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Amanda (she/her)🖤🤍💜🤎

@ceomomco.bsky.social
718 followers 810 following 1.3K posts

Disabled, chronically ill, homeschooling socialist. Hobbies include birds, books, fiber arts & intractable chronic migraine. Avatar by @marimigraine on IG

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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 05/02/2026
That's fair, I for sure wasn't
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 05/02/2026
Yeah and I didn't listen of course and did my stomach 😣 I couldn't do my thigh, I just could not
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 05/02/2026
Post shot update: the auto injector also bruised me, I've never had that happen before 😔
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 01/02/2026
Oh I see as afraid of that, boo. Yeah, I used Walgreens, it took a few weeks to be filled.
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 01/02/2026
Woot woot! Fingers crossed it's not too much. There is a coupon program I believe
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 01/02/2026
Do you want some spray DHE? I have a stash
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 01/02/2026
Ok @migrainechat.bsky.social it hurts!! It's like Emgality going in and then it burns for a bit after then dissipates. Nothing intolerable but definitely memorable
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 26/01/2026
I'm getting my script on Thursday, I'll lyk
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/10/2025
Woohoo!!!
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/10/2025
Thank you!
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 20/10/2025
Oh interesting, I'll check with my HAS again
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 19/10/2025
Do you know anyone that's gotten a script for it yet? Last I heard it wasn't available for prescription yet
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 19/10/2025
I don't even know either, I'm about to be battle for Cigna to cover Trudhesa again because I can't get the DHE, I'm so MAD
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 19/10/2025
Are they saying it's out of stock? I'm suspecting it's a tariff issue
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 19/10/2025
Migraine friends: can you lmk if you've been able to get your DIHYDROERGOTAMINE this month? For the 2nd month my pharmacy is OOS at the warehouse and I only got it last month because they had enough on the shelf. #MigraineChat
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 30/08/2025
It really is, adding this barrier to care is going to affect so many
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 30/08/2025
Friend, I've been absent so I'm just seeing this. YIKES!! How are you managing? What ended up happening??
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 30/08/2025
Yes I have, my GP gave me a minoxidil script to help offset loss from that and peri-menopause as well.
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 30/08/2025
Thanks friend, it'll be ok I'm sure, I'm absolutely dysregulated right now
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 30/08/2025
I shot off messages to our as well, between this and the Cigna changes coming in October I'm expecting my PCP to let me go as a patient, it's not sustainable.
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 30/08/2025
Oh my gosh 😍😍😍 congrats!!!
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 29/08/2025
I've been absent, did you get a dog?!?!! 🤣🤣
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 29/08/2025
Congrats Doc!!! 🤣
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 29/08/2025
Woooooow
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 29/08/2025
Welp, the pharmacy just called me to let me know that per new NY state law they cannot administer our Covid 19 vaccines on our September 8th appointment now unless they have a prescription from our doctors, this is so fucked
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 28/07/2025
It's probably gastroparesis, recent studies show that most people experiencing a migraine attack are also experiencing gastroparesis from that attack.
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
www.almarlagotto.com The breeders are so nice, Marie (the mom) is who I initially talked to about everything and her daughter Jessica did all the admin arrangements via email.
almarlagotto.com
Home | Almar Lagotto
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
Our breeder will meet you at the airport with a puppy from one of their litters if you want their info!!
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
We were on a wait list for almost 2 years and then found a breeder that was only an hour from us. This is the breed we thought would be best for us for a service dog, she's a Lagotto Romagnolo. We are also working with Lisa Gallegos, a service dog trainer based out of Colorado to train her.
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
I feel that 🫂🤎
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
That part of the arm is easiest to have someone else help you with if you have that option.
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
So I do 3 fingers away from my belly button and most times I don't feel it now but I'm also a fat woman so I have more subq tissue to absorb the needle there. The other location is the back of the arm, that part that people worry will get flappy as they age, the meaty part. Cont.
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
Of course, I had some extra battery to help this morning 🤎
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
Absolutely, I never want to offer unsolicited advice but I know how much these injections can hurt. So let's talk about your stomach, that's where I do mine and where I've found they hurt the least. What do you think is making you feel not ok with that location?
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
Sending you strength and love, it's brutal 🤎 most sinus headaches are migraine they've found too so you're really in it, I'm so sorry!!
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
It's awesome that you are receiving better care now, you deserve it!!
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
So very very much 🤎
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
#MigraineChat Can't live without: Botox, Ubrevly, Reglan, Zonisamide, Xanax, Olanzapine, Tizanidine (pharmaceuticals keep me alive) Cefaly, my TENS machine and Tiger Balm white. Treatments that I tried that did work for me: ice is something that rarely helps, I am very sensitive to extreme cold
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Reposted by Amanda (she/her)🖤🤍💜🤎
Beth Morton @migrainechat.bsky.social · 10/07/2025
Real-World Use of Rimegepant for Short-Term Migraine Prevention - Key Takeaways "Rimegepant is effective for short-term prevention in patients with predictable migraine triggers, offering flexibility and targeted relief." #MigraineChat
neurologylive.com
Survey Data Highlights Real-World Use of Rimegepant for Short-Term Migraine Prevention
A recent survey reveals rimegepant's effectiveness for short-term migraine prevention, highlighting user demographics, triggers, and treatment strategies.
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Reposted by Amanda (she/her)🖤🤍💜🤎
Beth Morton @migrainechat.bsky.social · 10/07/2025
Eptinezumab for migraine prevention after other treatments fail: a plain language summary of publications #MigraineChat
pubmed.ncbi.nlm.nih.gov
Eptinezumab for migraine prevention after other treatments fail: a plain language summary of publications - PubMed
Eptinezumab for migraine prevention after other treatments fail: a plain language summary of publications
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Reposted by Amanda (she/her)🖤🤍💜🤎
🤕🤯⚡🚶‍♀️⛰️🥾🦬🏕️🧭🎶 @meatsr.bsky.social · 12/07/2025
Some more cgrp research: www.sciencedaily.com/releases/202... #migrainechat #chronicpain
sciencedaily.com
How a hidden brain circuit fuels fibromyalgia, migraines, and PTSD
What if your brain is the reason some pain feels unbearable? Scientists at the Salk Institute have discovered a hidden brain circuit that gives pain its emotional punch—essentially transforming ordina...
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Reposted by Amanda (she/her)🖤🤍💜🤎
Beth Morton @migrainechat.bsky.social · 12/07/2025
#LGBTQIA+ individuals with #migraine face more barriers, lower quality care #MigraineChat
healio.com
LGBTQIA+ individuals with migraine face more barriers, lower quality care
MINNEAPOLIS —LGBTQIA+ individuals face more barriers, perceived stigma and less quality migraine care compared with their heterosexual or cisgender counterparts, according to a presenter.“...
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Reposted by Amanda (she/her)🖤🤍💜🤎
Beth Morton @migrainechat.bsky.social · 13/07/2025
#MigraineChat in lieu of our chat, random questions: What's a migraine treatment* you couldn't live without? What's a migraine treatment* you tried but was a big disappointment? *Pharmacological or non-pharma. Acute or preventive. Etc, etc.
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
🫂🫂🫂 solidarity my friend our bodies really suck sometimes 🤎🤎🥱
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
I'm so sorry friend. I have this with Trudhesa too but not consistently, sometimes I think I hit just the perfect spray spot up there and I don't have trouble but usually I'm stuffy city for awhile. 🤎
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
Autoinjectors are so rough!! Lmk if you want some help problem solving injection location options!! Sending hugs!!
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Reposted by Amanda (she/her)🖤🤍💜🤎
SY @sian-yvette.bsky.social · 16/07/2025
Does anyone else get Insomnia as a warning sign or pre-migraine symptom the night before their chronic migraine is due? #MigraineChat #MigraineAwareness #ChronicHemiplegicMigraine
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
I'm so sorry to hear you are struggling. Have you started another preventative to replace the Emgality? This same situation is how I discovered that my Aimovig that I thought wasn't helping actually was and I went back on it. Sending you strength and hugs 🤎
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
This is a great infographic, please consider posting images with AltTxt included in the future for accessibility, lmk if you need help on learning how to do it easily!!
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Amanda (she/her)🖤🤍💜🤎 @ceomomco.bsky.social · 27/07/2025
Reposting this awesome infographic with #AltTxt for accessibility #MigraineChat
An infographic labeled "ENDING THE MIGRAINE MISCONCEPTION"

There are two columns, the first is labeled "Migraine" and underneath in a dot list reading 

"head pain"

On the bottom on the graphic in this column is a white fem present person in a burgundy shirt with blonde hair and glasses pointing up.

The second column is labeled  "Also Migraine" and underneath is a dot list reading :

"vertigo/dizziness

muscle and joint pain

digestive issues

increased thirst and urination

nausea / vomiting

fatigue

brain fog

trouble sleeping

mood changes

nasal congestion

skin/hair sensitivity

jaw pain and tightness

visual disturbances

auditory disturbances

sensory sensitivity

altered speech

numbness/tingling

food cravings"


The bottom of the pat in the center reads "migraine dietician"
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