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Princess in the Tower @apainprincess.bsky.social · 9h

“No one took me seriously when I was in pain in my early 20s… I’d push through every week and then collapse—unable to move… #ChronicPain is so debilitating… Pain dictates when I wash my hair, whether I eat… whether I can even get out of bed.” buff.ly/jYUWWQn #InvisibleIllness #spoonie

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Princess in the Tower @apainprincess.bsky.social · 16h

“#ChronicIllness is unpredictable. One day you’ll be thinking, “I can handle it” then bam. The next…find yourself bed-bound as the weeks fly by, wondering if it will ever let up… Now… I give myself #compassion — I am doing my absolute best — and that is OK.” buff.ly/2yHONMo #ChronicPain

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Princess in the Tower @apainprincess.bsky.social · 09/10/2026

“Those who are not able to work due to #ChronicIllness are not on vacation. They are instead, struggling every day to do simple tasks: getting out of bed, getting dressed, making a meal, bathing… They are often too sick to leave their homes.” buff.ly/3zwBYrd #ChronicPain #Disability

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Princess in the Tower @apainprincess.bsky.social · 08/10/2026

“The other unfortunate side effect of being #paingry is that is leads to #painsomnia… Many of us have nights like this and don’t say a word… It is 3 a.m, I’m awake and I’m in pain…the absurd thing is I am exhausted. I want to sleep.” cme.sh/7RmPj0 #ChronicPain

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Princess in the Tower @apainprincess.bsky.social · 08/10/2026

“I have the motivation and determination to achieve awesome things; but I’m trapped in a body that will not allow me to physically manage them… I know many people with #chronicillness will relate to this, and I just wanted to say #YouAreNotAlone .” buff.ly/3qN6BEm

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Princess in the Tower @apainprincess.bsky.social · 07/10/2026

“Being in pain 24/7 not only affects you physically, it also affects you emotionally and mentally… It’s hard to live with #ChronicPain, but it’s also hard to see someone you love in pain.” 7 Things We Should Know About Chronic Pain buff.ly/RRg8qFM #NeurologicalLyme #CRPS #InvisibleIllness

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Rhiann Johns @serenebutterfly.bsky.social · 02/10/2026

Thank you so much @apainprincess.bsky.social for taking the time to share my blog post on the lessons I’ve learned about living with #ChronicIllness and #ChronicPain whilst at sea #cruising. It’s much appreciated! 🫶

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sanjiv sona @sanjiv85.bsky.social · 09/08/2026

What a deeply profound and eye-opening reminder of the silent battles so many bravely fight every single day. 💜 Sending endless grace, understanding, and gentle love to everyone navigating an invisible journey! 🌸✨

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Ikkle Gemz Universe @ikklegemz.net · 03/10/2026

This.

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Carrie Marshall - MySeveralWorlds.com @myseveralworlds.com · 11/09/2026

I smile through the pain…nausea…exhaustion…I have really bad days and those far outnumber the good. They can be absolutely awful… I’d give anything for a cure but since that’s not reality now—I play the hand I was dealt.” 🔗 buff.ly/3vPhveX #CRPS via @apainprincess.bsky.social #PAM2026

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The Lessons I've Learned From CRPS That I Don't Regret

"Surprisingly, there are upsides to invisible illnesses."

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She Ella Elle 她 بنت @crycepaul.bsky.social · 25/09/2026

Preach!!

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Ikkle Gemz Universe @ikklegemz.net · 25/09/2026

This...

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A Chronic Voice @achronicvoice.com · 09/09/2026

"Many who live w severe & painful conditions can only manage 1 ‘big’ activity a day, especially if it involves leaving the house. If that day has a #medical visit..everything pivots on that single activity.”: buff.ly/63O3pEl by @apainprincess.bsky.social #ChronicPain #disability #ChronicIllness

princessinthetower.org

But You Look Good: Living with Disbelief of Invisible Illness and Pain

Each time we are told that we 'look good' or 'look well' by people who have little concept of even the lengths we have gone to just to connect with them at all, it carries with it

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FourQ ♿ 🇵🇸🏳️‍🌈✊🏿🏳️‍⚧️ @fourq.bsky.social · 30/07/2026

Not just due to pain directly either. Pain wears you out, certainly CRPS does. Sometimes it's the lack of energy, or recovery times because you did something everyday else take for granted. It's almost always the root of it but not knowing how much pain you'll be in tomorrow weighs a heavy toll too.

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Rhiann Johns @serenebutterfly.bsky.social · 23/08/2026

Thank you so much @apainprincess.bsky.social for taking the time to share my blog post on why I feel uncomfortable when people use the word #brave to describe me in relation to my life with #ChronicIllness and #ChronicPain. It’s much appreciated! 🫶

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Princess in the Tower @apainprincess.bsky.social · 07/10/2026

Sending you so much love, fellow pain princess, continued strength and unexpected bonus spoons too. I truly hope you are able to have those treatments. Gentle hugs 🫂🤍🥄

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Princess in the Tower @apainprincess.bsky.social · 07/10/2026

“I tend to put pressure on myself to ‘power through’ pain to prove that I am capable: But powering through pain can cause more harm than good, and it is okay to not ‘power through’!” Why Do I Pretend To Be Well? #ChronicPain #InvisibleIllness

cme.sh

Why Do I Pretend To Be Well?

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Princess in the Tower @apainprincess.bsky.social · 06/10/2026

“When people ask if I’m OK I always say yeah I’m fine when I’m far from fine. If I told the truth I don’t think people would understand and I hate feeling like I’m depressing people.” When Pain Is Your Normal buff.ly/3ILHwjc #chronicpain #chronicillness #disability

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Princess in the Tower @apainprincess.bsky.social · 06/10/2026

“Life with a health condition is unpredictable. Spoons are unpredictable too. When living with #chronicpain or a #chronicillness (including many #mentalhealth illnesses), people don’t always wake up with 12 spoons…sometimes even less.” buff.ly/kFyWFcZ @despitepain.bsky

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Princess in the Tower @apainprincess.bsky.social · 05/10/2026

“I’m exhausted. I wake up every morning with pain, and often my sleep has been fitful and interrupted. But it’s not just about lack of sleep but the sheer effort it takes to endure the #ChronicPain… I’m not being dramatic… I try hard to keep my head up.” buff.ly/Wn6Y3J5 #painsomnia #fatigue

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Princess in the Tower @apainprincess.bsky.social · 05/10/2026

“It’s so easy to feel alone…I know I am not…there are millions…fighting the same fight. Fighting to be heard, fighting to be understood, fighting to be believed… Lately, I have felt drawn to lighthouses… Beacons of light in the darkness.” cme.sh/7EFjk5 #ChronicIllness #ChronicPain #Spoonies

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Princess in the Tower @apainprincess.bsky.social · 03/10/2026

“I also feel sad, like I am trapped on a train and can only look through the window while my friends can hop off later and enjoy the landscape. And I will live on this train. I have no choice.” How Do You Do It? buff.ly/V63H5HV #ChronicPain #RareDisease #Disabilities

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Princess in the Tower @apainprincess.bsky.social · 03/10/2026

“Every #chronicillness and pain patient does not know, from day-to-day, how they are going to feel when they wake up, and each day has to be taken as it comes. In many cases, they don’t know from minute to minute.” buff.ly/4bPxABR #ChronicPain #Disabilities

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Princess in the Tower @apainprincess.bsky.social · 02/10/2026

“We aren’t looking for anyone to feel sorry for us… We aren’t faking or exaggerating our symptoms. We know we “look fine” on the outside—but if you could turn our inside out, you would see the true face of our condition.” buff.ly/43tvd45 #Fibromyalgia #ChronicIllness #ChronicPain

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Princess in the Tower @apainprincess.bsky.social · 02/10/2026

“With #ChronicIllness you’re in a state of constant guilt. We blame ourselves for the situation we find ourselves in. We didn’t ask to be sick yet we still feel guilty for being so… We put unnecessary pressure on ourselves…with guilt and shame mixed in.” buff.ly/43za2xs #ChronicPain

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Princess in the Tower @apainprincess.bsky.social · 01/10/2026

“I’m just so tired of being strong all the time. Of saying I’m fine, when really, I’m not. I’m tired, lonely, in #pain, and some days… just done. But to make someone else feel better, to not make others uncomfortable, I just say I’m fine.” buff.ly/0Lj3ejV #chronicillness

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Princess in the Tower @apainprincess.bsky.social · 01/10/2026

“It might appear they are lazy because they are up and functioning fine one day and in bed the next. This isn’t a personal choice, #ChronicPain goes up and down—the real challenge is to not overdo it on good days—then pay for it dearly the next.” buff.ly/3tZA2BD #InvisibleIllness

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Princess in the Tower @apainprincess.bsky.social · 30/09/2026

“Confined to my bed… #Pain and illness are insidious… You hurt, you’re sick; you can’t leave the house. #Anxiety develops. The claws of #depression come out… Hours pass; it could be minutes… feeling every microsecond in the small fibers of your body.” buff.ly/IFhazBV #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 30/09/2026

“There is still a part of me that wants to push through, to pretend I can manage what I had planned and refuse to let my symptoms dictate my day… The acceptance can feel like a loss. But it can also be an act of #kindness towards myself.” buff.ly/x6hwpg4 #PainAwarenessMonth #ChronicallyIll

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Princess in the Tower @apainprincess.bsky.social · 29/09/2026

“Never in my life did I think that taking a shower would actually be hard. It’s an exhausting activity that usually requires me to sit or lie down for a while afterward to recover.” Challenging Daily Decisions buff.ly/4d11C5j #PainAwarenessMonth #Disability #ChronicIllness

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Princess in the Tower @apainprincess.bsky.social · 29/09/2026

“People who see us ‘able’ to carry out activities are oblivious to the pain involved, aftermath or inability to repeat that activity. The swift flare from ‘normal’ pain to being entirely unable to speak can also be perplexing.” buff.ly/3XV4FYt #PainAwarenessMonth #CentralPain #NervePain

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Princess in the Tower @apainprincess.bsky.social · 28/09/2026

“We’re not being anti-social, we’ve probably just run out of spoons…our able bodied counterparts have an infinite number of spoons, a person with #disability does not. Every little action, movement or choice costs a spoon.” buff.ly/3ORzK9u #PainAwarenessMonth #InvisibleIllness #spoonies

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Princess in the Tower @apainprincess.bsky.social · 28/09/2026

“The myth that doctors “overprescribing” prescription pain pills…led to the overdose crisis… Data from CDC and NSDUH reveal no correlation between the volume of painkiller prescriptions and non-medical use or addiction to prescription painkillers.” buff.ly/3Vp8WT4 #cpp

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Princess in the Tower @apainprincess.bsky.social · 27/09/2026

“I spend everyday in excruciating pain…I’m sensitive to light and noise, simple tasks are hard… My short term memory is bad… #CRPS is a horrid disease… Don’t allow someone else to minimize your journey—every warrior is a warrior.” buff.ly/47Ed0CT #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 27/09/2026

“If you have someone in your life who struggles with an #invisibleillness just remember they probably do their best to look or act ‘normal’… Even simple things can set us back for the rest of the day… or sometimes even for weeks.” buff.ly/LXFELL3 #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 27/09/2026

“We never get to see people living with pain or #disability because—guess what? They can’t leave their houses. #PainFlare-ups can also be unpredictable. You might make plans and then have to say, ‘I’m sorry, but I can’t manage this today.’” buff.ly/bsuSn1A #chronicillness

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Princess in the Tower @apainprincess.bsky.social · 26/09/2026

“It’s not just pain. It’s being completely exhausted… It’s being nauseous and having no appetite… It’s spending most of my day in a dark, silent room because lights, sounds, even smells hurt. It’s not being able to think straight because of #brainfog.” buff.ly/3MQk1Xz #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 25/09/2026

“If you struggled to shower today; if you can’t get out of bed because the #pain is so bad…if you’re crying at 2am because you can’t handle the severity of your pain… know #YouAreNotAlone—We are all warriors, fighting battles nobody sees or understands.” buff.ly/41oeKLO

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Princess in the Tower @apainprincess.bsky.social · 25/09/2026

“Living with #ChronicPain isn’t just about living with pain. The #fatigue that pain brings is beyond comprehension. Then there’s the loneliness and hopelessness. Stress, #anxiety and #depression… It steals so much from us.” buff.ly/vFLiGfP #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 24/09/2026

“I wish people understood that I’m not lazy… And if I do participate in a physical activity I will ‘pay for it’ for days or possibly weeks with additional pain and/or exhaustion… When I say I can’t, I really can’t.” buff.ly/3N11Nnl #PainAwarenessMonth #ChronicIllness

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Princess in the Tower @apainprincess.bsky.social · 22/09/2026

“One day I am fully capable of a task while the next day I struggle with generally simple things like brushing my teeth or getting dressed… Your abilities change dramatically from one day to the next.” www.themuse.com/advice/working-livi… #ChronicIllness #Disabilities

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Princess in the Tower @apainprincess.bsky.social · 21/09/2026

“Those of us with #ChronicPain wake up every day with pain. This automatically causes a problem with the standard pain scale… Some of us never have a zero… People who don’t have chronic pain often have a hard time understanding that.” buff.ly/DV4J65r #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 20/09/2026

“Nobody can really “get” what any #chronicillness, pain condition or other #disability is like, how it feels or how it truly impacts life unless they’ve experienced it for themselves… Even then the experience is unique to the individual.” ~ InvisiblyMeBlog buff.ly/2tTxET6 #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 20/09/2026

“People with #ChronicPain learn to function while in enough pain to send a person to the ER… They learn to act relatively normal because it makes most uncomfortable to see someone in pain… that day they were stuck in bed, in tears from intolerable pain.” buff.ly/3X7OBAC #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 19/09/2026

“One of the most frustrating aspects of living with #chronicpain is not being able to achieve what we’d like to… we tend to berate ourselves… We put pressure on ourselves to do more than we’re capable of. That pressure turns to #stress.” buff.ly/VFVMtlQ #PainAwarenessAMonth

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Princess in the Tower @apainprincess.bsky.social · 19/09/2026

“#ChronicIllness can make you feel worthless… Many of us lived fast-paced lives before…running around, full of life…to struggling to get out of bed… It may make you feel upset with your appearance but nobody can take your inner beauty—You are worthy.” buff.ly/3XzCLAI #PainAwarenessMonth

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Princess in the Tower @apainprincess.bsky.social · 18/09/2026

“My skin’s excruciating to the touch and my nerve endings are ablaze in a fury of a 1000 bee stings… My joints are on fire as if acid’s coursing through them… As I move my fingers to write this—they’re screaming… begging me to stop.” buff.ly/3MpF5E5 #PainAwarenessMonth

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