Sign in

Cleft Collective

@cleftcollective.bsky.social
143 followers 25 following 20 posts

The Cleft Collective is one of the largest cleft lip and palate research programmes. Based at the University of Bristol.

PostsRepliesMedia
Cleft Collective @cleftcollective.bsky.social · 10/06/2026
New Cleft Collective research validated cleft classification within the Cleft Collective resource. Our paper and podcast outline why robust data are important. Listen: www.youtube.com/watch?v=l3yt... Read: journals.sagepub.com/doi/10.1177/... @journals.sagepub.com #cleft #cleftlipandpalate
journals.sagepub.com
Intra- and Inter-Rater Reliability and Validation of Orofacial Cleft Classification in the Cleft Collective Cohort Study - Amy Davies, David Sainsbury, , The Cleft Multidisciplinary Collaborative, Th...
Objective Assess the level of agreement for classification of orofacial clefts within and between different raters and validate classifications. Design Validat...
011
Cleft Collective @cleftcollective.bsky.social · 28/04/2026
🌟🌟Our Spring newsletter is here!🌟🌟 Click the link below to read our latest news: www.bristol.ac.uk/dental/cleft...
000
Cleft Collective @cleftcollective.bsky.social · 17/12/2025
🎉 New research using Cleft Collective data 🎉 highlights how early anatomical predictors—such as cleft type, cleft width, and fistula presence—significantly influence speech outcomes in children with cleft palate by age 3. The paper can be found here: pubmed.ncbi.nlm.nih.gov/41217813/
pubmed.ncbi.nlm.nih.gov
Beyond Prevalence: Understanding the Relationship Between Early Anatomic Factors and the Likelihood for Cleft Speech Characteristics - PubMed
What is already known on this subject Children with cleft palate, with or without lip involvement (CP+/-L), frequently develop speech sound disorders due to anatomic variations affecting the craniofacial complex. Previous research has identified a range of speech difficulties in these children, with …
010
Cleft Collective @cleftcollective.bsky.social · 07/11/2025
🎉Our Autumn newsletter is here!🎉 Click the link to read our latest research findings and more: www.bristol.ac.uk/dental/cleft...
010
Cleft Collective @cleftcollective.bsky.social · 23/10/2025
All week we have been in Kyoto at the International Congress on Cleft Lip/Palate #cleftcongress2025 and it’s been inspiring to see all the presentations and posters from everyone representing @cleftcollective.bsky.social and @bristoluni.bsky.social Dental School. @yvonnewren.bsky.social
010
Cleft Collective @cleftcollective.bsky.social · 17/09/2025
Latest research using Cleft Collective data looking at psychological well-being in caregivers of young children with cleft lip and/or palate. More info here: academic.oup.com/jpepsy/advan... #cleftlip #cleftpalate #cleftawareness
academic.oup.com
Longitudinal psychological well-being in caregivers of young children with cleft lip and/or palate
AbstractObjective. Caregivers of children with chronic conditions can experience psychological distress and an impact on quality of life (QoL). Cleft lip a
000
Cleft Collective @cleftcollective.bsky.social · 04/09/2025
⭐️New research alert⭐️ We examined genetic information from children in the Cleft Collective study to look for specific rare genetic changes called copy number variants or CNVs. Read more: academic.oup.com/hmg/advance-... #cleftlip #cleftpalate #cleftawareness
academic.oup.com
Copy number variants and their implications for developmental and behavioural problems in cleft lip and/or palate
Abstract. Cleft lip and/or palate (CL/P) is the most common craniofacial congenital anomaly and has been associated with higher risk of neurodevelopmental
000
Reposted by Cleft Collective
The Cleft Lip and Palate Association (CLAPA) @clapacommunity.bsky.social · 26/07/2025
Answered yes?✅ Cleft@18-23 is a research programme investigating outcomes at the end of routine care for young adults born with a cleft. They are currently recruiting young adults to attend one of their research clinics. 🔗 To find out more: buff.ly/C2qDBiV
055
Cleft Collective @cleftcollective.bsky.social · 17/07/2025
💥 New research using Cleft Collective data💥 How cleft-related speech errors affect children's communication. ✴️ Findings show the need for targeted, individualized speech therapy. @yvonnewren.bsky.social Read more: pubmed.ncbi.nlm.nih.gov/40408135/ #CleftPalate #SpeechTherapy #ChildDevelopment
pubmed.ncbi.nlm.nih.gov
Relationship Between Intelligibility in Context Scale and Cleft-Related Speech Sound Errors in 3-Year-Olds With Nonsyndromic Cleft (Lip and) Palate - PubMed
The presence of anterior oral errors and passive errors reduced speech intelligibility across different communication partners. Non-oral errors did not show as strong an impact, although specific subt...
010
Reposted by Cleft Collective
Dr Sam Burr @samburrslt.bsky.social · 25/06/2025
@yvonnewren.bsky.social presents work work on #SpeechIntelligibility from @cleftcollective.bsky.social at @icpla2025.bsky.social @bristoluni.bsky.social @bristol-sltru.bsky.social @sharynnemcleod.bsky.social Amy Davies
0104
Cleft Collective @cleftcollective.bsky.social · 02/05/2025
Professor Evie Stergiakouli also presented her own work on 'Copy Number Variants Linked to Neurodevelopmental Disorders and their Implications for Cleft Lip and/or Palate' #CFSGBI2025
021
Cleft Collective @cleftcollective.bsky.social · 02/05/2025
An informative talk from Professor Evie Stergiakouli on behalf of Professor Sarah Lewis: 'Findings from genome wide association analyses in the Cleft Collective'. #CFSGBI2025
021
Cleft Collective @cleftcollective.bsky.social · 02/05/2025
We are enjoying another day in Newcastle at the #CFSGBI2025 conference 🤩 with a poster from our Research Coordinator, Amy Davies, 'Making sense of speech intelligibility outcome data: Findings from the Cleft Collective'. @yvonnewren.bsky.social
041
Cleft Collective @cleftcollective.bsky.social · 01/05/2025
A brilliant presentation from Sonya Gholami on her research using Cleft Collective data: 'Effect of Tensor Aponeurosis Management on Eustachian Tube Function' at #cfsgbi2025
021
Cleft Collective @cleftcollective.bsky.social · 01/05/2025
Great to be in Newcastle for the annual Craniofacial Society of Great Britain and Ireland Conference #cfsgbi2025😀 A fantastic talk from @stephvanee-slt.bsky.social 'Exploring sleep and language outcomes in children with cleft lip/palate using Cleft Collective data'. @yvonnewren.bsky.social
052
Reposted by Cleft Collective
Cleft@18-23 Study @cleft1823study.bsky.social · 16/04/2025
We are now recruiting study participants in Salisbury and surrounding areas! If you are a young adult aged 18-23 years and were born with a cleft, we want to hear from you. Register your interest here: www.bristol.ac.uk/cleft18-23-get-involved and help us shape the future of cleft care in the UK.
044
Reposted by Cleft Collective
Cleft@18-23 Study @cleft1823study.bsky.social · 11/04/2025
If you are a young adult aged 18-23 years and were born with a cleft, we want to hear from you. Head to the link in bio to register your interest and help us shape the future of cleft care in the UK. We are now recruiting study participants in Oxford and surrounding areas! #cleft #cleftresearch
044
Cleft Collective @cleftcollective.bsky.social · 08/04/2025
HRH The Duchess of Edinburgh visited @bristoluni.bsky.social to learn more about world-leading research funded by Scar Free Foundation. HRH visited the Cleft Collective as one of the studies funded by Scar Free for over 10 years. Read more: www.bristol.ac.uk/news/2025/ma... Image credit: James Allan
011
Reposted by Cleft Collective
Dr Abhaya Vadlamudi @abhayavadlamudi.bsky.social · 21/03/2025
Cleft@18-23 study is now recruiting participants across the UK! @cleft1823study.bsky.social #cleft #cleft18-23 #cleftresearch #cleftlipandpalate
145
Reposted by Cleft Collective
Cleft@18-23 Study @cleft1823study.bsky.social · 06/03/2025
033
Cleft Collective @cleftcollective.bsky.social · 26/02/2025
If you’re aged between 18-23 and want to get involved with important cleft research, see below! 👇
011
Cleft Collective @cleftcollective.bsky.social · 25/02/2025
Our Winter newsletter is here! Click the link to read what we've been up to: www.bristol.ac.uk/dental/cleft...
000
Cleft Collective @cleftcollective.bsky.social · 31/01/2025
If you’re aged between 18-23 and have a cleft, this study is for you! More details coming soon…
021
Cleft Collective @cleftcollective.bsky.social · 17/12/2024
10 Facts about The Cleft Collective. We are so proud of these numbers and we are so grateful to all of our participants for contributing so much to our research! Head to our website to find out how to access the data: www.bristol.ac.uk/dental/cleft...
020
Cleft Collective @cleftcollective.bsky.social · 04/12/2024
Latest research from cleftcollective.bsky.social concludes that children born with a cleft and two or more anomalies are more likely to have a syndrome than those with fewer anomalies and should be prioritised for assessment by Clinical Genetics services. www.mdpi.com/2077-0383/13...
mdpi.com
Predicting Syndromic Status Based on Longitudinal Data from Parental Reports of the Presence of Additional Structural and Functional Anomalies in Children Born with an Orofacial Cleft
Background: Orofacial clefts are the most common craniofacial congenital malformation in humans. Approximately 30% of clefts arise as part of a syndrome or sequence, characterised by co-existing struc...
031
Reposted by Cleft Collective
Dr Stephanie van Eeden @stephvanee-slt.bsky.social · 01/12/2024
Interested in a PhD looking at identifying early indicators of persistent speech sound disorder in children born with cleft? Check this link for a funded PhD opportunity working with the Cleft Collective www.findaphd.com/phds/project...
findaphd.com
Reducing inequality through early identification of risk of persistent speech disorder in children born with cleft palate at University of Bristol on FindAPhD.com
PhD Project - Reducing inequality through early identification of risk of persistent speech disorder in children born with cleft palate at University of Bristol, listed on FindAPhD.com
026
Reposted by Cleft Collective
The Cleft Lip and Palate Association (CLAPA) @clapacommunity.bsky.social · 27/11/2024
Finding out that your baby will be born with a cleft can be overwhelming. CLAPA's free Counselling Service can help you to make sense of your feelings and work with you to help you feel better about what the future will bring: buff.ly/4bnJem0
022
Reposted by Cleft Collective
Professor Yvonne Wren @yvonnewren.bsky.social · 15/11/2024
Funded PhD opportunity with @cleftcollective.bsky.social at University of Bristol and @stephvanee-slt.bsky.social. Great opportunity to work that has impact for health providers and those affected by cleft lip/palate. More info at www.findaphd.com/phds/project...
findaphd.com
Timing and technique of primary surgery for children born with cleft lip and/or palate and associations with childhood outcomes at University of Bristol on FindAPhD.com
PhD Project - Timing and technique of primary surgery for children born with cleft lip and/or palate and associations with childhood outcomes at University of Bristol, listed on FindAPhD.com
077
Cleft Collective @cleftcollective.bsky.social · 06/11/2024
Together we can investigate the causes of cleft, best treatments of cleft and better understand what it's like to be an adult living with a cleft. Watch our 4 minute film to find out more about this valuable research: 🎥 www.youtube.com/watch?v=imyJ...
youtube.com
Leading the way in cleft research for better lives and futures
YouTube video by University of Bristol
064