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EDCRN (Eating Disorders Clinical Research Network)

@edcrn.bsky.social
201 followers 103 following 161 posts

Establishing a UK-wide NHS research network to improve understandings of, and outcomes for, eating disorders. Eating Disorders Research Survey - qualtrics.kcl.ac.uk/jfe/form/SV_1Xl… linktr.ee/ed_crn

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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 19/06/2026
🗞️ This week’s Journal Club highlights research exploring autism, ADHD, and AuDHD in eating disorder services. The findings suggest neurodivergent patients may experience greater distress and support needs, highlighting the importance of tailored care 🧡. Read the paper via the link in our bio ☝️
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 02/06/2026
🤔 Could ketamine offer a new way to treat depression in people with long-term anorexia nervosa? The EDEN Study is exploring this important question. 👀 Want to know more? 🌐 Visit their webpage 📱 Follow @eden_study_kcl on Instagram #EDENStudy #EatingDisorders
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 21/05/2026
🗞️ This week’s Journal Club highlights research exploring the wellbeing and experiences of clinicians working in NHS eating disorder services in England. The study examines burnout, emotional strain, and systemic pressures affecting ED staff following COVID-19. Read the paper using link in our bio
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 30/04/2026
📰 This week’s Journal Club highlights research on how body dissatisfaction in adolescence may impact later mental health and BMI. Using UK twin data, the study explores whether these links are causal or due to shared genetics. Read the full paper via the link in our bio ☝️
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 27/04/2026
🗞️This week’s Journal Club explores how eating out can be stressful for young people with eating disorders. It can bring uncertainty and social pressure. A reminder this Stress Awareness Month how everyday situations affect wellbeing 🩵 👉Read more via the link in our bio
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 16/04/2026
🗞️ This week’s Journal Club explores when it’s the right time to end family therapy for young people with anorexia nervosa and how this impacts recovery. Findings highlight key themes around therapy endings and the recovery journey 🧡 👉 Read the full paper via the link in our bio
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 13/04/2026
This week’s Journal Club explores social functioning in adolescent eating disorders through a lived experience framework. Findings highlight the importance of understanding real-life social experiences in shaping clinical care 🧡 👉 Read the full paper via the link in our bio
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 09/04/2026
🗞️This week’s Journal Club explores how childhood autistic and ADHD traits are linked to adolescent eating behaviours. Findings suggest anxiety may help explain these links🧡 👉Read the full paper via the link in our bio
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 19/03/2026
🗞️This week’s Journal Club highlights a study exploring young people’s experiences of eating disorder content on TikTok. The findings show how algorithms can shape what users see, sometimes increasing exposure to harmful content 🩵 👉Read the full paper via the link in our bio
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 12/03/2026
📰This week’s Journal Club highlights a study on TrEAT, a new eating disorder registry across Australia and New Zealand. The registry gathers data from treatment services to better understand outcomes and improve eating disorder care. Read the full paper via the link in our bio ☝️
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 05/03/2026
🗞️This week’s Journal Club explores turning points in eating disorder recovery among people from marginalised communities. The study highlights how identity, connection, and belonging can shape recovery journeys. Read more via Linktree☝️
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 26/02/2026
Eating Disorder Awareness Week reminds us that recovery is rooted in community💙 Together, we can challenge stigma, support one another, and build a culture of care where well-being comes first. 📣Join EDCRN in creating a more compassionate and connected community.
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 20/02/2026
📚A fascinating journal club this week from the PEACE pathway about the sensory landscape and embodied experiences in anorexia nervosa. To read the full paper, follow this link: pubmed.ncbi.nlm.nih.gov/39685631/
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 12/02/2026
📣Registration is now open for F.E.A.S.T. of Knowledge 2026: an online conference for parents & caregivers of people with eating disorders. 🔗Register here: feast-ed.org/2026-feast-o...
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 05/02/2026
🗞️This week’s Journal Club explores research on how early weight-loss behaviours are linked to sleep and mental health later in adolescence💤 The findings highlight how closely eating behaviours, mood, and physical health are connected over time. Read more via Linktree☝️
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 29/01/2026
🗞️This week’s Journal Club explores research on autism and eating disorder risk. The study highlights how sensory overwhelm and social camouflaging can combine to increase eating disorder symptoms in autistic adults. Read more via our Linktree ☝️
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 22/01/2026
🗞️This week’s Journal Club explores research on childhood food insecurity and eating disorder symptoms. The study highlights how early experiences with food insecurity can be linked to disordered eating in adolescence. Read more via the link in our bio ☝️
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 15/01/2026
🗞️This week’s Journal Club explores research on public engagement in eating disorder research. The paper highlights why involving lived experience, carers, clinicians, and researchers is essential. Read more via the link in our bio☝️
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 08/01/2026
🗞️This week’s Journal Club explores research on how hunger affects mood, mental health, and everyday functioning. The findings highlight the close links between hunger, emotions, and wellbeing. Read more via the link in our bio ☝️
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 25/12/2025
This week’s Journal Club, we explored predictors of treatment outcomes in early intervention for eating disorders 📊 Using FREED data @freedfromed.bsky.social the study highlights how stress, symptoms, and waiting times can shape recovery outcomes. Read more on our Linktree 💙
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Reposted by EDCRN (Eating Disorders Clinical Research Network)
Anna Carnegie @annacarnegie.bsky.social · 18/12/2025
Shout out to @eatsleeplaugh.bsky.social, @emynimbley.bsky.social, Kyle Buchan and the @edaceatingautism.bsky.social team for an awesome publication - the subject of @edcrn.bsky.social latest journal club! 😀
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 18/12/2025
🗞️ This week’s journal club features a study exploring how autistic people with lived experience can guide eating disorder research. The findings underline the importance of inclusive, creative, and experience-led approaches. Read more in our Linktree! ☝️
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 11/12/2025
📄 This week’s journal club looks at a study exploring how eating disorder symptoms differ across diverse groups of young people. The findings highlight why inclusive data matters for early detection - something EDCRN is working to strengthen. Read more in our Linktree!☝️
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 04/12/2025
Want the latest EDCRN news, events, and research highlights?🗞️ Join our mailing list via our Linktree and follow us across our social platforms to stay connected!
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 27/11/2025
This week’s journal club highlights a study exploring what parents and caregivers feel supports real change in family therapy for anorexia. Their insights highlight the crucial role families play in recovery. Read more in our Linktree! ☝️
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 20/11/2025
Curious about what it means to be part of EDCRN? ✨Here’s a glimpse of what joining the EDCRN as a site will look like! To learn more or express interest, email edcrn@kcl.ac.uk
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 13/11/2025
🎗️Awareness is the first step towards change. Men deserve to be included, feel seen, and feel supported. At EDCRN, we’re pushing for better understanding, recognition, and treatment of eating disorders in men 💚 #edcrn #eatingdisorders #eatingdisordersresearch #mensmentalhealth
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 10/11/2025
Help shape the future of Eating Disorders! 📃 🔗 Take part in our survey now, link in bio Closes: 16th Nov, Midnight #eatingdisorderresearch #eatingdisoder #edcrn #researchmatters #edawareness #mentalhealth
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 06/11/2025
Say hello 👋 to our placement students! We are excited to have them on board. 🎉 Welcome to the team! #EDCRN @edgiuk.bsky.social @gladstudy.bsky.social #EatingDisorder
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 30/10/2025
Are you interested in eating disorders funding and research?🔬 Please help us develop some key messaging to deliver to stakeholders to help increase investment in eating disorder research by completing the following survey! qualtrics.kcl.ac.uk/jfe/form/SV_...
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Reposted by EDCRN (Eating Disorders Clinical Research Network)
Anna Carnegie @annacarnegie.bsky.social · 18/10/2025
A valuable read from @ameaustin.bsky.social and @karina-maudsley.bsky.social on the importance of collecting routine outcome measures in eating disorders - and the potential of this to tranform care for individuals affected 🫶🏻🤍
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 17/10/2025
🔬This week’s journal club ➡️ Our co-principal investigator, Dr Karina Allen, recently published this paper on why routine outcome measurement is key in the eating disorders field. Read the paper here: pubmed.ncbi.nlm.nih.gov/40640949/
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 10/10/2025
Happy World Mental Health Day! 🧠 The theme this year is ‘Access to Services - Mental Health in Catastrophes and Emergencies’.
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Reposted by EDCRN (Eating Disorders Clinical Research Network)
Dump The Scales @dumpthescales.bsky.social · 30/09/2025
📢New blog alert📢 @annacarnegie.bsky.social from @edcrn.bsky.social talks about the importance of trust in treatment, and how being treated as a unique individual with different interests and hopes for the future helped her recover from anorexia. www.dumpthescales.org/post/seven-p...
dumpthescales.org
Seven positives I took away from eating disorder treatment
Anna Carnegie, researcher and person with lived experience of eating disorders and OCD writes about the positives she took away from Eating Disorder Treatment
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 17/09/2025
🔬 This week’s journal club is a paper authored by EDCRN’s co-principal investigator, Dr Karina Allen! The paper looks at the effect of early interventions on young people with eating disorders. To read the paper, see 👉 pubmed.ncbi.nlm.nih.gov/40878998/
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 22/08/2025
🔬This week's journal club is a paper by James Downs, a member of our Lived Experience Steering Committee, and Clive Kelly, with some fascinating insights into Anorexia Nervosa in males. To see the full paper, see here 👉 www.magonlinelibrary.com/doi/full/10....
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 04/08/2025
Read the full paper 👉 onlinelibrary.wiley.com/doi/10.1002/...
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 04/08/2025
This week's journal club features a paper from our excellent colleague and PhD researcher, Saakshi Kakar, in which she conducted a large-scale analysis of under-recognised weight loss behaviours in individuals with eating disorders.
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Reposted by EDCRN (Eating Disorders Clinical Research Network)
Medical Research UK @medicalresearchuk.bsky.social · 31/07/2025
Currently, eating disorder services do not collect consistent routine data, which means we have limited knowledge of the effectiveness of care. Funded by us, a new study has identified a standardised dataset to be collected by a clinical research network in the UK, EDCRN (@edcrn.bsky.social). [1/3]
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 25/07/2025
💙To read the brilliant paper, click the link below or check out our Linktree Journal Club Collection! kclpure.kcl.ac.uk/portal/en/pu...
kclpure.kcl.ac.uk
Agreeing a set of biopsychosocial variables for collection across the UK Eating Disorders Clinical Research Network (EDCRN): A consensus study using adapted nominal group technique
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 25/07/2025
💙 Quote from a Lived Experience Representative from the Children & Young Persons workshop: “Relationship building is key before jumping into questionnaires. It’s important to reduce shame and build trust, particularly for people who feel vulnerable.”
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 25/07/2025
💙 Theme 4: Doing no harm. The treatment process should help, not overwhelm or shame patients. The EDCRN platform allows participants to complete questionnaires in their own time, at their own pace.
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 25/07/2025
💙 Quote from a clinician in the adult workshop: “When data collection isn't standardised, it not only affects the quality-of-care patients receive but also the quality of research that relies on that data.”
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 25/07/2025
💙 Theme 3: A Balance Between Standardization and Individualisation. There is a need for standardised yet flexible data collection to personalise care for each patient. The questionnaires on the platform include optional q’aires for participants who find them particularly relevant
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 25/07/2025
💙 Quote from a Lived Experience Representative in the adult workshop: “Autism screening should be part of eating disorders and assessment. Personally, that's my feeling.”
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 25/07/2025
💙 Theme 2: A holistic approach. The EDCRN understands that eating disorders are a biopsychosocial condition, so we collect data on psychological, social and physical factors like trauma, autism, health conditions, weight stigma and food insecurity.
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 25/07/2025
💙 Quote from a Lived Experience Representative in the adult workshop: “The other thing I think is quite important is the waiting time for treatment, because in my experience it seems to be the longer the wait is, the more severe symptoms tend to be by the time they get seen.”
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 25/07/2025
💙 Theme 1: A mutually valued and beneficial collaboration. The data collected by ED services should be meaningful & help patients and others involved, so the EDCRN collects information, like waiting times, distance travelled for treatment, which patients have highlighted as issues.
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 25/07/2025
💙 Following the consensus building workshops, the EDCRN team identified four key themes. Read the thread below to find out these themes and how we implemented them into the EDCRN dataset. 🧵👇
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EDCRN (Eating Disorders Clinical Research Network) @edcrn.bsky.social · 21/07/2025
Read the paper here 👉 kclpure.kcl.ac.uk/portal/en/pu...
kclpure.kcl.ac.uk
Agreeing a set of biopsychosocial variables for collection across the UK Eating Disorders Clinical Research Network (EDCRN): A consensus study using adapted nominal group technique
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