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Ian Kremer @wolverinebear.bsky.social · 18/02/2025

This is not cutting "waste, fraud, and abuse." Pure and simple, this is undermining the science necessary to deliver better means of preventing, diagnosing, treating, and eventually curing diseases like #Alzheimers, #cancer, #diabetes, #stroke, #glaucoma, etc. #dementia #mentalhealth #NIH #science

healthday.com

NIH Research Funding Drops $1B Under Trump Administration

TUESDAY, Feb. 18, 2025 (HealthDay News) -- Federal funding for medical research has dropped by roughly $1 billion this year, raising alarm among universities, m

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Being Patient 🧠🧬✍️ @beingpatient.bsky.social · 20/02/2025

If you've left the #NIH, @spichaksimon.bsky.social wants to hear from you for our reporting on the impacts of gutting U.S. #Alzheimer's / #dementia / #brainhealth infrastructure. Reach him securely on Signal at simonspichak.64

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Being Patient 🧠🧬✍️ @beingpatient.bsky.social · 20/02/2025

Scientists autopsied the brains of 28 people in New Mexico and saw surging rates of plastic are making their way into brain tissue. Especially as the U.S. govt downsizes the EPA and decreases environmental regulation, what does this mean for cognitive health? www.beingpatient.com/rising-micro...

beingpatient.com

Rising Microplastic Levels in the Brain: A Growing Concern

A new study published in Nature revealed a dramatic surge in micro and nanoplastics in the brain, fueling growing questions about their effects on cognitive health.

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Reposted by Being Patient 🧠🧬✍️

Dave Levitan @davelevitan.bsky.social · 19/02/2025

The head of the Autism, ADHD, and Externalizing Disorders Interventions Research Program at the National Institute of Mental Health was fired over the weekend, 21 days shy of the end of her one year probationary period. She posted about it on fb.

This-despite a stellar performance review weeks ago.
This-despite receiving an NIMH Director's Award.
This-despite being recruited SPECIFICALLY for my subject matter expertise in autism and neurodevelopmental disabilities, clinical trials, and community-based effectiveness research.

After two decades in academic research and advocacy, I was hired to help develop ways to get low-cost, evidence-based mental health care into schools and community settings-so ALL kids could access specialized treatment, not just those with private insurance or parents who could take time off work.

I didn't take the move to NIMH lightly-I went because I believed in shaping the future of autism and mental health research, impacting policy, and ensuring that science actually reaches the communities that need it most. And I LOVED my job. I found that same community in my division.

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Reposted by Being Patient 🧠🧬✍️

Greg Sargent @gregsargent.bsky.social · 19/02/2025

Scoop --> Trump-Musk cuts just resulted in the firing of numerous top researchers at NIH's center for combating Alzheimer's, sources tell me. They predict big setbacks to fighting dementias. This cause was once championed by *Republicans.* Details here: newrepublic.com/article/1917...

newrepublic.com

Oops: Trump-Musk Cuts Just Wrecked an NIH Org Championed by GOPers

Republicans once lavished praise on an NIH center that deals with Alzheimer’s. Donald Trump and Elon Musk are hobbling it. What will they say now?

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Reposted by Being Patient 🧠🧬✍️

Ian Kremer @wolverinebear.bsky.social · 30/01/2025

Studying a diverse population ensures that scientists get the complete picture of how a disease works and that diagnostic tools and treatments will work for everyone — not just a selective subset of the population that doesn’t accurately represent the larger group. #healthequity #science #NIH

beingpatient.com

‘Unsettling:’ Federal DEI Ban a ‘Step Backward’ for Alzheimer’s Trials

A Trump executive order has banned DEI initiatives across the federal government. Experts say the ban could cripple trial diversity and derail the quest for Alzheimer’s treatments.

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Being Patient 🧠🧬✍️ @beingpatient.bsky.social · 29/01/2025

How — in the midst of the Trump Administration's freeze on comms and other work across Health and Human Services departments — did news of an FDA Alzheimer's drug approval break through? @spichaksimon.bsky.social with the story about #Leqembi's dosage update: www.beingpatient.com/fda-alzheime...

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Being Patient 🧠🧬✍️ @beingpatient.bsky.social · 29/01/2025

“If anything about dementia is treatable, it’s these behavioral and psychological symptoms.” A Tufts psychiatrist explains the science behind dementia's behavioral symptoms. www.beingpatient.com/dementias-be...

beingpatient.com

Dementia’s Behavioral Changes: A Psychiatrist Explains

Why does dementia have behavioral and psychiatric symptoms — and what’s the best treatment? Tufts University’s Dr. Brent P. Forester explains science and care.

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Being Patient 🧠🧬✍️ @beingpatient.bsky.social · 26/01/2025

Trump ordered stoppages on comms, grant applications, & more at the U.S. agencies that oversee medical research & drug regulation. @spichaksimon.bsky.social asked scientists — Is this normal?? And what could it mean for #Alzheimers research? #dei #nih #fda www.beingpatient.com/nih-grinds-t...

beingpatient.com

NIH Activities Grind to Halt Under Trump Comms Freeze

The Trump administration locks down the U.S. NIH, interrupting medical research and drug development. Scientists sound the alarms.

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Reposted by Being Patient 🧠🧬✍️

Simon Spichak @spichaksimon.bsky.social · 16/01/2025

My coverage of advance requests for MAiD. Health Canada kicked off a public consultation in response to Quebec allowing for these requests in contravention of current federal law.

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Reposted by Being Patient 🧠🧬✍️

Simon Spichak @spichaksimon.bsky.social · 20/01/2025

Axsome is planning to file for approval of its Alzheimer's agitation drug. But experts say the drug doesn't actually work. My latest for Being Patient with comment from @ewidera.bsky.social and @profrobhoward.bsky.social www.beingpatient.com/axsome-agita...

beingpatient.com

Axsome Asks FDA to Approve Questionable Alzheimer’s Agitation Drug

Axsome will file for FDA approval their Alzheimer's agitation drug later this year. Outside experts question the drug's efficacy.

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Being Patient 🧠🧬✍️ @beingpatient.bsky.social · 26/01/2025

In recent #Alzheimers #antiamyloid drug trials, drugmakers were accused of knowing which volunteers had a higher risk of ARIA (brain bleeds). Here's why the companies didn't disclose that risk—and whether they did the right thing. By @spichaksimon.bsky.social www.beingpatient.com/alzheimers-t...

beingpatient.com

Some Trial Volunteers Had Higher Risk of Brain Bleeds. Here's Why Drugmakers Didn't Tell Them

Drugmakers knew which clinical trial volunteers had a higher risk of brain bleeds. Here's why they didn't warn them.

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Being Patient 🧠🧬✍️ @beingpatient.bsky.social · 26/01/2025

Hey, everybody. Good to see you here.👋 If we haven't met: beingpatient.com is a hub where people—scientists, doctors, patients, caregivers, anyone interested in brain health—come to: • ✍️💻get trusted #Alzheimers/ #dementia/ #brainhealth news • 🧠🧬 learn the latest science • 🤝connect with each other.

beingpatient.com

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