Sign in

European ME Coalition (EMEC)

@emec.bsky.social
447 followers 56 following 99 posts

Advocacy organization for ME/CFS patients and their carers in Europe

PostsRepliesMedia
European ME Coalition (EMEC) @emec.bsky.social · 28/08/2026
1) 🇪🇺 More info became available about the recent EU call on post-infectious diseases. Several high-quality ME/CFS consortia applied for this call but were rejected. The required funding threshold was a perfect score of 15/15 points.
121
European ME Coalition (EMEC) @emec.bsky.social · 22/07/2026
1) Pascal Arimont and nine other Members of the European Parliament have written a letter to Research Commissioner Ekaterina Zaharieva calling for dedicated, long-term support for ME/CFS Research. #MECFS #MyalgicE #HorizonEurope
1145
European ME Coalition (EMEC) @emec.bsky.social · 12/05/2026
On #WorldMEDay we send strength and courage to everyone living with #MECFS. We honour the memory of those we have lost and remain committed to transforming this tragedy into renewed determination to advocate for everyone living with this debilitating disease.
Collage of photos of blue forget-me-nots, the symbol of the disease ME/CFS.
24519
European ME Coalition (EMEC) @emec.bsky.social · 22/12/2025
Wishing you and your loved ones a happy holiday season and a healthier New Year. We hope 2026 will bring meaningful progress and increased funding for #MECFS research.
Image of a snowy mountain village in Europe with the text Happy Holidays.
030
European ME Coalition (EMEC) @emec.bsky.social · 30/09/2025
Here's an overview of the program and speakers. MEP Laura BALLARIN, a member of the Panel for the Future of Science and Technology (STOA), just made the introduction. Prof. Evelina TACCONELLI's talk just started.
020
European ME Coalition (EMEC) @emec.bsky.social · 26/09/2025
1) A first draft for the Horizon Europe work program 2026-2027 has been published by the European Commission. While it no longer includes the previous call on high-burden under-researched conditions, there’s now a new call on ‘post-infection long-term conditions’
183
European ME Coalition (EMEC) @emec.bsky.social · 09/09/2025
🇪🇪 Does anyone know any ME/CFS patient organisations from Estonia? If you are an ME/CFS patient in Estonia, could you perhaps reach out to us at europeanmecoalition@outlook.com? Many thanks in advance!
0710
European ME Coalition (EMEC) @emec.bsky.social · 18/06/2025
2) For the #HorizonEurope call Tackling high-burden for patients and under-researched medical conditions (HORIZON-HLTH-2025-01-DISEASE-07) the Commission has created a new selection procedure (explained in the screenshot below). ec.europa.eu/info/funding...
150
European ME Coalition (EMEC) @emec.bsky.social · 18/06/2025
1) Important news: there is now a much greater chance than ever before for #MECFS scientists to obtain funding from #HorizonEurope.
23210
European ME Coalition (EMEC) @emec.bsky.social · 18/05/2025
#BlueSunday2025 at the EMEC headquarters 💙 Coffee or lemonade with cookies and a game of Rummikub to celebrate this special day. Our dog mascot Shifra got some biscuits too. We donated to the @irishmecfsassoc.bsky.social in honor of our friend @tomkindlon.bsky.social #TeaPartyForME #MECFS
11810
European ME Coalition (EMEC) @emec.bsky.social · 28/04/2025
3) The scope of the call are illnesses with a high disease burden that remain under-researched. The description is still quite broad (we argued that it should be more specific). Nonetheless ME/CFS is mentioned as the first example.
2100
European ME Coalition (EMEC) @emec.bsky.social · 28/04/2025
1) Good news: the European call on high-burden, under-researched conditions will likely be renewed in the 2025 work program of Horizon Europe. #MECFS is prominently mentioned as an example.
26420
European ME Coalition (EMEC) @emec.bsky.social · 27/01/2025
3) The commission has now replied, but their answer is rather disappointing and non-specific. You can read the reply here: www.europarl.europa.eu/doceo/docume...
051
European ME Coalition (EMEC) @emec.bsky.social · 27/01/2025
1) Member of the European Parliament Pascal Arimont (EPP) submitted a written question on ME/CFS in november last year.
170
European ME Coalition (EMEC) @emec.bsky.social · 11/01/2025
4) A scoping study was commissioned to define what high-burden, under-researched conditions are. EMEC, the World ME Alliance, and other charities provided input to this study. The final list looks like this
1121
European ME Coalition (EMEC) @emec.bsky.social · 11/01/2025
1) It’s been a long time since you heard from us, but we can finally give an update of what we have been doing behind the scenes. #MECFS #LongCovid
23311
European ME Coalition (EMEC) @emec.bsky.social · 17/12/2024
1) Happy holidays to everyone affected by ME/CFS.
271
European ME Coalition (EMEC) @emec.bsky.social · 14/12/2024
Many thanks to the ME/CFS Research Foundation for organizing this challenge and funding scientific research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) #MECFS #LongCovid
094
European ME Coalition (EMEC) @emec.bsky.social · 14/12/2024
We are supporting the #LemonChallengeMECFS 🍋 The lemon acts as a symbol for the bitterness of the disease but also for the hope of healing. We challenge: MEP Pascal Arimont Prof. Jos Bosch Mr. Anil Van Der Zee More info: mecfs-research.org/en/lemonchal...
55723
European ME Coalition (EMEC) @emec.bsky.social · 13/11/2024
Member of the European Parliament Pascal Arimont has submitted a written question asking the new European Commission how it will stimulate ME/CFS research. We are very grateful for MEP Arimont’s strong and continued support for ME/CFS patients.
2186
European ME Coalition (EMEC) @emec.bsky.social · 22/12/2023
It has been a while since we gave an update about our work. Our efforts have mostly taken place behind the scenes this past year. This doesn’t mean nothing has happened!
Serene winter landscape with black tree silhouettes against a blue sky and a message ‘Happy Holidays’.
410