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Julia Robertson

@ailujnostrebor.bsky.social
111 followers 86 following 163 posts

Harbouring brain tumour #2. Raising awareness and funding for brain tumour research. PhD Candidate 6E/GA #BTSM #BrainTumorSocialMedia #MentalHealthMatters

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Reposted by Julia Robertson
The Doctor @drstevenhobbs.bsky.social · 28/09/2026
So they transfered you just to send you home?
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Julia Robertson @ailujnostrebor.bsky.social · 28/09/2026
Heading home today Returning next week for more tests #SpotGordon
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Julia Robertson @ailujnostrebor.bsky.social · 27/09/2026
I popped my bag on the bed to get ready for a shower and Gordon disappeared. #SpotGordon
Gordon hiding on the bed
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Julia Robertson @ailujnostrebor.bsky.social · 27/09/2026
This is Gordon the Gnome. He came to visit me yesterday and had decided to stay in hospital with me as my companion. Get ready to play #SpotGordon or #GordonAtGriffith
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Reposted by Julia Robertson
The Doctor @drstevenhobbs.bsky.social · 22/09/2026
Autumn is officially here.
A tree turns red while others are still greenA tree will red and yellowing leaves.
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Reposted by Julia Robertson
Cheshire Cat ᓚᘏᗢ, @autismsupsoc.bsky.social · 22/09/2026
Autism has arrived!
Photo of Orange cat looking at a lake in Autumn with orange leaves fallen all about it's finally autism
It reads "it's finally Autism"
Context: this is a conflate Autism and Autumn meme made by honest but it's being used to say it's April, the Autism acceptance month
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Reposted by Julia Robertson
The Doctor @drstevenhobbs.bsky.social · 21/09/2026
My view today made me so happy that I get to call this place home.
A tall tree stands guard over a forested valley
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Reposted by Julia Robertson
The Doctor @drstevenhobbs.bsky.social · 16/09/2026
She's made of pure grit and determination. My heroine!
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Julia Robertson @ailujnostrebor.bsky.social · 15/09/2026
lifetwopointzero.substack.com/p/the-unseen...
lifetwopointzero.substack.com
The Unseen Burden of Living with Complex Health
There is a version of my life that most people see.
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Julia Robertson @ailujnostrebor.bsky.social · 12/09/2026
This girl had no idea what was waiting around the corner for her. This was me in 1989. This girl had dreams, though I don't remember what they were This girl had a life that I don't clearly remember This girl is me but is a stranger simultaneously. Today was the first time I saw this photo.
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Reposted by Julia Robertson
The Doctor @drstevenhobbs.bsky.social · 08/09/2026
Im glad you have someone to talk to but sad you arent able to rest. He's a good listener!
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Reposted by Julia Robertson
The Doctor @drstevenhobbs.bsky.social · 08/09/2026
Im glad you have each other to change the world. Im not sure how much he's helping, but Im sure he learning a lot from the best.
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Reposted by Julia Robertson
The Doctor @drstevenhobbs.bsky.social · 08/09/2026
He's excited for your presentation and a willing source of support.
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Julia Robertson @ailujnostrebor.bsky.social · 08/09/2026
I have brought #BaxterTheBadger with me to Adelaide for the PC4 ASM. Baxter was sent to Australia by my wonderful polymath friend @drstevenhobbs.bsky.social Pictured hanging out with my rainbow dinosaur 🦕 pj's!
Baxter is a stuffed badger. He is sitting on my bed next to my rainbow dinosaur pj's my rainbow charging cable and my wrist brace
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Julia Robertson @ailujnostrebor.bsky.social · 08/09/2026
Conference crochet completed before landing in the conference city. Good thing I brought an extra ball of alpaca with me, though I suspect it won't last long either!
Teal and white crochet project on an aircraft try table with a half drink cup of tea
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Reposted by Julia Robertson
The Doctor @drstevenhobbs.bsky.social · 04/09/2026
I want to go. Your posters look great, BTW. The work you are doing is changing Healthcare as a whole and I appreciate it!
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Julia Robertson @ailujnostrebor.bsky.social · 04/09/2026
In November, I will be doing this thing 2026-cosa-asm.p.asnevents.com.au/speaker/789077
2026-cosa-asm.p.asnevents.com.au
Julia L Robertson — ASN Events
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Julia Robertson @ailujnostrebor.bsky.social · 25/08/2026
A small poster board. A very big milestone. Today I put up the first posters from my PhD at a conference. There is something surreal about seeing your research displayed publicly for the first time.
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Julia Robertson @ailujnostrebor.bsky.social · 22/08/2026
After more than a decade of advocating, volunteering, supporting others, contributing to research and now beginning to see the first fruits of my PhD, I'm reminded that my worth and the value of my work aren't determined by who chooses to recognise it.
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Julia Robertson @ailujnostrebor.bsky.social · 19/08/2026
I could use more of this in my life
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Julia Robertson @ailujnostrebor.bsky.social · 19/08/2026
Luckily I was attached to a holter monitor for this nonsense to be captured. NDIS meeting - heart rate reasonable Relaxing - heart rate goes nuts
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Julia Robertson @ailujnostrebor.bsky.social · 14/08/2026
Nurse Lisa has passed the halfway point. 11 hours left in a kiddie pool in my front yard to raise funds for Cancer Council Daffodil Day Dip Donate here www.daffodilday.com.au/fundraisers/... or please share
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Julia Robertson @ailujnostrebor.bsky.social · 14/08/2026
How to give your RN friends a minor heart attack
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Julia Robertson @ailujnostrebor.bsky.social · 14/07/2026
Wore my happy neuron pants today for MRI #3. There was a chilling moment when I realised that I was in this exact facility in 2003 when they diagnosed my first brain tumour. I've got all the things crossed for a better outcome from today's imaging
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Julia Robertson @ailujnostrebor.bsky.social · 10/07/2026
Such a relief
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Julia Robertson @ailujnostrebor.bsky.social · 09/07/2026
substack.com/@julesrobbo/...
substack.com
The Medical Drama Was Not on TV Today
Last night, I started taking a premedication pack so I could have an MRI with contrast today with a reduced risk of reaction.
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Julia Robertson @ailujnostrebor.bsky.social · 23/06/2026
Conference bound
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Julia Robertson @ailujnostrebor.bsky.social · 18/06/2026
I often wonder what it would look like if every chapter of my life showed on my face. The grief. The caregiving. The illness. The resilience. Maybe it would not make me less beautiful. Maybe it would make me more true.
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Reposted by Julia Robertson
The Doctor @drstevenhobbs.bsky.social · 17/06/2026
Some nice flowers for your viewing pleasure. #bloomscroll
Kniphofia "red hot pokers" in front of a large evergreen
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Reposted by Julia Robertson
The Doctor @drstevenhobbs.bsky.social · 23/05/2026
I found a canyon
A river canyon with steep, forested sides.
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Reposted by Julia Robertson
The Doctor @drstevenhobbs.bsky.social · 24/05/2026
I had a great hike today. Im reminded every day that I made the right decision to move here.
A middle aged man with absolutely no business scaling valley walls stands near white water rapids, smiling like an idiot because he ignored the warning signs regarding the uncertain nature of the water levels and went down to the river anyway.
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Reposted by Julia Robertson
The Doctor @drstevenhobbs.bsky.social · 24/05/2026
One more for good measure
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Reposted by Julia Robertson
The Doctor @drstevenhobbs.bsky.social · 24/05/2026
I finished the day with a nice float on the river youtube.com/shorts/hsOKe...
youtube.com
I went #kayaking today. This is what I #saw. #nature #river #water #getoutthere #Oregon
YouTube video by steven hobbs
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Julia Robertson @ailujnostrebor.bsky.social · 24/05/2026
This girl has been fighting invisible battles most of her life. This coming week, decisions are being made about her life and she has no control over the outcome.
Julia glammed
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Julia Robertson @ailujnostrebor.bsky.social · 05/05/2026
May is Brain Tumour Awareness Month. This photo was taken after I had lifesaving brain surgery in 2011. I share this image to remind people that brain tumour survival is possible, that research matters, and that behind every statistic is a real person.
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Julia Robertson @ailujnostrebor.bsky.social · 29/04/2026
open.substack.com/pub/julesrob...
open.substack.com
What I Learned From Making Camel Costumes
A reflection on preparation, surprise, and living with uncertainty in the body
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Julia Robertson @ailujnostrebor.bsky.social · 24/04/2026
Our celebration of Yidan and Xinyu, who have both passed their early candidature milestones. These moments matter. Early candidature can be incredibly challenging, taking time to acknowledge progress and celebrate each other is a key part of building a healthy academic culture.
Yidan holding an ECM cakeECM cake
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Julia Robertson @ailujnostrebor.bsky.social · 03/04/2026
Content note, suicidal ideation. I have lived with suicidal ideation since childhood. It is not a phase or a personality trait, it is a symptom I have learned to notice, name, and ride out. If you are carrying this too, you deserve support and you deserve to stay. Lifeline 13 11 14.
Collage of pictures of Julia in the 90s
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Julia Robertson @ailujnostrebor.bsky.social · 26/03/2026
0 ⭐ would not recommend
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Julia Robertson @ailujnostrebor.bsky.social · 05/03/2026
Well this sucks
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Julia Robertson @ailujnostrebor.bsky.social · 21/02/2026
C6 nerve root injections on Friday. I have to go back to have the right side done 😬
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Julia Robertson @ailujnostrebor.bsky.social · 21/02/2026
Excited to share my latest piece has been published on Voices of Academia. voicesofacademia.com/2026/02/20/m...
voicesofacademia.com
My Journey Becoming a Disabled Student and Scholar by Julia Robertson
When I commenced studying at university, I did not yet have the language to call myself “disabled scholar.” I just knew that my life had been split into “before” and “after” a brain tumour, and tha…
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Julia Robertson @ailujnostrebor.bsky.social · 16/02/2026
Fifteen years ago, I was a mum of four who was dying of a brain tumour. I was preparing for a future I did not expect to see. And now, somehow, I am in the middle of my PhD. open.substack.com/pub/julesrob... @drstevenhobbs.bsky.social @lissbee.bsky.social @liangrhea.bsky.social
open.substack.com
Turning Survival into Purpose: Fifteen Years of Life2.0
From the fracture of before and after, to a life rebuilt with intention and heart
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Julia Robertson @ailujnostrebor.bsky.social · 06/02/2026
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Julia Robertson @ailujnostrebor.bsky.social · 29/01/2026
open.substack.com/pub/julesrob...
open.substack.com
When Your Body Becomes a Choir of Competing Voices
Living inside a body that never stops talking back
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Julia Robertson @ailujnostrebor.bsky.social · 22/01/2026
When Stoicism becomes a liability in the emergency room open.substack.com/pub/julesrob...
open.substack.com
When Stoicism Becomes a Liability in the Emergency Room
Now with the numbers behind the disbelief
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Reposted by Julia Robertson
Dr Liss (Melissa Brunner) @lissbee.bsky.social · 15/01/2026
We’re looking for a PhD student to join the social-ABI-lity research project in the @abicommlab.bsky.social! 👉 Focus areas: 🧠 Brain injury 📱 Social Media 🤝 Co-design 💡 Interested? Get in touch with me to find out more!
PhD Recruitment for the social-ABI-lity Project
We’re looking for a PhD student to join this exciting research project in the Acquired Brain Injury Lab!
Focus areas: Brain injury,  Social media, Co-design
Interested? Get in touch with Liss!
https://www.sydney.edu.au/medicine-health/about/our-people/academic-staff/melissa.brunner.html
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Julia Robertson @ailujnostrebor.bsky.social · 14/01/2026
Neurosurgery has rejected my referral. This image was made in 2022. Following my recent trip to the USA, I am now living in a space where I feel like I will vomit from the pain. I have not managed to sleep a whole night in a long time My GP is livid and resubmitted the referral + paperwork
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Julia Robertson @ailujnostrebor.bsky.social · 04/01/2026
When I was preparing to fly to the USA, I had two friends in hospice. Today I received the news that one passed on December 20. The other I was with when he passed on December 27. While I mourn these losses, I appreciate that both had dignity and received pain management in their final days.
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Julia Robertson @ailujnostrebor.bsky.social · 03/01/2026
A week ago, my best friend of almost 20 years died. Yesterday I had my first tattoo to keep him with me for the rest of my life. @eveonline.com @drstevenhobbs.bsky.social @liangrhea.bsky.social
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