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Child Growth Foundation @childgrowthuk.bsky.social · 25/07/2026

💙 “I came to the Child Growth Foundation for the information… and I stayed for the support.” 💙 For families navigating rare growth conditions, finding people who truly understand can change everything. That’s why becoming a Full Member of the Child Growth Foundation matters. ✨ Full Membership is j

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Child Growth Foundation @childgrowthuk.bsky.social · 02/07/2026

💙 Become a Child Growth Foundation Member 💙 For just £25 a year, you can join a community dedicated to supporting children and families affected by rare growth conditions. Your membership helps fund vital resources, events, and support — and it connects you with people who truly understand. ✨ Join

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Child Growth Foundation @childgrowthuk.bsky.social · 18/06/2026

💙 The Child Growth Foundation brought together over 115 children and families at our Meet Up events in 2025 — a powerful reminder of what community can do. 💙 For families navigating rare growth conditions, finding people who truly understand can change everything. That’s why becoming a Full Member

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Child Growth Foundation @childgrowthuk.bsky.social · 05/06/2026

🪂 Good luck to Dylan as he takes on a sponsored skydive! We wish him all the very best for this amazing challenge and are proud of him for supporting such a great cause. If you'd like to sponsor Dylan and help him reach his fundraising goal, please follow the link below. Every donation, big or smal

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Child Growth Foundation @childgrowthuk.bsky.social · 04/06/2026

💙 When we found the Child Growth Foundation, everything changed. We finally felt understood. 💙 The Child Growth Foundation is a community where families affected by rare growth conditions can connect, feel understood, and find support when they need it most. That’s why we’re proud to offer Full Me

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Child Growth Foundation @childgrowthuk.bsky.social · 21/05/2026

As a small UK charity, the Child Growth Foundation relies on the generosity of its members to continue providing vital support to children, young people, and families affected by rare growth conditions. 👉 Join today: childgrowthfoundation.org/membership/ #ChildGrowthFoundation #RareGrowthCondition

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Child Growth Foundation @childgrowthuk.bsky.social · 02/05/2026

Our London Peer Support Group have their next in person meeting booked in💛 This is a welcoming space for families, carers, and children to connect, share experiences, and support one another in a relaxed and understanding environment. If you'd like to join this friendly group of parents, you’ll be

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Child Growth Foundation @childgrowthuk.bsky.social · 25/04/2026

Wishing the best of luck to Hollie, Sarah & Holly as they take on the Wrexham 10K this Sunday 26th April in support of the Child Growth Foundation! 🏃‍♀️💙 They’re running for an amazing cause, helping support children and families affected by growth conditions. If you’d like to show your support, you c

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Child Growth Foundation @childgrowthuk.bsky.social · 17/04/2026

📚✨ Storybook: My Sotos Story “Your genes are like instructions that tell your body what to do. They set your height, what you look like – all the things that make you, you.” With bright, colourful illustrations and fun rhymes, My Sotos Story is a heartwarming and educational book for children, fa

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Child Growth Foundation @childgrowthuk.bsky.social · 16/03/2026

🏃‍♀️ Fancy taking on a challenge this year? Whether it’s running a 5K, tackling a half marathon, organising a cake bake, or setting yourself a walking challenge, why not make it even more meaningful by raising funds for the Child Growth Foundation 💙 Your support helps us continue providing vital info

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Child Growth Foundation @childgrowthuk.bsky.social · 09/03/2026

Did you know we have a wide range of helpful resources available for you to download? 📘✨ From a comprehensive Parent Carer Guide and a handy Healthcare Organiser, to condition-specific information designed to support you every step of the way — it’s all available on our website. Explore and downlo

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Child Growth Foundation @childgrowthuk.bsky.social · 22/02/2026

💜 A huge thank you to Evelyn & Carol for putting up posters in the nursery, shop window, and GP surgery — your support truly means so much 💜 We would really appreciate your help. This Rare Disease Day (28 Feb), please support our “Trust Your Instincts” campaign by displaying a poster in your commu

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Child Growth Foundation @childgrowthuk.bsky.social · 18/02/2026

✨ Did you know? We’ve created a range of Top Tips — written by parents, just for parents! Get helpful guidance on topics like injections, mental health, talking to your GP about your child’s size and handling comments about growth. 💬 Find them here 👉 childgrowthfoundation.org/infographics/

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Child Growth Foundation @childgrowthuk.bsky.social · 16/02/2026

We need your help 💜 This Rare Disease Day (28th Feb), help us share our “Trust Your Instincts” campaign by putting up a poster in your community — GP surgery, supermarket, school or nursery (with permission). 👉 Order posters here: forms.office.com/e/cL447qAwTN Every poster makes a difference. Tha

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Child Growth Foundation @childgrowthuk.bsky.social · 04/02/2026

🎉 Welcome Lauren to the Child Growth Foundation Board of Trustees! Excited for her to help support families with rare growth conditions. 💛 #RareDiseaseCommunity #CGF

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Child Growth Foundation @childgrowthuk.bsky.social · 16/01/2026

Join the CGF weekly lottery from £1 a week, and be in with a chance to win £25,000! www.childgrowthfoundation.org/weekly-lottery

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Child Growth Foundation @childgrowthuk.bsky.social · 09/01/2026

We have five free charity places in the #RoyalParksHalf 👟 The half marathon follows a beautiful 13.1-mile route in London. Our CGF places are available on a first come first served basis to fundraisers pledging to raise a minimum of £250. Apply at: childgrowthfoundation.org/royal-parks-half

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Child Growth Foundation @childgrowthuk.bsky.social · 08/01/2026

Are you ready to take on the fastest zip line in the world? childgrowthfoundation.org/velocity Calling all thrill-seekers, daredevils, and everyday heroes to join Team CGF this April and take on Velocity at Zip World, the ultimate adrenaline challenge in support of our charity's work. 1/2

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Child Growth Foundation @childgrowthuk.bsky.social · 06/01/2026

We have a small number of bookable Support Line slots available each month with one of our nursing team at: childgrowthfoundation.org/bookings ☎️

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Child Growth Foundation @childgrowthuk.bsky.social · 05/01/2026

Join us in welcoming Liam to our fantastic Board of Trustees! We’re thrilled to have him with us—welcome, Liam!

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Child Growth Foundation @childgrowthuk.bsky.social · 03/01/2026

The BEOND study is examining a range of clinical outcomes in people with neurodevelopmental disorders, including growth conditions associated with intellectual disability. The study was previously open to families with a growth condition and intellectual disability from 2023 to 2024... 1/2

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Child Growth Foundation @childgrowthuk.bsky.social · 01/01/2026

Happy New Year! Wishing you all the very best for 2026 ✨

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Child Growth Foundation @childgrowthuk.bsky.social · 29/12/2025

Our Support Line is now reopen! 🌐 Website contact form: childgrowthfoundation.org/support ☎️ Phone: 020 8995 0257 📩 Email: support@childgrowthfoundation.org 🖱️ Bookable slots: childgrowthfoundation.org/bookings

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Child Growth Foundation @childgrowthuk.bsky.social · 28/12/2025

Got your raffle tickets? childgrowthfoundation.org/raffle Enter our Christmas Raffle to be in with a chance to win some fantastic prizes while raising funds towards our work supporting children, young people, adults and their families affected by growth conditions and concerns 🎄🎟️🎅🎁

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Child Growth Foundation @childgrowthuk.bsky.social · 27/12/2025

Last month we hosted our final Meet Up of 2025, and had such a wonderful trip to SEA LIFE Manchester with our child growth community. Thanks to everyone who made it such a fin-tastic trip...roll on 2026 and our next series of Meet Ups!

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Child Growth Foundation @childgrowthuk.bsky.social · 25/12/2025

Wishing the child growth community a very Merry Christmas! ☃️ 🎅 🎄 - With warmest wishes from the CGF team

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Child Growth Foundation @childgrowthuk.bsky.social · 22/12/2025

'Childhood growth: A parent carer guide' is packed with information including typical growth in childhood and puberty, monitoring growth and measuring at home, head circumference measurements, who to approach if you have concerns…and much more! >>> childgrowthfoundation.org/growth-guide

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Child Growth Foundation @childgrowthuk.bsky.social · 21/12/2025

Throughout 2025 we’ve been running a monthly 'Spotlight on' series, shining a spotlight on different growth conditions we support each month. And in December we’ve shone a spotlight on growth concerns. Catch up on the full series at: childgrowthfoundation.org/spotlight-on

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Child Growth Foundation @childgrowthuk.bsky.social · 19/12/2025

Our Support Line is now closed for the festive break from Friday 19 to Sunday 28 December, reopening on Monday 29 December Our website remains open with a range of information and resources at: childgrowthfoundation.org 1/2

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Child Growth Foundation @childgrowthuk.bsky.social · 17/12/2025

Coming up this month - Spotlight on growth concerns 💡 Throughout 2025 we've been spotlighting the various growth conditions the CGF support. To mark the end of the year our final spotlight will be on growth concerns. More to follow soon!

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Child Growth Foundation @childgrowthuk.bsky.social · 15/12/2025

Enter into our Christmas Raffle childgrowthfoundation.org/raffle to be in with a chance to win some fantastic prizes while raising funds towards our work supporting children, young people, adults and their families affected by growth conditions and concerns 🎄🎟️🎅🎁

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Child Growth Foundation @childgrowthuk.bsky.social · 15/12/2025

Our Support Line is open through to Thursday 18 December, and will then be closed for the festive break. The Support Line will be closed from Friday 19 to Sunday 28 December. It will reopen on Monday 29 December. 🌐 childgrowthfoundation.org/support

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Child Growth Foundation @childgrowthuk.bsky.social · 13/12/2025

Christmas lights fundraising! 🎅 💡 ☃️ Thanks so much to James and his family who are supporting the CGF through a festive lights display, and have already raised raised over £980 justgiving.com/page/ava-and-milas-xmas-lights - absolutely fab-yule-ous!

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Child Growth Foundation @childgrowthuk.bsky.social · 12/12/2025

Our 'What is Sotos Syndrome?' infographic is a really useful one page resource about Sotos syndrome at: childgrowthfoundation.org/what-is-sotos-syndrome #SotosSyndrome #Sotos

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Child Growth Foundation @childgrowthuk.bsky.social · 11/12/2025

Last week our Chair Jeff hosted a brilliant Christmas Wreath making evening in Cardiff. Thanks so much to everyone who attended, to florist Natalie for her support, and to Jeff for raising £225 for the CGF 🎄

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Child Growth Foundation @childgrowthuk.bsky.social · 07/12/2025

When it comes to your child’s health and growth, it’s important to know how to use #ArtificialIntelligence (AI) tools safely and wisely. We've created #AI tips in a new infographic at childgrowthfoundation.org/ai-infographic to help you get accurate, reliable information and to help avoid risks.

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Child Growth Foundation @childgrowthuk.bsky.social · 05/12/2025

If you're shopping online over the festive period you can raise free donations for the CGF when you shop with over 6,000 online retailers using Give as you Live Online at: giveasyoulive.com/join/childgrowthfoundation

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Child Growth Foundation @childgrowthuk.bsky.social · 04/12/2025

'A parent carer guide to concerns about a child's growth' aims to help decide if further assessment is needed for short or tall stature & help to prepare the information that your GP may ask for 📘 Read the guide in full at: childgrowthfoundation.org/concerns-guide For parents, carers & GPs too.

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Child Growth Foundation @childgrowthuk.bsky.social · 02/12/2025

Give the gift of support this Christmas 🎁💙🎄 This #GivingTuesday help us wrap families in the support they need by donating to our Christmas campaign at: childgrowthfoundation.org/gift

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