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SurvivingME✌️

@akadarenupton.bsky.social
176 followers 157 following 77 posts

Retired medically. Expert in extreme resting. Politically homeless. Cat man 🐈 & father. Used to enjoy golf gigs food out and stuff. UKMC #bcfc ⚽️ ✌️💙

PostsRepliesMedia
Reposted by SurvivingME✌️
George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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SurvivingME✌️ @akadarenupton.bsky.social · 02/09/2026
Maybe I won’t be affected by the slide this year 🙏😅
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SurvivingME✌️ @akadarenupton.bsky.social · 26/07/2026
My son just qualified as a primary school teacher and I got him a secondhand Roland P6 recently 🥰
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SurvivingME✌️ @akadarenupton.bsky.social · 07/06/2026
Peter Hitchens
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SurvivingME✌️ @akadarenupton.bsky.social · 11/05/2026
Been advised Graded Exercise Therapy and CBT after being referred to Neurology for possible LDN. Can/should I complain?
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SurvivingME✌️ @akadarenupton.bsky.social · 01/05/2026
Wow! Was watching the snooker on BBC2 and an advert came on for Action ME and now I’m in bits 🥲🙏
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SurvivingME✌️ @akadarenupton.bsky.social · 27/02/2026
Lovely waking up to the sight of Matt Goodwin’s face looking like a well smacked arse 🙏
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SurvivingME✌️ @akadarenupton.bsky.social · 04/02/2026
When’s this higher air pressure due, it’s February already 😣
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SurvivingME✌️ @akadarenupton.bsky.social · 25/01/2026
TRUMP DEATH SQUADS
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SurvivingME✌️ @akadarenupton.bsky.social · 03/01/2026
No cheating repost the most recent picture of your pet
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Reposted by SurvivingME✌️
James Felton @jimmfelton.bsky.social · 11/12/2025
I don't really post anymore, but I would like to carry on writing books at some point in the future. Hate to be annoying, but any chance you could retweet so old twitter followers can find me if they want to? Going to delete my twitter, or at least abandon it on lock and let it die a slow death.
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SurvivingME✌️ @akadarenupton.bsky.social · 03/11/2025
Had enough energy to make an apple pie yesterday. ChatGPT says warmed up with a dollop of clotted cream is an excellent breakfast addition 😋
Homemade apple pie
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SurvivingME✌️ @akadarenupton.bsky.social · 18/09/2025
People’s Front of Judea vibes
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Reposted by SurvivingME✌️
Aaron Rupar @atrupar.com · 03/09/2025
Nigel Farage looks uncomfortable as Jamie Raskin uses his opening statement to absolutely demolish him
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SurvivingME✌️ @akadarenupton.bsky.social · 14/08/2025
What perfect album came out when you were 16?
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SurvivingME✌️ @akadarenupton.bsky.social · 14/08/2025
Just bought a Harmonica on EBay 😶‍🌫️
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SurvivingME✌️ @akadarenupton.bsky.social · 17/04/2025
www.psychologytoday.com/us/blog/comp... I saw this article a few months ago and decided to give it a go. It’s been 6 weeks and I can honestly say my energy levels have definitely improved and SFN/joint pain has reduced. Taking 100mg Pregnenalone. 200mg Q10 and 1000mg Omega 3 oil. ✌️
psychologytoday.com
Exciting New Discovery in Treating CFS & Fibromyalgia
New research suggests that statins might have a very helpful antiviral effect at high dose, and they may even hold promise as an effective new treatment for CFS and fibromyalgia if special (and simple...
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SurvivingME✌️ @akadarenupton.bsky.social · 15/04/2025
www.bbc.co.uk/programmes/m... Piece on Long Covid
bbc.co.uk
BBC One - Dr Xand's Con or Cure, Series 3, Episode 2
Do we get sick when we take time off work?
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SurvivingME✌️ @akadarenupton.bsky.social · 30/03/2025
Boom! Wordle 1,380 2/6 🟨🟩⬛⬛🟨 🟩🟩🟩🟩🟩
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SurvivingME✌️ @akadarenupton.bsky.social · 06/03/2025
Wooo!! Wordle 1,356 2/6 🟩⬛⬛⬛⬛ 🟩🟩🟩🟩🟩
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SurvivingME✌️ @akadarenupton.bsky.social · 12/02/2025
Wordle 1,334 3/6 🟨⬛🟨🟩⬛ 🟨⬛🟨🟩🟩 🟩🟩🟩🟩🟩
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SurvivingME✌️ @akadarenupton.bsky.social · 07/02/2025
www.dailymail.co.uk/sport/footba...
dailymail.co.uk
EXC: Inside £3BILLION Birmingham revolution and Tom Brady's big role
Hearts and minds don't come cheap in football. For Birmingham City's American ownership group, the bill is being paid one pint at a time.
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SurvivingME✌️ @akadarenupton.bsky.social · 04/02/2025
Look up your name in gifs
media.tenor.com
a man in a green jacket and tie is sitting in front of a purple background
ALT: a man in a green jacket and tie is sitting in front of a purple background
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SurvivingME✌️ @akadarenupton.bsky.social · 17/01/2025
Post a pic you took with no description to bring some zen to the timeline ✌️
Sunset at Crantock Cornwall
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SurvivingME✌️ @akadarenupton.bsky.social · 15/11/2024
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SurvivingME✌️ @akadarenupton.bsky.social · 12/11/2024
Managed to build up enough energy to spend a couple hours at my Niece’s 21st on Saturday evening. Highlight was the dozen or so Goths performing the Macarena. Just managing to get out of bed 😴
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SurvivingME✌️ @akadarenupton.bsky.social · 10/11/2024
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SurvivingME✌️ @akadarenupton.bsky.social · 28/08/2024
Had a new tattoo p.s. not good with #me/cfs
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Reposted by SurvivingME✌️
Tristan Snell @tristansnell.bsky.social · 18/07/2024
BREAKING: Donald Trump has tested positive for CONVICT.
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SurvivingME✌️ @akadarenupton.bsky.social · 05/07/2024
www.indy100.com/politics/tor...
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SurvivingME✌️ @akadarenupton.bsky.social · 24/02/2024
Show me a game that came out when you were 12
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SurvivingME✌️ @akadarenupton.bsky.social · 07/02/2024
Advertise your account with one image.
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SurvivingME✌️ @akadarenupton.bsky.social · 26/12/2023
Hope everyone had a good time and any crashes are short lived ♥️
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SurvivingME✌️ @akadarenupton.bsky.social · 02/11/2023
My brain is mush :( Dragged myself out of bed this morning, showered and set off for my Flooster. Got there to be told it’s the 2nd today not the 3rd. Cancelled tomorrow explaining I won’t have the energy and will have to plan it in again. #sigh #mecfs #pwME
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Reposted by SurvivingME✌️
Molly Knight @mollyknight.bsky.social · 25/10/2023
Holy shit twitter just rolled out audio and video calling and made it the default setting that ANYONE you follow can call you. Go into your settings and turn it off for your own safety: Settings—>Privacy/safety—> Direct messages —> disable audio and video calling
Holy shit twitter just rolled out audio and video calls and made it the default setting that ANYONE you follow can call you. 

Go into your settings and turn it off: 

Settings—>Privacy/safety—> Direct messages —> disable audio and video calling
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SurvivingME✌️ @akadarenupton.bsky.social · 11/10/2023
Anyone feel worse when pressure is lower 😞
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SurvivingME✌️ @akadarenupton.bsky.social · 11/10/2023
#pwME #mecfs resting
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