iiinova — where your digital self keeps evolving

Reposted by Dyscluded

CHOICES @choices-hi.bsky.social · 21/09/2026

Look at our fabulous logo designed by our patient and public involvement and engagement group - the T1 Warriors. #ppie #socialprescribing #diabetes #research #childrenandyoungpeople @arcsouthwest.bsky.social

012

Reposted by Dyscluded

CHOICES @choices-hi.bsky.social · 21/09/2026

We are developing a study to identify better ways of supporting the mental health of young people with long-term conditions (LTC).We are looking for young people aged 10–25 with a LTC to take part in a discussion to so we can design a study that focuses on the outcomes that are important to them.

122

Dyscluded @dyscluded.bsky.social · 23/09/2025

And so it starts again…mother blaming and autism shaming! #autism

010

Reposted by Dyscluded

Anna Mazzola @annamazz.bsky.social · 21/05/2025

It’s Mary Anning’s birthday, so time to share @katebeaton.bsky.social’s brilliant cartoon again.

71185194520

Dyscluded @dyscluded.bsky.social · 21/05/2025

I am so impressed (and like many others surprised) that the flaws in the children’s wellbeing and schools bill have been raised by peers in @houseoflords.parliament.uk - yet completely denied by this incompetent government. It demonstrates how the education minister is utterly out of her depth.

010

Dyscluded @dyscluded.bsky.social · 21/05/2025

Yesterday in the House of Lords, the Children’s Wellbeing & Schools Bill faced fierce scrutiny. Peers from all political backgrounds argued that it delivers a far-reaching expansion of state power concealed under a rhetoric of safety &wellbeing. open.substack.com/pub/britishr...

open.substack.com

The Bill That Broke Itself: How the House of Lords Dismantled the Schools Bill

A Committee Debate That Struck at the Core of Government Overreach

020

Dyscluded @dyscluded.bsky.social · 15/04/2025

I have been a bit quiet on here recently but yesterday I received confirmation that I have passed my PhD! I am so relieved and happy!

040

Reposted by Dyscluded

nacholib.bsky.social @nacholib.bsky.social · 21/02/2025

And who they didn't like

450247804307

Dyscluded @dyscluded.bsky.social · 07/02/2025

Today is #viva day and today I’m adding, to my research playlist…three little birds by #bobmarley as this was playing as I walked into @plymuni.bsky.social #phd

020

Reposted by Dyscluded

Ann Memmott @annmemmott.bsky.social · 04/02/2025

pubmed.ncbi.nlm.nih.gov/39901435/ CW suicide. This is important. Team writing re the link between lack of sleep, & autistic people taking their own lives from the despair of exhaustion. This research desperately needs to happen, because there's so much we are getting wrong for autistic people.

pubmed.ncbi.nlm.nih.gov

Suicidality in Autistic Adolescents and Adults: Sleep the Unexplored Connection? - PubMed

Despite substantial evidence linking insomnia with increased suicidality in non-autistic populations, its role in autism remains under-explored. Poor sleep, most commonly insomnia symptoms (hereafter ...

179129

Dyscluded @dyscluded.bsky.social · 29/01/2025

Some children with #EHCPs are placed in independent schools as it is deemed the only suitable provision. Adding #SchoolFeeVAT (& even worse #learningsupport #VAT) this option is being removed for children with #SEND that do not have an EHCP. How can the government justify this?

000

Dyscluded @dyscluded.bsky.social · 29/01/2025

I hope more organisations like @mindcharity.bsky.social make the ethical move to Bluesky.

040

Dyscluded @dyscluded.bsky.social · 22/01/2025

This is terrifying as a large number of parents report having their concerns about their children dismissed by professionals. The move to make teachers the gatekeepers to neurodiversity assessment is detrimental to children. We know our children. Listen to us #phd #SEND #dyscluded

010

Dyscluded @dyscluded.bsky.social · 17/01/2025

The impact of this persistent dismissal was significant. It made them feel isolated and dyscluded. I'm still massively struggling A roller coaster of emotion. Everybody Telling me I was overegging it I wasn't talking to anybody What's the point? #mothering #unpaidcarers #dyscluded #phd

000

Dyscluded @dyscluded.bsky.social · 15/01/2025

I love hearing the woodpecker doing their thing when out for an early morning foggy walk with my doggy! 🙏#lovedevon #nature #lovemylabrador #devon

010

Dyscluded @dyscluded.bsky.social · 14/01/2025

On this day six years ago I was in the @britishlibrary.bsky.social to find a book chapter for my #MSc in nutrition and behaviour dissertation. #mothering #autism #restrictedeating #dyscluded @bournemouthuni.bsky.social

010

Dyscluded @dyscluded.bsky.social · 14/01/2025

That same mother explained He had a massive meltdown Now I understand why I didn't understand why I literally had to pick him up put him underneath my arm I picked him up by his waist, Put him underneath my arm. That's the only way I can get him out of here.

100

Dyscluded @dyscluded.bsky.social · 13/01/2025

The women in my research all reported having their concerns dismissed: You're making a bit of a fuss You're a first-time mum You don't understand It'll be fine I don't know who to ask Every time I ask somebody They just dismiss me Tell me it's nothing. #mothering #phd @plymuni.bsky.social

010

Reposted by Dyscluded

Helen Rottier @helenrottier.bsky.social · 12/01/2025

“Open the document,” is the best trick I will ever play on myself. When writing or editing seems totally impossible, just open the document. #ThisDiss #AmWriting

0212

Dyscluded @dyscluded.bsky.social · 10/01/2025

Delighted to have had my paper ‘dyscluded mothers’ accepted for the @IAMAS 2025 conference. #mothering #motheringautisticchildren #unpaidcarers #send #phd @plymuni.bsky.social

010

Dyscluded @dyscluded.bsky.social · 08/01/2025

During my #phd research conversations, #mothers shared that the school run was their "job"; many dreaded it: I'm the one who goes & picks up the children & takes them to school. I'm the one who gets told off, at the end of the day, when [my son] has done something wrong. #unpaidcarers #mothering

110

Reposted by Dyscluded

NHS Confederation (now known as The NHS Alliance) @nhsconfed.org · 25/12/2024

Thank you to all the health and care staff working over the festive period, who have worked tirelessly throughout the year to keep patients and communities safe and well. Season's greetings from us all 🎄

Happy Christmas. Wishing our members, partners and colleagues a joyous festive season.

0113

Reposted by Dyscluded

ICARS - International Coalition Against Restraint and Seclusion @againstrestraint.com · 13/12/2024

🧵The normalization of restraint has been deeply concerning. ICARS addressed this in response to the BBC documentary Don’t Exclude Me, which showed a 6-year-old being restrained as "best practice." Here's why this was dangerous. 🚨 #AgainstRestraint #DontExCludeMe againstrestraint.com/2022/01/29/t...

againstrestraint.com

The normalization of restraint in mainstream media.

After numerous official complaints, BBC has refused to acknowledge the harm caused by normalizing dangerous restraints as best practices for young children.

643

Reposted by Dyscluded

ICARS - International Coalition Against Restraint and Seclusion @againstrestraint.com · 15/11/2024

ICARS is a family, survivor, and neurodivergent-led advocacy team. Our mission is to continue drafting and advocating for the passage of crucial legislation that end practices such as restraint, seclusion,& institutional abuses inflicted on children. Proud members of Paris Hilton's #SICAA Coalition

4309

Reposted by Dyscluded

David Gray-Hammond (NeuroHub Community) @neurohubcommunity.org · 14/12/2024

My new book "A Guide to Autism and Psychosis" is officially published! It contains my personal and Professional Insights into autism and psychosis as well as some tips on things that help me as a Schizophrenic! Grab it here amzn.eu/d/9uEBhUC #ActuallyAutistic #MentalHealh #ADHD #neurodiversity

amzn.eu

A Guide to Autism and Psychosis: Personal and Professional Insights From A Psychotic Mind

A Guide to Autism and Psychosis: Personal and Professional Insights From A Psychotic Mind eBook : Gray-Hammond, David: Amazon.co.uk: Kindle Store

16019

Dyscluded @dyscluded.bsky.social · 14/12/2024

Journal of the Motherhood Initiative Call for Papers for an issue on Mothers, Motherhood, and Mothering Throughout the Life Course Vol 16.1; Spring/Summer 2025 May 1, 2025 PLEASE SHARE WIDELY! Thank you demeterpress.org/wp-content/u... #mothering #motherhood

demeterpress.org

020

Dyscluded @dyscluded.bsky.social · 13/12/2024

The food industry has way too much power. They don’t want us to cut down on ultra processed food. They are today’s equivalent of the tobacco industry

000

Dyscluded @dyscluded.bsky.social · 13/12/2024

You are right. For these children to be successful in mainstream education there needs to be fundamental change in the way learning is provided in schools. This is a MASSIVE task. There is not a quick fix and it won’t be solved just by taxing those kids that access independent education #send

021

Dyscluded @dyscluded.bsky.social · 13/12/2024

Saw Jenny Eclair on TV this morning who was being celebrated for her ability to find the ludicrousness in an everything. What a great coping mechanism. I think I may just try this one. Find the ludicrous in every day! #ludicrous #dyscluded #mothering #coping

000

Dyscluded @dyscluded.bsky.social · 11/12/2024

Please sign this petition which unethically adds VAT onto learning support for those that need it. Children with #send that use independent schools save the LA so much money. This is unfair. The link…. petition.parliament.uk/petitions/70...

petition.parliament.uk

Petition: Don't apply VAT to independent school fees, or remove business rates relief.

Prevent independent schools from having to pay VAT on fees and incurring business rates as a result of new legislation.

000

Dyscluded @dyscluded.bsky.social · 10/12/2024

Awake at 4am. That can mean only one thing - draft amended EHCP has arrived and I’ve been writing my representations regarding proposed amendments. #mothering #send #ehcp #autism #exhausted

020

Dyscluded @dyscluded.bsky.social · 08/12/2024

At the start of this conversation she said: School are only open 30 hours a week. You know, there's 168 hours in a week, 30 of those she’s at school, the other 138 hours she's with me, and some of that she sleeps. Um, but you know, it's way too much for one person. #unpaidcarer #mothering #autism

000

Dyscluded @dyscluded.bsky.social · 07/12/2024

An excerpt from a b(i)o-poem created from one of my participants stories. This is a single mum. She is the main caregiver for her two daughters, one of which is autistic with complex care needs: It's way too much for one person I always say in the real world, it would be illegal to do what we do

it.you

100

Reposted by Dyscluded

Thomas Ha @thomasha.bsky.social · 07/12/2024

the good thing about short stories is that each one is a clean slate. you write one that sucks, write another. write one you love that gets ignored, write another. write one you think is perfect down to the last period, write another. write an ok one phoned in, write another. wait did i say good

1041343

Reposted by Dyscluded

Thinking Person's Guide to Autism @thinkingautism.com · 07/12/2024

It is important to be able to communicate with others, especially when you’re stressed, upset, in pain, dysregulated, or in a difficult or dangerous situation. But sometimes communicating is hard; what can you do? Advice from @communicationfirst.bsky.social: communicationfirst.org/communicatin...

communicationfirst.org

Communicating in Times of Stress Resource

For people with lived experience, allies, and lifeline workers.

75023

Dyscluded @dyscluded.bsky.social · 06/12/2024

Appalled to learn that @teamlabouruk.bsky.social are adding #VAT to learning support costs for children and young people with #SEND educated in independent schools. Adding VAT to education is bad enough but adding it to support is indefensible. #mothering #dyscluded #education

000

Dyscluded @dyscluded.bsky.social · 05/12/2024

The song #truecolors resonated with my experience and that of many of the women that shared their stories for my research as it feels like we are often people that value and recognise our children’s potential: ‘But I see your true colors Shining through’ #mothering #send #autism #phd #dyscluded

000

Dyscluded @dyscluded.bsky.social · 04/12/2024

You are so right. The hardest part is that the children and young people have to go beyond crisis before anything is done. And even then it’s still a fight. I feel your pain 🫶

000

Dyscluded @dyscluded.bsky.social · 04/12/2024

All of the women in my research described the #send system as “broken”. This related the education, health and social care. @teamlabouruk.bsky.social have admitted it will take time for improvements but in the meantime thousands of kids are suffering - what about them? #mothering #autism #phd

130

Dyscluded @dyscluded.bsky.social · 03/12/2024

This is so important and identifying opportunities to address disadvantages need to start early. Why do we always let things get worse or even not start taking notice until crisis point?

121

Dyscluded @dyscluded.bsky.social · 03/12/2024

Having a child with #send is such a learning curve. We want to understand. We want to help but our ability to do this is complicated by #misinformation and #disinformation often from professionals. Every aspect is just #mindblowing. #mothering #autism #dyscluded

010

Dyscluded @dyscluded.bsky.social · 30/11/2024

This puppy seemed to be a magic fix. She is training to be an #assistancedog and ever since she arrived things started to improve. My son never managed a full week at school until she joined our family. I now can’t remember the last time I was called in. #send #mothering #autism #dysclused

090

Reposted by Dyscluded

Helen Bowes-Catton (she/her) @hbowescatton.bsky.social · 19/11/2024

I made a starter pack for researcher developers in the UK. Let me know if you'd like to be added or removed! #WIASN #ResearcherDevelopment #AcademicSky #PhDSky go.bsky.app/S3ea8oN

9268

Dyscluded @dyscluded.bsky.social · 29/11/2024

A dominant feature in all of the stories my participants contributed to my research about their experience mothering autistic children was the uphill struggle these women faced as they fought and battled to secure support for their children. #mothering #autism #send #dyscluded #unpaidcarers #phd

031

Reposted by Dyscluded

David Corn @davidcorn.bsky.social · 28/11/2024

I am thankful for a social media site that’s not run by disinformation-pushing maniacal billionaire, not controlled by an algorithm design to censor news and much-needed debate, and not overrun by mean-spirited people who encourage and celebrate ignorance. Thankful, indeed.

523229252697

Reposted by Dyscluded

Caroline Aird @devoncaroline.bsky.social · 26/11/2024

*STAGE CURTAIN TRACKING*! The stage curtain track in our village hall is broken. The pulley mechanism has stopped working (oh yes it has!) and we need someone to look at it. Any ideas Devon people? #stage #theatre #devon

221