COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 01/04/2026A House resolution to recognize March as Long Covid Awareness Month was introduced to the Energy & Commerce Committee! It needs to be approved in Committee to go to the full House for a vote. 1/ 1104
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 31/03/2026Learn more about #LongCOVID and the respiratory system here: (insert respiratory YouTube link here) Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 041
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 30/03/2026Learn more about #LongCOVID and the otolaryngologic (ENT) system here: youtu.be/I7eOYufaQ7I Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 042
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 29/03/2026Learn more about #LongCOVID and community allies here: youtu.be/Y0V-tWZO1Hw Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 043
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 28/03/2026Learn more about #LongCOVID and the integumentary system here: youtu.be/Wnn0D1G72Ak Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 022
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 27/03/2026Learn more about #LongCOVID and the endocrine system here: youtu.be/Oq3rq14jD10 Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 031
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 26/03/2026Learn more about #LongCOVID and the renal system here: youtu.be/pxIjyQ7-j_o Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 041
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 25/03/2026Learn more about #LongCOVID and caregivers here: youtu.be/UC7jy-H0WKc Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 011
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 24/03/2026Learn more about #LongCOVID and neuropsychiatric health here: youtu.be/YtpdGbt2TNM Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 031
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 23/03/2026Learn more about #LongCOVID and the musculoskeletal system here: youtu.be/58-Zfj0jGl0 Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 053
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 22/03/2026Learn more about #LongCOVID and patient-led advocacy here: youtu.be/Kh-pddiBhJw Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 041
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 20/03/2026I wear a #mask because COVID-19 disabled me as a healthy firefighter/ paramedic at age 30. One infection took my entire future away. Six years later, there is still approved no treatment or cure for Long COVID. The only way to #preventLongCOVID is to #preventCOVID-19 infection. #LongCOVIDAwareness 03311
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 17/03/2026We need #researchers and #clinicians to: #ListentoPatients #BelievePatients #StopGaslighting #StudyLongCOVID and see #PatientsasPartners. Millions need urgent, meaningful, and sustained action on #LongCOVID #LongCOVIDAwareness 2026 Poster @ www.longhauler-advocacy.org/lcamonth2026 053
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 17/03/2026Learn more about #LongCOVID and underlying mechanisms here: youtu.be/63D6Ut4UH5I Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 041
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 17/03/2026Tuesday March 17th Poster & Directions for the #LongCOVID #SocialMediaWeekofAction Post yours sharing your story/ reasoning. Use the #’s, support others, share! #LongCOVIDAwarenessWeek #LongCOVIDAwareness 073
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 16/03/2026Today’s social media action for our #LongCOVIDAwareness #SocialMediaWeekofAction! Steps in thread below. All actions for the week can be found at www.longhauler-advocacy.org/lcamonth2026 midway down the page. #LongCOVID 451
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 16/03/2026Learn more about #LongCOVID and what it is here: youtu.be/wBe3dCE9RKs Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 033
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 15/03/2026Learn more about #LongCOVID and adult prevalence and data here: youtu.be/qMCn3AO1lyg Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 064
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 15/03/2026It’s official! It’s #LongCOVIDAwarenessDay! Let’s do this! Trend #LongCOVID #LongCOVIDAwareness Participate in actions and events at longhauler-advocacy.org/lcamonth2026 Share your stories. Follow and elevate others. Repost, like, engage. Tag us, and others you want to engage! 12214
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 14/03/2026Learn more about #LongCOVID and mortality here: youtu.be/LiisXO01FPo Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 012
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 14/03/2026Reminder: Tomorrow March 14th, is #LongCOVIDMemorialDay. #LongCOVID #LongCOVIDAwareness 083
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 13/03/2026Join in on the #LongCOVIDAwareness Social Media Week of Action March 15th - 21st Starting on #LongCOVID Awareness Day! Learn more here! www.longhauler-advocacy.org/so/b6Pp… More ways to participate this month here: www.longhauler-advocacy.org/lcamont… 032
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 13/03/2026Learn more about #LongCOVID and viral persistence & reactivation here: youtu.be/3sr3_6Top10 Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 033
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 12/03/2026Learn more about #LongCOVID and the digestive system here: youtu.be/V0L4OXaHYOE Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 073
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 11/03/2026Long COVID Awareness Month Week 2 Updates: Check Out What's Been Happening, What's Upcoming, & How to Get Involved! www.longhauler-advocacy.org/so/97PpUlk-4... 032
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 11/03/2026Learn more about #LongCOVID and clinical documentation here: youtu.be/uc_ItEO_u44 Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 032
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 10/03/2026Learn more about #LongCOVID and sensory and vestibular function here: youtu.be/MudJxq4EP68 Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 052
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 09/03/2026Learn more about #LongCOVID and pediatric health here: youtu.be/nGbW2Dovfz8 Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 022
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 08/03/2026Learn more about #LongCOVID and workforce impact here: youtu.be/sLNgtYN0xLM Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 063
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 08/03/2026Have you prepared your posters for the #LongCOVIDAwareness Week Social Media #WeekofAction?! Join us globally across social media with daily themes starting on #LongCOVIDAwarenessDay March 15th! All directions and posters can be found at longhauler-advocacy.org/lcamonth2026 032
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 07/03/2026Learn more about #LongCOVID and workforce impact here: youtu.be/sLNgtYN0xLM Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 053
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 06/03/2026Learn more about #LongCOVID and disability here: youtu.be/XolmYZ_gom4 Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 042
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 05/03/2026Learn more about #LongCOVID and the hematologic system here: youtu.be/DdYPvgdz-4o Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 054
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 04/03/2026Week One of #LongCOVIDAwareness Month is Underway! See What's Been Happening & Learn How to Participate. www.longhauler-advocacy.org/so/99Pow1lxG... #LongCOVID #OneInfectionAway 085
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 04/03/2026Learn more about #LongCOVID and vaccine injury: understanding the difference here: youtu.be/SxbtQuKHyxA Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 062
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 03/03/2026Learn more about #LongCOVID and the nervous system here: youtu.be/9sRQ4qhOn_o Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 066
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 02/03/2026Learn more about #LongCOVID and the immune & lymphatic system here: youtu.be/KhazJ6UOW5Y Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 0103
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 02/03/2026March is #LongCOVIDAwareness Month — and we’re asking you to help power the patient-led work that makes every other part of the Long COVID response possible. Start your Team or Individual Zeffy Campaign or Donate Here: www.zeffy.com/en-US/peer-t... (Tutorial here: youtu.be/SNLyeA-jUoE) 175
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 01/03/2026Learn more about #LongCOVID and the cardiovascular system here: youtu.be/R2JXyh5Vf1E Be sure to visit www.longhauler-advocacy.org/lcamont… to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway 185
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 01/03/2026Our newly launched #LongCOVIDAwareness month page is filled with everything you need to take action and spread the word this #LongCOVIDAwareness Month. Watch our tutorial here: www.youtube.com/watch?v=t48DSF7BCjQ Head to www.longhauler-advocacy.org/lcamont… to get started. 11310
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 28/02/2026Our #LongCOVIDAwareness Month website is launching tomorrow with a full calendar of events, coordinated actions, ready-to-use resources, shareable materials, and meaningful opportunities to raise awareness, drive education, and push for real change for #LongCOVID. 0133
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 23/02/2026THIS IS WHY WE NEED CONSTITUENT OUTREACH. This is a response from one of the nearly 1,000 letters we sent out earlier this month. We are looking for urgent assistance from an Alaskan constituent (or multiple) who we can add on to communications to get a Long COVID Awareness proclamation in Alaska. 185
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 21/02/2026Get this years profile frame at www.longcovidawareness.life —> scroll to mid page. Upload your image (you may need to crop it prior to upload), hit download, and then choose a new profile picture across your socials using this frame! We are asking everyone to please move to this frame this year. 023
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 07/02/2026The Work for #LongCOVIDAwareness Month Begins Now! March is #LongCOVIDAwareness Month and what we build in February shapes what’s possible in March. bit.ly/LCA26PGE 🧵 1/ 2135
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 02/02/2026Today our #LongCOVIDAwareness letters are on their way out to every US senator, representative, & governor, the president, each states department of health, federal health agencies, public health associations/ medical societies, HHS, & major national and state-based media. YOUR UP NEXT! #LongCOVID 091
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 08/12/2025This #campaign is about building a nationwide public health infrastructure for #LongCOVID, something no federal agency has delivered. Your gift accelerates state-level systems, clinician education, and national leadership. #Donate this #GivingTuesday. Support #SystemsChange: bit.ly/FR4LC26 032
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 07/12/2025C19LAP will honor our top 5 fundraisers w/ 100 3M N95 masks, a #LongCOVID Awareness shirt & wristband. Donate or create a campaign to help C19LAP’s continuity, expansion, & success here: bit.ly/FR4LC26 #GivingTuesday #GivingSeason 011
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 07/12/2025This movement rises when the community rises. Your donation, fundraiser, or major gift strengthens the national #LongCOVID response. From the start of the pandemic, Long COVID patients have not only risen to the occasion but led the work. bit.ly/FR4LC26 #GivingTuesday #GivingSeason 031
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 07/12/2025C19LAP drives Long COVID legislation and work nationwide, bringing forward the lived experiences of our community to develop the needed solutions. Your contribution fuels this work: bit.ly/FR4LC26 #LongCOVID #GivingTuesday #PublicHealthMatters #GigingSeason 032
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 06/12/2025C19LAP plays a central role in national public health education, providing guidance to medical specialty societies, clinicians, researchers, medical students, & state and local health departments. Help support our work: bit.ly/FR4LC26 #LongCOVID #GivingTuesday #GivingSeason 032