👋

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European MS Platform @emspofficial.bsky.social · 29/05/2026

EMSP highlights its EU-funded projects this #WorldMSDay: 🔹 #WISDOM: secure data + AI for MS insights 🔹 #MoreEUROPA: better use of registry data for patient-centred care 🔹 #BEHINDMS: EBV’s role in MS via immune interactions 🔹 #EBVMS: why EBV leads to MS & antiviral approaches

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European MS Platform @emspofficial.bsky.social · 26/05/2026

Progress on a new MS therapy — shaped by the people it's for. At IMMUTOL's 3rd Annual Meeting in Siena 🇮🇹, EMSP brought expert patients Rebecca Maguire & Anna Revilla into the room as the consortium advanced its vitamin D3 dendritic cell therapy for MS. 🧠

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European MS Platform @emspofficial.bsky.social · 13/05/2026

📍 RiMS 2026 | 11–13 June | Prague The leading European gathering on MS rehabilitation — from neuroplasticity to real-world outcomes that matter most for people with MS. "Coping with MS" panel, chaired by EMSP CEO Elisabeth Kasilingam 🔗 rehabinms.org/meetings-det... #RiMS2026

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European MS Platform @emspofficial.bsky.social · 12/05/2026

516 patients per nurse. That's the average caseload uncovered by our survey of 108 MS nurses across 15 countries. Clinical trials, psychological support and benefits advice routinely left undone Systemic change is overdue #InternationalNursesDay Learm more bit.ly/4fghEwG

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European MS Platform @emspofficial.bsky.social · 11/05/2026

1.2M people live with MS in Europe and access to treatment still depends on where you live. This May, our members DMSG & MS Ireland are taking on #TheMay50K, led by MSIF. Every kilometre moves research and equity forward. Register- bit.ly/4tYB8ul

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European MS Platform @emspofficial.bsky.social · 08/05/2026

5/ Investing in MS nurses = investing in the lives of people with MS. 📄 Full survey & recommendations: bit.ly/4tXx4KG #EUPHW #HealthcareWorkforce #MSNurses #MS

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European MS Platform @emspofficial.bsky.social · 08/05/2026

4/ The cost is borne by people with MS — over 1M Europeans, 80% out of work within 10–15 years of diagnosis. What MS nurses are calling for: ✅ More specialised colleagues ✅ Multidisciplinary referral authority ✅ Independent prescribing rights ✅ Better admin support

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European MS Platform @emspofficial.bsky.social · 08/05/2026

3/ What's getting left undone due to time pressure? ⚠️ Clinical trials ⚠️ Social benefits advice ⚠️ Psychological support ⚠️ Multidisciplinary team consulting ⚠️ Paperwork Over half of MS nurses report limited admin support.

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European MS Platform @emspofficial.bsky.social · 08/05/2026

2/ Our MS Nurse PROfessional survey (108 nurses, 15 countries) reveals a workforce stretched dangerously thin: 📊 An average of 516 patients per MS nurse — far above recommended levels. 74% care for >300 people with MS each year.

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European MS Platform @emspofficial.bsky.social · 08/05/2026

1/ Final day of European Public Health Week 🇪🇺 — today's theme: the healthcare workforce. Specialised MS nurses are the backbone of modern MS care. Without them, no therapy reaches its full potential. 🧵

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European MS Platform @emspofficial.bsky.social · 07/05/2026

4/ 👉 Explore the Learning Corner: emsp.org/learning-cor...

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European MS Platform @emspofficial.bsky.social · 07/05/2026

3/ Curated by EMSP and our partners. Evidence-based. Updated regularly as our projects progress.

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European MS Platform @emspofficial.bsky.social · 07/05/2026

2/ That's why we're proud to launch the EMSP Learning Corner 🎓 — a credible, centralised hub built for our community. Three pillars: 🔹 Capacity building for patient organisations 🔹 Empowerment for patients, carers & advocates 🔹 Policy & community impact

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European MS Platform @emspofficial.bsky.social · 07/05/2026

1/ Day 2 of European Public Health Week 🇪🇺 — today's theme: disinformation. For people living with MS, NMOSD, and MOGAD, sorting fact from fiction online is a daily challenge. Misinformation isn't just confusing — it can be harmful. 🧵 @eupha.bsky.social

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European MS Platform @emspofficial.bsky.social · 05/05/2026

📘 Our 2025 Annual Report is out. A year of impact for the MS, NMOSD & MOGAD community: 🩺 1,729 MS nurses trained in 56 countries Over 140 participants at #EMSP2025 📊IMSS Survey: 28 societies, 26 countries Read the report👉 bit.ly/4nauP4i

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EMSP Annual Report 2025 - EMSP

2025 was a defining year for EMSP. We formally integrated the NMOSD and MOGAD communities into our advocacy, research, and...

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European MS Platform @emspofficial.bsky.social · 25/04/2026

Last session of #EMSP2026 conference in progress- Shaping the future of MS and related disorders.

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European MS Platform @emspofficial.bsky.social · 25/04/2026

There is a direct co-relation between menopausal symptoms and the quality of life of people with MS- reveals Prof Ruth Dobson #EMSP2026 Watch the livestream- eu-admin.eventscloud.com/website/1909...

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