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Colostomy UK

@colostomyuk.bsky.social
74 followers 15 following 726 posts

Charity that SUPPORTS and EMPOWERS people living with a #stoma. Your voice on the bigger issues; campaigning, & running projects. #StomaAware www.ColostomyUK.org

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Colostomy UK @colostomyuk.bsky.social · 4h
Come and visit us tomorrow for Stoma Aware Day! Come and meet our team and find out what Stomas Unlocked is all about! Pop along, say hello and help us unlock understanding, support and choice! Find out more and see how you can get involved: ow.ly/Ht4f50ZS9e4
Come and visit us tomorrow for Stoma Aware Day! Come and meet our team and find out what Stomas Unlocked is all about!
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Colostomy UK @colostomyuk.bsky.social · 21h
“You’re not just getting your life back, you are getting a brand new one.” When Suzie had two emergency operations in March and April 2026, she never expected to wake up with two stomas. “You are still you. You are still amazing and strong and brave.” ow.ly/Gjwk50ZToQ7
“You’re not just getting your life back, you are getting a brand new one.”

When Suzie had two emergency operations in March and April 2026, she never expected to wake up with two stomas.

“You are still you. You are still amazing and strong and brave.”

Read Suzie’s story and hear how her stomas have changed her life - and saved it.

Read Suzie’s story: https://www.colostomyuk.org/my-stoma-story-stoma-aware-day/

#StomaAware #StomaAwareDay #StomasUnlocked
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Colostomy UK @colostomyuk.bsky.social · 01/10/2026
2 DAYS TO GO! Stoma Aware Day is almost here! Stoma Aware Day is this Saturday, 3rd October! There are lots of ways you can get involved with Stomas Unlocked and help us unlock understanding, support and choice for people living with a stoma. ow.ly/OAke50ZS82k
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Colostomy UK @colostomyuk.bsky.social · 30/09/2026
Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by Coloplast 📅 Tuesday 20th October 2026 ⏰ 1pm–2pm 💻 Online via Microsoft Teams 🎟️ Free to attend.Find out more and book your free place ow.ly/F1by50ZP4zR
Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by @coloplast.uk 

Join Di Davies, Senior Coloplast Nurse, for a practical and reassuring session exploring why mucus is produced, what you might experience from both your rectum and stoma, and practical ways to manage it. Di will also explain what’s normal, what changes to look out for, and when to seek further advice or support.
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Colostomy UK @colostomyuk.bsky.social · 30/09/2026
Arella has a stoma called ‘Gabby Button’ and came along in person to collect her Stoma Aware T-shirts! It was so lovely to meet Arella and her family, and we loved seeing her excitement about being part of Stoma Aware Day! For more support: www.colostomyuk.org/support
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Colostomy UK @colostomyuk.bsky.social · 29/09/2026
Unlocking understanding. Unlocking support. Unlocking choice. Behind all of this is one thing that makes it possible: your support. Every donation helps Colostomy UK unlock more for everyone living with a stoma. Help us unlock more, this Stoma Aware Day. www.colostomyuk.org/donate
Unlocking understanding. Unlocking support. Unlocking choice.

Behind all of this is one thing that makes it possible: your support.

Every donation helps Colostomy UK unlock more for everyone living with a stoma.

Help us unlock more, this Stoma Aware Day. 

https://www.colostomyuk.org/donate/
#StomasUnlocked #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 29/09/2026
We’re looking for a Corporate & Commercial Partnerships Manager to help us build partnerships and develop new income opportunities to support people living with a stoma. £42k FTE | 21 hrs/week | Hybrid 📅 Closing: 12 October, 9am Find out more & apply: ow.ly/5Zjr50ZRm4a
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Colostomy UK @colostomyuk.bsky.social · 28/09/2026
Missed our webinar on Managing and Preventing Leakage with a Stoma? Sue from @convatec.bsky.social explores why leaks happen, how they can affect your skin and what can contribute to a cycle of ongoing leakage. Watch the webinar and find out more: www.youtube.com/watch?v=zQKaD8Hj2FA
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Colostomy UK @colostomyuk.bsky.social · 28/09/2026
5 days until Stoma Aware Day! Have you got your #StomaAware T-shirt? Every person living with a stoma has their own experiences, challenges and achievements. Order yours today: colostomyuk.bigcartel.com/product/s…
Will you wear your #StomaAware T-shirt and help support us this Stoma Aware Day?

Every person living with a stoma has their own experiences, challenges and achievements. By sharing those stories, we can help others better understand the realities of life with a stoma and challenge the misconceptions that still exist.
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Colostomy UK @colostomyuk.bsky.social · 27/09/2026
Want to be part of Stomas Unlocked? Stoma Aware Day is coming on 3 October, and we want as many people as possible to help us unlock greater understanding, support and choice for people living with a stoma. Request your campaign pack today: ow.ly/MEOk50ZBQBE
We've created a Stomas Unlocked campaign pack filled with resources to help you spread the word, start conversations and make a difference.
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Colostomy UK @colostomyuk.bsky.social · 25/09/2026
Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by Coloplast 📅 Tuesday 20th October 2026 ⏰ 1pm–2pm 💻 Online via Microsoft Teams 🎟️ Free to attend.Find out more and book your free place ow.ly/F1by50ZP4zR
Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by @coloplast.uk 

Join Di Davies, Senior Coloplast Nurse, for a practical and reassuring session exploring why mucus is produced, what you might experience from both your rectum and stoma, and practical ways to manage it. Di will also explain what’s normal, what changes to look out for, and when to seek further advice or support.
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Colostomy UK @colostomyuk.bsky.social · 25/09/2026
Dietitian Sophie Medlin talks about why hydration is more important for people who have undergone stoma surgery and explains the counter-intuitive advice to add salt to liquids. For more information on diet and stomas ow.ly/pcJZ50Z3jtl
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Colostomy UK @colostomyuk.bsky.social · 24/09/2026
We’re looking for a Corporate & Commercial Partnerships Manager to help us build partnerships and develop new income opportunities to support people living with a stoma. £42k FTE | 21 hrs/week | Hybrid 📅 Closing: 12 October, 9am Find out more & apply: ow.ly/lagY50ZQTz3
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Colostomy UK @colostomyuk.bsky.social · 24/09/2026
Stomas Unlocked is coming to a location near you! On 3 October 2026, our Stomas Unlocked pop-up stands will be out and about, helping to unlock understanding, support and choice for people living with a stoma. Come along & ask questions and find out more: ow.ly/8pTX50ZNMju
Stomas Unlocked is coming to a location near you!
On 3 October 2026, our Stomas Unlocked pop-up stands will be out and about across the UK, helping to unlock understanding, support and choice for people living with a stoma.
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Colostomy UK @colostomyuk.bsky.social · 23/09/2026
September is Urology Awareness Month, and it's estimated that 1 in 2 of us will be affected by a urology condition during our lifetime. For some people, treatment may mean having a urostomy. Read Merv's full story: www.colostomyuk.org/a-day-in-the-li…
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Colostomy UK @colostomyuk.bsky.social · 22/09/2026
Join us for our free webinar: Wind, Gas & Pouch Problems: Practical Tips for Living More Comfortably with a Stoma - sponsored by Coloplast 📅 Tuesday 29 September - ⏰ 1pm–2pm. Find out more and book your free place: www.colostomyuk.org/living-more-com…
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Colostomy UK @colostomyuk.bsky.social · 21/09/2026
Are you a nurse or healthcare professional? We're at ASCN - stand W19. Come and say hello, find out more about the support we provide and pick up resources for you and your patients. We’ll be presenting our new Sex and Relationships project on Tuesday 22 September at 12.05pm. lnkd.in/edZpsZG4
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Colostomy UK @colostomyuk.bsky.social · 21/09/2026
Unlocking understanding. Unlocking support. Unlocking choice. Behind all of this is one thing that makes it possible: your support. Every donation helps Colostomy UK unlock more for everyone living with a stoma. Help us unlock more, this Stoma Aware Day. www.colostomyuk.org/donate
Unlocking understanding. Unlocking support. Unlocking choice.

Behind all of this is one thing that makes it possible: your support.

Every donation helps Colostomy UK unlock more for everyone living with a stoma.

Help us unlock more, this Stoma Aware Day. 

https://www.colostomyuk.org/donate/
#StomasUnlocked #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 20/09/2026
Want to be part of Stomas Unlocked? Stoma Aware Day is coming on 3 October, and we want as many people as possible to help us unlock greater understanding, support and choice for people living with a stoma. Request your campaign pack today: ow.ly/4NpT50ZBQBi
We've created a Stomas Unlocked campaign pack filled with resources to help you spread the word, start conversations and make a difference.
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Colostomy UK @colostomyuk.bsky.social · 20/09/2026
"One thing I wish I’d known from the beginning is that you also have a choice about who delivers your stoma products." - Read Georgie's story: ow.ly/TSjO50ZxoPi That's why Unlocking Choice is one of the three pillars of Stomas Unlocked. www.colostomyuk.org/campaigns/stoma…
Everyone living with a stoma should feel informed, involved and empowered when making decisions about their care. That's why Unlocking Choice is one of the three pillars of Stomas Unlocked.
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Colostomy UK @colostomyuk.bsky.social · 19/09/2026
Our new 3 Questions to ask at your Stoma Review leaflet can help you feel informed, ask about your options and get the support that’s right for you. Take a look and use it to prepare for your next review: ow.ly/5YL350ZHH3m
Your stoma. Your choice. Your voice.
Every person living with a stoma is different. The best decisions about your stoma care are made when you feel informed, listened to and involved.
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Colostomy UK @colostomyuk.bsky.social · 19/09/2026
Our #Stoma helpline is open 365 days a year on 0800 328 4257 📞 or try our live chat: colostomyuk.org If you're looking for practical or emotional support, or just want someone to listen, call one of our trained volunteers anytime 💜
Need to talk to someone? Our #Stoma helpline is open 24/7 on 0800 328 4257 📞 If you're looking for practical or emotional support, or just want someone to listen, call one of our trained volunteers anytime, night or day 💜 #colostomy #urostomy #ileostomy #stoma #stomaaware
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Colostomy UK @colostomyuk.bsky.social · 18/09/2026
Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by Coloplast 📅 Tuesday 20th October 2026 ⏰ 1pm–2pm 💻 Online via Microsoft Teams 🎟️ Free to attend.Find out more and book your free place ow.ly/49nF50ZP4BO
Join us for our free webinar: Rectal Discharge and Mucus: Understanding and Managing It with a Stoma - sponsored by @coloplast.uk 

Join Di Davies, Senior Coloplast Nurse, for a practical and reassuring session exploring why mucus is produced, what you might experience from both your rectum and stoma, and practical ways to manage it. Di will also explain what’s normal, what changes to look out for, and when to seek further advice or support.
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Colostomy UK @colostomyuk.bsky.social · 18/09/2026
As Stoma Aware Day approaches, we’re delighted to welcome Shrewsbury Town FC to our growing community of Stoma Friendly Football Clubs! Read the full story: www.shrewsburytown.com/news/2026/se… #StomaFriendly #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 18/09/2026
Help raise awareness where you live, work or volunteer. Request your free Stomas Unlocked Pack and start conversations that build understanding. Request your pack at: ow.ly/t5wc50ZNHK5 This is Claire and she shares her own story. #StomasUnlocked #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 17/09/2026
Support from Colostomy UK can make a difference to someone’s stoma journey. Your donations help make it possible. Together, we can unlock a future where people with a stoma feel understood, supported and empowered. Help unlock more: colostomyuk.org/donate
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Colostomy UK @colostomyuk.bsky.social · 16/09/2026
Join us for our free webinar: Wind, Gas & Pouch Problems: Practical Tips for Living More Comfortably with a Stoma - sponsored by Coloplast 📅 Tuesday 29 September - ⏰ 1pm–2pm. Find out more and book your free place: www.colostomyuk.org/living-more-com…
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Colostomy UK @colostomyuk.bsky.social · 15/09/2026
Every story helps challenge misconceptions, build understanding and remind others they're not alone. Could your story make a difference? Find out how to get involved at: ow.ly/iX0350Zxorq "I felt completely overwhelmed." ow.ly/bwhy50Zxorr #StomasUnlocked #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 14/09/2026
Take a look at our stoma-friendly toilet venues across the UK on our website! There's over 1350 venues and growing! Facilities like hooks, shelves, bins & full-length mirrors – small changes that make a big difference for people living with a #stoma: ow.ly/AmWi50YefJl
Take a look at our stoma-friendly toilet venues across the UK on our website! There are over 750 venues and growing!

This work forms part of our ongoing campaign to improve public toilet provision and reduce stigma. We welcome organisations who would like to join the initiative and help create more inclusive spaces: https://www.colostomyuk.org/information/stoma-friendly-toilets-finder/

#notalldisabilitesarevisible #Stoma #StomaAware #ColostomyUK #urostomy #ilostomy #colostomy
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Colostomy UK @colostomyuk.bsky.social · 14/09/2026
Was the right support in place when you left hospital? If you've stayed in hospital overnight in the last 12 months, Healthwatch wants to know what it was like when you were discharged. Tell them more by clicking on the link below. Survey: ow.ly/XOOp50ZN8Vb Healthwatch England
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Colostomy UK @colostomyuk.bsky.social · 14/09/2026
Will you wear your #StomaAware T-shirt and help support us this Stoma Aware Day? Every person living with a stoma has their own experiences, challenges and achievements. Order yours today: colostomyuk.bigcartel.com/product/s…
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Colostomy UK @colostomyuk.bsky.social · 13/09/2026
Want to be part of Stomas Unlocked? Stoma Aware Day is coming on 3 October, and we want as many people as possible to help us unlock greater understanding, support and choice for people living with a stoma. Request your campaign pack today: ow.ly/ATxn50ZBQAz
We've created a Stomas Unlocked campaign pack filled with resources to help you spread the word, start conversations and make a difference.
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Colostomy UK @colostomyuk.bsky.social · 13/09/2026
We’re going to be at the Association of Stoma Care Nurses UK Annual Conference 2026! 🎉Are you a nurse or healthcare professional? Come and say hello! We’ll be presenting our new Sex and Relationships project on Tuesday 22 September at 12.05pm. conference.ascnuk.org/ascnuk26-prog…
We’re at the Association of Stoma Care Nurses UK ASCN UK Annual Conference 2026! 🎉Are you a nurse or healthcare professional? Come and say hello, find out more about the support we provide, explore our new project and pick up resources for you and your patients.

We’ll be presenting our new Sex and Relationships project on Tuesday 22 September at 12.05pm.

Find out more: https://conference.ascnuk.org/ascnuk26-programme/
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Colostomy UK @colostomyuk.bsky.social · 12/09/2026
Meet Lauren, our Digital Marketing Executive. This time, she’s stepping away from the keyboard and taking on a 5K challenge to raise money for Colostomy UK! Every donation will help us continue supporting people living with a stoma donate.justgiving.com/page/lauren-r…
Meet Lauren, our Digital Marketing Executive and the person responsible for much of what you see on our social channels.
 
But this time, she’s stepping away from the keyboard and into her trainers, to take on a 5K challenge to raise money for Colostomy UK! 
 
If you’ve ever liked, shared or saved one of our posts, this is your chance to give something back.
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Colostomy UK @colostomyuk.bsky.social · 12/09/2026
Being involved in decisions about your care matters. Unlocking Choice is about helping people understand patient choice, shared decision making and the options available when it comes to stoma products and delivery services. Learn more: colostomyuk.org #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 11/09/2026
Join us for our free webinar: Wind, Gas & Pouch Problems: Practical Tips for Living More Comfortably with a Stoma - sponsored by Coloplast 📅 Tuesday 29 September - ⏰ 1pm–2pm. Find out more and book your free place: www.colostomyuk.org/living-more-com…
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Colostomy UK @colostomyuk.bsky.social · 10/09/2026
Your support can help ensure nobody faces life with a stoma alone. Today we're sharing the story of someone who reached out to us for support. Your donations help make this work possible. Your support makes this work possible, help us to unlock more colostomyuk.org/donate
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Colostomy UK @colostomyuk.bsky.social · 10/09/2026
September is Urology Awareness Month. Living with a stoma can come with challenges, but knowing what to look out for can help you stay healthy and confident. Read more: www.colostomyuk.org/dear-nurse-livi…
September is Urology Awareness Month 💜

Living with a stoma can come with challenges, but knowing what to look out for can help you stay healthy and confident. Small changes can make a big difference to your comfort, confidence and quality of life.

Read the full article on our website: https://www.colostomyuk.org/dear-nurse-living-well-with-a-urostomy-understanding-infections-skin-care-and-finding-the-right-fit/
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Colostomy UK @colostomyuk.bsky.social · 09/09/2026
ustwo is offering free 90-minute working sessions for charities and social impact organisations – helping you explore challenges, unlock ideas and identify practical next steps. Know a charity that could benefit? Share this with them! Find out more & book a session: ow.ly/zHtn50ZL8Pz
ow.ly
London Design Festival — Digital design surgery for positive impact
Bring a live product, service or organisational challenge to ustwo Design Surgery and spend 90 minutes exploring it with a multidisciplinary team of designers, strategists, technologists, and product experts.
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Colostomy UK @colostomyuk.bsky.social · 09/09/2026
Does your stoma keep you up at night? Sleep is crucial to our health and well-being. People who have a #stoma can feel anxious about sleeping. Issues such as leakage can be disruptive too. For advice and lots of tips to get the best night’s rest, visit: colostomyuk.org/information/sleep
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Colostomy UK @colostomyuk.bsky.social · 08/09/2026
Today, we're sharing Christopher's story as part of our Unlock Your Story series for Stoma Aware Day. Because behind every stoma bag is a person and a story. And every story can help someone else feel less alone. Read Christopher's story: ow.ly/CSVV50ZKw3V
Living with a stoma looks different for everyone. For Christopher, his stoma came after years of living with Ulcerative Colitis and eventually reaching the point where his medications were no longer working.

Since his surgery, Christopher has travelled, swum, worked, made memories with his family and found the confidence to speak openly about something he once thought he would have to hide.
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Colostomy UK @colostomyuk.bsky.social · 08/09/2026
We’re at the Association of Stoma Care Nurses UK ASCN UK Annual Conference 2026! 🎉Are you a nurse or healthcare professional? Come and say hello! We’ll be presenting our new Sex and Relationships project on Tuesday 22 September at 12.05pm. Find out more: ow.ly/zLiA50ZG5Ev
We’re at the Association of Stoma Care Nurses UK ASCN UK Annual Conference 2026! 🎉Are you a nurse or healthcare professional? Come and say hello, find out more about the support we provide, explore our new project and pick up resources for you and your patients.

We’ll be presenting our new Sex and Relationships project on Tuesday 22 September at 12.05pm.

Find out more: https://conference.ascnuk.org/ascnuk26-programme/
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Colostomy UK @colostomyuk.bsky.social · 07/09/2026
Want to be part of Stomas Unlocked? Stoma Aware Day is coming on 3 October, and we want as many people as possible to help us unlock greater understanding, support and choice for people living with a stoma. Request your campaign pack today: ow.ly/bQYM50ZBQzL
We've created a Stomas Unlocked campaign pack filled with resources to help you spread the word, start conversations and make a difference.
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Colostomy UK @colostomyuk.bsky.social · 07/09/2026
Nobody should face life with a stoma alone. As part of Stomas Unlocked, we're highlighting the support available through Colostomy UK and encouraging more people to access the information, advice and community that's there for them. www.colostomyuk.org #StomasUnlocked #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 06/09/2026
Our new 3 Questions to ask at your Stoma Review leaflet can help you feel informed, ask about your options and get the support that’s right for you. Take a look and use it to prepare for your next review: ow.ly/J88J50ZHC77
Our new 3 Questions to ask at your Stoma Review leaflet can help you feel informed, ask about your options and get the support that’s right for you.
Take a look and use it to prepare for your next review: https://www.colostomyuk.org/wp-content/uploads/2026/08/ask-3-questions-your-stoma-your-choice.pdf
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Colostomy UK @colostomyuk.bsky.social · 06/09/2026
We are Colostomy UK. We're a vibrant and dedicated group of people who work tirelessly to support the #stoma community. You can read all about our purpose and the values that guide us here: www.colostomyuk.org/about-us #Stoma #StomaAware
We are Colostomy UK.
We're a vibrant and dedicated group of people who work tirelessly to support the #stoma community.

You can read all about our purpose and the values that guide us here:
https://www.colostomyuk.org/about-us/

#Stoma #StomaAware
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Colostomy UK @colostomyuk.bsky.social · 05/09/2026
It all starts with you. Every donation creates more conversations, helps share more stories & amplifies more voices. We need your support to enable us to unlock more understanding, support and choice for everyone living with a stoma. Unlock more today: colostomyuk.org/donate
It all starts with you. 

Every donation creates more conversations, helps share more stories & amplifies more voices. 

We need your support to enable us to unlock more understanding, support and choice for everyone living with a stoma.

Unlock more today: colostomyuk.org/donate
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Colostomy UK @colostomyuk.bsky.social · 04/09/2026
Nobody should face life with a stoma alone. As part of Stomas Unlocked, we're highlighting the support available through Colostomy UK and encouraging more people to access the information, advice and community that's there for them. Find out more: ow.ly/XpuI50ZClBh
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Colostomy UK @colostomyuk.bsky.social · 03/09/2026
Join us for our free webinar: Wind, Gas & Pouch Problems: Practical Tips for Living More Comfortably with a Stoma - sponsored by Coloplast 📅 Tuesday 29 September - ⏰ 1pm–2pm. Find out more and book your free place: www.colostomyuk.org/living-more-com…
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Colostomy UK @colostomyuk.bsky.social · 02/09/2026
Could your story help someone else? We're looking for people living with a stoma to share their experiences as part of Stomas Unlocked. getinvolved@colostomyuk.org. ow.ly/IbE950ZxowX "I underwent surgery that left me with a permanent colostomy": ow.ly/uFN550ZxowY
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