iiinova — where your digital self keeps evolving

Amy Blackstone, PhD @amyblackstone.bsky.social · 31/08/2026

SEASON 2, EPISODE 11: RIP Me Dark. Angry. Hopeful. That’s how Lance described the piece Amy starts us off with today. Based on what we’ve learned from others who have ever had to say goodbye to an old life or mourn a dream that will never come true, we think y’all might relate. tinyurl.com/y5dnje4t

tinyurl.com

Nevertheless, Persisting: Life. Love. Long COVID.

Personal Journals Podcast · Updated Weekly · A show inspired by a moment in time, about the moments we persist through over time. Dr. Amy Blackstone and her husband Lance are two sick and tired childf...

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Reposted by Amy Blackstone, PhD

Julia Métraux @juliametraux.bsky.social · 31/07/2026

I continue to be disappointed and bamboozled that chronic health issues remain chronic.

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Amy Blackstone, PhD @amyblackstone.bsky.social · 20/07/2026

Dear @wired.com, Are you still standing by this poor example of ethical journalism? Millions of us are suffering thanks to the spread of shoddy information like this. Millions are dead. We're simply asking for an ethics investigation. b5886a97-1363-4549-a1d5-52252438e251.usrfiles.com/ugd/b5886a_2...

b5886a97-1363-4549-a1d5-52252438e251.usrfiles.com

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Reposted by Amy Blackstone, PhD

Julianne McShane @juliannemcshane.bsky.social · 19/07/2026

ICYMI: An under-the-radar moment in Blanche’s confirmation hearing could have seismic ramifications for abortion access In response to a Q from Ted Cruz, Blanche signaled his openness to enforcing a 19th-c law that could ban abortion nationwide Abortion providers tell me they’re bracing for impact

ms.now

Blanche testimony has providers bracing for federal abortion crackdown

After Blanche committed to “the faithful enforcement” of a 19th century anti-abortion law, providers are preparing to shift their models of care.

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Amy Blackstone, PhD @amyblackstone.bsky.social · 16/07/2026

Now in my 7th year of Long COVID, one painful truth I know is 0 painful truths were revealed in WIRED's “The Painful Truth About Long COVID." Instead, this hit piece said we're hysterical; crying wolf to anyone who'll listen (a decidedly small crowd, IMHO). For this and so many reasons, I co-signed:

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Amy Blackstone, PhD @amyblackstone.bsky.social · 09/07/2026

She left long before I understood she was gone. Like the frog on slow boil. First the heat in her throat. Next aching sweats. At last a deep and foggy sleep. Long COVID took the only me I’ve known. Replaced by an eery copy... amyblackstonephd.substack.com/p/rip-me

amyblackstonephd.substack.com

RIP Me

(I Walked Away)

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Amy Blackstone, PhD @amyblackstone.bsky.social · 18/06/2026

New episode! We ponder the joys of the nausea and vertigo that have accompanied Amy's Long COVID for the past 6+ years and share strategies for coping with the symptoms and grappling with the reality of everyday living when one's body is in constant revolt. shows.acast.com/nevertheless...

shows.acast.com

Walking the Plank | Nevertheless, Persisting: Life. Love. Long COVID.

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Amy Blackstone, PhD @amyblackstone.bsky.social · 09/06/2026

Six years in the hellscape that is our medical industrial complex have taught me that healthcare systems default toward treatment & silence. I don't want that when it comes to my death. I've pre-ordered Dr. @klutfey.bsky.social's book, YOUR GOOD DEATH, and recommend it to all!

bookshop.org

Your Good Death: Why End-of-Life Healthcare Is So Difficult and How to Make it Work for You

Why End-of-Life Healthcare Is So Difficult and How to Make it Work for You

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Amy Blackstone, PhD @amyblackstone.bsky.social · 12/04/2026

You know that feeling when you're talking with someone & you realize, "They see me."? It’s increasingly rare for me as the diagnoses pile up. Illness is isolating. When humans reveal their humanity, we turn away. Not so for the folks at Portraits of Humanity. substack.com/home/post/p-...

substack.com

A Portrait of Humanity

or, The Magic of Being Seen

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Amy Blackstone, PhD @amyblackstone.bsky.social · 10/04/2026

S2, E8: BOSTON KAREN Did you know it’s possible to exit a 2-night hospital stay mostly unscathed? Neither did we! Not until Boston Karen came along, that is. Amy reflects on a rare positive care experience & we wonder at the difference a single provider can make. podcasts.apple.com/us/podcast/b...

podcasts.apple.com

Boston Karen

Podcast Episode · Nevertheless, Persisting: Life. Love. Long COVID. · April 8 · 37m

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Amy Blackstone, PhD @amyblackstone.bsky.social · 24/03/2026

S2, E7: PARASOCIAL RELATIONSHIPS Amy fesses up to her imaginary relationships & we consider whether she is totally nuts or simply engaged in parasocial relationships (or both?). We consider benefits of these relationships for people w/chronic illnesses, potential drawbacks, & look at the science.

podcasts.apple.com

Parasocial Relationships

Podcast Episode · Nevertheless, Persisting: Life. Love. Long COVID. · March 18 · 47m

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Amy Blackstone, PhD @amyblackstone.bsky.social · 18/03/2026

Many thanks to Allaire Conte for including me in this piece for realtor.com on what's going on with non-parents today and how and WHY they put their resources where they do. Tons of great insights from @drjaychildfree.bsky.social in here too! www.realtor.com/news/trends/...

realtor.com

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Reposted by Amy Blackstone, PhD

Patient-Led Research Collaborative @patientled.bsky.social · 11/03/2026

We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together. The guide focuses on 24 medications, but includes a few other interventions for breadth /1

rthm.com

Long COVID Treatment Guide

An evidence-supported guide covering treatments addressing multiple Long COVID symptoms & mechanisms — focused on prescription medication, with a limited set of supplements, OTC medications, procedure...

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Reposted by Amy Blackstone, PhD

Patient-Led Research Collaborative @patientled.bsky.social · 15/03/2026

For #LongCovid Awareness Day, we’re releasing the 2026 Long Covid Fact Sheet! This is a list of key statistics about LC, using recent data to reflect contemporary risks. We hope this will be useful for journalists, policymakers, patients, & others! /1

patientresearchcovid19.com

2026 Long COVID Fact Sheet – Patient Led Research Collaborative

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Amy Blackstone, PhD @amyblackstone.bsky.social · 13/03/2026

It’s NEVERTHELESS, PERSISTING’s first guest post! "Why I Can’t Talk To You, Mom (It’s the Hypocrisy, Dummy)" By Lance Blackstone amyblackstonephd.substack.com/p/why-i-cant...

amyblackstonephd.substack.com

"Why I Can’t Talk To You, Mom" by Lance Blackstone

(It’s the Hypocrisy, Dummy)

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Amy Blackstone, PhD @amyblackstone.bsky.social · 18/02/2026

In 2023, I took "Creative Writing Through Chronic Illness" at @loftliterarycenter.bsky.social w/ @jayverasummer.bsky.social. Jay isn't responsible for the poor quality of this piece but I do want to thank her for helping me realize that while my writing may have changed, it and *I* are still here.

open.substack.com

Walking the Plank

I’m a drunk without the drink

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Amy Blackstone, PhD @amyblackstone.bsky.social · 17/02/2026

New episode! TO MINNEAPOLIS, WITH LOVE We reflect on our years in Minneapolis & the ways social trust has been key to building the strong community ties that took ICE by storm. CITED IN EPISODE: @kerryhowley.bsky.social @amjpublichealth.bsky.social shows.acast.com/nevertheless...

shows.acast.com

To Minneapolis, With Love | Nevertheless, Persisting: Life. Love. Long COVID.

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