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Ben Hughes

@benbo2013.bsky.social
109 followers 235 following 9 posts

Husband, Dad, and academic #PhD in #advancecareplanning. Interested in #social engagement, #social history, #socialjustice, #cake, #death, and #crime marginalised groups and giving people a voice. Moved from Twitter

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Ben Hughes @benbo2013.bsky.social · 12/08/2026
I’m pleased to announce my article, Secondary Infertility: A Personal Story of Loss and Grief, has been published in the latest issue of The Beryl Institute’s Patient Experience Journal. View my article here: pxjournal.org/journal/vol1... #PatientExperience #HealthcareResearch #PXJ #infertility
pxjournal.org
Secondary Infertility: A Personal Story of Loss and Grief
An increasing number of people worldwide are experiencing fertility and this trend is reflected in the data from the United Kingdom. However, most research focuses on the experiences of women and so t...
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Peter Stefanovic @peterstefanovic.bsky.social · 30/04/2026
Southern Water has admitted further sewage pollution discharges in Kent, some of which took place weeks after it was handed a record £90m penalty for illegal dumping www.bbc.co.uk/news/article...
bbc.co.uk
Southern Water illegally dumped sewage after record £90m fine
The company pleaded guilty in court to five offences of sewage discharge between 2019 and 2021.
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Niamh NicGhabhann Coleman @niamhroisin.bsky.social · 15/01/2026
Hello! I am sharing information about my @researchireland.ie project Locating Loss: histories of infertility in landscapes and spaces. I would love to connect with researchers/ practitioners from a wide range of backgrounds and disciplines, so please share widely! Sharing again for morning Bluesky!
Sheet of information on the locating loss project which aims to explore histories of infertility through landscapes and spaces. Please Dm me for more info if needed!
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The King's Fund @thekingsfund.bsky.social · 28/11/2025
A recent US study showed one simple intervention - giving 1700 people $400 a month to spend on what they wished - resulted in 27% fewer visits to emergency services. Julia Cream explores whether this could work in the UK and places where similar ideas are being tested. bit.ly/3M6v2qI
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Dr Rachel Clarke @drrachelclarke.com · 10/11/2025
"We would never tolerate a government that chose to defund 70% of neonatal services, gambling that charities would fill the gap. Yet this is exactly the situation for end-of-life care." Please read my piece on the travesty of NHS palliative care underfunding 🙏 www.theguardian.com/commentisfre...
theguardian.com
As a palliative care specialist, I’ve witnessed the human tragedy of our end-of-life care crisis | Rachel Clarke
While the government debates assisted dying, palliative care is an afterthought. And many more people face death without the care and support they need, says Rachel Clarke
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NationCymru @nation.cymru · 10/11/2025
A 75-year-old man from Gower has regained his mobility after taking part in a pioneering trial using wearable technology to help people with Parkinson’s walk more easily
wp.me
Parkinson’s patient regains confidence to walk again thanks to innovative treatment
A 75-year-old man from Gower has regained his mobility after taking part in a pioneering trial using wearable technology to help people with Parkinson’s walk more easily. Malcolm Sims, from Kittle, is...
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Hospice UK @hospiceuk.bsky.social · 09/10/2025
Hospices are on the brink. Surging costs have led to many services being cut back – just as demand is rising, fast, because of our ageing population. The situation is not sustainable – and time is running out. [1/2]
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Resolution Foundation @resolutionfoundation.org · 12/09/2025
Having a disabled person and a carer in the family is associated with a £3,300 hit to household income. This rises to £7,600 if disability benefits are excluded. Read more ➡️ buff.ly/u26GnmA
Chart showing annual difference in equivalised household income compared to families with neither a disabled person nor a carer, after controlling for selected demographic and family characteristics. 

The chart shows that having a disabled person and a carer in the family is associated with a £3,300 hit to household income. This rises to £7,600 if disability benefits are excluded.
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Prof Katherine Sleeman @katherinesleeman.bsky.social · 04/09/2025
🚨Calling UK health and care practitioners! Please help us shape the work of the new Impact Centre for palliative and end-of-life care. Survey takes 15 mins to complete. We especially want to hear from people from Wales, Scotland and Northern Ireland 🙏 Survey 👇
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Dr Danny Penman @drdannypenman.bsky.social · 23/08/2025
Is Awe Our Most Under-Rated And Powerful Emotion?
franticworld.com
Is Awe Our Most Under-Rated And Powerful Emotion? - Mindfulness: Finding Peace in a Frantic World
Awe calms the mind and soothes the spirit. It defuses anxiety, stress, and unhappiness, while also inspiring curiosity and enhancing creativity. And yet, it is being snuffed out by our increasingly homogenised...
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The Green Party of England & Wales @greenparty.org.uk · 10/07/2025
🤬 Thames Water has paid nearly £2.5m in bonuses to senior managers from an emergency loan that was supposed to be used to help keep the failing company afloat. 💸 No more evidence is needed. Privatised water is a scam. 🤝 Water needs to be brought back into public hands.
REAL HOPE. REAL CHANGE.
PRIVATISED WATER IS A SCAM
Green Party
Promoted by Chris Williams on behalf of The Green Party, both at PO Box 78066, London SE16 9GQ
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Ben Hughes @benbo2013.bsky.social · 11/05/2025
Please donate to help a worthy cause, to carry on bringing music into the lives of those living with #dementia, no matter how big or small, every little helps www.justgiving.com/page/lucy-ke...
justgiving.com
Lucy's fundraiser for Music for my Mind
Help Lucy Kerry raise money to support Music for my Mind
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Joseph Rowntree Foundation @jrf-uk.bsky.social · 11/03/2025
The government is reportedly planning at least £6 billion a year in cuts to benefits for people with a disability or long-term health condition. These cuts risk pushing people already experiencing hardship and ill health even closer to the brink. 🔽 1/2
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Ben Hughes @benbo2013.bsky.social · 01/03/2025
Why can't the UK do this? @carolinelucas.bsky.social @greenpeaceuk.bsky.social
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Resolution Foundation @resolutionfoundation.org · 26/02/2025
Why tackle child poverty now? asks @mikebrewerecon.bsky.social Britain is a rich country that can afford to defend itself and ensure children dont grow up in poverty. If we can't defend ourselves we won't be rich for much longer, and if we can't support our children what's the point of being rich?
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The Dementia League @dementialeague.bsky.social · 07/01/2025
By 2050, the global cost of dementia is projected to be $1.6 trillion. To lift that many bills into geosynchronous orbit, it would take 192,771 @SpaceX Falcon 9 launches. With #Starship? -- 76,190 launches . 🚀 The financial toll will be astronomical—and it falls on families. Repost 💜
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Ben Hughes @benbo2013.bsky.social · 01/01/2025
Have you ever known the confusion and fear from potential drink spiking? You are not alone. Here's an article outlining one young man's experience www.emerald.com/insight/cont... #drinkspiking #BritishLaw
emerald.com
Drink spiking? A case study of a university student and the impact of uncertainty and personal safety when drinking alcohol on THAT Friday night | Emerald Insight
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The Dementia League @dementialeague.bsky.social · 13/12/2024
Can we get 50 reposts? Our Mission: (1) to communicate dementia risk lowering findings to the public and (2) to support researchers. Our posts will be of interest to anyone who wants good brain and body health, and would like to live a long and healthy life. Follow us today!
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Prem Sikka @premnsikka.bsky.social · 11/12/2024
Shocking 14% rise in homelessness in England. 354,000 people homeless, includes 161,500 children - equivalent to city the size of Coventry. Result of austerity, real wage/benefit cuts, unchecked profiteering. Govts make slogans do nothing to end inequities. www.theguardian.com/society/2024...
theguardian.com
Shelter condemns ‘shocking’ 14% rise in homelessness across England
Charity says soaring private rents, rising evictions and lack of affordable social housing are to blame
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Ben Hughes @benbo2013.bsky.social · 06/12/2024
There's still time to take part in our study and share you're experiences of a pet dying. If you live in the UK, are aged 12 or over, and have ever had any pet that has died, we’d love to hear from you: forms.gle/qvcPFx9ek6XhBf… #pet #coping #petdeath #grief #love #loss #GriefAwarenesssWeek
forms.gle
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Dr Rachel Clarke @drrachelclarke.com · 30/11/2024
My direct appeal to @rthonwesstreeting.bsky.social & Keir_Starmer in the light of yesterday's vote on AD. If they sincerely care about dying people, surely now they will publicly & urgently commit to properly funding our threadbare, neglected palliative care? www.theguardian.com/society/2024...
theguardian.com
Good palliative care can alleviate the pain of dying – this bill means Labour must fund it | Rachel Clarke
Making dying easier is not the solution when NHS, social and palliative care are simply not there for patients
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Ben Hughes @benbo2013.bsky.social · 23/11/2024
We've had an amazing response to our pet bereavement study and there's still time to take part. If you live in the UK and are aged 12 or over, we’d love to hear your experiences about any pet you’ve had which has died: forms.gle/qvcPFx9ek6XhBf… #pet #coping #petdeath #grief #love #loss
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