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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 14/04/2026

At C19LAP, we believe one thing is clear: education is the foundation of an effective, scaled response to #LongCOVID. This is how we move from awareness → action → impact. 2/2

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 14/04/2026

The COVID-19 Longhauler Advocacy Project’s (C19LAP) founder, Karyn Bishof, recently joined the Association of State and Territorial Health Officials (@ASTHO) and public health leaders for a powerful webinar during #LongCOVIDAwareness Month. Watch here: www.astho.org/communicatio... #LongCOVID 1/2

astho.org

Living With Long COVID: Stories, Science, and Public Health

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 02/04/2026

#LongCOVIDAwareness Month Roundup! Many secured meetings, connected with lawmakers, & helped move this work forward—& we want to highlight & build on that momentum. Tell us what you did! Meetings, outreach, events, or any action taken with C19LAP: docs.google.com/forms/d/1yqP... 1/

docs.google.com

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 01/04/2026

energycommerce.house.gov/representati... www.congress.gov/bill/119th-c... bsky.app/profile/fous... x.com/ValerieFoush... 4/

energycommerce.house.gov

COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 01/04/2026

3) And please amplify Rep. Valerie Foushee’s announcement, who introduced the resolution. The more support it has, the more Congress will view Long Covid as important. It’s a step in the right direction! 3/

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 01/04/2026

1) Please contact the Committee members, especially if your Representative is on the Committee! Link to the Committee list below. 2) In the Resolution link below, there is an option to “Contact Your Member” to let your Rep know this is important as well! 2/

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 01/04/2026

A House resolution to recognize March as Long Covid Awareness Month was introduced to the Energy & Commerce Committee! It needs to be approved in Committee to go to the full House for a vote. 1/

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 31/03/2026

Learn more about #LongCOVID and the respiratory system here: (insert respiratory YouTube link here) Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 30/03/2026

Learn more about #LongCOVID and the otolaryngologic (ENT) system here: youtu.be/I7eOYufaQ7I Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 29/03/2026

Learn more about #LongCOVID and community allies here: youtu.be/Y0V-tWZO1Hw Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 28/03/2026

Learn more about #LongCOVID and the integumentary system here: youtu.be/Wnn0D1G72Ak Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 27/03/2026

Learn more about #LongCOVID and the endocrine system here: youtu.be/Oq3rq14jD10 Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 26/03/2026

Learn more about #LongCOVID and the renal system here: youtu.be/pxIjyQ7-j_o Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 25/03/2026

Learn more about #LongCOVID and caregivers here: youtu.be/UC7jy-H0WKc Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 24/03/2026

Learn more about #LongCOVID and neuropsychiatric health here: youtu.be/YtpdGbt2TNM Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 23/03/2026

Learn more about #LongCOVID and the musculoskeletal system here: youtu.be/58-Zfj0jGl0 Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 22/03/2026

Learn more about #LongCOVID and patient-led advocacy here: youtu.be/Kh-pddiBhJw Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 20/03/2026

I wear a #mask because COVID-19 disabled me as a healthy firefighter/ paramedic at age 30. One infection took my entire future away. Six years later, there is still approved no treatment or cure for Long COVID. The only way to #preventLongCOVID is to #preventCOVID-19 infection. #LongCOVIDAwareness

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 17/03/2026

We need #researchers and #clinicians to: #ListentoPatients #BelievePatients #StopGaslighting #StudyLongCOVID and see #PatientsasPartners. Millions need urgent, meaningful, and sustained action on #LongCOVID #LongCOVIDAwareness 2026 Poster @ www.longhauler-advocacy.org/lcamonth2026

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 17/03/2026

Learn more about #LongCOVID and underlying mechanisms here: youtu.be/63D6Ut4UH5I Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 17/03/2026

Tuesday March 17th Poster & Directions for the #LongCOVID #SocialMediaWeekofAction Post yours sharing your story/ reasoning. Use the #’s, support others, share! #LongCOVIDAwarenessWeek #LongCOVIDAwareness

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 16/03/2026

Thank you to Senator Tim Kaine's office for meeting with us today during #LongCOVIDAwarenessMonth to discuss #LongCOVID and the path forward. We appreciate the conversation and look forward to working together on solutions for the millions affected.

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 16/03/2026

3. Tag @POTUS, @HHSGov, @SecKennedy, your Governor, and your Members of Congress, as well as other lawmakers of relevance (check handles/usernames across platforms).

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 16/03/2026

2. Add caption: “I’m rating the U.S. government’s response to #LongCOVID based on lived experience. I am sharing this during #LongCOVIDAwareness Month 2026 to urge immediate, meaningful, and sustained action.” You may include a brief explanation of your rating.

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 16/03/2026

1. Take the 5-star rating sign provided and color in the number of stars that represent how you rate the U.S. government’s response to Long COVID from 2019–present. Take a picture with the poster, or post it solo.

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 16/03/2026

Today’s social media action for our #LongCOVIDAwareness #SocialMediaWeekofAction! Steps in thread below. All actions for the week can be found at www.longhauler-advocacy.org/lcamonth2026 midway down the page. #LongCOVID

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 16/03/2026

Learn more about #LongCOVID and what it is here: youtu.be/wBe3dCE9RKs Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 15/03/2026

Hey, someone at the #Oscars can you do millions of us a favor and talk about the devastating impacts of #LongCOVID on #LongCOVIDAwarenessDay longhauler-advocacy.org/lcamonth2026

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 15/03/2026

Learn more about #LongCOVID and find tons of ways to get involved this #LongCOVIDAwareness Month at longhauler-advocacy.org/lcamonth2026

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 15/03/2026

Today is International #LongCOVIDAwarenessDay — a global moment to come together in coordinated #LongCOVIDAwareness and action. Learn more about the #LongCOVIDAwarenessDay and how the COVID-19 Longhauler Advocacy Project serves the Long COVID community here: youtu.be/beWDeldUlOY?... ⬇️

youtu.be

March 15th is International #LongCOVIDAwarenessDay!

YouTube video by COVID-19 Longhauler Advocacy Project

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 15/03/2026

Learn more about #LongCOVID and adult prevalence and data here: youtu.be/qMCn3AO1lyg Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 15/03/2026

It’s official! It’s #LongCOVIDAwarenessDay! Let’s do this! Trend #LongCOVID #LongCOVIDAwareness Participate in actions and events at longhauler-advocacy.org/lcamonth2026 Share your stories. Follow and elevate others. Repost, like, engage. Tag us, and others you want to engage!

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 14/03/2026

We honor the grief carried by families, the strength of those still fighting, and the profound ways this disease has reshaped our communities. Learn more about #LongCOVID and participate in #LongCOVIDAwareness Month at longhauler-advocacy.org/lcamonth2026

COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 14/03/2026

Learn more about #LongCOVID and mortality here: youtu.be/LiisXO01FPo Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 13/03/2026

Join in on the #LongCOVIDAwareness Social Media Week of Action March 15th - 21st Starting on #LongCOVID Awareness Day! Learn more here! www.longhauler-advocacy.org/so/b6Pp… More ways to participate this month here: www.longhauler-advocacy.org/lcamont…

COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 13/03/2026

Learn more about #LongCOVID and viral persistence & reactivation here: youtu.be/3sr3_6Top10 Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 12/03/2026

Learn more about #LongCOVID and the digestive system here: youtu.be/V0L4OXaHYOE Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 11/03/2026

Long COVID Awareness Month Week 2 Updates: Check Out What's Been Happening, What's Upcoming, & How to Get Involved! www.longhauler-advocacy.org/so/97PpUlk-4...

COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 11/03/2026

Learn more about #LongCOVID and clinical documentation here: youtu.be/uc_ItEO_u44 Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 11/03/2026

Join C19LAP founder Karyn Bishof and the Association of State and Territorial Health Officials alongside other panelists for a webinar on March 31st from 1-2:15 p.m. ET to discuss #LongCOVID during #LongCOVIDAwareness Month.

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 10/03/2026

Learn more about #LongCOVID and sensory and vestibular function here: youtu.be/MudJxq4EP68 Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 09/03/2026

Learn more about #LongCOVID and pediatric health here: youtu.be/nGbW2Dovfz8 Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 08/03/2026

Learn more about #LongCOVID and workforce impact here: youtu.be/sLNgtYN0xLM Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 08/03/2026

Have you prepared your posters for the #LongCOVIDAwareness Week Social Media #WeekofAction?! Join us globally across social media with daily themes starting on #LongCOVIDAwarenessDay March 15th! All directions and posters can be found at longhauler-advocacy.org/lcamonth2026