iiinova — where your digital self keeps evolving

Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 31/08/2026

"Pugs in wigs, suits and capes vie for top prize at packed Portland pooch pageant" www.hereisoregon.com/experiences/20… "The costumed, collared critters — and […] [Original post on disabled.social]

The face of a small, happy looking dog (mouth open and part of its tongue sticking out) surrounded by flowers and greenery.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 31/08/2026

Check out the latest News in Brief (August 24 - 30) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events. s4me.info/threads/news-in-brief-aug… Public […] [Original post on disabled.social]

Science for ME
Where Science and Community Meet
www.s4me.info

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 29/08/2026

@lemay Cute! I couldn't resist making it into a meme 😁

Close up of a tabby cat's face with a big pink nose and big green eyes looking directly into the camera. Under the photo it says, "Hi Hi What are you doing? Can I help?"

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 26/08/2026

"Help The Sick Times’ newsletter reach more readers" thesicktimes.org/2026/08/25/help-th… "To help us grow our newsletter, we’re trying out a referral program. We think this will make it easier for readers […] [Original post on disabled.social]

Illustration by Heather Hogan showing three people wearing masks and a small dog in a sweater. Across the top are the rewards for different numbers of referrals:
Thank you note for 1 referral, Sticker pack for 5 referrals, Dad hat for 10 referrals, Q&A with The Sick Times team for 20 referrals.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 24/08/2026

Powerful video from Abdul El-Sayed, Democratic senate candidate from Michigan: "We're being told that if we sacrifice the rights of some people, then the rest of us get to keep our rights. We all know that's some BS." I'll put a link to the source and the […] [Original post on disabled.social]

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 17/08/2026

Check out the latest News in Brief (August 10-16) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events. s4me.info/threads/news-in-brief-aug… Public […] [Original post on disabled.social]

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 15/08/2026

"Judge limits motorized vehicles in Oregon Dunes to protect coastal martens" www.opb.org/article/2026/08/13/oreg… "A rare, ferret-like creature has gained extra protections in part of the Oregon Dunes after a judge ordered […] [Original post on disabled.social]

A coastal marten (small mammal related to the weasel) standing between two trees looks toward the camera.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 15/08/2026

I've seen many stories like this over the years from folks with ME/CFS - they get a cancer diagnosis & are shocked by the different treatment from doctors and nurses. This story's about someone with Long Covid, but it's very similar. "Breast cancer exposed […] [Original post on disabled.social]

My cancer experience wasn’t without setbacks or issues — but there was no unknown, and no one questioned its legitimacy. No doctor suggested the cancer was “in my head.”

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 14/08/2026

Here are a couple photos from our local park that I've been meaning to post. I can only take short walks and I can't walk in my own neighborhood because it's too hilly for me. This park has paved, level paths with loads of shade (heat is also a problem). So […] [Original post on disabled.social]

Photo looking down a paved, curving pathway that has leafy trees on both sides.

This time the path is barely visible on the left side. There's a lot more shade and in the center is a group of ferns with other greenery underneath the trees.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 13/08/2026

"Portland bus riders got a big surprise when these two furry commuters climbed aboard" #GiftLink = […] [Original post on disabled.social]

Two small white goats on the sidewalk walk toward a commuter bus with the doors open.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 10/08/2026

Check out the latest News in Brief (August 3 - 9) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events. s4me.info/threads/news-in-brief-aug… Public […] [Original post on disabled.social]

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 09/08/2026

Beautiful writing from Naomi Whittingham's blog, A Life Hidden: "The Burden of Chronic Illness That I Rarely Talk About" alifehidden.com/2026/07/30/burden/# "Today’s suffering, however bad it may be, is usually not the hardest part: it’s tomorrow’s […] [Original post on disabled.social]

My symptoms may no longer be continually active, but the potential for them remains a constant presence. Those who see me at my laughing, smiling best could never imagine the delicate balancing act behind every moment. The impossible decisions over what is too much or not enough; the silent background calculations as to how close I might be to collapse. There is always sacrifice: always a demand from past or future that necessitates a scaling back in the present.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 02/08/2026

For more information about this film, including cast names and bios, see director Sara Nesson's website: www.saranesson.com/unbound I've also attached an important disclaimer (see image) from the website. @mecfs @longcovid 2/2 #MEcfs #LongCovid #NEISvoid #ChronicIllness #Dance #Art

Disclaimer: Unbound does not attempt to represent the full range of lived experiences of people with ME/CFS and Long COVID. Every participant navigates illness differently, and the twenty individuals featured here reflect only a small portion of that diversity. While some participants identify as having severe or very severe illness, they chose to film brief moments of movement during rare windows of available energy rather than in states of complete stillness. These moments should not be understood as representative of their day-to-day functioning. Rather than documenting the totality of these illnesses, Unbound explores creativity, connection, and expression within the realities each participant lives. We hope it offers one window into lives that are too often unseen, while recognizing that no single film can capture the full breadth and complexity of ME/CFS or Long COVID.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 26/07/2026

"Abandoned by our governments, people with severe ME and Long COVID are supported by severely ill peers" thesicktimes.org/2026/07/20/abandon… "Mari, a […] [Original post on disabled.social]

Mari is one of millions of Canadians whose healthcare and home care needs are unmet. In 2022, more than 9% of all Canadians reported unmet healthcare needs, and in 2023, more than 600,000 Canadian adults (2%) reported unmet home care needs, the Canadian Income Survey found.

Like Mari, many disabled people must rely on unsafe or unstable care situations due to systemic gaps in support. A 2025 literature analysis found women with disabilities face domestic violence more than nondisabled women. The authors described how disabled women experience unemployment and lack of accessible housing and services, among other barriers, creating unique vulnerabilities to domestic violence.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 25/07/2026

We took a trip a few weeks ago one of the gardens we visited had posted this sign. I was very happy to see it! 😁 Source for the sign: www.ilrc.org/community-resources/kn… #USPol #Immigration #NoIce #FuckICE #KnowYourRights

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 25/07/2026

Heads up for those brave folks who are trying to download and save information from US government websites - the NIH has announced changes to their websites. No idea whether this means data will be deleted or just rearranged but I thought I'd post about it […] [Original post on disabled.social]

Screenshot from the link in the post:
"NIH Websites Are Changing.
Beginning in late July, NIH will start introducing a new website experience designed to make it easier to find health information, research, funding opportunities, and other resources. During the transition, you may notice changes to navigation, page layouts, and where some information is located.
Learn more in our Frequently Asked Questions."

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 22/07/2026

Free Geek email: "Free Geek is moving, and that means it's the perfect time to score some amazing deals on technology! Join us for our BIG Tech Sale and shop a wide selection of affordable laptops, desktops, monitors, computer accessories, networking […] [Original post on disabled.social]

Graphic from Free Geek email showing a photo from a previous sale, a crowd of people in a parking lot looking at equipment for sale. Text: "We are moving! Big Sale! Free Geek is moving and having a big sale. Stop by for all of your technology needs! Saturday, July 25th, 11 am - 3 PM, 1731SE 10th Avenue, Portland."

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 21/07/2026

Coverage from The Oregonian: "As Trump questions election security, Oregon official defends voting system" GiftLink = […] [Original post on disabled.social]

"Trump's threats can be misleading

Although a Trump administration official threatened to send ICE agents to polling places, Read said, no Oregon voter needs to go to a polling place to take part in an election, since ballots can be mailed or placed in official drop boxes.

Oregon citizens can easily check or update their voter registration online until Oct. 13."

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 20/07/2026

Check out the latest News in Brief (July 13 - 19) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events. s4me.info/threads/news-in-brief-jul… Anyone can […] [Original post on disabled.social]

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 07/07/2026

Timeline synchronicity 😊 (tall image, click to open)

Screenshot showing two posts in a row that have a photo of a tree taken near the trunk and looking up at the sky. The posts are by different people and use different hashtags but the way the trees were photographed looks similar.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 05/07/2026

#MEAction is hosting an online writing workshop this week for Disability Pride month. Thursday, July 9, 2 pm EDT Details: www.meaction.net/event-details/disa… Registration […] [Original post on disabled.social]

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 26/06/2026

Democracy Docket also has an article "Judge blocks Trump order that would have let USPS refuse to deliver mail ballots" www.democracydocket.com/news-alerts… #USPol #ORpol #Oregon #Washington #Elections #Voting #VoteByMail #USPS #Resist

A placeholder image to prevent that fascist face from appearing on your timeline.
This image is in the public domain, reuse encouraged!

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 26/06/2026

"Oregon, Washington prevail in challenge to Trump executive order on federal voter lists" www.opb.org/article/2026/06/25/fede… "A Massachusetts judge blocked the order, meaning it won’t impact this year’s general election." […] [Original post on disabled.social]

Plaintiffs argued in two lawsuits, both filed in federal court in Boston, that Trump’s order should be found unconstitutional because the states and Congress, not the president, have the power to set election rules. The judge agreed, saying in her ruling that the provisions of Trump’s order seeking to create a federal list of eligible voters and using the U.S. Postal Service to determine who can receive a mail ballot are “legally void” because they “unconstitutionally violate the separation of powers.”

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 23/06/2026

From Jaime Seltzer, Scientific Director at #MEAction "Great news! We were just awarded a seed grant for our Emergency Department Project from the General Internal Medicine CME Education Committee at Mayo Clinic! We're that much closer to funding the entire […] [Original post on disabled.social]

Graphic showing the status of funding the Emergency Department Guidelines project.
Text: "We were awarded a medical education seed grant for $6,500"
There's a pie chart showing that 80% of the funds for the project have been raised. 20% is left to be raised.
Under that is a bar graph showing what has been donated:
- Whittemore Peterson Grant
- 15K match
- Individual donations - match met!
- Mayo Clinic GIM CME Education Committee Seed Grant
- Still need to raise
To see the amount still needed go to the donation link in the post.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 22/06/2026

Highlight from this week's news: The WE&ME Foundation has launched a new call for ME/CFS research (WE&ME Projects) in collaboration with the Science for ME forum. They aim to fund 7 projects, each with a budget of €120,000 - 180,000. Researchers from all […] [Original post on disabled.social]

WE & ME Projects: Funding innovative ME/CFS research worldwide in collaboration with Science for ME.
- International call
- Core team 2-3 PIs
- About €120,000-180,000 per project
- Project duration 18-24 months

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 22/06/2026

Check out the latest News in Brief (June 15 - 21) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events. s4me.info/threads/news-in-brief-jun… Anyone can […] [Original post on disabled.social]

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 22/06/2026

"Do you like tiny, furry, squeaky animals? Cascades Pika Watch wants your help" www.opb.org/article/2026/06/21/casc… "Steider is looking for pikas, mammals with furry, little bodies — about the size of a russet potato […] [Original post on disabled.social]

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 20/06/2026

Timeline cleanse - two cute bear cubs! Or should I say too cute? 🐻 From the Fort Worth Zoo: "Our juvenile bears, Cinnamon and Raisin, can’t seem to get enough pool time on-habitat. Plus, they have their very own pool inside, too! ... Clearly, one cub is […] [Original post on disabled.social]

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 19/06/2026

From #MEAction : "Our Severe ME Artists Project 2026 is coming in recognition of Severe ME day! Full details: www.meaction.net/post/severe-me-art… Please note: Many people with Severe ME can no longer practice art […] [Original post on disabled.social]

Severe ME Artists Project 2026
Deadline to enter is July 24th. Details on our website. #MEAction.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 19/06/2026

The WE&ME foundation will collaborate with Science for ME (S4ME) @s4me "S4ME, an established and internationally active ME/CFS patient community, contributes to the WE&ME Research Funding Programme. Its core value lies in the credibility and patient-centred […] [Original post on disabled.social]

Collaboration with Science for ME (S4ME)

S4ME, an established and internationally active ME/CFS patient community, contributes to the WE&ME Research Funding Programme. Its core value lies in the credibility and patient-centred legitimacy that an established, independent community lends to the programme. It nominates three of the seven standing jury members (plus two back-ups), embedding patient expertise directly into proposal assessment and funding decisions with full voting rights. It also promotes the programme’s calls and awards through its own channels, encourages donations, and brokers introductions to patient organisations abroad. For WE&ME, the participation of S4ME is absolutely vital for the success of the funding programme.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 19/06/2026

🗣️ WE&ME Foundation has launched a new research call worth over €1 million! "This call is open to research teams that aim to advance our understanding of the biological mechanisms of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)." "This call […] [Original post on disabled.social]

WE & ME Projects: Funding innovative ME/CFS research worldwide in collaboration with Science for ME.
International call, Core team 2-3 PIs, €120,000-180,000 per project, Project duration 18-24 months

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 16/06/2026

Interview with Prof. Chris Ponting on recent ME/CFS and Long Covid research. Sadly, the headline says "chronic fatigue" but it's a pretty good article overall […] [Original post on disabled.social]

What are your hopes for the future?

"In my view, the new study has shown us which path to follow. Previously, there were many possible paths. Now, genetics is pointing us in the right direction. I do not believe that ME will ultimately turn out to be one single disease. Genetics supports the idea that there are many different factors."

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 15/06/2026

Check out the latest News in Brief (June 8 - 14) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events. s4me.info/threads/news-in-brief-jun… Anyone can […] [Original post on disabled.social]

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 13/06/2026

Thread with a message from Solve ME: "A proposed federal rule could let the government cancel active ME/CFS research mid-study when political priorities change. The public comment window closes July 13. Here's what you can do." 1/5 @mecfs #USPol #MEcfs #Science #Research #SolveME

An action alert graphic from Solve M.E. with this text:
"The government is rushing through a rule that could shut down ME/CFS
research. Active studies canceled at any time. Political appointees over scientific peer review.
We have until July 13 to respond — and your members of Congress can help.
Call & email Congress - takes two minutes. Deadline: July 13, 2026."

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 13/06/2026

The Sick Times has re-posted Todd Davenport's essay explaining all the things that WIRED article on Long Covid got wrong. "We must free Long COVID and the people living with it from the mind-body trap" […] [Original post on disabled.social]

There is a recurring pattern in the history of medicine that still pops up from time to time. When our understanding of a disease lags far behind the need for explanations, biology becomes a matter of one’s own perception. This inevitably shifts the burden of proof back onto the people we should be helping; those who suffer with the disease.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 12/06/2026

More info about the lawsuit: "Oregon and other states files lawsuit today over executive order that limits vote by mail" […] [Original post on disabled.social]

Oregon’s vote-by-mail system works — and has for decades.

Oregon pioneered vote-by-mail, and the system has earned bipartisan praise. Three Republican secretaries of state oversaw Oregon’s vote-by-mail system and championed its security and accessibility. Today, vote-by-mail is used across the country, including in Republican-led states, and has grown in popularity with voters of all political backgrounds. Even President Trump voted by mail recently in a Florida local election.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 10/06/2026

"This Best Western in Oregon has a unique amenity: a whole herd of fluffy alpacas" #GiftLink = […] [Original post on disabled.social]

Two alpacas, a brown one on the left and a cream colored one on the right, are feeding on the grass in a fenced in area. The photo is framed by the wire and wood of the fence in the foreground.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 09/06/2026

🚨 Tomorrow, Wed, June 10 2 pm Eastern / 11 am Pacific Solve ME webinar on Sequence ME & Long Covid research study "The Search for ME/CFS and Long Covid Biomarkers and Subtypes" More details here […] [Original post on disabled.social]

Main Text: "Wednesday, June 10 at 11:00 am PT / 2:00 pm ET
Sequence ME & Long Covid:
The Search for ME/CFS and Long Covid Biomarkers and subtypes"

Names and titles of panel members are shown underneath their photos:
- Sonya Chowdhury, Chief Executive Patient Representative and Chair of Medical VP of Scientific Programs, Action for ME
- Andy Devereux-Cooke, Patient Representative and Co-Investigator at Decode ME Study
- Prof. Chris Ponting, Chair of Medical Bioinformatics, University of Edinburgh
- Jessica Maya, PhD, VP of Scientific Programs, Solve M.E.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 08/06/2026

Check out the latest News in Brief (May 25 - 31) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events. s4me.info/threads/news-in-brief-jun… One highlight […] [Original post on disabled.social]

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 02/06/2026

New blog post from Bateman Horne Center talking about orthostatic intolerance. Just because you don't have POTS doesn't mean you don't have some other form of orthostatic intolerance. batemanhornecenter.org/when_its_not… @mecfs @longcovid […] [Original post on disabled.social]

The issue: Many people with ME/CFS and Long COVID experience clear symptoms of orthostatic intolerance (OI) — feeling significantly worse when upright — but are told their autonomic testing is “normal” because they don’t meet criteria for POTS or orthostatic hypotension (OH).

Key distinction: POTS is one specific cause of OI, not the whole picture. Orthostatic intolerance is a broader category, and the absence of a POTS diagnosis does not rule out other causes of OI, including other forms of dysautonomia.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 02/06/2026

"Oregon gets its first California condor visit in 122 years" www.opb.org/article/2026/06/02/oreg… "A California condor flew into Oregon last month, becoming the first free-flying condor documented in the […] [Original post on disabled.social]

A woman wearing coveralls and gloves (Yurok Wildlife Department Technician Sandra Hahn) has her arms out after releasing a condor. The condor, a large brown bird with a B9 tag on its wing, is flying away from her.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 02/06/2026

@tomstafford Here's an old one that I found right around the first big migration from X/twitter. I can't remember the source - forgot to save that info. #Mastodon

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 26/05/2026

@canadahealthwatch.ca "For Canadians who receive support from the federal government, there are concerns that this could lead to the introduction of programs that automate adjudication and denial of benefits claims." Not Canadian, but yikes! 😬 #Canada #CApol #Healthcare #AI #FuckAI

Renée Sieber, an associate professor at McGill University who researches government AI adoption, warns such systems could justify further layoffs of public service workers and obscure accountability by blaming the AI or assessment tools that helped greenlight them when something goes wrong. For example, chatbots might provide incorrect information to an employee assessing benefits claims, leading to a wrongful denial.

“We should be skeptical” of modernization efforts coming out of this contract, she told Ricochet Media.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 26/05/2026

To encourage donations Free Geek is doing a giveaway with Portal Tea Company! Every donor who gives $20 or more will be entered to win: - $25 gift card to Portal Tea Company - Free Geek t-shirt - $50 gift card to shop in Free Geek’s online store Donate […] [Original post on disabled.social]

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 26/05/2026

Check out the latest News in Brief (May 18 - 24) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events. www.s4me.info/threads/news-in-brief… Note: On […] [Original post on disabled.social]

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 20/05/2026

More #SequenceME news coverage: "UK to sequence genomes of 6,000 ME/CFS patients for treatment clues" www.pulsetoday.co.uk/news/clinical-… "The […] [Original post on disabled.social]

A Government-funded study will sequence the genomes of up to 6,000 patients with chronic fatigue syndrome to guide better diagnosis and targeted treatments.

The £4.75m research project is the largest of its kind and will generate a high-resolution genetic map of the illness.

Scientists hope it could unlock the biological causes of ME/CFS which causes debilitating fatigue, sleep difficulties and cognitive impairment.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 18/05/2026

‘Not only about books’: Massive library in Gresham opens to great fanfare www.opb.org/article/2026/05/18/gres… "The East County Library is one of the most ambitious projects for Multnomah County, which has spent the past […] [Original post on disabled.social]

Exterior view of the new East Country branch of the Multnomah County Library system. There are tall wooden columns holding up the roof near the entrance creating a large and airy covered area near the door.

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Ahimsa @ahimsa-pdx.disabled.social.ap.brid.gy · 15/05/2026

Quote: The [UK] Department of Health’s Delivery Plan for ME/CFS, published last year, had a clear aim that people with this condition ‘feel safe and supported by services and professionals in line with other long-term health conditions.’ ‘Feeling safe’ is […] [Original post on disabled.social]

Quote from article:
"We have found some people appear to be pushing their metabolism to the limit even in everyday activity."

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