iiinova — where your digital self keeps evolving

Compassion in Dying @compassionindying.bsky.social · 24/08/2026

Joined by Dr Charlotte Augst, Jacob Lant, Dr Minal Bakhai, Dr Vinnie Nambisan and Dr Sophy Gretton this webinar brings experts together to explore how current policy initiatives can improve the ability of the system to listen to and honour people’s decisions at the end-of-life.

000

Compassion in Dying @compassionindying.bsky.social · 24/08/2026

New Webinar Alert! Join us on Monday the 28th of September at 13:30 for a free webinar where we consider how the current end-of-life policy agenda can close the gap between people’s wishes, policy intention, and practice. Sign up here: us02web.zoom.us/webinar/regi...

100

Compassion in Dying @compassionindying.bsky.social · 10/08/2026

It focuses on creating a system that centres people’s wishes and decisions at the very centre of their care, and which is entirely in keeping with this new Government’s vision for health and care.

000

Compassion in Dying @compassionindying.bsky.social · 10/08/2026

We highlight a new approach to improving dying that starts upstream with public health approaches and better conversations and reaches downstream into better community provision.

100

Compassion in Dying @compassionindying.bsky.social · 10/08/2026

Mentioned in her piece, Compassion in Dying’s latest report highlights how, currently, fragmented records, system pressures and professional culture can prevent people's wishes being respected in moments of crisis.

110

Compassion in Dying @compassionindying.bsky.social · 10/08/2026

@charlotteaugst.bsky.social latest piece for the Future Governance Forum explores how the new Prime Minister’s approach to health policy is a helpful step towards a more community-based, preventative approach to care and treatment at the end of life.

124

Compassion in Dying @compassionindying.bsky.social · 04/08/2026

With key government initiatives underway, we now have a powerful opportunity in front of us to reshape how end-of-life care is experienced. But to do this we need the system to invest in and prioritise doing things differently. Read our new blog to find out more:

compassionindying.org.uk

What do we mean when we talk about Bridging the Gap?

The last two years have felt like a critical moment for end of life care, with a surge of public and political attention towards investing in meaningful improvements that better support people at the ...

000

Compassion in Dying @compassionindying.bsky.social · 04/08/2026

The recommendations aim to bridge the gap between people’s wishes, policy intent and practice. Through better conversations, clearer records, and greater professional confidence in end-of-life decision-making.

110

Compassion in Dying @compassionindying.bsky.social · 04/08/2026

Three weeks ago, we published our latest report: Bridging the gap: How to ensure people's decisions are respected at the end of life. It highlights how fragmented records, system pressures and professional culture can prevent people's wishes being respected as they approach the end of their lives.

compassionindying.org.uk

Bridging the gap

How to ensure people’s decisions are respected at the end of life

100

Compassion in Dying @compassionindying.bsky.social · 20/07/2026

“I had power of attorney and all of this in place. But the doctor was nudging me towards an agreement that the best place he felt for Alan was to be in hospital. I just knew because he’d got his advance decision written, I knew I could stand up to that doctor and say no.”

100

Compassion in Dying @compassionindying.bsky.social · 20/07/2026

People tell us that their wishes for the end of their life are often frustrated by a medical culture that defaults to interventions and hospitalisations, without prioritising if the person wants this. The impact is devastating. They endure unwanted treatments and feel powerless over their care.

100

Compassion in Dying @compassionindying.bsky.social · 20/07/2026

Last week we published our new report amplifying the voices of the people our services support. Hear Elizabeth talk about her husband Alan’s experience of care at the end of life and how planning ahead supported Alan to ensure his decisions were respected.

131

Compassion in Dying @compassionindying.bsky.social · 17/07/2026

The new Modern Service Framework for Palliative and End of Life Care; the neighbourhood health agenda; and work on the NHS Single Patient Record are important opportunities to improve the ability of the system to listen and honour peoples end of life decisions. It’s vital that we get this right.

000

Compassion in Dying @compassionindying.bsky.social · 17/07/2026

Our new report sets out an approach to improving dying. One that focuses on creating a system where respecting people’s wishes feels normal, safe and supported for clinicians.

compassionindying.org.uk

Bridging the gap

How to ensure people’s decisions are respected at the end of life

100

Compassion in Dying @compassionindying.bsky.social · 17/07/2026

Too often, people and professionals are trying to have the same conversation from separate rooms. Whilst NHS increasingly says end-of-life care should be personalised, less hospital-based and built around people’s wishes, in Anushka’s experience, the system is not designed to respond in this way.

110

Compassion in Dying @compassionindying.bsky.social · 17/07/2026

“The challenge for those of us working to improve end-of-life care is how we address the clear gap between people’s wishes, policy intent and practice.”

131

Compassion in Dying @compassionindying.bsky.social · 17/07/2026

000

Compassion in Dying @compassionindying.bsky.social · 17/07/2026

Our new report sets out an approach to improving dying. One that focuses on creating a system where respecting people’s wishes feels normal, safe and supported for clinicians.

compassionindying.org.uk

Bridging the gap

How to ensure people’s decisions are respected at the end of life

100

Compassion in Dying @compassionindying.bsky.social · 17/07/2026

100

Compassion in Dying @compassionindying.bsky.social · 15/07/2026

However, without specific attention on people’s lived experiences, they could also further lock in a culture that focuses on system outcomes rather than outcomes for people.

100

Compassion in Dying @compassionindying.bsky.social · 15/07/2026

The new Modern Service Framework, Single Patient Record and the Neighbourhood Health Framework are all policy initiatives that could significantly improve the ability of the system to listen to and honour people’s end-of-life decisions.

100

Compassion in Dying @compassionindying.bsky.social · 15/07/2026

Our report sets out a new approach to improving dying and it should be a wakeup call to everyone to make experiences better for people at the end of their lives.

100

Compassion in Dying @compassionindying.bsky.social · 15/07/2026

Yesterday we published our new report - it lays bare how too many people are still dying in ways they explicitly said they did not want. Hear Usha, our Director of Partnerships and Influencing, explain why we began this work. compassionindying.org.uk/resource/bri...

151

Reposted by Compassion in Dying

Dr Anushka Aubeelack @bumblebeenush.bsky.social · 14/07/2026

What we do with this information is of the utmost importance. If we truly want to honour informed choice and patient-led care, we need to improve our systems as soon as possible. The recommendations form a solid approach to do this. #NHS #EndOfLifeCare #InformedChoice #ImportantConversations

011

Reposted by Compassion in Dying

Sarah Wootton @sarahwootton.bsky.social · 14/07/2026

This report should be a wake-up call for everyone working to improve experiences at the end-of-life

02410

Reposted by Compassion in Dying

Dr Anushka Aubeelack @bumblebeenush.bsky.social · 14/07/2026

Incredibly proud to be associated with Compassion in Dying who have produced another excellent report, exploring issues being faced by those who want to plan their end of life care The insights from conversations with health care professionals hit hard & I think many will empathise

1115

Compassion in Dying @compassionindying.bsky.social · 14/07/2026

The report’s recommendations set out a new approach to improving dying, through better conversations, clearer records, and greater professional confidence in end-of-life decision-making. Together we can create a system, where respecting people’s decisions feels normal, safe and supported.

041

Compassion in Dying @compassionindying.bsky.social · 14/07/2026

We heard from the professionals we interviewed about a form of “death denial” in professional culture, which is not primarily personal but deeply embedded in the structures that underpin healthcare practice. It is reinforced by training, hierarchy, system pressures and fragmented record systems.

121

Compassion in Dying @compassionindying.bsky.social · 14/07/2026

Professionals described environments where time for meaningful conversations are limited, accountability mechanisms reward action over restraint and ‘doing more’ feels safer than avoiding unnecessary treatment – even when clinically justified and aligned with what matters to the person.

121

Compassion in Dying @compassionindying.bsky.social · 14/07/2026

It shows that people’s wishes for the end of their life are frustrated by a medical culture which defaults to tests, interventions and hospitalisations, without prioritising whether individuals themselves would want this. But professionals told us the problem is rarely a lack of compassion.

121

Compassion in Dying @compassionindying.bsky.social · 14/07/2026

This report brings together two perspectives – health and care professionals and dying people alongside those who love them. It’s based on an analysis of two years of call data from our new nurse led in-depth support service and interviews with frontline clinicians.

121

Compassion in Dying @compassionindying.bsky.social · 14/07/2026

Today, we launch our new report: Bridging the gap: How to ensure people's decisions are respected at the end of life. It shows that too many people are still dying in ways they explicitly said they did not want. compassionindying.org.uk/resource/bri...

compassionindying.org.uk

Bridging the gap

How to ensure people’s decisions are respected at the end of life

1106

Compassion in Dying @compassionindying.bsky.social · 22/04/2026

These experiences raise important questions: 1️⃣ Should we be more honest about challenges attorneys may face? 2️⃣ What more can be done to support them in this important role? We want to see more support for attorneys when they're not listened to so donors’ wishes are respected when it matters most.

040

Compassion in Dying @compassionindying.bsky.social · 22/04/2026

On #PowerofAttorneyDay, we reflect on what the people we support tell us about LPAs. Attorneys speak to us about: 👉not being recognised as decision maker 👉 not being included in best interests meetings 👉losing confidence to speak up for their loved one compassionindying.org.uk/blog-post/im...

compassionindying.org.uk

The important but challenging role of a health attorney

Our services are here for everyone, including attorneys who need support in their role. We hear from lots of attorneys who need answers, and don’t know where to turn.

151

Compassion in Dying @compassionindying.bsky.social · 09/03/2026

With 25 years of nursing experience, Sarah shares personal reflections on palliative care – why it matters so deeply and why it deserves better recognition and resources. We invite you to reflect alongside Sarah on what care, dignity and honesty can look like at the end of life.

000

Compassion in Dying @compassionindying.bsky.social · 09/03/2026

In our latest blog Sarah White, our new Clinical Lead, explores the complex realities of dying, and shares why honest conversations about the limits of palliative care are so important if we are to ensure people can make informed choices about what matters to them most at the end of life.

compassionindying.org.uk

Rethinking palliative care: finding honesty in difficult conversations

Sarah White, our new clinical lead with 25 years of nursing experience shares some personal reflections on her experience of working in palliative care – why it matters so deeply, and why honest conve...

142

Compassion in Dying @compassionindying.bsky.social · 24/02/2026

We hope this content will help foster open conversations because everyone has the right to understand the options available to them now, and potentially in the future, so they can make informed decisions. compassionindying.org.uk/how-we-can-h...

compassionindying.org.uk

Assisted dying

Assisted dying is when a terminally ill adult with mental capacity takes medication to bring about their death.

000

Compassion in Dying @compassionindying.bsky.social · 24/02/2026

There are questions we can’t answer because assisted dying is not currently legal in the UK. But we have answered the questions we can, and have been honest about the ones we can’t.

100

Compassion in Dying @compassionindying.bsky.social · 24/02/2026

Research shows that the public have questions. They want clarity on what an assisted death is, they want to know about the eligibility criteria and safeguards proposed in current legislation and the timeframe for potential law change. compassionindying.org.uk/blog-post/as...

compassionindying.org.uk

Assisted dying: how do we meet people’s needs and why the third sector should lead the way

As assisted dying laws are being debated in Parliaments across the UK and the Crown Dependencies, we asked the people we support what information and support they need to understand the law and have c...

100

Compassion in Dying @compassionindying.bsky.social · 24/02/2026

We work to put people in control of decisions about the end of their life and as assisted dying is debated in parliaments across the UK, it’s important that people feel able to talk about it in a straightforward way if they want to, as with any end-of-life topic.

100

Compassion in Dying @compassionindying.bsky.social · 24/02/2026

This month we have published new user-led information on assisted dying for our website. Here’s why (a thread) ⬇️ compassionindying.org.uk/blog-post/ne...

compassionindying.org.uk

New user-led content on assisted dying

Our research showed that people need clarity on what an assisted death is, and if it is currently legal in the UK.

111

Compassion in Dying @compassionindying.bsky.social · 17/02/2026

We're looking for two part-time nurses (3 days/week). We would greatly appreciate it if you could share this with your networks.

compassionindying.org.uk

Work for us

000

Compassion in Dying @compassionindying.bsky.social · 17/02/2026

You'll be part of a team that makes a difference to people at difficult times in their lives

100

Compassion in Dying @compassionindying.bsky.social · 17/02/2026

This is an exciting opportunity for a nurse with experience in palliative care and excellent communication skills to contribute to the growth of an expanding information service that delivers direct support and drives improvements in practice.

100

Compassion in Dying @compassionindying.bsky.social · 17/02/2026

Our information line is a unique service which sits at the heart of our organisation. We support people to make informed decisions, start honest conversations about death and dying with loved ones, and record and revisit their wishes whenever they want to.

100

Compassion in Dying @compassionindying.bsky.social · 17/02/2026

🚨 We're Hiring! 🚨 We're excited to announce we're expanding our clinical team. We're looking for two dedicated and motivated nurses who'll help provide clear and practical support to people to help them make informed decisions about the end of their life.

compassionindying.org.uk

Work for us

124