iiinova — where your digital self keeps evolving

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George Monbiot @georgemonbiot.bsky.social · 24/09/2026

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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AMooney @amymooney.bsky.social · 23/08/2026

On August’s bhc Coffee w/ Clinician, we discussed topics related 2 severe ME.Honored to be part of this important conversation. full discussion: youtu.be/HlfbfyRl3K8?... For my remarks specifically, you can find me at approximately the 19-minute and 48-minute marks.

youtu.be

Special Edition: "Coffee" with a Clinician in recognition of Severe ME/CFS Awareness Month

YouTube video by Bateman Horne Center

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Bateman Horne Center @batemanhornecenter.bsky.social · 21/08/2026

@amymooney.bsky.social, OT, discusses why care for severe ME/CFS should protect rest, create stability, and be built around what the patient’s body can tolerate. Watch the full conversation: youtu.be/HlfbfyRl3K8 #SevereME #MECFS

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Acyn @acyn.bsky.social · 09/05/2026

AOC on possibly running for the Senate or President: They assume my ambition is a title or a seat. My ambition is way bigger than that. My ambition is to change this country. Presidents come and go, elected officials come and go, single payer healthcare is forever.

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AMooney @amymooney.bsky.social · 29/04/2026

Just released: recording from the Long COVID & Fatiguing Illness Recovery ECHO (April 9, 2026) I had the opportunity to present: Post-Exertional Malaise: Recognizing the Crash After Activity Understanding PEM is essential for safe, effective care. youtu.be/aWEHZJTgrqw?...

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AMooney @amymooney.bsky.social · 23/04/2026

Patient-centered, PEM-informed care isn’t optional… it’s essential. “What struck us most was the consistency with which people with ME/CFS were described as having been dismissed or misheard by systems intended to help them.”

optional.xn--its-so0a

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Nature Portfolio @natureportfolio.nature.com · 14/04/2026

A study in Communications Medicine finds that Long COVID’s disability burden rivals that of Alzheimer’s and asthma in the US, but Long COVID receives 14% of its years lived with disability-proportionate funding from the National Institutes of Health. go.nature.com/4v23Nzv #medsky 🧪

This is figure 1, which shows Long COVID Disease Burden vs. Other Conditions, by Sex Predominance.

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#MEAction Network @meactnet.bsky.social · 15/03/2026

To honor #LongCOVIDAwarenessDay, #MEAction Network, Solve M.E., Bateman Horne Center & Open Medicine Foundation (OMF) once again joined forces as #UnitedForME. We gathered a set of resources from our orgs to inform & empower:https://bit.ly/3Na4mX4 #LongCOVID #pwME

Teal and gray ribbon symbolizing Long COVID awareness with logos of Bateman Horne Center, Solve M.E., OMF, and #MEAction above text : "Together, we're highlighting Long COVID resources! Long COVID Awareness Day"

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Rachel Bitecofer @rachelbitecofer.bsky.social · 23/02/2026

BREAKING Former ICE agent: On my first day training new cadets, I received secretive orders to teach them to violate the Constitution by entering homes without a judicial warrant.

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Bruce Springsteen @brucespringsteen.net · 28/01/2026

I wrote this song on Saturday, recorded it yesterday and released it to you today in response to the state terror being visited on the city of Minneapolis. It’s dedicated to the people of Minneapolis, our innocent immigrant neighbors and in memory of Alex Pretti and Renee Good. Stay free

youtu.be

Bruce Springsteen - Streets Of Minneapolis (Official Audio)

YouTube video by Bruce Springsteen

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Barack Obama @barackobama.bsky.social · 25/01/2026

The killing of Alex Pretti is a heartbreaking tragedy. It should also be a wake-up call to every American, regardless of party, that many of our core values as a nation are increasingly under assault.

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Billy Hanlon @bhanlon15.bsky.social · 24/01/2026

CW - Alex Jeffrey Pretti, an American citizen, was directing traffic and helping a woman who was pushed 37-year-old white man, no serious criminal history Observing with a cell phone He had a legal gun permit Worked for the VA He was murdered by ICE www.reddit.com/r/PublicFrea...

reddit.com

From the PublicFreakout community on Reddit: Another angle of the Minneapolis shooting, taken from the perspective of the lady with te pink jacket.

Explore this post and more from the PublicFreakout community

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Putrino Lab @putrinolab.bsky.social · 29/12/2025

Respectfully Jon Stewart, you were wrong on the @weeklyshowpodcast.bsky.social to mock people who mask. ICYMI: there are tens of millions of Americans who have been disabled by #LongCOVID and must do everything in their power to prevent further infections that make them vulnerable to further 1/

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AMooney @amymooney.bsky.social · 05/11/2025

I’m thrilled to share my recent interview on the Make Visible podcast, episode #23! I hope you’ll take a moment to listen. #LongCovid #MyalgicEncephalomyelitis #MECFS #OccupationalTherapy open.spotify.com/episode/5C5h...

open.spotify.com

#23 Improving quality of life - managing P.E.M. and moving towards stability with O.T. Amy Mooney

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PoliticsGirl @politicsgirl.bsky.social · 27/10/2025

People will die if we don’t fix this. This is what the Democrats are holding out for… youtube.com/shorts/eoNPs...

youtube.com

Are Your PREMIUMS going UP?

YouTube video by PoliticsGirl

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Zohran Kwame Mamdani @zohrankmamdani.bsky.social · 26/10/2025

As Toni Morrison said, "the very serious function of racism is distraction. It keeps you from doing your work." But she also reminded us never to lose our capacity to be shocked. Part of my conversation on @ayman.msnbc.com earlier today.

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The Daily Show @thedailyshow.com · 23/10/2025

Mike Johnson doesn't know sh*t

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Jacob Soboroff @jacobsoboroff.bsky.social · 15/10/2025

here’s more context to the videos DHS is putting out from Chicago.

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Congresswoman Madeleine Dean @repdean.bsky.social · 02/10/2025

We are two days into a government shutdown — House Republicans are nowhere in sight. Why are they hiding?

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AMooney @amymooney.bsky.social · 13/06/2025

Proud to stand w Bateman Horne Center to raise awareness & support for those with ME/CFS & other infection-associated chronic conditions. With Thalia’s leadership, vision & dedication, BHC is entering a new chapter,advancing advocacy & compassionate care for this community. Please donate to support.

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AMooney @amymooney.bsky.social · 05/06/2025

www.awarenessforpotsies.org/conference

Photo of presentation title page on blue and yellow graphics. A4P holding onto Hope: a brighter tomorrow conference
Saturday, June 7, 2025, 2:40 PM to 3:20 PM eastern standard time
Amy Mooney presents: Pacing for post exertional malaise (PEM)

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Bateman Horne Center @batemanhornecenter.bsky.social · 22/05/2025

How do you pace when daily tasks like showering trigger PEM? This MERC video breaks it down—ADL tips, energy buckets, OT vs PT & more. Watch Now: loom.ly/VeNUq7w 💙 Donate: loom.ly/KiU4n_4 @openmedf.bsky.social #MERC #MECFS #PEM #Pacing #LongCOVID

loom.ly

Staying within Your Energy Envelope by Modifying Tasks

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

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Bateman Horne Center @batemanhornecenter.bsky.social · 15/05/2025

Exciting news: BHC & @emergeaustralia.bsky.social are collaborating to expand access to self-paced, patient-centered education for people with #MECFS, #LongCOVID & #IACCs. These tools help individuals better understand their experience with PEM, OI, and more. Available: loom.ly/TUT-cLw%22

Promotional image for Education Modules for ME/CFS, with the headline 'Education MODULES' in bold, followed by 'ME/CFS AT YOUR PACE'. The image highlights that the modules are developed by clinicians and people with lived experience, designed to be accessible, self-directed, and grounded in lived experience. A person is shown typing on a laptop. The text 'Support that meets you where you are' is featured at the bottom, with the Bateman Horne Center and Emerge Australia logos displayed.

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AMooney @amymooney.bsky.social · 09/05/2025

Honored to join a dedicated team of clinicians, researchers, and individuals with lived experience to create the Clinical Care Guide: Managing ME/CFS, Long COVID & IACCs. A joint project of @batemanhornecenter and @OpenMedF’s MERC program. Access it now! batemanhornecenter.org/clinical-car...

batemanhornecenter.org

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AMooney @amymooney.bsky.social · 12/04/2025

A powerful collection of artwork by talented artists living with severe ME/CFS, expressing their experiences through their art. www.aquietstorm.me

aquietstorm.me

a quiet storm - an online gallery

An online art gallery showcasing the artwork of people living with severe ME/CFS

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AMooney @amymooney.bsky.social · 22/03/2025

Honored 2 chat w Dr. Zeest Khan on her podcast! 🎙️ We explored how #OT uses sensory integration techniques 2 support individuals living w #MECFS & #LongCOVID. Grateful 4 the opportunity 2 share insight! #PEM #pwME #pwME #SItherapy podcasts.apple.com/us/podcast/l... open.substack.com/pub/longcovi...

open.substack.com

Long COVID Can Disrupt Sensory Integration, But What Does That Mean?

Insights from Occupational Therapist Amy Mooney

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Nikki McCann Ramírez @nikkimcr.bsky.social · 20/03/2025

Jessica: When I hear Republicans out there talking about their plan for education in America, I don't hear them talking about making sure disabled kids have access to a public education. Greg: Because we're against it.

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AMooney @amymooney.bsky.social · 19/03/2025

It’s not about trimming fat- this is ripping the guts out. People with #MECFS and #LongCOVID will suffer and research pushed back to the dark ages. A new dark age for science has begun.

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Sen. Adam Schiff @schiff.senate.gov · 14/03/2025

I'm not going to sugarcoat it. Today was a bad day for our country – and for the Democratic Party. Let's talk about it. open.substack.com/pub/schiffno...

open.substack.com

A Dark Day for Our Country

I'm not going to sugarcoat it. Today was a bad day for our country – and for the Democratic Party.

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Alexandria Ocasio-Cortez @aoc.bsky.social · 13/03/2025

CALLS ARE WORKING - it has bought us precious time, but we NEED to keep the pressure up. Tomorrow is the cloture vote. KEEP CALLING: (202) 224-3121 ☎️☎️☎️ Tell your Dem Senator to vote NO on Cloture and NO on the Republican spending bill. Do NOT assume your Senator will be good on this. Trust me.

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Rachel Maddow @maddow.bsky.social · 12/03/2025

from senator @chrismurphyct.bsky.social chris murphy's recent floor speech, via @davidcorn.bsky.social ... link.motherjones.com/public/38940...

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AMooney @amymooney.bsky.social · 18/02/2025

"History is not there for you to like or dislike. It is there for you to learn from it. And if it offends you, even better. Because then you are less likely to repeat it. It's not yours for you to erase or destroy." —from a poem by Claude McKay

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Zez Vaz @zezvaz.bsky.social · 14/02/2025

‘Cybertruck Man’ a cartoon in defiance of Musk #political #cartoonist #cybertruck #elon #musk #democracy #tiananmen

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Jon Cooper @joncooper-us.bsky.social · 11/02/2025

Elon Musk to reporter: “We post our actions to the DOGE website. All of our actions are maximally transparent. I don’t know of a case where an organization has been more transparent than the DOGE organization.” Here’s the doge.gov website IN ITS ENTIRETY. It’s literally a blank page!

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Hanna Jo @hannajow.bsky.social · 07/02/2025

📣📣📣

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J. Offir, PhD @joffirphd.bsky.social · 05/02/2025

Roughly 10,000 employees - and those posted overseas have 30 days to get themselves & their families back to the US. What Trump has done to USAID isn't legal. Impeach. Raskin's already suggested it. Trump Appointees Put Almost All U.S.A.I.D. Workers on Leave www.nytimes.com/2025/02/04/u...

nytimes.com

Trump Officials to Put Almost All U.S.A.I.D. Workers on Leave

A notice posted on the agency’s website, which had gone dark over the weekend, said that nearly all of its global work force would be put on administrative leave by Friday.

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Putrino Lab @putrinolab.bsky.social · 03/02/2025

up in tiny little fists at your sides with the rage of a thousand incels as you witness me not caring about your voice AT ALL. Scientists and healthcare workers: Be brave. Be bold. Stand up for the people you serve. Haters: See you in hell 😘 end/

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Hanna Jo @hannajow.bsky.social · 04/02/2025

“As long as Musk has this access, he can retrieve people’s sensitive personal information. Social security numbers. Bank account numbers. Tax returns. Musk now has the power to extract that information for his own use, to boost his finances or strengthen his political power.” ~ Sen. Warren #ffotus

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