iiinova — where your digital self keeps evolving

EGA archive @egaarchive.bsky.social · 28/09/2026

💡 What happens after you deposit your data at the EGA? #DataSharing can achieve the greatest results when combined with innovative and smart ideas! The data you submit to the Archive today can drive tomorrow's new research 🚀

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ERDERA @erdera.bsky.social · 23/09/2026

📅 Hello, September! Start the month with new insights from ERDERA webinars for rare disease research: 🔹 How to Pitch to Investors 🔹 Data Sharing, Data Management & Ethics 🔹 Regulatory Insights for Advanced Therapies 👉 Learn more and register: erdera.org/latest/events

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EGA archive @egaarchive.bsky.social · 21/09/2026

🧬 Genomic data continue to gain value over time! In our latest blog post, we explore the potential of genomic reanalysis to improve the diagnosis of rare diseases through the collaborative Solve-RD research framework 🔗 blog.ega-archive.org/data-reanaly...

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EGA archive @egaarchive.bsky.social · 31/07/2026

📣📣📣 We are #hiring! Are you looking for a fresh start this summer? We are seeking an enthusiastic and highly motivated #SoftwareDeveloper to join our team at @ebi.embl.org in Cambridge! Check out the role details and apply now: 🔗 embl.wd103.myworkdayjobs.com/EMBL/job/Hin...

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ELIXIR Europe @elixir-europe.org · 22/07/2026

✨ ELIXIR will be at #ECCB2026, holding two workshops and an ELIXIR track programme showcasing highlights and impact of ELIXIR Community activities! More information 👉 loom.ly/emMscGg

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EGA archive @egaarchive.bsky.social · 21/07/2026

💡The data you submit to the EGA today can drive tomorrow's new research We believe #DataReuse improves resource usage and enhances research outcomes! Occasionally, we highlight recent papers featuring data deposited at the EGA or that reuse data from the Archive Check out our latest compilation↘️

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EGA archive @egaarchive.bsky.social · 16/07/2026

📢Do you handle human data or develop analysis pipelines? The #FederatedEGA Metadata Working Group is working on a new version of the (F)EGA metadata model! If you want your scientific needs to be covered during this development, we need your feedback: ➡️ docs.google.com/forms/d/e/1F...

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EGA archive @egaarchive.bsky.social · 09/07/2026

⚡ @cbioportal.bsky.social lands at EGA ⚡ The widely used platform, designed to simplify the exploration of complex cancer genomic data, is now connected to EGA! Discover what this means for researchers in our latest blog post: 🔗 blog.ega-archive.org/cbioportal

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EGA archive @egaarchive.bsky.social · 08/07/2026

The third EGA newsletter is out 📬! 🚀 The #FederatedEGA Norway experience (@elixirnorway.bsky.social) 🧬 @cbioportal is now connected to EGA 💡 The Beacon Template UI is now available 🔎 How does EGA support rare disease research And much more! Check the latest issue here: mailchi.mp/d663fe8c62dc...

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ELIXIR Europe @elixir-europe.org · 30/06/2026

🔐 Secure access to sensitive genomic data is critical for healthcare research & #PersonalisedMedicine. ELIXIR helps make this possible by contributing to the development of Federated EGA: data stays local but can be used globally 🌍. loom.ly/3VIqztc

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EGA archive @egaarchive.bsky.social · 30/06/2026

💡An easy way for institutions to quickly integrate into Federated EGA? Watch this video to discover Local EGA, our open-source software providing a secure, efficient, and structured system for managing genomic data while connecting to #FederatedEGA 🤝 ▶️ youtu.be/-Uibmj-1YD4?...

youtu.be

Discover Local EGA, the software designed to help institutions join #FederatedEGA quickly and easily

YouTube video by European Genome-phenome Archive (EGA)

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ELIXIR Europe @elixir-europe.org · 17/06/2026

🎉 Malta has become the newest Member to join ELIXIR, following the signature of the ELIXIR Consortium Agreement by 🇲🇹 the Maltese Ministry for Education, Sport, Youth, Research and Innovation. Read the news 👉 loom.ly/jp6Bz5Y

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ELIXIR Europe @elixir-europe.org · 10/06/2026

🎊 2026 ELIXIR All Hands Meeting #ELIXIR26 has come to an end! 👏 Thank you all for joining us in Lyon 🇫🇷 and we look forward to seeing you again next year in Budapest 🇭🇺 for #ELIXIR27!

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EGA archive @egaarchive.bsky.social · 08/06/2026

🧬📣 We are at the #ELIXIR26 All Hands Meeting in Lyon! Several EGA team members are participating in various sessions. Come see us! 🧵↘️

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ERDERA @erdera.bsky.social · 08/06/2026

What is ERDERA, and why does it matter? 🤔 30 million people in Europe live with a rare disease. Yet most still lack a diagnosis or treatment. So what is ERDERA doing about it? Watch the short video: loom.ly/c9rVqRA 🔁 #ERDERA #RareDiseases @ec.europa.eu

youtube.com

Understanding ERDERA: Europe’s alliance for rare disease research

30 million people in Europe live with a rare disease. Yet most still lack a diagnosis or treatment. So what is ERDERA doing about it?

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ELIXIR Europe @elixir-europe.org · 08/06/2026

We’re in Lyon preparing for the 2026 ELIXIR All Hands meeting! We look forward to seeing you all at Lyon Convention Centre soon.🎉 👉 Don’t forget to check the programme and decide which workshop or mini-symposia you want to attend: elixir-events.eventscase.com/EN/ahm2026 #ELIXIR26

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EGA archive @egaarchive.bsky.social · 27/04/2026

🚀 Data reuse can boost the potential of any dataset! From time to time, we showcase some of the latest papers featuring deposited data at the EGA or reused data from the Archive Check out our latest compilation 🔎↘️

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EGA archive @egaarchive.bsky.social · 13/04/2026

See you at the @ga4gh.org April Connect! This annual event brings together members of the GA4GH community for collaboration, technical advancement and strategic reflection. Part of the Beacon team at EGA will be there this week, participating in several sessions: 🧵↘️

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EGA archive @egaarchive.bsky.social · 10/04/2026

🔎 Have you ever wondered which studies are most requested at EGA? In our latest blog post, we explore the top 🔟 studies behind the most requested datasets of 2025 Read the full text here 👉 blog.ega-archive.org/top-10-studi...

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EASIGEN @easigen-eu.bsky.social · 09/04/2026

🚀 Key milestone! Two weeks ago, the consortium met for a productive mid‑term meeting that marked the halfway point of the project, where partners aligned efforts across all work packages and exchanging ideas💡 Huge thanks to all partners for your dedication to building Europe’s future in genomics✨

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ELIXIR Europe @elixir-europe.org · 07/04/2026

A week left to prepare for the project proposal for the #BioHackEU26. 🧑‍💻 Join hundreds of willing #bioinformaticians 🧬 Huge range of expertise in #bioinformatics 🌥 Work on blue sky ideas or advance existing projects 🔗 Submission deadline 15 April: loom.ly/5gopDeQ

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ERDERA @erdera.bsky.social · 07/04/2026

🚀 Want to lead the way in #RareDisease research? Subscribe to #ERDERA’s newsletter! 📩 ✅ Big news first ✅ Expert tips & tools ✅ Breakthroughs that matter ✅ Community highlights Subscribe at 👉 loom.ly/NxMGydc

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IFB/ELIXIR-Fr @ifb-elixir-fr.bsky.social · 25/03/2026

🔎 See the ‘FEGA Metadata Technical Report’, to which the @ifb-elixir-fr.bsky.social (INSERM) contributed as the lead organisation in the development of the FEGA France node

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EGA archive @egaarchive.bsky.social · 19/03/2026

Good metadata is key to maximising the reuse of data distributed by EGA and Federated EGA 🚀 The #FederatedEGA Metadata Working Group is working on a new metadata model 📄 Read the latest report here: zenodo.org/records/1880...

zenodo.org

FEGA Metadata Technical Report: EGA v2 model

The Federated EGA (FEGA) Metadata Working Group (MWG) has designed a new, process-oriented metadata model intended to replace the EGA v1 model, used by Central EGA (CEGA) and FEGA nodes using Local EG...

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EGA archive @egaarchive.bsky.social · 13/03/2026

📢 The Beacon Template UI version 1.0 is out! The Beacon team at @crg.eu, in collaboration with @bsc-cns.bsky.social, has developed a customizable user interface for @ga4gh.org Beacon v2 implementations

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ELIXIR Europe @elixir-europe.org · 12/03/2026

📣 The ELIXIR coordinated #EOSC_ENTRUST project published its 2️⃣ policy brief – highlighting the #federation and governance approaches needed to create a trustworthy research infrastructure 🔬 on top of the #interoperable network of #TREs. Read the summary news 👉 loom.ly/N1y07a0

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EGA archive @egaarchive.bsky.social · 10/03/2026

🔊Data reuse can amplify the potential of any dataset! Occasionally, we showcase some of the latest papers featuring deposited data at the EGA or reused data from the Archive 🧬 Check out our latest compilation 🧵↘️

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EGA archive @egaarchive.bsky.social · 05/03/2026

The Beacon team at the EGA has had a busy and productive workshop supporting Genomic Data Infrastructure (GDI) Nodes in deploying their Beacon instances as part of their national infrastructures for federated genomic #DataDiscovery across Europe 📍 @elixir-europe.org

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EGA archive @egaarchive.bsky.social · 05/03/2026

Behind every dataset submitted, every access request processed, and every technical question answered, there is a team at EGA working quietly to keep everything running smoothly: the Helpdesk To learn more about the team's work, check out our latest blog post: blog.ega-archive.org/ega-helpdesk...

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EGA archive @egaarchive.bsky.social · 27/02/2026

Tomorrow is #RareDiseaseDay, an opportunity to raise awareness about diseases that affect fewer than 1 in 2.000 people Rare Disease Day is about turning visibility into measurable commitments 🤝 That's why projects targeting rare diseases are crucial

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EGA archive @egaarchive.bsky.social · 18/02/2026

The second EGA newsletter is out! 🚀 Discover the insights from the #FederatedEGA Swedish Node (@nbis.se) 💥 Introducing FEGA Affiliate: a new way to become part of Federated EGA 💡 The Beacon Template UI is now available There is much more to read in the latest issue! ➡️ mailchi.mp/130c2186dfd1...

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ELIXIR Italy @elixir-it.bsky.social · 10/02/2026

Thank you to everyone who joined the ELIXIR Italy All Hands Meeting 2026. A special thanks to all those who worked behind the scenes to make this event possible. It was great to see the ELIXIR-IT community come together.

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EGA archive @egaarchive.bsky.social · 28/01/2026

🧬We are at #FOG2026, the Festival of Genomics & Biodata! Don't miss today's talk: "The #FederatedEGA: Enabling Global Access to Human Genomics Data" 📍 15h10, Biodata Stage 📣 @malloryfreeberg.bsky.social, Team Lead for EGA at @ebi.embl.org Check the full agenda↘️ festivalofgenomics.com/london/agenda

festivalofgenomics.com

Agenda | Festival of Genomics London 2026

Explore the comprehensive agenda for the Festival of Genomics & Biodata London 2026. Filter by day, theatre, or topic to plan your experience.

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EGA archive @egaarchive.bsky.social · 23/12/2025

Dear EGA users: Our hard-working staff are taking a break over the holiday and new year season 🌟 EGA services will continue to run, but please expect delays when emailing our Helpdesk The EGA team, @crg.eu and @ebi.embl.org, wish you a joyful and restful holiday season🎄!

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EGA archive @egaarchive.bsky.social · 23/12/2025

What a year 🚀 We are excited to share an overview of our journey through 2025! Have a look to get a glimpse of the projects we participated in, the status of #FederatedEGA, some numbers regarding our services, and more 🔎↘️

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EGA archive @egaarchive.bsky.social · 19/12/2025

🎄 We are #hiring! 🎄 Are you looking for a fresh start for 2026 and want to be part of an amazing team? We are seeking a Software Developer to join our team at the @ebi.embl.org! Apply now ➡️ embl.wd103.myworkdayjobs.com/EMBL/job/Hin...

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EGA archive @egaarchive.bsky.social · 17/12/2025

If you are creating or planning an international consortium for securing research funding, this thread is for you!

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EASIGEN @easigen-eu.bsky.social · 10/12/2025

🔎 Take a tour of the EASIGEN website and see how we’re desgining the future of genomics in Europe ➡️ easigen.eu ✨ Explore: 🧬 Our vision & roadmap 🗺️ Consortium partners across Europe 📂 Previous projects like ESGI & EASI-Genomics 📅 Upcoming conferences & workshop that you don't want to miss!

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EGA archive @egaarchive.bsky.social · 11/11/2025

🚀 Data reuse can significantly enhance the potential of any dataset! Occasionally, we showcase some of the latest papers featuring deposited data at the EGA or reused data from the Archive. Check out our latest compilation 🧵↘️

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HEREDITARY @hereditaryeu.bsky.social · 31/10/2025

#DeCodingHEREDITARY 📚🛠️ Check out Deliverable 5.1: Visualization components for sequences, networks, text, and high- dimensional data. 🔬 It highlights the use of interactive data visualization and visual analytics to make sense of large, complex datasets. 📥 zenodo.org/records/14628086

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EGA archive @egaarchive.bsky.social · 29/10/2025

🌟 We are #hiring 🌟 Explore the open positions to join our team at the @crg.eu in Barcelona! Apply now: 🔹 Operations Technician: recruitment.crg.eu/content/jobs... 🔹 Operations Bioinformatician: recruitment.crg.eu/content/jobs...

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Centre de Regulació Genòmica (CRG) @crg.eu · 23/10/2025

Are you looking for a PhD? Join us in Barcelona! You'll dive into a community of >100 PhD students from 30 countries exploring the frontiers of biology. You can also join an online workshop on 6 November (15:00 CET) to learn how to find the right lab for you. More info: www.crg.eu/en/content/t...

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EGA archive @egaarchive.bsky.social · 22/10/2025

Tomorrow, Jordi Rambla, Team Leader of the EGA - @crg.eu, will participate in the #EOSC-ENTRUST Sustainability Workshop: 💬 Perspectives and lessons learned from #FederatedEGA and the Genome Data Infrastructure (GDI) project 📍 October 23, 15:40-15:55 CEST More info: eosc-entrust.eu/news/eosc-en...

eosc-entrust.eu

European network of trusted research environments (EOSC-ENTRUST) project

EOSC-ENTRUST aims to create a European network of Trusted Research Environments (TREs) for sensitive data.

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ELIXIR Europe @elixir-europe.org · 17/10/2025

🎯 Today's #ELIXIRFridayReads is a paper 💡 focusing on financing models that support #dataresources and associated services in a long-term data infrastructure. Read more 👉 loom.ly/9UihRMg @elixir-nl.bsky.social #ResearchInfrastructure

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EGA archive @egaarchive.bsky.social · 15/10/2025

🧬💬 Tomorrow, Abeer Fadda, bioinformatics lead at the EGA - @crg.eu team and researcher in the @hereditaryeu.bsky.social project, will be participating in a roundtable on genomic medicine at #RIES2025 Check out the agenda ➡️ forumries.com/programa/

forumries.com

Programa | RIES

RIES X Forum es el evento de referencia a nivel nacional e internacional para abordar los retos y oportunidades del ecosistema de la salud.

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HEREDITARY @hereditaryeu.bsky.social · 14/10/2025

✨ Big week ahead for the HEREDITARY project! 🧬 #RIES2025 in La Toja, Galicia on October 15-16 with Abeer Fadda (EGA) and an HEREDITARY stand in the exhibition area. 🧠 #BIDays2025 in Brussels, where HEREDITARY will host a World Café. 🔍 acortar.link/zlqN2H

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EASIGEN @easigen-eu.bsky.social · 09/10/2025

🚀 Yesterday we presented #EASIGEN-DS to the Federated Human Data Community of @elixir-europe.org 🎯 Ivo Gut, director of @cnag-eu.bsky.social, shared our vision for designing the European genomics infrastructure 🧬 Big thanks to Teresa D'Altri @egaarchive.bsky.social/@crg.eu for the invitation! 👏

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Mallory Freeberg @malloryfreeberg.bsky.social · 09/10/2025

Stay updated with the latest EGA news by signing up for the newly launched EGA Newsletter! 🤩 Providing easy access the latest highlights and insights from EGA including about #FederatedEGA, @ga4gh.org engagements, international projects, and more 🙌 ✏️ Sign up here: mailchi.mp/4c1f9c3a3030...

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EGA archive @egaarchive.bsky.social · 08/10/2025

The first EGA newsletter has been released! 🚀 Explore the #FederatedEGA timeline 🔎 Discover the EGA Allele Frequency Browser 💥 Check out the projects starting in 2025 And much more! Read the full newsletter here: mailchi.mp/dd9d965ca3a2...

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