iiinova — where your digital self keeps evolving

CLL Support @cllsupport.bsky.social · 11/05/2026

Two surveys are now open: 🩺 One for people living with CLL/SLL in the UK opinions.research-interactive.com/survey/selfs... ❤️ One for their partners, family, and friends opinions.research-interactive.com/survey/selfs... Your experiences will help shape future support. #yourvoicematters

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CLL Support @cllsupport.bsky.social · 22/04/2026

The recordings from our recent Leeds Conference are now available to watch on our YouTube channel. www.youtube.com/playlist?lis...

youtube.com

CLL Support Leeds Conference 2026 - YouTube

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CLL Support @cllsupport.bsky.social · 19/04/2026

Opportunity to live your inner #strictly 🕺💃 Email diogo.byrnetemudodecastro@plymouth.ac.uk for more information, or to take part. #latindanceclass #cll #fatigue #research

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CLL Support @cllsupport.bsky.social · 19/04/2026

The Scottish Medicines Consortium (SMC) approved an additional treatment for CLL earlier this month, on 13th April. The combination therapy of acalabrutinib and venetoclax with or without obinutuzumab was approved for first line therapy in previously untreated patients with CLL.

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CLL Support @cllsupport.bsky.social · 10/04/2026

📣 Bookings are now open for our free to attend Birmingham Conference. Our keynote speaker is Dr Helen Parry, Honorary Consultant Haematologist at The Queen Elizabeth Hospital, Birmingham. Helen will be joined by Lewis Oxley, Specialist Dietician - Haematology and Oncology.

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CLL Support @cllsupport.bsky.social · 31/03/2026

COULD DANCE HELP WITH FATIGUE IN CLL? A research study recruiting in the South West of England. Email diogo.byrnetemudodecastro@plymouth.ac.uk for more information. #dance #danceclasses #fatigue 💃🕺

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CLL Support @cllsupport.bsky.social · 26/03/2026

The link to watch the livestream of today's conference has been emailed to everyone on our mailing list. Check your inbox 😊 The conference starts at 10am

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CLL Support @cllsupport.bsky.social · 05/03/2026

On #WorldBookDay why not download a free copy of our information booklet. cllsupport.org.uk/information-... #information #booklet

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CLL Support @cllsupport.bsky.social · 03/03/2026

If you missed our recent webinar about the latest research into CLL and SLL, the recording is now available to watch on our YouTube channel youtube.com/playlist?lis...

youtube.com

Latest research into CLL and SLL webinar - YouTube

CLL Support's webinar discussing the latest research into CLL (Chronic Lymphocytic Leukaemia) and SLL, with Dr Samir Agrawal and Dr Piers Patten.

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CLL Support @cllsupport.bsky.social · 11/02/2026

We are delighted to announce that we have received a grant of £30,000 from the Postcode Lottery Community Trust. This has been made possible by players of People's Postcode Lottery - thank you so, so much. 😊 #peoplespostcodelottery #thankyouforyoursupport

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CLL Support @cllsupport.bsky.social · 04/02/2026

On World Cancer Day, let’s honour those we’ve lost, support those living with cancer, and raise awareness for better prevention and treatment options. #WorldCancerDay #UnitedByUnique #bloodcancer #ChronicLymphocyticLeukemia

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CLL Support @cllsupport.bsky.social · 30/01/2026

Link for people in the UK with CLL/SLL: app.onlinesurveys.jisc.ac.uk/s/cllsa/unde... Link for family/friends of a similar age in the UK who do not have CLL/SLL: app.onlinesurveys.jisc.ac.uk/s/cllsa/an-a...

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CLL Support @cllsupport.bsky.social · 16/01/2026

This is a really important piece of research. Fatigue affects many people with CLL and SLL, but is often dismissed by doctors. If you haven't subscribed to receive our emails you can do so here: cllsupport.org.uk/newsletter-s...

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CLL Support @cllsupport.bsky.social · 13/12/2025

The CLL community have lost an amazing advocate. We send our deepest condolences to Lelia's family and friends 💗 Lelia really wanted the CLL Forum to flourish. We can pay no better tribute to Lelia at this time than to share the Forum's in memoriam post.

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CLL Support @cllsupport.bsky.social · 09/12/2025

The recordings from our recent Newcastle conference are now available on our YouTube channel www.youtube.com/playlist?lis...

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CLL Support Newcastle Conference 2025 - YouTube

All the presentations from CLL Support's conference.

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CLL Support @cllsupport.bsky.social · 26/11/2025

Did you know our website aims to be more inclusive by using the Recite Me Assistive Toolbar? Visitors can personalise their experience and access content in the way that works best for them. #Inclusion #ReciteMe #Accessibility #AssistiveTools

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CLL Support @cllsupport.bsky.social · 22/09/2025

In our 4th and final video for Blood Cancer Awareness Month we explore how CLL Support and our members can THRIVE. #BloodCancer #BloodCancerAwarenessMonth #CLL #SLL #thrive youtu.be/EIgfY5kAz9I

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Blood Cancer Awareness Month 2025 part4

YouTube video by CLL Support Association (CLLSA)

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CLL Support @cllsupport.bsky.social · 15/09/2025

In our 3rd video for Blood Cancer Awareness Month we explore how we REPRESENT people with CLL and SLL youtu.be/ftCBbo-jFw8 #BloodCancerAwarenessMonth #CLL #SLL #represent

youtu.be

Blood Cancer Awareness Month 2025 part3

YouTube video by CLL Support Association (CLLSA)

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CLL Support @cllsupport.bsky.social · 01/09/2025

World CLL Day provides us with a unique opportunity to unite with Patient Advocate colleagues worldwide, highlighting what it means to live with CLL. The theme for this year is "UNDERSTAND, DECIDE, THRIVE." #worldcllday #WCLLD25

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CLL Support @cllsupport.bsky.social · 30/08/2025

You can find out more about our events on our website www.cllsupport.org.uk

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CLL Support @cllsupport.bsky.social · 16/07/2025

Huge congratulations and many thanks to Michelle Brotherton for completing a skydive last weekend in aid of CLL Support 🪂 Michelle's JustGiving page can be found here: www.justgiving.com/page/michell... #skydive #skydiveforcharity

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CLL Support @cllsupport.bsky.social · 13/07/2025

Good luck today on your Bantham Boomerang swim in aid of CLL Support Mark 🏊‍♂️🏊‍♂️

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CLL Support @cllsupport.bsky.social · 09/07/2025

Just got some amazing news to share! 🎉 CLL Support has been awarded the PIF TICK certification - basically the gold standard for health information in the UK.

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CLL Support @cllsupport.bsky.social · 07/07/2025

After successful conferences in Oxford, Exeter and Belfast this year, we take a break over the Summer. Our next conferences will be in Manchester and Newcastle upon Tyne. Save the dates in your diary now if you'd like to attend. #cll #conferences

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CLL Support @cllsupport.bsky.social · 23/06/2025

Healthy changes start with little changes. Whether you want to lose weight, be more active, drink less alcohol or quit smoking, did you know the NHS has free tools and support through Better Health? www.nhs.uk/better-health/

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CLL Support @cllsupport.bsky.social · 22/06/2025

Our Summer newsletter is due out soon. If you haven't signed up to receive our free email newsletters and bulletins you can do so here: cllsupport.org.uk/newsletter-s...

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CLL Support @cllsupport.bsky.social · 18/06/2025

Find out more about Mark White's open water swim in aid of CLL Support on his JustGiving page: www.justgiving.com/page/mark-wh...

justgiving.com

Mark's fundraiser for CLL Support

Help Mark White raise money to support CLL Support

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CLL Support @cllsupport.bsky.social · 02/06/2025

In #VolunteersWeek we would like to thank all past and present volunteers for making CLL Support such an amazing charity. The Board of Trustees are all volunteers who, along with Associates and other volunteers, all give their time and expertise freely. Thank you for all you do.

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CLL Support @cllsupport.bsky.social · 28/05/2025

Every 14 minutes someone in the UK is diagnosed with a blood cancer. CLL is the most common of these blood cancers in adults. On #WorldBloodCancerDay let's honour those we have lost, support those living with blood cancer and raise awareness for better diagnosis and treatment options.

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CLL Support @cllsupport.bsky.social · 10/05/2025

The recordings from our Oxford Conference are now available on our YouTube channel www.youtube.com/playlist?lis...

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CLL Support Oxford Conference 2025 - YouTube

CLL in the 21st Century: What's Changed, What Hasn't and What's Ahead

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CLL Support @cllsupport.bsky.social · 29/04/2025

There's still time to register for our Belfast Conference on 31st May. This is a joint event with CLL Ireland. If you have signed up to receive our newsletters you should have received details of how to book by email. You can sign up to receive future emails here cllsupport.org.uk/newsletter-s...

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CLL Support @cllsupport.bsky.social · 24/04/2025

If you are interested in following Matt Gibson's progress on Sunday, you can use the 2025 TCS London Marathon App (on Android and iOS) and search for his BIB number 57820. Matt's fundraising page in aid of CLL Support can be found here: 2025tcslondonmarathon.enthuse.com/pf/matthewgibsoncllsupport

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CLL Support @cllsupport.bsky.social · 16/04/2025

Bookings are open for our Belfast Conference on 31st May. This is a joint event with CLL Ireland. If you have signed up to receive our newsletters you should have received details of how to book by email. You can sign up to receive future newsletters and emails here cllsupport.org.uk/newsletter-s...

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CLL Support @cllsupport.bsky.social · 11/04/2025

The recording of our recent Webinar 'Clinical Trials: The Clinician and Patient Experience' is now available on our YouTube channel. www.youtube.com/playlist?lis...

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Clinical Trials: the clinician and patient experience. - YouTube

Webinar about clinical trials, and the clinician and patient experience of CLL (Chronic lymphocytic leukaemia) treatments.

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CLL Support @cllsupport.bsky.social · 07/04/2025

Although the study was slightly underpowered, the results suggest that pausing BTKi around the time of vaccination is not beneficial for immunity and should not be recommended in clinical practice. The full article can be found here: authors.elsevier.com/sd/article/S...

authors.elsevier.com

ScienceDirect.com | Science, health and medical journals, full text articles and books.

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CLL Support @cllsupport.bsky.social · 03/04/2025

We will be holding our next ‘Breathe In Sing Out’ workshop on Tuesday 8th April at 7pm. We were delighted to see how many logged in for the first session we held in December and there were lots of requests to hold another. The session will again be led by our vocal practitioner, Kirsty Abraham.

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CLL Support @cllsupport.bsky.social · 01/04/2025

The Zoom link for our Oxford Conference on Thursday has been sent out by email. If you haven't signed up to receive our emails you can do so here: cllsupport.org.uk/newsletter-s...

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CLL Support @cllsupport.bsky.social · 31/03/2025

Huge thanks to Yorvik Vikings TOMCC for choosing CLL Support as their 2025 charity of the year. We really appreciate everything you are doing to raise funds, and the wristbands are a great idea 🙂 www.justgiving.com/page/yorvikv...

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CLL Support @cllsupport.bsky.social · 25/03/2025

Huge thanks & congratulations to Katie Savino who completed the Paris Half Marathon in aid of CLL Support. "I ran Paris half for my Dad, who is currently undergoing treatment for CLL. Running is the very least I can do, he is facing a much tougher battle" www.justgiving.com/page/katie-s...

justgiving.com

PARIS HALF FOR DAD 💙

Help Katie Savino raise money to support CLL Support

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CLL Support @cllsupport.bsky.social · 24/03/2025

If you missed our recent webinar 'Getting the most out of Consultations' the recording is now available on our YouTube channel: www.youtube.com/playlist?lis...

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Getting the most out of Consultations - YouTube

CLL Supports webinar discussing getting the most out of your consultations.

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CLL Support @cllsupport.bsky.social · 23/03/2025

Update from 'Marathon' Matt..... 😀 "Yesterday was a lovely 20 miles around Maldon including going past Hythe and Northey Island. 5 weeks to go until I run the London Marathon to raise funds for CLL Support. Matt's fundraising page can be found here: 2025tcslondonmarathon.enthuse.com/pf/matthewgi...

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CLL Support @cllsupport.bsky.social · 21/03/2025

Calling all Men‼️ We invite you to discuss experiences and share insights into living with CLL. A safe space with no pressure to share your story, but we will discover some of the common themes that connect us all. Sign up to our newsletters for more information: cllsupport.org.uk/newsletter-s...

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CLL Support @cllsupport.bsky.social · 20/03/2025

In addition to our main 2025 conferences in Oxford, Belfast, Manchester and Newcastle upon Tyne we will be holding a smaller event on the 13th May for those in the South West. To receive more information make sure you sign up to receive our newsletters: cllsupport.org.uk/newsletter-s...

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