iiinova — where your digital self keeps evolving

European MS Platform @emspofficial.bsky.social · 30/09/2026

"If real-world evidence excludes lived experience, it is only a partial view of the real world." Our CEO Elisabeth Kasilingam at #EFNA2026 IMSS data show people with MS face an average of 14 symptoms, yet many report limited access to personalised care. #PatientData

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European MS Platform @emspofficial.bsky.social · 23/09/2026

Only 48% of people with MS are in work across the European countries that report data. MS is usually diagnosed between 20 and 40 — peak career years. Our CEO @lili_ @eumsplatform speaks on brain health and employment today at #IFDM2026 in Edinburgh. #MultipleSclerosis

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European MS Platform @emspofficial.bsky.social · 22/09/2026

Running faster isn't only about training harder. It's about wasting less. Part two of coach Guillaume Lodini's #EMSPRun2026 series: technique — posture, stride and breathing. Register 👉️ emsp.org/events/emspr...

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European MS Platform @emspofficial.bsky.social · 11/09/2026

Runner spotlight: Meet Elodie Devos. A PhD student in Communication Sciences, passionate about amplifying diverse voices in research At 19, her legs went numb. After a long search and many visits to the doctor, the diagnosis came: Multiple Sclerosis.

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European MS Platform @emspofficial.bsky.social · 08/09/2026

The hardest run of the year isn't the marathon. It's the first one back after summer. Join coach Guillaume Lodini for a three-part series to get you ready for #EMSPRun2026. Part one: the three pillars of marathon prep — consistency, intervals, strength. Register for the Run 👉️ bit.ly/4zSwukV

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European MS Platform @emspofficial.bsky.social · 03/09/2026

Meet Eline-Sofie Lende Her first MS attack came working her shift on a hospital ward. She was 23. This October she runs the Antwerp Marathon with the EMSP Team, fundraising for young people living with MS, NMOSD and MOGAD. Join her: emsp.org/events/emspr... #MSRun2026 #BrainHealth #RunforaCause

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European MS Platform @emspofficial.bsky.social · 01/09/2026

EMSP is heading to @ACTRIMS in October! We'll be carrying the voices of people with MS, NMOSD and MOGAD into Patient Community Day on 23 Oct and you'll find us at our booth all week. Come talk MS Barometer, Research and capacity building for patient community. youtu.be/F1zn78q1iWc

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EMSP at ECTRIMS 2025: Advancing Patient-Centred Research

At ECTRIMS 2025 in Barcelona, EMSP CEO, Elisabeth Kasilingam discusses why empowering and informing the patient community is essential for advancing meaningful research and influencing policies that…

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European MS Platform @emspofficial.bsky.social · 31/07/2026

EMSP's first strategic meeting with our newly elected Executive Committee has wrapped up! 💙 Two days of meaningful discussions, shared vision, and renewed commitment to serving the MS, NMOSD & MOGAD communities across Europe #MS #NMOSD #MOGAD #StrongerTogether

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European MS Platform @emspofficial.bsky.social · 22/07/2026

Time matters in MS: early diagnosis + timely treatment prevent irreversible disability. Yet access across Europe remains a postcode lottery. This #WorldBrainDay, the 7th #MSBarometer is underway — now including NMO & MOGAD for the first time. 📊https://emsp.org/projects/ms-barometer-2025-2027/

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European MS Platform @emspofficial.bsky.social · 22/07/2026

🧬 New insights into EBV and multiple sclerosis (MS) EBV-MS researchers found that MS is linked to stronger EBV-specific immune responses, reduced by anti-CD20 therapy. The findings support future EBV-targeted vaccines and antiviral approaches. Read the paper: buff.ly/LOEmoR0

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CD4+ T cells reactive to Epstein-Barr virus late lytic antigens are enriched in individuals with multiple sclerosis

CD4+ T cells in MS preferentially recognize EBV viral particles rather than latent antigens, and responses are reduced by B cell–targeting therapies.

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European MS Platform @emspofficial.bsky.social · 16/07/2026

🧬 New BEHIND-MS research: Family history of MS is linked to genetic risk and traits related to vitamin D and body weight, but not faster early disease progression. 📖 Van Luijn M. et al. (2026) #MultipleSclerosis #MSResearch #BEHINDMS #HaDEA

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European MS Platform @emspofficial.bsky.social · 14/07/2026

Thank you to our vibrant @eumsyouth community for their active participation, endless energy, and valuable contributions in making these monthly catch-ups so delightful! See you in the next one. #randomcoffee #ypn

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European MS Platform @emspofficial.bsky.social · 14/07/2026

Nutrition can't cause MS. And it can't cure it. But it shapes fatigue, bowel symptoms, inflammation, cardiovascular risk — and quality of life. Dietitian Sophie Pratt and Marjolijn Oranje on what actually works, in the new Let's Talk MS. 🎧 bit.ly/3RuVUDS #LetsTalkMS #MSPodcast

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European MS Platform @emspofficial.bsky.social · 13/07/2026

Can we prevent MS before symptoms appear? As part of the WISDOM project, Prof. Bernhard Hemmer explores how EBV, genetics and biomarkers could help identify risk earlier. Read more: buff.ly/AQDPzwW #WISDOM #HorizonEU

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WISDOM - Wisdom Horizon Project

Read the latest blog posts, insights, and updates from the WISDOM research team.

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European MS Platform @emspofficial.bsky.social · 09/07/2026

Yesterday EMSP presented the #MSBarometer at the European Charcot Foundation's MS Initiatives meeting. A first for 2025–2027: NMO & MOGAD join MS in the Barometer — long-missing pan-European data, finally in view. 📊 Thank you #EuropeanCharcot for the warm exchange! #MSBarometer2027

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European MS Platform @emspofficial.bsky.social · 06/07/2026

516 patients per nurse That's the average caseload MS nurses reported in our 2024 survey. Join our live webinar on smarter workload strategies for MS nurses, with Mavis Ayer (UK) & Francesco Pastore (Italy). 🗓 Wed 8 July, 4pm CEST Register: msnursepro.org/webinars/427...

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European MS Platform @emspofficial.bsky.social · 29/06/2026

How do we ease the workload on MS nurses without compromising care? Our upcoming webinar tackles one of MS care's most pressing challenges growing caseloads, admin burden & fragmented care—and what real change looks like. Join us. Register now 👇 bit.ly/4oWNzoX

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European MS Platform @emspofficial.bsky.social · 23/06/2026

Need a reason to register for the EMSP Awareness Run 2026? Here are three. 🧵 #MSAwareness #EMSPRun26

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European MS Platform @emspofficial.bsky.social · 19/06/2026

Lace up! 🏃‍♀️🦽 The EMSP Awareness Run is back. Run, roll, or walk for people living with MS, NMO & MOGAD. 📍 Antwerp Marathon, 18 Oct 2026 🌍 Or fundraise from anywhere 👉 Register: emsp.org/events/emspr... 💙 #AwarenessRun #MultipleSclerosis #EmspRun

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European MS Platform @emspofficial.bsky.social · 11/06/2026

Our Community Coordinator Anna Revilla Bruñol was in Seville for PEOF 2026, bringing the voices of young people with MS, NMOSD & MOGAD into discussions on patient engagement. Read her takeaways: bit.ly/3S4Ktme 18–35? Join the YPN 👉 bit.ly/4utxYy8

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European MS Platform @emspofficial.bsky.social · 03/06/2026

Welcome to the team, Delphine Sartiaux — our new Fundraising & Development Manager! Delphine brings rich experience in fundraising, strategic partnerships & international stakeholder engagement across global health NGOs. Delighted to have her on board 👋

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European MS Platform @emspofficial.bsky.social · 29/05/2026

EMSP highlights its EU-funded projects this #WorldMSDay: 🔹 #WISDOM: secure data + AI for MS insights 🔹 #MoreEUROPA: better use of registry data for patient-centred care 🔹 #BEHINDMS: EBV’s role in MS via immune interactions 🔹 #EBVMS: why EBV leads to MS & antiviral approaches

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European MS Platform @emspofficial.bsky.social · 26/05/2026

Progress on a new MS therapy — shaped by the people it's for. At IMMUTOL's 3rd Annual Meeting in Siena 🇮🇹, EMSP brought expert patients Rebecca Maguire & Anna Revilla into the room as the consortium advanced its vitamin D3 dendritic cell therapy for MS. 🧠

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European MS Platform @emspofficial.bsky.social · 13/05/2026

📍 RiMS 2026 | 11–13 June | Prague The leading European gathering on MS rehabilitation — from neuroplasticity to real-world outcomes that matter most for people with MS. "Coping with MS" panel, chaired by EMSP CEO Elisabeth Kasilingam 🔗 rehabinms.org/meetings-det... #RiMS2026

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European MS Platform @emspofficial.bsky.social · 12/05/2026

516 patients per nurse. That's the average caseload uncovered by our survey of 108 MS nurses across 15 countries. Clinical trials, psychological support and benefits advice routinely left undone Systemic change is overdue #InternationalNursesDay Learm more bit.ly/4fghEwG

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European MS Platform @emspofficial.bsky.social · 11/05/2026

1.2M people live with MS in Europe and access to treatment still depends on where you live. This May, our members DMSG & MS Ireland are taking on #TheMay50K, led by MSIF. Every kilometre moves research and equity forward. Register- bit.ly/4tYB8ul

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European MS Platform @emspofficial.bsky.social · 08/05/2026

1/ Final day of European Public Health Week 🇪🇺 — today's theme: the healthcare workforce. Specialised MS nurses are the backbone of modern MS care. Without them, no therapy reaches its full potential. 🧵

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European MS Platform @emspofficial.bsky.social · 07/05/2026

1/ Day 2 of European Public Health Week 🇪🇺 — today's theme: disinformation. For people living with MS, NMOSD, and MOGAD, sorting fact from fiction online is a daily challenge. Misinformation isn't just confusing — it can be harmful. 🧵 @eupha.bsky.social

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European MS Platform @emspofficial.bsky.social · 05/05/2026

📘 Our 2025 Annual Report is out. A year of impact for the MS, NMOSD & MOGAD community: 🩺 1,729 MS nurses trained in 56 countries Over 140 participants at #EMSP2025 📊IMSS Survey: 28 societies, 26 countries Read the report👉 bit.ly/4nauP4i

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EMSP Annual Report 2025 - EMSP

2025 was a defining year for EMSP. We formally integrated the NMOSD and MOGAD communities into our advocacy, research, and...

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European MS Platform @emspofficial.bsky.social · 25/04/2026

Last session of #EMSP2026 conference in progress- Shaping the future of MS and related disorders.

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European MS Platform @emspofficial.bsky.social · 25/04/2026

There is a direct co-relation between menopausal symptoms and the quality of life of people with MS- reveals Prof Ruth Dobson #EMSP2026 Watch the livestream- eu-admin.eventscloud.com/website/1909...

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European MS Platform @emspofficial.bsky.social · 25/04/2026

"It's crucial to include MS nurses in patient care. " Dr. Wolfgang Köhler, and Anna Arellanesová, @eurordis make a case for specialised care for people with MS and related disorders. Streaming now: eu.eventscloud.com/website/1909...

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European MS Platform @emspofficial.bsky.social · 25/04/2026

We need to go further than biomarkers when it comes to monitoring the disease" Interesting session on looking beyond biology. Streaming now- eu-admin.eventscloud.com/website/1909...

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European MS Platform @emspofficial.bsky.social · 25/04/2026

"I wondered if can I do a news broadcast on a wheelchair? And then I said why not?" Inpisiring testimony by journalist and MS patient advocate Mirijam Kottoman at #emsp2026 Watch the livstream eu-admin.eventscloud.com/website/1909...

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European MS Platform @emspofficial.bsky.social · 25/04/2026

#EMSP2026 Day 2 is here🚀 Mirjam Kottmann kicks us off with "Just Do It!" Biology-driven care panel CAR-T, stem cells & menopause + MS Another Move It! moment The future of MS in Europe Watch online-https://bit.ly/4cMFcXm

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European MS Platform @emspofficial.bsky.social · 24/04/2026

#EMSP2026 “Patient registries must reflect patients’ preferences — it all comes down to trust.” A powerful takeaway from @denolmo.bsky.social at the #EMSP2026 Conference. Watch the livestream- eu-admin.eventscloud.com/website/1909...

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European MS Platform @emspofficial.bsky.social · 21/04/2026

Why you need to be at #EMSP2026 24–25 April 🎯 From Diagnosis to Access: MS, NMOSD & MOGAD CAR-T, stem cells, menopause & MS 💬 Patient voices 🤝 Ecosystem networking 🤸 Movement breaks 🇵🇹 Win a ticket to #EMSP207 in Portugal! Register for Livestream bit.ly/42csa0a

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European MS Platform @emspofficial.bsky.social · 10/04/2026

🧪New research in the Journal of Autoimmunity Plegridy may suppress EBV in the blood -not just reduce MS inflammation. And the twist? Which EBV variant you carry could predict how well the drug works for you. Personalised MS medicine is getting closer. 🔗 bit.ly/4vkPTZl @horizoneu.bsky.social

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European MS Platform @emspofficial.bsky.social · 30/03/2026

Are biosimilars reshaping #MultipleSclerosis care? Join our live webinar to hear from Nursing expert, Amy Perrin Ross & expert patient, Aoife Kirwan on treatment switches, patient communication, and real-world access. 📅 2 April | 4PM CEST Register bit.ly/48iPwVk

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European MS Platform @emspofficial.bsky.social · 27/03/2026

#WorldNMOSDDay |March 27 Most people, including many doctors, have never heard of NMOSD. For those living with it, that gap has life-changing consequences. Join #EMSP2026 Conference in Berlin to hear from patients and experts about better diagnosis and care. 📅 24–25 April Register bit.ly/4t9kV4B

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European MS Platform @emspofficial.bsky.social · 26/03/2026

Exercise can reduce fatigue & support cognition for people living with MS, NMO and MOGAD. At #EMSP2026 Berlin, join Stephanie Woschek for Move It! — a gentle, adaptable 20-min session for all mobility levels. 💪 In person & livestreamed 📅 24-25 April 📍https://t.co/GHvci6wQFm

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European MS Platform @emspofficial.bsky.social · 24/03/2026

📣 Online registration is NOW OPEN for the #EMSP2026 Conference From Diagnosis to Access: Data-Driven Solutions for MS, NMOSD & MOGAD 📅 24–25 April | 📍 Berlin + 💻 Online 🔗 Register- bit.ly/4bwBQbC @ean.org

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European MS Platform @emspofficial.bsky.social · 19/03/2026

🧠 Donna was 17 when she was diagnosed with MS. She had plans. Dreams. A whole life ahead. "Every relapse was like a bereavement — I was losing parts of myself I couldn't get back." Her story is today's #BrainAwarenessWeek feature. 🧵@danafoundation.bsky.social @ean.org

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European MS Platform @emspofficial.bsky.social · 18/03/2026

🧠 #BrainAwarenessWeek | 5 stories. 5 countries. People living with MS, NMOSD & MOGAD who refused the status quo — pushing back against misdiagnosis, fighting for information, building community. Today: Hristina from Bulgaria. 🇧🇬

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European MS Platform @emspofficial.bsky.social · 13/03/2026

Applications open for the Prize for Rachel Horne Prize for Women's Research in MS 👉Full eligibility criteria and application details: www.rachelhorneprize.com Submissions close Friday, 12 June 2026. #WomenInScience

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European MS Platform @emspofficial.bsky.social · 12/03/2026

For people with MS, NMO & MOGAD better data means faster diagnoses, better care, and research that actually reflects their lives Join us at the #EMSP2026 Conference for a session on: Registries Patient outcomes Ethics of data use ⏰ Early bird rates ending soon. 🔗 bit.ly/4rttOF4 @denolmo.bsky.social‬

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European MS Platform @emspofficial.bsky.social · 11/03/2026

Don't miss our session on harnessing data for research and improved care unpacking: 📊MS registries 🗣️Patient Reported Outcomes 🖇️Ethical challenges 👉Early bird rates ending soon! Register for the #EMSP2026 conference today. bit.ly/4rttOF4

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European MS Platform @emspofficial.bsky.social · 09/03/2026

⏳In Europe, people wait up to 3 years for an MS diagnosis. At #EMSP2026 this April, clinicians, patient advocates & policymakers unite to close this diagnostic gap. 🔗Register to join our session bit.ly/4beb6Lv #IMSS #MultipleSclerosis #MSPolicy

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