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Colostomy UK

@colostomyuk.bsky.social
75 followers 15 following 740 posts

Charity that SUPPORTS and EMPOWERS people living with a #stoma. Your voice on the bigger issues; campaigning, & running projects. #StomaAware www.ColostomyUK.org

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Colostomy UK @colostomyuk.bsky.social · 13h
Play the Colostomy UK lottery today to be in with a chance to win big while also giving back! Every week you have the chance to win the £25,000 lottery jackpot, plus many other fantastic cash prizes, whilst also supporting us! ow.ly/4lt150WnBwm #Stoma #StomaAware
Could you be our next winner? Play the Colostomy UK lottery today to be in with a chance to win big while also giving back! 💪

Every week you have the chance to win the £25,000 lottery jackpot, plus many other fantastic cash prizes, whilst also supporting us! ⭐

For every £1 entry at least 50p is donated directly to us. The more people that play, the more money we raise! 💜

Play the lottery today!  https://www.colostomyuk.org/get-involved/fundraising/unity-lottery/

#Stoma #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 20h
Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by Coloplast 📅 Tuesday 20th October 2026 ⏰ 1pm–2pm 💻 Online via Microsoft Teams 🎟️ Free to attend.Find out more and book your free place ow.ly/F1by50ZP4zR
Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by @coloplast.uk 

Join Di Davies, Senior Coloplast Nurse, for a practical and reassuring session exploring why mucus is produced, what you might experience from both your rectum and stoma, and practical ways to manage it. Di will also explain what’s normal, what changes to look out for, and when to seek further advice or support.
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Colostomy UK @colostomyuk.bsky.social · 07/10/2026
Colostomy UK's CPD-accredited Caring for a Person with a Stoma Workshop covers the basics of stoma care for professionals who are new to stoma care or looking for a refresher. 19th November - 2:00–3:30pm - £20–£35 per person, depending on organisation. ow.ly/q6Ku50ZVsMW
Colostomy UK's CPD-accredited ‘Caring for a Person with a Stoma’ Workshop covers the basics of stoma care for professionals who are new to stoma care or looking for a refresher. Delivered by a stoma care nurse, the 90-minute session aims to better stoma awareness, knowledge and confidence to improve stoma care across healthcare settings.
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Colostomy UK @colostomyuk.bsky.social · 07/10/2026
'Proctectomy surgery' or 'Barbie Butt' surgery, is where your rectum and anus are removed and sewn up permanently. This article in our Tidings magazine, discusses this surgery, the recovery period and what life is like afterwards ow.ly/8WX950XJKJR #barbiebutt #stoma
What is ‘Barbie Butt’ surgery – and why do some people need it?

'Proctectomy surgery' or 'Barbie Butt' surgery, is where your rectum and anus are removed and sewn up permanently.

We’d love to hear your story! Share your experience in the comments or drop us a DM. 

This article in our Tidings magazine, discusses this surgery, the recovery period and what life is like afterwards 💜 https://www.colostomyuk.org/wp-content/uploads/2023/12/Dear-Nurse-Barbie-Butt.pdf

#barbiebutt #stoma #stomaaware
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Colostomy UK @colostomyuk.bsky.social · 06/10/2026
Ready for a challenge? Our new Challenge Events webpage is live! Find your next challenge and raise vital funds for Colostomy UK. ❗Just a few Manchester Marathon places left, this is your sign to run for a cause!❗ Sign up: www.colostomyuk.org/fundraising/eve…
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Colostomy UK @colostomyuk.bsky.social · 06/10/2026
Missed our webinar on Wind, Gas and Pouch Problems with a Stoma? Toni Johnson, Senior Coloplast Nurse, shares practical advice on understanding why wind, gas and occasional pouch problems happen, and simple ways to manage them. Watch the webinar and find out more: ow.ly/G9Oc50ZTQOs
Missed our webinar on Wind, Gas and Pouch Problems with a Stoma?
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Colostomy UK @colostomyuk.bsky.social · 06/10/2026
Take a look at our stoma-friendly toilet venues across the UK on our website! There are over 1360 venues and growing! This work forms part of our ongoing campaign to improve public toilet provision and reduce stigma: www.colostomyuk.org/information/sto…
Take a look at our stoma-friendly toilet venues across the UK on our website! There are over 750 venues and growing!

This work forms part of our ongoing campaign to improve public toilet provision and reduce stigma. We welcome organisations who would like to join the initiative and help create more inclusive spaces: https://www.colostomyuk.org/information/stoma-friendly-toilets-finder/

#notalldisabilitesarevisible #Stoma #StomaAware #ColostomyUK #urostomy #ilostomy #colostomy
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Colostomy UK @colostomyuk.bsky.social · 05/10/2026
Thank you to everyone who shared a story, raised awareness, got involved, donated or helped make Stoma Aware Day such an impactful day for the stoma community. There’s still time to donate: www.colostomyuk.org/donate To continue campaigning email us: getinvolved@colostomyuk.org
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Colostomy UK @colostomyuk.bsky.social · 04/10/2026
Our new 3 Questions to ask at your Stoma Review leaflet can help you feel informed, ask about your options and get the support that’s right for you. Take a look and use it to prepare for your next review: ow.ly/IwPh50ZHHbr
Your stoma. Your choice. Your voice.
Every person living with a stoma is different. The best decisions about your stoma care are made when you feel informed, listened to and involved.
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Colostomy UK @colostomyuk.bsky.social · 03/10/2026
We're at Paddington Station! Come and see us at our two stands and let's raise awareness for people living with a stoma! Happy Stoma Aware Day! Colostomyuk.org/campaigns/stomas-unlocked
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Colostomy UK @colostomyuk.bsky.social · 03/10/2026
Come and visit us at Morrisons in Cardiff, Newport Road! We're raising awareness for people living with a stoma for Stoma Aware Day! Find out more: colostomyuk.org/campaigns/stomas-unlocked
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Colostomy UK @colostomyuk.bsky.social · 03/10/2026
For Debs, something as simple as using a public toilet can involve challenges that other people may not see. Debs’ message this Stoma Aware Day is simple: be kind. Today is Stoma Aware Day! Read more about our campaign Stomas Unlocked: www.colostomyuk.org/campaigns/stoma…
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Colostomy UK @colostomyuk.bsky.social · 03/10/2026
TODAY IS STOMA AWARE DAY! Today, 3rd October, we’re celebrating Stoma Aware Day! Help us spread the word and get Stomas Unlocked trending by sharing our campaign on your social media. Find us today in London, Leeds, Greater Manchester, Cardiff & Edinburgh: ow.ly/91wx50ZShJg
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Colostomy UK @colostomyuk.bsky.social · 02/10/2026
For Stoma Aware Day, Arella’s mum shares their story of adjusting to life with a stoma after her daughter had her stoma. “Your feelings are valid too. You’re allowed to find it hard. You’re allowed to have bad days.” colostomyuk.org/you-dont-have-to-do-it-alone-arellas-story
For Stoma Aware Day, Arella’s mum shares their story of adjusting to life with a stoma after her daughter had her stoma in May 2026.

From learning new routines and navigating stoma care, to finding a community of people who understand, she shares an honest reminder that it’s OK to find things difficult - and that support is there when you need it.
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Colostomy UK @colostomyuk.bsky.social · 02/10/2026
Come and visit us tomorrow for Stoma Aware Day! Come and meet our team and find out what Stomas Unlocked is all about! Pop along, say hello and help us unlock understanding, support and choice! Find out more and see how you can get involved: ow.ly/Ht4f50ZS9e4
Come and visit us tomorrow for Stoma Aware Day! Come and meet our team and find out what Stomas Unlocked is all about!
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Colostomy UK @colostomyuk.bsky.social · 01/10/2026
“You’re not just getting your life back, you are getting a brand new one.” When Suzie had two emergency operations in March and April 2026, she never expected to wake up with two stomas. “You are still you. You are still amazing and strong and brave.” ow.ly/Gjwk50ZToQ7
“You’re not just getting your life back, you are getting a brand new one.”

When Suzie had two emergency operations in March and April 2026, she never expected to wake up with two stomas.

“You are still you. You are still amazing and strong and brave.”

Read Suzie’s story and hear how her stomas have changed her life - and saved it.

Read Suzie’s story: https://www.colostomyuk.org/my-stoma-story-stoma-aware-day/

#StomaAware #StomaAwareDay #StomasUnlocked
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Colostomy UK @colostomyuk.bsky.social · 01/10/2026
2 DAYS TO GO! Stoma Aware Day is almost here! Stoma Aware Day is this Saturday, 3rd October! There are lots of ways you can get involved with Stomas Unlocked and help us unlock understanding, support and choice for people living with a stoma. ow.ly/OAke50ZS82k
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Colostomy UK @colostomyuk.bsky.social · 30/09/2026
Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by Coloplast 📅 Tuesday 20th October 2026 ⏰ 1pm–2pm 💻 Online via Microsoft Teams 🎟️ Free to attend.Find out more and book your free place ow.ly/F1by50ZP4zR
Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by @coloplast.uk 

Join Di Davies, Senior Coloplast Nurse, for a practical and reassuring session exploring why mucus is produced, what you might experience from both your rectum and stoma, and practical ways to manage it. Di will also explain what’s normal, what changes to look out for, and when to seek further advice or support.
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Colostomy UK @colostomyuk.bsky.social · 30/09/2026
Arella has a stoma called ‘Gabby Button’ and came along in person to collect her Stoma Aware T-shirts! It was so lovely to meet Arella and her family, and we loved seeing her excitement about being part of Stoma Aware Day! For more support: www.colostomyuk.org/support
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Colostomy UK @colostomyuk.bsky.social · 29/09/2026
Unlocking understanding. Unlocking support. Unlocking choice. Behind all of this is one thing that makes it possible: your support. Every donation helps Colostomy UK unlock more for everyone living with a stoma. Help us unlock more, this Stoma Aware Day. www.colostomyuk.org/donate
Unlocking understanding. Unlocking support. Unlocking choice.

Behind all of this is one thing that makes it possible: your support.

Every donation helps Colostomy UK unlock more for everyone living with a stoma.

Help us unlock more, this Stoma Aware Day. 

https://www.colostomyuk.org/donate/
#StomasUnlocked #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 29/09/2026
We’re looking for a Corporate & Commercial Partnerships Manager to help us build partnerships and develop new income opportunities to support people living with a stoma. £42k FTE | 21 hrs/week | Hybrid 📅 Closing: 12 October, 9am Find out more & apply: ow.ly/5Zjr50ZRm4a
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Colostomy UK @colostomyuk.bsky.social · 28/09/2026
Missed our webinar on Managing and Preventing Leakage with a Stoma? Sue from @convatec.bsky.social explores why leaks happen, how they can affect your skin and what can contribute to a cycle of ongoing leakage. Watch the webinar and find out more: www.youtube.com/watch?v=zQKaD8Hj2FA
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Colostomy UK @colostomyuk.bsky.social · 28/09/2026
5 days until Stoma Aware Day! Have you got your #StomaAware T-shirt? Every person living with a stoma has their own experiences, challenges and achievements. Order yours today: colostomyuk.bigcartel.com/product/s…
Will you wear your #StomaAware T-shirt and help support us this Stoma Aware Day?

Every person living with a stoma has their own experiences, challenges and achievements. By sharing those stories, we can help others better understand the realities of life with a stoma and challenge the misconceptions that still exist.
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Colostomy UK @colostomyuk.bsky.social · 27/09/2026
Want to be part of Stomas Unlocked? Stoma Aware Day is coming on 3 October, and we want as many people as possible to help us unlock greater understanding, support and choice for people living with a stoma. Request your campaign pack today: ow.ly/MEOk50ZBQBE
We've created a Stomas Unlocked campaign pack filled with resources to help you spread the word, start conversations and make a difference.
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Colostomy UK @colostomyuk.bsky.social · 25/09/2026
Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by Coloplast 📅 Tuesday 20th October 2026 ⏰ 1pm–2pm 💻 Online via Microsoft Teams 🎟️ Free to attend.Find out more and book your free place ow.ly/F1by50ZP4zR
Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by @coloplast.uk 

Join Di Davies, Senior Coloplast Nurse, for a practical and reassuring session exploring why mucus is produced, what you might experience from both your rectum and stoma, and practical ways to manage it. Di will also explain what’s normal, what changes to look out for, and when to seek further advice or support.
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Colostomy UK @colostomyuk.bsky.social · 25/09/2026
Dietitian Sophie Medlin talks about why hydration is more important for people who have undergone stoma surgery and explains the counter-intuitive advice to add salt to liquids. For more information on diet and stomas ow.ly/pcJZ50Z3jtl
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Colostomy UK @colostomyuk.bsky.social · 24/09/2026
We’re looking for a Corporate & Commercial Partnerships Manager to help us build partnerships and develop new income opportunities to support people living with a stoma. £42k FTE | 21 hrs/week | Hybrid 📅 Closing: 12 October, 9am Find out more & apply: ow.ly/lagY50ZQTz3
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Colostomy UK @colostomyuk.bsky.social · 24/09/2026
Stomas Unlocked is coming to a location near you! On 3 October 2026, our Stomas Unlocked pop-up stands will be out and about, helping to unlock understanding, support and choice for people living with a stoma. Come along & ask questions and find out more: ow.ly/8pTX50ZNMju
Stomas Unlocked is coming to a location near you!
On 3 October 2026, our Stomas Unlocked pop-up stands will be out and about across the UK, helping to unlock understanding, support and choice for people living with a stoma.
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Colostomy UK @colostomyuk.bsky.social · 23/09/2026
September is Urology Awareness Month, and it's estimated that 1 in 2 of us will be affected by a urology condition during our lifetime. For some people, treatment may mean having a urostomy. Read Merv's full story: www.colostomyuk.org/a-day-in-the-li…
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Colostomy UK @colostomyuk.bsky.social · 22/09/2026
Join us for our free webinar: Wind, Gas & Pouch Problems: Practical Tips for Living More Comfortably with a Stoma - sponsored by Coloplast 📅 Tuesday 29 September - ⏰ 1pm–2pm. Find out more and book your free place: www.colostomyuk.org/living-more-com…
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Colostomy UK @colostomyuk.bsky.social · 21/09/2026
Are you a nurse or healthcare professional? We're at ASCN - stand W19. Come and say hello, find out more about the support we provide and pick up resources for you and your patients. We’ll be presenting our new Sex and Relationships project on Tuesday 22 September at 12.05pm. lnkd.in/edZpsZG4
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Colostomy UK @colostomyuk.bsky.social · 21/09/2026
Unlocking understanding. Unlocking support. Unlocking choice. Behind all of this is one thing that makes it possible: your support. Every donation helps Colostomy UK unlock more for everyone living with a stoma. Help us unlock more, this Stoma Aware Day. www.colostomyuk.org/donate
Unlocking understanding. Unlocking support. Unlocking choice.

Behind all of this is one thing that makes it possible: your support.

Every donation helps Colostomy UK unlock more for everyone living with a stoma.

Help us unlock more, this Stoma Aware Day. 

https://www.colostomyuk.org/donate/
#StomasUnlocked #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 20/09/2026
Want to be part of Stomas Unlocked? Stoma Aware Day is coming on 3 October, and we want as many people as possible to help us unlock greater understanding, support and choice for people living with a stoma. Request your campaign pack today: ow.ly/4NpT50ZBQBi
We've created a Stomas Unlocked campaign pack filled with resources to help you spread the word, start conversations and make a difference.
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Colostomy UK @colostomyuk.bsky.social · 20/09/2026
"One thing I wish I’d known from the beginning is that you also have a choice about who delivers your stoma products." - Read Georgie's story: ow.ly/TSjO50ZxoPi That's why Unlocking Choice is one of the three pillars of Stomas Unlocked. www.colostomyuk.org/campaigns/stoma…
Everyone living with a stoma should feel informed, involved and empowered when making decisions about their care. That's why Unlocking Choice is one of the three pillars of Stomas Unlocked.
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Colostomy UK @colostomyuk.bsky.social · 19/09/2026
Our new 3 Questions to ask at your Stoma Review leaflet can help you feel informed, ask about your options and get the support that’s right for you. Take a look and use it to prepare for your next review: ow.ly/5YL350ZHH3m
Your stoma. Your choice. Your voice.
Every person living with a stoma is different. The best decisions about your stoma care are made when you feel informed, listened to and involved.
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Colostomy UK @colostomyuk.bsky.social · 19/09/2026
Our #Stoma helpline is open 365 days a year on 0800 328 4257 📞 or try our live chat: colostomyuk.org If you're looking for practical or emotional support, or just want someone to listen, call one of our trained volunteers anytime 💜
Need to talk to someone? Our #Stoma helpline is open 24/7 on 0800 328 4257 📞 If you're looking for practical or emotional support, or just want someone to listen, call one of our trained volunteers anytime, night or day 💜 #colostomy #urostomy #ileostomy #stoma #stomaaware
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Colostomy UK @colostomyuk.bsky.social · 18/09/2026
Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by Coloplast 📅 Tuesday 20th October 2026 ⏰ 1pm–2pm 💻 Online via Microsoft Teams 🎟️ Free to attend.Find out more and book your free place ow.ly/49nF50ZP4BO
Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by @coloplast.uk 

Join Di Davies, Senior Coloplast Nurse, for a practical and reassuring session exploring why mucus is produced, what you might experience from both your rectum and stoma, and practical ways to manage it. Di will also explain what’s normal, what changes to look out for, and when to seek further advice or support.
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Colostomy UK @colostomyuk.bsky.social · 18/09/2026
As Stoma Aware Day approaches, we’re delighted to welcome Shrewsbury Town FC to our growing community of Stoma Friendly Football Clubs! Read the full story: www.shrewsburytown.com/news/2026/se… #StomaFriendly #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 18/09/2026
Help raise awareness where you live, work or volunteer. Request your free Stomas Unlocked Pack and start conversations that build understanding. Request your pack at: ow.ly/t5wc50ZNHK5 This is Claire and she shares her own story. #StomasUnlocked #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 17/09/2026
Support from Colostomy UK can make a difference to someone’s stoma journey. Your donations help make it possible. Together, we can unlock a future where people with a stoma feel understood, supported and empowered. Help unlock more: colostomyuk.org/donate
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Colostomy UK @colostomyuk.bsky.social · 16/09/2026
Join us for our free webinar: Wind, Gas & Pouch Problems: Practical Tips for Living More Comfortably with a Stoma - sponsored by Coloplast 📅 Tuesday 29 September - ⏰ 1pm–2pm. Find out more and book your free place: www.colostomyuk.org/living-more-com…
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Colostomy UK @colostomyuk.bsky.social · 15/09/2026
Every story helps challenge misconceptions, build understanding and remind others they're not alone. Could your story make a difference? Find out how to get involved at: ow.ly/iX0350Zxorq "I felt completely overwhelmed." ow.ly/bwhy50Zxorr #StomasUnlocked #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 14/09/2026
Take a look at our stoma-friendly toilet venues across the UK on our website! There's over 1350 venues and growing! Facilities like hooks, shelves, bins & full-length mirrors – small changes that make a big difference for people living with a #stoma: ow.ly/AmWi50YefJl
Take a look at our stoma-friendly toilet venues across the UK on our website! There are over 750 venues and growing!

This work forms part of our ongoing campaign to improve public toilet provision and reduce stigma. We welcome organisations who would like to join the initiative and help create more inclusive spaces: https://www.colostomyuk.org/information/stoma-friendly-toilets-finder/

#notalldisabilitesarevisible #Stoma #StomaAware #ColostomyUK #urostomy #ilostomy #colostomy
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Colostomy UK @colostomyuk.bsky.social · 14/09/2026
Was the right support in place when you left hospital? If you've stayed in hospital overnight in the last 12 months, Healthwatch wants to know what it was like when you were discharged. Tell them more by clicking on the link below. Survey: ow.ly/XOOp50ZN8Vb Healthwatch England
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Colostomy UK @colostomyuk.bsky.social · 14/09/2026
Will you wear your #StomaAware T-shirt and help support us this Stoma Aware Day? Every person living with a stoma has their own experiences, challenges and achievements. Order yours today: colostomyuk.bigcartel.com/product/s…
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Colostomy UK @colostomyuk.bsky.social · 13/09/2026
Want to be part of Stomas Unlocked? Stoma Aware Day is coming on 3 October, and we want as many people as possible to help us unlock greater understanding, support and choice for people living with a stoma. Request your campaign pack today: ow.ly/ATxn50ZBQAz
We've created a Stomas Unlocked campaign pack filled with resources to help you spread the word, start conversations and make a difference.
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Colostomy UK @colostomyuk.bsky.social · 13/09/2026
We’re going to be at the Association of Stoma Care Nurses UK Annual Conference 2026! 🎉Are you a nurse or healthcare professional? Come and say hello! We’ll be presenting our new Sex and Relationships project on Tuesday 22 September at 12.05pm. conference.ascnuk.org/ascnuk26-prog…
We’re at the Association of Stoma Care Nurses UK ASCN UK Annual Conference 2026! 🎉Are you a nurse or healthcare professional? Come and say hello, find out more about the support we provide, explore our new project and pick up resources for you and your patients.

We’ll be presenting our new Sex and Relationships project on Tuesday 22 September at 12.05pm.

Find out more: https://conference.ascnuk.org/ascnuk26-programme/
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Colostomy UK @colostomyuk.bsky.social · 12/09/2026
Meet Lauren, our Digital Marketing Executive. This time, she’s stepping away from the keyboard and taking on a 5K challenge to raise money for Colostomy UK! Every donation will help us continue supporting people living with a stoma donate.justgiving.com/page/lauren-r…
Meet Lauren, our Digital Marketing Executive and the person responsible for much of what you see on our social channels.
 
But this time, she’s stepping away from the keyboard and into her trainers, to take on a 5K challenge to raise money for Colostomy UK! 
 
If you’ve ever liked, shared or saved one of our posts, this is your chance to give something back.
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Colostomy UK @colostomyuk.bsky.social · 12/09/2026
Being involved in decisions about your care matters. Unlocking Choice is about helping people understand patient choice, shared decision making and the options available when it comes to stoma products and delivery services. Learn more: colostomyuk.org #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 11/09/2026
Join us for our free webinar: Wind, Gas & Pouch Problems: Practical Tips for Living More Comfortably with a Stoma - sponsored by Coloplast 📅 Tuesday 29 September - ⏰ 1pm–2pm. Find out more and book your free place: www.colostomyuk.org/living-more-com…
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