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Alice Vago

@alivago.bsky.social

Lover of woods and mountains, botany and dragons, children’s books and much more. 🌳⛰️🥾🦊🌈🧑🏻‍🏭🪁 Stuck in an uncooperative body, severe Long Covid/ME. #LongCOVID #mecfs #pwme 🇵🇸 🇱🇧

Posts Replies Media

Reposted by Alice Vago

Dr Jo Greer @drjogreer.bsky.social · 01/02/2025

More Messages of Hope and Solidarity for 2025 open.substack.com/pub/theredtr...

open.substack.com

More Messages of Hope and Solidarity for 2025

The Red Tree, by the internationally acclaimed artist, author, and Oscar-winning filmmaker, Shaun Tan, tells the story of a young girl who encounters loss, uncertainty, isolation, disappointment, suff...

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Reposted by Alice Vago

Alexis Gilbert @alexisme.bsky.social · 20/01/2025

Please sign and share the petition to stop a patient with Very Severe ME being forced to take inappropriate antipsychotic meds and detained because they can’t get out of bed. bit.ly/linepetition

A screenshot of the first page of the petition showing Line, a 26-year-old white woman

A screenshot of the text of this first page of the petition. Very Severe ME patient Line aged 26 from Denmark (@nebulow on IG) has appealed to the international ME and Long Covid community to help prevent her being involuntarily removed to a psychiatric hospital from the nursing home she has been living in for the past 10 months.
The core values page on their website states that "It is crucial that the residents are met
with:
Respect
Dignity
Empathy
Realistic Expectations"
Please sign the petition below in support of our letter asking them to recognise her energy-limiting chronic illness as a debilitating biological disease and to spare her suffering further deterioration or even death

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Alice Vago @alivago.bsky.social · 17/01/2025

Here is a baby lynx, how adorable! Now that I have your attention, please go check @whitneydafoe.bsky.social fundraiser for @openmedf.bsky.social Donate if you can, We need all the help, so research can go on for #pwME and #longcovid 🙏🏼🍀 www.spotfund.com/story/febb0d... #research #mecfs

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Alice Vago @alivago.bsky.social · 16/01/2025

With just a hint of sarcasm 🩵 www.frontiersin.org/journals/hum... #longcovid #mecfs #pwme #reasearch

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Reposted by Alice Vago

Open Medicine Foundation (OMF) @openmedf.bsky.social · 15/01/2025

Ultimately, through genetics, they hope to be able to identify a common disease mechanism. Read more about this study👉 www.omf.ngo/genetic-and-....

omf.ngo

Genetic & Metabolic Markers of BH4 Deficiency in Long COVID

This project aims to test whether genetic markers and other indicators of BH4 deficiency are also present in subjects with Long COVID.

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Alice Vago @alivago.bsky.social · 15/01/2025

just a dragon, to set the tone. and it’s an S! #dragon #medievalsky

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Alice Vago @alivago.bsky.social · 15/01/2025

So many of us get threatened to be forcibly admitted the psychiatric ward. I was lucky, and the threat never became reality, but I lived with the fear of it, afraid to even show my sadness about my condition, because I might be labeled as unstable and not “actually ill” time.com/7206080/long...

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