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Cancer Girl

@cancergirl730.bsky.social
74 followers 63 following 139 posts

Thylebrity; Cancer Survivor; Diabetic; Advocate for Thyroid Cancer & Young Adult Survivors; Founder of Concierge for Hope. #HaveHopeStayTough #AYACSM

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Cancer Girl @cancergirl730.bsky.social · 12/08/2026
But who pays for that? In the US, it would be the taxpayers. And in certain metro areas, public toilets converted to pay toilets because of abuse/people taking advantage. It's a great idea! But it only works if society operates on a certain set of standards/rules #AYACSM
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Dr. Emily Drake @emilydrake.ca · 12/08/2026
All the gear, multiple sunscreen bottles - it adds up for people and families who are already stretched thin with rising costs. In Australia - there are some public sunscreen dispensers! Public infrastructure could make a huge difference for people #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 12/08/2026
I have no idea. I don't leave the house as a grad student, so I don't need sunscreen. 😂 #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 12/08/2026
That's a great point! My gen of AYAs were all about the tanning beds. We didn't have sun exposure, but we had radiation exposure. #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 12/08/2026
It very well could be. And I'm all for trying anything. I just know that I wouldn't have paid any attention to it in my 20s, but that's just me. #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 12/08/2026
A3. We have to make people care. How? IDK. #AYACSM
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Dr. Emily Drake @emilydrake.ca · 12/08/2026
Q3: What do you think can help us improve sharing sun safety messaging? #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 12/08/2026
I think a large part of it is the feeling of being invincible. There's a reason why "I'm too young for this" was so popular a few decades ago. #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 12/08/2026
A2. Again, this is one of those challenging questions. I think once we get diagnosed, we are likely to avoid exposure to additional cancers. But until then, IDK how receptive people are to hearing don't do this or that so you don't develop cancer #AYACSM
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Dr. Emily Drake @emilydrake.ca · 12/08/2026
Q2: What are the major barriers we face in prevention messaging for AYAs? #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 12/08/2026
@ekdrake.bsky.social IDK, as a survivor, prevention is a challenging topic. I avoid sun exposure since my dx. I also avoid tanning beds bc of my primary cancer #AYACSM
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Darcy Burbage, DNP, RN, AOCN @darcyburbage.bsky.social · 12/08/2026
A1: A lot to consider in the prevention space #AYACSM
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Dr. Emily Drake @emilydrake.ca · 12/08/2026
A1: I think a lot about how our understandings of the different types of skin cancer are evolving along with the different ways that we can protect ourselves. I worry that this information is not making its way to the general AYA population #AYACSM
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Dr. Emily Drake @emilydrake.ca · 12/08/2026
💯 We don't often talk about prevention in the #AYACSM chats, so I thought it would be important to have a prevention chat tonight! I'm open to more topics for the rest of 2026 too! #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 12/08/2026
A1. Skin cancer prevention #AYACSM
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Dr. Emily Drake @emilydrake.ca · 12/08/2026
Q1: When we mention “sun safety” in the #AYACancer space – what comes to mind? #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 12/08/2026
Me too! It's the first day of Summer Break, so hopefully I can stay awake for the hour. LOL #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 12/08/2026
Nice to see you as well. How are you tonight? #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 12/08/2026
I'm Chris living in the greater Philadelphia area. 18 year survivor, nonprofit founder, and exhausted grad student here to listen and learn #AYACSM
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Dr. Emily Drake @emilydrake.ca · 12/08/2026
Tonight, we will be talking about sun safety. 😎 Let’s start off with introductions – What is your name? Where are you based? Why are you here? Tell us a bit about yourself! Post #AYACSM if you’re only here to listen.
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Ryan Gosling as Ken in Barbie: Fur Coat & Sunglasses
ALT: Ryan Gosling as Ken in Barbie: Fur Coat & Sunglasses
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Dr. Emily Drake @emilydrake.ca · 12/08/2026
We assume that all tweets shared during #AYACSM express your own personal opinions and not those of your employer/organization (unless specified). #AYACSM
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Robert Redford as Jeremiah Johnson Nodding
ALT: Robert Redford as Jeremiah Johnson Nodding
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Dr. Emily Drake @emilydrake.ca · 12/08/2026
All are welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) #SkyChat starting now! For those new to #AYACSM, we normally gather for a live chat at 8pm ET on the first Tues of the month. We discuss topics relevant & timely for those advocating for #AYACancer patients
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TikTok Snapchat Facebook Instagram YouTube Logos
ALT: TikTok Snapchat Facebook Instagram YouTube Logos
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Dr. Emily Drake @emilydrake.ca · 12/08/2026
📣 Our #AYACSM chats are for advocates involved in the adolescent and young adult cancer societal movement – but anyone can join! An advocate is anyone who speaks, writes or in other ways actively supports the AYA cancer movement as a whole #AYACSM
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Fran Drescher's Enthusiastic Welcome
ALT: Fran Drescher's Enthusiastic Welcome
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Dr. Emily Drake @emilydrake.ca · 12/08/2026
We’re so glad to have you with us this evening! Be sure to post along using: #AYACSM #AYACSM was co-founded and has been maintained over the past twelve years by @ekdrake.bsky.social and @ukfann00.bsky.social!
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Little Rainbow with Clouds
ALT: Little Rainbow with Clouds
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Dr. Emily Drake @emilydrake.ca · 12/08/2026
👋 Welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) #SkyChat! ✌️ This year we are celebrating 12 YEARS OF #AYACSM CHATS!!
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Darcy Burbage, DNP, RN, AOCN @darcyburbage.bsky.social · 10/08/2026
Please join us as we discuss this important topic! #AYACSM ☀️
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Hannah R. Abrams @hannahrabrams.bsky.social · 08/07/2026
A3: I wish I knew! I do think that influencers & advocates who are out there spreading accurate info & modeling positive relationships with the care system are doing important work, though. #AYACSM
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Dr. Emily Drake @emilydrake.ca · 08/07/2026
Thank you to everyone who joined in on the conversation. Your time, posts and comments are appreciated and important! We are looking for guest moderators for 2026 – please let me know if you are interested! Mark your calendars! Please tune in Tuesday, August 4th @ 8PM ET for our next #AYACSM!
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Cancer Girl @cancergirl730.bsky.social · 08/07/2026
Oh I would if I was on those platforms. You know me, I won't back down from a fight. 😂 #AYACSM
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Scrappy-Doo: Let Me At 'Em!
ALT: Scrappy-Doo: Let Me At 'Em!
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
We can always call them out and ask them what credibility they actually have; what degree do they have? What peer-reviewed evidence can they produce to back up their claims? We need to call them out at their own game. #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
#ayacsm
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Avengers Assemble with Thor
ALT: Avengers Assemble with Thor
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Cancer Girl @cancergirl730.bsky.social · 08/07/2026
I did that three years ago in undergrad and I'm still waiting for an answer. 🤣🤣🤣 But that is a good tip and I appreciate it. #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
A3. Those of us that are credible sources of information need to directly call it out and back it up with the evidence. #ayacsm
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Cancer Girl @cancergirl730.bsky.social · 08/07/2026
A3. I have no idea. It sounds like we have to do something about the influencers. And that feels like tilting at windmills. #AYACSM
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Dr. Emily Drake @emilydrake.ca · 08/07/2026
Q3: What do you think can help us address misinformation in this cancer population? #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 08/07/2026
You're the best! I can't wait to read it! #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 08/07/2026
I did. I was appalled. It was horrible. All those hopes and dreams destroyed for the sake of profit #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 08/07/2026
Is it publicly available? I'd love to read it as it may help my work in school since I'm focusing on the AYA community in my studies. #AYACSM
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Dr. Emily Drake @emilydrake.ca · 08/07/2026
It's important as knowledge dissemination is mandated for grants. But, in general, we do not know a lot about knowledge mobilization in our field (doing some work on that now!)! Dr. Teplinsky and I + others wrote an article on misinformation! #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 08/07/2026
It's both. Many are unaware. Others do it knowingly - there was a Netflix documentary about this specifically - an influencer intentionally sharing disinformation to make a buck. #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
A2. Having enough qualified healthcare providers generating the real information. There are some good ones out there (Dr. Eleonora Teplinsky is great), but most providers are so busy and overworked that they don’t have time to creative credible content #ayacsm
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Cancer Girl @cancergirl730.bsky.social · 08/07/2026
A2. We kind of touched on this already, but the bots and the influencers. The influencers obvs carry a lot of weight, so if they present the wrong info, our jobs get that much harder. #AYACSM
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Dr. Emily Drake @emilydrake.ca · 08/07/2026
I forgot to post question 2!!! Q2: What are the major barriers we face in addressing misinformation for this cancer population? #AYACSM
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Cancer Girl @cancergirl730.bsky.social · 08/07/2026
Now? There used to be? I'm still of the "you're too young for cancer" mindset and I'm hitting 18 years this fall. #AYACSM
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Back In My Day Old People
ALT: Back In My Day Old People
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Dr. Emily Drake @emilydrake.ca · 08/07/2026
And, you know, I don't see as much #cancer prevention + #cancer messaging, in general, now for young people. So, I'm unclear if they are getting much messaging at all prior to diagnoses #AYACSM
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Trending Hashtags @toptags.bsky.social · 08/07/2026
🚀 BlueSky trending hashtags (15m) #16-30: #musicchallenge #artfight2026 #wwenxt #fullmoonfrights #booksky #gay #nsfwart #ad #aiart #tummytuesday #초대남 #ayacsm #goon #부커만남 #eck 👇 #1-15 trending hashtags
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Trending Tags (Beta) @trendtags.bsky.social · 08/07/2026
🔥 BlueSky trending hashtags (30m): #art #bb28 #nsfw #fullmoonfrights #furryart #artfight #wwenxt #fanart #oc #furry #tummytuesday #mlp #photography #ocart #ayacsm
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Cancer Girl @cancergirl730.bsky.social · 08/07/2026
This! 👇 #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
…and AYAs are especially susceptible to this as this current generation of AYAs are digital natives; they consume all their info online…which opens up the door for misinformation #ayacsm
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Cancer Girl @cancergirl730.bsky.social · 08/07/2026
Oh I know there are. But I've literally been doing school full time for 4 years with another year left, and my life has gone completely sideways. So I currently do not have the bandwidth for outreach. #AYACSM
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