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CURE Epilepsy

@cureepilepsy.bsky.social
87 followers 119 following 85 posts

CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 19 countries to date.

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CURE Epilepsy @cureepilepsy.bsky.social · 08/09/2026
Thank you so much to our Night of Discovery Presenting Sponsors, The Cafaro-Livingston Charitable Trust and GCM Grosvenor, and Diamond Sponsor, The Ann G. & James B. Ritchey Foundation! We are so grateful for their generosity and commitment to finding cures for epilepsy.
Event poster titled "Night of Discovery," scheduled for Sept. 19, 2026, in Chicago, IL. Presenting sponsors are Cafaro-Livingston Charitable Trust and GCM Grosvenor. Diamond sponsor is The Ann G. & James B. Ritchey Foundation. Includes a call to action: "Join us CUREepilepsy.org/NightOfDiscovery.
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CURE Epilepsy @cureepilepsy.bsky.social · 20/08/2026
Last chance! Join us for our next Pipeline of Progress webinar. Learn about the latest research regarding therapeutic devices for epilepsy, including transcranial electrical stimulation, transcranial magnetic stimulation, and focused ultrasound. Register here: bit.ly/4wIXjWg
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Pipeline of Progress: Therapeutic Devices on the Horizon
This webinar is the second in our Pipeline of Progress series, created especially for people living with epilepsy and the loved ones who support them.This int...
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CURE Epilepsy @cureepilepsy.bsky.social · 06/08/2026
At our next webinar, learn about a few different technological advances in therapeutic devices, including transcranial electrical stimulation, transcranial magnetic stimulation, and focused ultrasound. Get clear information & real insights. Register: bit.ly/4wIXjWg
A promotional image for a webinar series titled "Pipeline of Progress Webinar Series: Therapeutic Devices on the Horizon" scheduled for August 20, 2026, at 11 AM CT. It shows two people in lab coats reviewing a brain scan on a computer screen.
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CURE Epilepsy @cureepilepsy.bsky.social · 22/07/2026
A recent study shows that a gut-derived chemical may prevent epilepsy from developing following TBI. The treatment reduced brain inflammation, improved memory/mood, protected brain cells, reduced seizures, and made it harder to trigger a seizure. bit.ly/4vFFabd
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Scientists tame seizures and heal injured brains with gut chemical – Texas A&M Stories
A natural therapy heals brains after traumatic injury, making seizures both harder to trigger and rarer, while pointing to a future that could cure epilepsy.
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CURE Epilepsy @cureepilepsy.bsky.social · 21/07/2026
Join our next webinar on evolving tech in epilepsy, including transcranial electrical stimulation, transcranial magnetic stimulation, and focused ultrasound. You’ll get clear information, real insights, and a hopeful look ahead. Register now here: bit.ly/4wDl3uW
bit.ly
Pipeline of Progress: Therapeutic Devices on the Horizon
This webinar is the second in our Pipeline of Progress series, created especially for people living with epilepsy and the loved ones who support them.This int...
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CURE Epilepsy @cureepilepsy.bsky.social · 20/07/2026
New research links #depression risk in children with #epilepsy to disruptions in the brain’s default mode network. The findings may help identify measurable biomarkers and support more personalized care, especially for adolescents. 🔗 bit.ly/458o4Yt
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Study Links Brain Network Interactions to Depression Risk in Pediatric Epilepsy
A team of researchers have identified a potential neurobiological marker for depression risk in children with epilepsy by studying how brain lesions interact with functional brain networks.
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CURE Epilepsy @cureepilepsy.bsky.social · 17/07/2026
A first-time unexplained seizure could be an early warning sign of undiagnosed cancer, according to a study of nearly 50,000 adults. Researchers found an increased risk of both neurological and non-neurological cancers, especially within the first year. bit.ly/4fgdZgQ
cureepilepsy.org
Cancer Risk May be Increased After Unexplained First Seizure, Finds Study
In a recent study, researchers found that first-time seizures are linked to an elevated short-term risk of cancer.
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CURE Epilepsy @cureepilepsy.bsky.social · 16/07/2026
🔬 New Episode: Epilepsy Explained on Genetic Testing Elizabeth Gerard, MD, provides clear answers to frequently asked questions about epilepsy genetic testing. Watch the full episode here: bit.ly/4gI6cL4 Supported by an independent educational grant from GRIN Therapeutics.
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Reposted by CURE Epilepsy
Dravet Syndrome Foundation @curedravet.bsky.social · 09/06/2026
The #Dravet community knows #epilepsy is more than seizures. The National Plan for Epilepsy Act would help create a coordinated federal strategy to prevent, diagnose, treat, and cure the epilepsies while improving lives. ⏰ Ask Congress to support it today ➞ tr.ee/ZL47AzWcX2
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CURE Epilepsy @cureepilepsy.bsky.social · 04/06/2026
We joined an international group of stakeholders to publish a consensus paper on SUDEP priorities and recommendations to better understand risk and prevention. Recs focus on creating better infrastructure, tools, data, access and education. journals.sagepub.com/doi/10.1177/15…
journals.sagepub.com
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
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CURE Epilepsy @cureepilepsy.bsky.social · 27/05/2026
As part of our ongoing SUDEP Risk Assessment and Prevention Initiative, we're proud to announce the SUDEP Clinical Biomarker Team Science Award. Made possible in part through a generous gift from the @epilepsyfoundation.bsky.social three teams will advance knowledge of SUDEP risk factors.
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CURE Epilepsy @cureepilepsy.bsky.social · 25/05/2026
Epilepsy research news 🔬 Inflammatory Cytokine Signatures: Distinguishing Drug-Resistant from Drug-Responsive Patients via @epilepsybehavior.bsky.social www.cureepilepsy.org/news/inflammat…
cureepilepsy.org
Inflammatory Cytokine Signatures in Epilepsy: Distinguishing Drug-Resistant from Drug-Responsive Patients
The study suggests that inflammatory cytokines could eventually serve as biomarkers to help predict disease severity or treatment response.
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CURE Epilepsy @cureepilepsy.bsky.social · 22/05/2026
Epilepsy research news 🔬 The Brain Has a Warning System for Its Own Electrical Misfires, and We Can Now Read It via UC San Francisco scienceblog.com/the-brain-has-a-war…
scienceblog.com
The Brain Has a Warning System for Its Own Electrical Misfires, and We Can Now Read It
Every second of the day, in roughly half of the 50 million people living with epilepsy, the brain stages tiny rebellions. Not seizures, exactly, but
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CURE Epilepsy @cureepilepsy.bsky.social · 21/05/2026
Epilepsy research news 🔬 Treatment of Rare Childhood Epilepsy Could Begin Before Birth via @feinberg.northwestern.edu www.cureepilepsy.org/news/treatment…
cureepilepsy.org
Treatment of Rare Childhood Epilepsy Could Begin Before Birth
A new study suggests intervention to prevent epilepsy could start during pregnancy — as early as 15 weeks of gestation.
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CURE Epilepsy @cureepilepsy.bsky.social · 21/05/2026
Last year, we partnered with the Focused Ultrasound Foundation for their first-of-its-kind workshop on treating epilepsy with focused ultrasound. Our CSO Dr. Laura Lubbers reflects on the 5 biggest takeaways in a recent blog post. Check it out here: bit.ly/4dnjT00
fusfoundation.org
Focused Ultrasound for Epilepsy: From Promise to Path Forward - Focused Ultrasound Foundation
In November 2025, I had the privilege of joining more than 50 global experts in Charlottesville, Virginia, for a first-of-its-kind workshop hosted by the Focused Ultrasound Foundation in partnership with CURE Epilepsy. Our shared goal was both ambitious...
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CURE Epilepsy @cureepilepsy.bsky.social · 20/05/2026
Epilepsy research news 🔬 Epilepsy Gene Implicated in Severe Migraine Disorder via @feinberg.northwestern.edu www.cureepilepsy.org/news/epilepsy-…
cureepilepsy.org
Epilepsy Gene Implicated in Severe Migraine Disorder
Researchers have identified mutations in the gene SCN2A as a new cause of Familial Hemiplegic Migraine (FHM), a rare and severe form of migraine that can cause temporary weakness or paralysis on one side of the body during attacks.
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CURE Epilepsy @cureepilepsy.bsky.social · 20/05/2026
The latest Epilepsy Explained, shares info on making appointments as effective as possible. Watch here: bit.ly/4nCrDPb This episode is supported by an independent educational grant from @sklifescience.bsky.social. CURE Epilepsy is solely responsible for selection of presenter & content.
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CURE Epilepsy @cureepilepsy.bsky.social · 18/05/2026
The PAME Conference brings together epilepsy researchers, health care providers, nonprofit leaders, and people impacted by epilepsy, including bereaved families, to share knowledge and work together to prevent epilepsy mortality. Learn more: pameonline.org/event/2026-pame-conf…
Group of six people standing and smiling in business attire with conference badges. Event details displayed: "Save the Date!" with text for a PAME conference in Denver, Colorado, from December 2 to 3, 2026. Logos and schedule mention special sessions for families and scientific sessions.
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CURE Epilepsy @cureepilepsy.bsky.social · 12/05/2026
Apply now for the Rare Epilepsy Partnership Award (1yr/$100,000), co-funded by a rare epilepsy advocacy group: Channeling Hope Foundation, The Rory Belle Foundation, YWHAG Research Foundation, or ZTTK SON-Shine Foundation. www.cureepilepsy.org/for-researcher…
cureepilepsy.org
Grant Programs and Opportunities – CURE Epilepsy
Each year, grants are funded based on promising trends in the field and the potential for breakthroughs in a specified area.
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CURE Epilepsy @cureepilepsy.bsky.social · 11/05/2026
Pediatric neurologists, dietitians, pediatricians, and neurosurgeons, this one's for you. Join the @amepilepsysoc.bsky.social on May 28 for a webinar Early Intervention & Evolving Evidence: New Guidelines in Infantile Epilepsy. Learn more: aesnet.org/infantile-epilepsy-guide…
aesnet.org
Infantile Epilepsy Guidelines
Evidence-based guidance for the diagnosis and management of infantile epilepsy.
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CURE Epilepsy @cureepilepsy.bsky.social · 16/04/2026
Save the date! UNITE to CURE Epilepsy is April 23. This is a day for the community to drive research forward and accelerate the search for a cure. Thanks to the generosity of Jonathan and Julia Tuteur, your gift will help unlock a $25,000 match. More: bit.ly/4vxbyhg
Three people smiling and showing painted hands in different colors stand indoors. They are wearing shirts with "Rake" and "Rock for Cure" designs. The graphic at the bottom reads "Unite to Cure Epilepsy April 23" in bold letters.
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CURE Epilepsy @cureepilepsy.bsky.social · 13/04/2026
ICYMI: The first Pipeline of Progress series webinar covered epilepsy meds on the horizon. Watch the recording here: www.cureepilepsy.org/webinars/pipel… This series is supported by Lundbeck, Stoke Therapeutics, and Xenon Pharmaceuticals.
cureepilepsy.org
Pipeline of Progress: Epilepsy Medications on the Horizon
An interactive review of some of the epilepsy medications in phase III clinical trial as of April 2026 with audience Q&A.
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CURE Epilepsy @cureepilepsy.bsky.social · 23/03/2026
150 epilepsy orgs are united behind the bipartisan #NationalPlan4Epilepsy Act (S.494 / H.R. 1189). We need your help to move this legislation forward. Take 5 minutes to contact your members of Congress and ask them to sign on. 👉 Take action here: bit.ly/NP4E
A poster for the "Weeks of Action: National Plan for Epilepsy" event. It invites people to join from March 23, 2026, to April 3, 2026. It encourages contacting legislators to support the National Epilepsy Plan. The hashtag #NationalPlan4Epilepsy is included. The background features the US capitol building.
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CURE Epilepsy @cureepilepsy.bsky.social · 18/03/2026
This episode of Epilepsy Explains, we explore catamenial epilepsy. Dr. Alexa King answers questions like: 💜 What is it? 💜 How is catamenial epilepsy diagnosed? 💜 When should someone find a specialist? Catch the episode on our website here: bit.ly/4utpOqE
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CURE Epilepsy @cureepilepsy.bsky.social · 17/03/2026
Save the date! Night of Discovery is happening 9/16. CURE Epilepsy's annual Chicago Benefit is an exciting evening of cocktails, dinner, and dancing that brings together more than 500 of Chicagoland’s leading business and philanthropic voices. More info: bit.ly/4lBY13m
Night of Discovery event invitation for CURE Epilepsy. Scheduled for Saturday, September 19th, 2026, at Fairmont Millennium Park, Chicago, IL, from 5:30 PM to 11:00 PM. Contact information is provided for attendance or sponsorship inquiries. The background features a celestial theme with star-like patterns.
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CURE Epilepsy @cureepilepsy.bsky.social · 12/03/2026
Join us for a webinar and Q&A about epilepsy medications in Phase 3 clinical trial. You’ll get clear information, real insights, and a hopeful look at what the future of epilepsy treatment may hold. Register now here: us02web.zoom.us/webinar/register/52…
A medical professional is showing a human brain model to a person. Above, text reads "Pipeline of Progress Webinar Series: Epilepsy Medications on the Horizon, April 8, 2026, 4 PM CT.
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CURE Epilepsy @cureepilepsy.bsky.social · 05/03/2026
We have selected 5 organizations to collaborate with for the next round of Rare Epilepsy Partnership Awards! We'll be partnering with Channeling Hope Foundation, The Rory Belle Foundation, YWHAG Foundation, and ZTTK SON-Shine Foundation. We can't wait to see what exciting projects follow!
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CURE Epilepsy @cureepilepsy.bsky.social · 24/02/2026
CDEs standardize ways of describing and collecting data, harmonizing biomedical research. Learn how we fueled the creation, review, and dissemination of CDEs for epilepsy, most recently for preclinical SUDEP research: bit.ly/4b8z6Rd
cureepilepsy.org
Harmonizing Epilepsy Research: Common Data Elements
CDEs provide universal “sheet music” for epilepsy research, providing a standardized way of describing and collecting data.
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CURE Epilepsy @cureepilepsy.bsky.social · 13/02/2026
The best seizure action plan is one that fits your real life. Your plan should reflect where you go and who is around you, especially because you may not be able to explain what you need. A plan makes sure the right steps are in place. ➡️ Learn more: bit.ly/4c7PfaA
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CURE Epilepsy @cureepilepsy.bsky.social · 11/02/2026
Rescue meds can stop certain seizures, but only if others know when and how to use them. A seizure action plan spells this out clearly, so that teachers and colleagues can act quickly and confidently. Learn more here: bit.ly/4c7PfaA #SAPAW2026 #SeizureActionPlans
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CURE Epilepsy @cureepilepsy.bsky.social · 10/02/2026
Welcome Drew, 2026 Community Enrichment Program intern! Drew has lived with epilepsy since age 12. This internship will help him reach his goal of making a difference for others in the epilepsy community. Thank you to SK Life Science, Inc. for their generous support of this program!
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CURE Epilepsy @cureepilepsy.bsky.social · 09/02/2026
Is your seizure action plan up-to-date? Seizure Action Plan Awareness Week is a great time to check! And if you don't have a plan, consider this your sign to consider making one. Learn more about seizure action plans here: bit.ly/4c7PfaA #SAPAW2026 #SeizureActionPlans
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CURE Epilepsy @cureepilepsy.bsky.social · 06/02/2026
Join us at CURE Epilepsy Takes Manhattan, an evening of music, laughter, and stories with Miguel Cervantes and his Broadway friends! Past performers include Tamar Greene (Hamilton), Ginna Claire Masón (Wicked), David Josefsberg (Waitress), and more. Get your tickets here: bit.ly/4rsNDwp
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CURE Epilepsy @cureepilepsy.bsky.social · 06/02/2026
What's changed in the field of #epilepsy #genetics and precision medicine over the past 10 years? Dr. Ingo Helbig reflects on that exact question in a recent blog post. Check it out here: epilepsygenetics.blog/2026/01/27/te…
epilepsygenetics.blog
Ten Years of Accumulation: Snow-Day Thoughts Between Jonas and Fern
Decade. Over the past week, winter storm Fern has blanketed large parts of the United States with several feet of snow, leading to a virtual standstill in many regions. When I looked back, I realiz…
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Reposted by CURE Epilepsy
American Epilepsy Society @amepilepsysoc.bsky.social · 02/02/2026
Use of the AES Behavioral Health Toolkit will help clinicians identify symptoms of #anxiety, #depression, or suicide risk in people with #epilepsy or seizures. buff.ly/BCCS3mP
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CURE Epilepsy @cureepilepsy.bsky.social · 02/02/2026
Join us in congratulating our latest grantees! Dr. Christos Lisgaras, Nathan Kline Institute Drs. Sonja Bröer, Florian Heyd, Rossella Di Sapia, Free University of Berlin Dr. Mahboubeh Ahmadi, University of California, Riverside Dr. Aswathy AmmothumKandy, @usc.edu Dr. Alex Felix, @upenn.edu
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CURE Epilepsy @cureepilepsy.bsky.social · 30/01/2026
Congrats to Dr. Gordon Buchanan! A study supported by a CURE Epilepsy Award, in partnership with the Joanna Sophia Foundation, was listed as a 2025 Editor's Choice at Journal of Physiology (June): physoc.onlinelibrary.wiley.com/doi/…
physoc.onlinelibrary.wiley.com
Editor's Choice 2025: The Journal of Physiology
<em>The Journal of Physiology</em> publishes research in all areas of physiology and pathophysiology that illustrates new physiological principles or mechanisms.
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CURE Epilepsy @cureepilepsy.bsky.social · 22/01/2026
In this month's Epilepsy Research News: 🧠 Reducing Seizures and Restoring Memory ❤️‍🩹 Depression Increases Epilepsy Risk, Makes it Harder to Treat 🧈 Linking Metabolic Defects to Dravet 👵 Late-Onset Epilepsy a Distinct Neurodegenerative Subtype? www.cureepilepsy.org/news
cureepilepsy.org
Research News + Latest Research
Stay up to date with the latest developments across the epilepsy research community--from publications to news articles.
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CURE Epilepsy @cureepilepsy.bsky.social · 15/01/2026
Dr. Gerard joined @neurology_live to give insights on a new consortium, GEAN, aiming to expand genetic testing and define adult phenotypes for rare genetic epilepsies. Check it out: www.neurologylive.com/view/genetic-…
neurologylive.com
Genetic Testing in Adult Epilepsy: GEAN’s Plan to Standardize Practice and Study Adult Outcomes | NeurologyLive - Clinical Neurology News and Neurology Expert Insights
Elizabeth Gerard, MD, an epileptologist at Northwestern Medicine, provided clinical insights on a new consortium, GEAN, which aims to expand genetic testing and define adult phenotypes for rare geneti...
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CURE Epilepsy @cureepilepsy.bsky.social · 07/01/2026
A wonderful result from the lab of our good friend, Dr. Baraban! Here's to many more sea-zure free years.
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Reposted by CURE Epilepsy
EpilepsyExplained.com @epilepsyexplained.com · 15/12/2025
If you're a new parent, read this to understand more about febrile seizures.
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CURE Epilepsy @cureepilepsy.bsky.social · 19/12/2025
8-year-old Maxwell, with a disease so rare it didn’t even have a name, just became the first to receive a breakthrough gene therapy thanks to relentless research and breakthrough gene therapy. Hope in action. 💙 #raredisease #epilepsy #gentics Full story: bit.ly/4oRXtWV
bit.ly
8-Year-Old Has Disease So Rare It Doesn't Have a Name. Now He's First in the World to Receive Treatment (Exclusive)
Amber Freed tells PEOPLE how she worked for years to find a treatment for her son Maxwell's SLC6A1 diagnosis, and finally got the treatment administered in September, making history in the process.
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CURE Epilepsy @cureepilepsy.bsky.social · 15/12/2025
Our febrile #seizures overview provides a clear summary of febrile seizure types, causes, risk profiles, diagnostic considerations, and current understanding of recurrence and future epilepsy risk. Learn more: bit.ly/4pZozN2 #epilepsyresearch #neurology #pediatrics
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Febrile Seizures – CURE Epilepsy
Seizure types are classified by where they begin in the brain, consciousness changes, and symptoms. Learn how each type presents and is managed.
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CURE Epilepsy @cureepilepsy.bsky.social · 11/12/2025
A UK #epilepsy trial using a #brain implant is uncovering #seizures doctors couldn’t detect before—including during sleep. Families say the research is giving them “a little bit of hope.” 🧠 #Epilepsy #Neurotech #Hope Learn more: bbc.in/44wsZmn
bbc.in
North East epilepsy brain implant trial gives ‘bit of hope’ - BBC News
Adam Atkinson has an implant in his brain which is tracking the seizures he experiences.
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CURE Epilepsy @cureepilepsy.bsky.social · 05/12/2025
IS can look like reflux or a startle reflex. When in doubt—record, refer, and get an EEG. Every day of delay increases the risk of permanent damage. Learn more at infantilespasms.org. #ISAW2025 #TimeIsBrain #PediatricCare
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Reposted by CURE Epilepsy
Epilepsia Journal @epilepsiajournal.bsky.social · 04/12/2025
Risks can be minimized by avoiding bright flashing lights, covering one eye, wearing dark glasses, and staying far back from screens. doi.org/10.1111/epi.... #epilepsy #ILAE #epilepsia #guidelines #patternsensitiveseizures #photoparoxysmalresponse #photosensitiveseizures #reflexepilepsy
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CURE Epilepsy @cureepilepsy.bsky.social · 03/12/2025
Every moment matters. Infantile spasms require rapid recognition and referral. Treatment within the first week can change a child’s life. Learn more at infantilespasms.org #ISAW2025 #Pediatrics #TimeIsBrain
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CURE Epilepsy @cureepilepsy.bsky.social · 01/12/2025
🚨 It’s Infantile Spasms Awareness Week. IS can look like quick head drops or small jerks, but they’re a medical emergency that can cause brain damage. Early action can change a child’s future. When it comes to IS, Time is Brain. Learn more at infantilespasms.org. #ISAW2025
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CURE Epilepsy @cureepilepsy.bsky.social · 26/11/2025
Childhood absence epilepsy (CAE) often appears as brief staring spells that can be easy to miss. In our new Epilepsy Explained episode, we breaks down what CAE looks like, how it’s diagnosed, and what treatments can help: bit.ly/4oUNKjK
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Reposted by CURE Epilepsy
American Brain Foundation @abfbrain.bsky.social · 24/11/2025
Executive Director Michelle Heritage contributed an opinion piece in today’s edition of @usatoday.com in support of #MedicalResearch funding. Scientists are on the verge of breakthroughs; the government should value and continue to fund research. #ResearchFunding 🔬🧠 Read the essay ➡️ buff.ly/Tc4CiJ4
A background image of researchers with text that says, "Federal Funding Cuts Hinder Lifesaving Brain Research, written by Michelle Heritage. Featured in USA Today."
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