iiinova — where your digital self keeps evolving

Reposted by Emilie Cornec-Le Gall

Roman-Ulrich Müller @muellerrom.bsky.social · 13/06/2025

1/ 🚨 Big news from our Genes&Kidney Working Group at the European Renal Association (ERA)! We just released a consensus statement in Nephrology Dialysis Transplantation aiming to bring us closer to precision medicine in CKD. 🧬🩺 🧵 THREAD 👇

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Reposted by Emilie Cornec-Le Gall

ASN Publications @asnpublications.bsky.social · 04/03/2025

ALG8 and ALG9 are cystic kidney/liver genes with limited penetrance for lower eGFR. bit.ly/JASN0613 #ASNJASN #BasicResearch @ecorneclegall.bsky.social

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Emilie Cornec-Le Gall @ecorneclegall.bsky.social · 19/02/2025

[J-1 mois] La Société Francophone de Transplantation se mobilise une nouvelle fois pour la Course du Cœur, du 19 au 23 mars ! 💚 La Course du Cœur est un événement sportif unique en son genre organisé par l' Association @TransFormeDON lacourseducoeur.com

lacourseducoeur.com

La course du coeur - Accueil

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Emilie Cornec-Le Gall @ecorneclegall.bsky.social · 31/01/2025

📢Join the e-seminar co-organized by #G&K and #ESPN on Genetics 🧬and Kidney Stones 🗓️ 4th February, 2025 at 5 pm 👉Register bit.ly/3DYQdqB

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Emilie Cornec-Le Gall @ecorneclegall.bsky.social · 21/01/2025

📢 Seeking enthusiastic experts in nephrogenetics to join the board of #Genes&Kidney WG of the ERA! 🧬 Contribute to e-seminars, manuscripts, educational events, and more 🔗 www.era-online.org/membership/o... 👉 Apply before Feb 28 and help shape the future of nephrogenetics! @muellerrom.bsky.social

era-online.org

ERA Open Calls | ERA

ERA gives the opportunity to ERA Members to become more involved and give a practical support by applying to open positions.

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Reposted by Emilie Cornec-Le Gall

KDIGO @kdigo.org · 21/01/2025

4️⃣ The KDIGO ADPKD Guideline offers a roadmap for evidence-based care, aiming to reduce the global burden of this inherited condition and improve lives worldwide. Download the ADPKD Guideline, Executive Summary, and Data Supplement: kdigo.co/ADPKD Read the guideline in KI: kdigo.co/ADPKD-Guidel...

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Reposted by Emilie Cornec-Le Gall

KDIGO @kdigo.org · 21/01/2025

3️⃣ Guideline Co-Chair Dr. Olivier Devuyst: "This guideline represents a pivotal step for ADPKD care & sets a template for rare disease guidance. It's the result of an extraordinary global collaboration bringing together the best available evidence to guide care across diverse settings."

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Reposted by Emilie Cornec-Le Gall

KDIGO @kdigo.org · 21/01/2025

1️⃣ We are pleased to announce the publication of the KDIGO 2025 ADPKD Guideline! This first-ever KDIGO guideline focused on a rare kidney disease provides practical tools to improve diagnosis, care, and treatment. Read the news release: kdigo.co/2025-ADPKD-G... #ADPKD

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Reposted by Emilie Cornec-Le Gall

Swapnil Hiremath 🍁🇨🇦 @hswapnil.medsky.social · 21/01/2025

Quite poignant - but fitting that the new 2025 @kdigo.org ADPKD guidelines begin with a dedication to the late Tess Harris www.kidney-international.org/article/S008... #NephSky #ADPKD #PROMs

Dedication: Tess (Teresa) Harris, MA, FCIM (1956–2024):
dedicated patient advocate in the fight against polycystic
kidney disease (PKD) - page 1

Dedication: Tess (Teresa) Harris, MA, FCIM (1956–2024):
dedicated patient advocate in the fight against polycystic
kidney disease (PKD) - page 2

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Emilie Cornec-Le Gall @ecorneclegall.bsky.social · 21/01/2025

🚨 ADPKD 2025 guidelines are finally out! Huge congrats to Amy Early and the @kdigo.org team, to our chairs Olivier Devuyst & Vicente Torres, to Reem Mustafa, to the evidence review team, and to all the coauthors. Special thoughts go out to Tess Harris. kdigo.org/guidelines/a...

kdigo.org

Autosomal Dominant Polycystic Kidney Disease (ADPKD) – KDIGO

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American Journal of Kidney Diseases @ajkd.bsky.social · 10/01/2025

Clinical Spectrum and Prognosis of Atypical Autosomal Dominant Polycystic Kidney Disease Caused by Monoallelic Pathogenic Variants of IFT140 bit.ly/Zagorec25OI #ADPKD #VisualAbstract

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