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Carly and Jan 💜

@alifeafterstroke.bsky.social

115 followers 166 following 10 posts

Jan is a stroke survivor with #Aphasia a language disorder. We are a mother/daughter team raising awareness of living well after stroke. linktr.ee/alifeafterstroke

Posts Replies Media

Carly and Jan 💜 @alifeafterstroke.bsky.social · 22/11/2025

Jan's reaction to the new @thestrokeassoc.bsky.social #StillChristmas film that was on #channel4 Weds eve 💜 We loved it, made more special by Jan's appearance 😀 A perfect mix showing the devastation of #stroke but all the hope & strength too! You can watch at www.stroke.org.uk/stillchristmas 🎄✨️💜

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Carly and Jan 💜 @alifeafterstroke.bsky.social · 22/11/2025

Who is off to Aberdeen next week for #UKSF? @ukstrokeforum.bsky.social Really looking forward to my first one 💜

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Reposted by Carly and Jan 💜

Rocking Aphasia @rockingaphasia.com · 08/06/2025

Week 1 of #RockingAphasia is complete. We've seen rocks hidden from the USA to Italy, From Scotland to Borneo. And lots of places between and beyond! Thanks for putting #aphasia on the map this #AphasiaAwarenessMonth Abi

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Reposted by Carly and Jan 💜

Rocking Aphasia @rockingaphasia.com · 01/06/2025

It's here! Why not paint and deposit a #RockingAphasia stone somewhere in your world this June for #AphasiaAwarenessMonth? 🪨🖌️🎨 🌎🌍🌏 Visit RockingAphasia.com or click on the hashtag #RockingAphasia to learn more.

rockingaphasia.com

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Carly and Jan 💜 @alifeafterstroke.bsky.social · 23/04/2025

Happy Birthday Mum 💜 I think she likes her surprise 🥹☺️💜 This year is a special one! 5th of July will be mum's 20 year stroke anniversary, and we will celebrate in style 😎 Travel and concerts can be more tricky after #stroke and with #Aphasia but definitely possible ☺️ Carly💜

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Reposted by Carly and Jan 💜

Stroke Association @thestrokeassoc.bsky.social · 19/03/2025

No one plans a stroke. It comes with enormous physical, emotional, and financial costs. Already, stroke survivors* struggle to access benefits like #PIP - and these cuts will leave more & more families affected by stroke & disability, with less & less. We must do better. *Cardiovascular disease 👇

A list of illnesses that will be most affected by cuts to disability benefits with cardiovascular disease ranked third, affecting 95,000 people

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Carly and Jan 💜 @alifeafterstroke.bsky.social · 17/03/2025

Jan and her youngest grandson proving you don't need words to find a lot of joy 💜 #Aphasia #Stroke #MitochondrialDisease

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Carly and Jan 💜 @alifeafterstroke.bsky.social · 01/02/2025

Jan has #Aphasia a #languagedisorder caused by a #stroke in her case. Aphasia affects her #speech , #writing & #reading This is an example of not understanding a written sentence. Jan can often identify a keyword & make a guess, but she was stuck here. Once she hears the sentence it makes sense💜

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Carly and Jan 💜 @alifeafterstroke.bsky.social · 29/01/2025

Jan loves her volunteer role at the local #Stroke Association Support Group💜 It's given her 💜A Support Network 💜Purpose 💜Opportunity & Inclusion 💜Pride 💜A big smile Disability& #Aphasia aren't a barrier. Jan's proudly been a volunteer for over 10 yrs! #PeerSupport has been key in Jan's recovery!

Jan is a 65 year old woman, stood in her kitchen in a purple fleece embroidered on the chest with "Stroke Association" she is smiling proudly. Jan has short straw coloured hair, small features and wearing dark green rimmed glasses

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Reposted by Carly and Jan 💜

Professor Katerina Hilari @katerinahilari.bsky.social · 29/01/2025

Do you work with people with #stroke and #aphasia in the community? Interested in supporting wellbeing and self management? Have a look at this course 👇👇 All online and self paced. Deadline for registration 12th February www.city.ac.uk/prospective-...

city.ac.uk

Setting up a peer-befriending scheme for people with aphasia | City, University of London

This online course will train clinicians on how to set up a peer-befriending scheme for people with aphasia, providing resources for training and supervision.

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Carly and Jan 💜 @alifeafterstroke.bsky.social · 26/01/2025

This is a video we did with @thestrokeassoc.bsky.social demonstrating #TotalCommunication and giving lots of tips for having a good and supportive conversation with #Aphasia 💜 hopefully a good resource alongside the other varied info and support at stroke.org.uk 💜 youtu.be/eIuDUouihcg

youtu.be

Communication tips after a stroke [Subtitled]

YouTube video by Stroke Association

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Carly and Jan 💜 @alifeafterstroke.bsky.social · 26/01/2025

If you haven't met Jan before, here she is explaining #Aphasia in her own words. This video has been seen thousands of times on other platforms💜Jan had a #stroke 20yrs ago when she was just 46. For the 1st year post stroke she had no words at all. She is very skilled at using #TotalCommunication 💜

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Carly and Jan 💜 @alifeafterstroke.bsky.social · 25/01/2025

Hello Bluesky...we are hoping to find others from the #Stroke and #Aphasia awareness, lived experience and research community. Who is over here? And what's your experience so far??💜

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