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Tiff

@creativetiff78.bsky.social
5.6K followers 4.7K following 971 posts

I'm in N. California, 47 y/o Married, Chronically Ill ( #SmallFiberNeuropathy, #mecfs, #migraine, #dysautonomia, #hEDS, #fibromyalgia, #HS) retired LCSW, disabled #artist #knitter #witch #advocate #writer Bi 🌈🧙‍♀️🦥🥄🧶🎨🌻💙🌊 linktr.ee/CreativeTiff78

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Tiff @creativetiff78.bsky.social · 13/02/2026
I was scheduled to head back inpatient for another 5 day #KetamineInfusion on Tues. I'm sick with #COVID. Since I haven't really left the house for a couple of weeks, Peter likely brought it home. He's a sharing, caring type of guy. 🫠 Oh well. I've rescheduled for March.🤞 #SmallFiberNeuropathy
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NBC News @nbcnews.com · 07/02/2026
“Renee was not the first person killed, and she was not the last,” Becca Good said. “You know my wife’s name and you know Alex’s name, but there are many others in this city being harmed that you don’t know — their families are hurting just like mine, even if they don’t look like mine.”
nbcnews.to
Renee Good's partner addresses Minneapolis immigration crackdown one month after killing
Becca Good has seldom spoken out since Renee Good was shot and killed by an ICE agent in Minneapolis on Jan. 7.
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Tiff @creativetiff78.bsky.social · 07/02/2026
Jackie and one of her favorite plants in the yard (hardenbergia or "lilac vine") 🥰 #dogsofbluesky #labrador #dogsky #NorCal #gardening
A photograph of Jackie, a 5 year old red fox lab, sniffing at the purple blooms of a blooming lilac plant.A photograph of Jackie, a 5 year old red fox lab, leaning into the blooming lilac plant, but looking at the photographer with some "side eye".
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Tiff @creativetiff78.bsky.social · 04/02/2026
Grief and loss can rise up, unexpectedly, even after years of believing it to be resolved. Ok, so "resolved" might be a high expectation to place on grief, but the point is that the pain of loss can surface or if nowhere. For me, it was an email I recieved yesterday. 1/
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STAR @buongeorno.bsky.social · 01/02/2026
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Tiff @creativetiff78.bsky.social · 31/01/2026
About Me Progressive/Liberal AF, Feminist, Social Worker, Disabled by chronic illness, BLM, Abolish ICE, People cannot be illegal on stolen land, LGBTQIA+ Community, Food, Shelter, and Healthcare are part of basic human rights!
White text on a black background that reads: My biggest flex is I'm exactly who the fuck I say I am and don't have to fake shit.
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Tiff @creativetiff78.bsky.social · 30/01/2026
1/ I had my 4th #stellateganglionblock today for treatment of my #MECFS. My 1st was 1/3/24. My 2nd was 5/7/24. And my 3rd was 4/17/25. Over the past couple of years, I've been able to do more around the house. I've been able to resume reading novels and (even more exciting) books about...
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Tiff @creativetiff78.bsky.social · 27/01/2026
1/ My mom's having surgery, so their dog Matty is staying with us for a couple of nights. Matty has this odd fascination with my hair towel. (A pretty generic microfiber towel I wrap my hair up in after I wash it.) Every time I walk into the bathroom, my hair towel is on the floor.
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Tiff @creativetiff78.bsky.social · 26/01/2026
Jackie is disturbed and concerned. I'm not sharing this to be funny. She is very closely tuned into my feelings and how I'm doing physically. There's a lot going on right now. I'm anxious. I'm scared. I'm angry (not at her). I'm also determined. I will not be silent. #AbolishIce #justice
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Tiff @creativetiff78.bsky.social · 26/01/2026
1/ I'm going to miss TikTok. Over the past 4 years of using the app, I developed friendships across the globe, learned how I was upholding #WhiteSupremacy and #Racism, and started working to undo years of learned bad behavior. I learned about the true history of this country, and have been ...
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Tiff @creativetiff78.bsky.social · 24/01/2026
This world hasn't made sense in quite a while, but it feels like each day, there's more to horrific news. 💙 #AbolishICE
A cartoon picture of snoopy dressed in a heavy coat and ice fishing with the caption: "I don't need fancy things... just cheaper groceries, lower bills, and a world that makes sense again."
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Tiff @creativetiff78.bsky.social · 23/01/2026
1/I think in going to start my "blog" back up again on Substack. I started it on Blogspot in 2015, with the focus on living with chronic illness, and as the brain began to get bad, the writing had to stop. #mecfs I'm having my 4th #stellateganglionblock in a week, and I'm able to read (& write!)
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Tiff @creativetiff78.bsky.social · 26/11/2025
#IrishBlessing #AWayWithWords #resistance #democracy
Black Embroidered words on cream colored cloth which reads: 
A New Irish Blessing 
May your rights be protected and your resolve remain strong as you join the resistance and fight all that is wrong.
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Tiff @creativetiff78.bsky.social · 26/11/2025
While this administration has stripped the designation of "professional degree" of masters and doctorals in Social Work, making it even more difficult to fund these degrees, they can't stop us doing what we do. We are professional advocates. We get changes made. We continue to fight.
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Tiff @creativetiff78.bsky.social · 20/11/2025
I saw something today that I absolutely love: "I put the omen in women." 💙💙💙 #feminism #witch #witchsky
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Tiff @creativetiff78.bsky.social · 16/11/2025
Rainy Sunday Snuggles. 🥰 #dogsofbluesky #labrador #dogsky #rescuedog
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Tiff @creativetiff78.bsky.social · 13/11/2025
My husband picked all the pomegranates off our tree (the harvest is the first pic) and seeded them and then juiced the seeds. The bowl is arils from only 7 pomegranates! We were able to freeze a lot of juice and froze some arils as well. #gardening #NorCal
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Tiff @creativetiff78.bsky.social · 13/11/2025
#chronicillness #chronicpain
Black text on a white background reads: 
Before I say yes, I calculate:
How long will I stand? 
Will there be a place to sit? 
Will I have to walk far? 
What's the weather like? 
Is the pain worth it? 
Will I regret it halfway through? 
Is it worth the flare that's coming? 
Will I revive in a day... or a week? 

Some may say I'm overthinking, but this is the math of chronic illness, and every yes comes with a price only my body can see.
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Tiff @creativetiff78.bsky.social · 12/11/2025
#chronicpain #invisibleillness #invisibledisability #spooniesky
Black text on a pink background reads: 
This is a quote from a hematologist who understands pain better than most doctors and specialists:
"Chronic pain patients hide it so well, you can't go by how they look on the outside. They have to learn how to function with pain, you can't just roll around on the floor all day screaming in agony. Medical personnel in hospitals don't even realize this. A Chronic pain patient can function with a pain level that would incapacitate any other person."
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Tiff @creativetiff78.bsky.social · 08/11/2025
#feminism
White text on a black background that reads: Women are 51% of the population but 60% of the poor and 83% of single parents doing 66% of the work producing 50% of the food but earn just 11% of the pay and own only 20% of the land. 
In case you wondered why we still need feminism. (Author unknown/@WomenRules)
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Tiff @creativetiff78.bsky.social · 08/11/2025
#goodpeople #dogs 🐶
White text on a grey background that reads: Despite all the bad days and mean people, I still believe in good days and kind people. 
Plus there are always dogs.
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Mrs. Betty Bowers @mrsbettybowers.bsky.social · 07/11/2025
If this evidence ever sees the light of day, I want prosecutors, judges, and juries to see it, but I have absolutely no interest in viewing any of it.
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Tiff @creativetiff78.bsky.social · 06/11/2025
#democracy #congress #governmentshutdown
Quote credited to margotdurkin: 
Not that anyone's asking me, but here's how to end government shutdowns forever. Pass legislation that makes a shutdown illegal. Then Congress has to stay in session and keep voting until compromise is reached. After the 10th vote, if no agreement is reached, all congressional party and benefits are stopped until a bill is passed. 

Also: release the Epstein files. Swear in the Congresswoman.

Come back and do your jobs.
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Tiff @creativetiff78.bsky.social · 06/11/2025
Just some recent pictures of Jackie. #dogsofbluesky #labrador #rescuedog #dogsky
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Tiff @creativetiff78.bsky.social · 31/10/2025
Hey, here's a resource for food insecure folks in the States... trying to share this as far and wide as possible. #food #snap #snapbenefits table.miaura.ai
table.miaura.ai
Everyone deserves a seat at the table
Find food banks, pantries, and hot meals near you. Free food assistance resources nationwide.
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Tiff @creativetiff78.bsky.social · 14/10/2025
The pomegranate tree is very happy this year. #gardening #NorCal
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Tiff @creativetiff78.bsky.social · 28/09/2025
#humor #dogsofbluesky #dogsky
Black text on a white background that reads: One dog won't fix all of your problems. 
But three might. 
Or they might just cause enough problems you forget all about your old problems. 
So get four.
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Tiff @creativetiff78.bsky.social · 21/09/2025
I'm struggling. But then there's this sweet girlie snoozing, curled up against my legs, and things seem to be a bit brighter. Dogs are amazing. #dogsofbluesky #labrador #rescuedog #dogsky
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Kamala Harris @kamalaharris.com · 18/09/2025
What we are witnessing is an outright abuse of power. This administration is attacking critics and using fear as a weapon to silence anyone who would speak out. Media corporations — from television networks to newspapers — are capitulating to these threats.
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Alexandria Ocasio-Cortez @aoc.bsky.social · 20/09/2025
Disney/ABC have a responsibility to refuse to participate in corruption. Kimmel must be reinstated. If Disney/ABC agree to this extortion then perhaps creatives + workers should consider collective action to push back. Same w/buying park + cruise tickets if they bow. People have power. Ask Target
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Tiff @creativetiff78.bsky.social · 18/09/2025
When you're chronically ill and crafty. 😏 IV poles can have multiple uses! #chronicillness #chronicpain #spooniesky #disabledsky #chronicillnesshumor #creativewhilesick
A picture of an IV pole, with a ring and macrame project on one hanger and macrame yarn and 2 wooden hoops on the opposite hanger.
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Allison Gill @muellershewrote.com · 18/09/2025
I stand with Jimmy Kimmel.
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Tiff @creativetiff78.bsky.social · 14/09/2025
Today's #garden harvest. And we still have tomatoes ripening on the vines. #gardening #NorCal
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Tiff @creativetiff78.bsky.social · 13/09/2025
#chronicillness #chronicpain #spooniesky #disabledsky #chronicillnesshumor
A name tag graphic on top of a pink, green, yellow diagonal striped background that reads: Hello, I'm Not Looking For Unsolicited Medical Advice.
Credited to: @thischronicstruggle
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Tiff @creativetiff78.bsky.social · 07/09/2025
I live in N. California. I was born here, my family is here, this is home. I love many, many things about California. I'm also #chronicallyill. One of my conditions- a couple of forms of #dysautonomia- means I have to keep the house a certain temperature. 1/
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Tiff @creativetiff78.bsky.social · 04/09/2025
#chronicpain #chronicpainhumor A thread 1/
Grumpy cat meme with white writing that reads: So on a scale of 1-10, can you rate your pain? (Picture of a face of a white and brown cat with blue eyes, appearing grumpy inserted) At this very moment, or today as a whole, or do you mean in a specific area?
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Tiff @creativetiff78.bsky.social · 04/09/2025
#humor #dogsofbluesky 🤣
White text on a burgundy background reads: Never leave home without a kiss, a hug, and an "I love you." Then remove the dig hair from your mouth as you walk to the car.
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Tiff @creativetiff78.bsky.social · 02/09/2025
Today's garden pics. I need to get out and harvest. #gardening #NorCal
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Tiff @creativetiff78.bsky.social · 02/09/2025
We're having a bit of a heatwave, and my body is not happy. A body with #chronicillness doesn't react well to merit weather changes. I was incredibly ill yesterday as my #dysautonomia decided to freak out, meaning: * I was tachy * I was short of breath by just walking from one room ... 1/
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Tiff @creativetiff78.bsky.social · 01/09/2025
#chronicillness #chronicpain #spooniesky #disabledsky
Black text on a beige background that reads: "The one thing I wish people knew about my illness...
I really miss who I was."
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Tiff @creativetiff78.bsky.social · 30/08/2025
Y'know, Life360, you can be a real jerk to someone who's housebound due to #chronicillness. 😏 We both know I haven't left my house this week. It's not necessary to remind me. #chronicillnesshumor
Picture of a notification from the app Life360 that reads: *picture of a pin* You've moved, we noticed-- here's your weekly recap.
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Tiff @creativetiff78.bsky.social · 28/08/2025
Reenactment of a text conversation with a guy through a game recently. (The actual conversation has been over weeks). Him: Hi, how are you Me: I'm hanging in. And you? Him: I'm good. What do you do? Me: I'm disabled due to chronic illness. Him: OK. What illness? #chronicillness 1/
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Tiff @creativetiff78.bsky.social · 27/08/2025
More chickens completed. 😁 #knitting #knittedtoys #emotionalsupportchicken
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Tiff @creativetiff78.bsky.social · 26/08/2025
There's something that *really* frustrates me. I've taken the time to write out important facts about myself for the public to read. It's not long. It's always right there, at the top, when folks go to my profile. I do not want to have to repeat myself in a chat. #ReadMyProfile
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Tiff @creativetiff78.bsky.social · 24/08/2025
I'm paying for yesterday's work in the garden. I really overdid it. 🫠 #chronicillness #chronicpain #pwME #mecfs #cfsme #fibromyalgia #dysautonomia #migraine #SmallFiberNeuropathy #fatigue #pem #PENE #spooniesky #disabledsky
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Tiff @creativetiff78.bsky.social · 23/08/2025
😁😁😁💙💙💙
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Tiff @creativetiff78.bsky.social · 23/08/2025
A blessing to all my 💙 peeps 😁
Black text on a white and Grey background that reads: "May your day be filled with glitter that someone ends cleans up." 
Credited to Riley and company.
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Tiff @creativetiff78.bsky.social · 23/08/2025
Many of us who live with #chronicillness have said that if folks started experiencing our regular symptoms acutely, they would go to the ED/ER/A&E. Those of us with chronic illness can't go to the ED on a daily basis (nor do we want to), and frankly most of us want to have a life outside our 1/
Black text on a blue and purple background that reads: "Living with chronic illness requires an intricate balance between ignoring your symptoms to live and listening to your body to survive." Credited to @chelseahealinghappily
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Tiff @creativetiff78.bsky.social · 23/08/2025
I was having pain as a child (which was later diagnosed as #hEDS in my mid-30's). I honestly thought everyone lived with pain until I was a pre-teen. I figured it was normal, and everyone was pushing through like I was. I don't believe I've ever had a pain free day. #chronicillness #chronicpain
Black text on a red, blue, and white background that reads: "Some people cannot remember the last time they experienced pain. I cannot remember the last time I had a pain free day." Credited to @itsachronicthing
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Tiff @creativetiff78.bsky.social · 23/08/2025
Yes. Today, I overdid it in the garden. Not only am I done for the day, I might be done for the week. #chronicillness #chronicpain #spooniesky #disabledsky #cfsme #pwME #mecfs
Black text on a purple background that reads: Sometimes I convince myself I can do more than I actually can. 

That never ever turns out well. 

Credited to Chronic Pain Warrior
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