Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 09/09/2026The agenda is here! 📅 October 2, 2026 🕥 10:00 AM – 4:30 PM ET 🎟 Free & open to all Download the agenda and register: events.zoom.us/ev/ApySAaBQu... 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 01/09/2026The 2026 ACPMP Changemaker Research Grant supports Dr. Mohammad H. Choudry’s innovative research into overcoming the mucinous barrier in appendiceal PMP. This year's $150,000 grant is dedicated in loving memory of Katie Centorbi. 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 01/09/2026As we wrap up #AppendixCancerAwarenessMonth, we’re proud to congratulate Dr. Choudry, recipient of ACPMP’s $150K Changemaker Research Grant! Dedicated in loving memory of Katie Centorbi, this grant represents hope for future patients and families. acpmp.org/research/res...acpmp.orgResearch Grants Awarded | Charitable Research FoundationResearch Grants Awarded - The Appendix Cancer PMP Research Foundation has awarded $2,105,000 in the form of forty-six research grants. 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 26/05/2026 📅 Save the Date! The 2026 #AppendixCancer Virtual Symposium is set for Friday, October 2nd from 10AM–4:30PM EST. Join us for a powerful day of learning, connection and progress in the fight against appendix cancer. More details coming soon! 020
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 05/05/2026Applications for 2026 ACPMP Changemaker Grant open May 15th! We are funding a 2yr $150K grant for #appendixcancer & PMP research. Priority areas include tumor biology, novel therapeutics, molecular characterization, biomarkers, diagnostics, and patient-centered research. acpmp.org/research/150... 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 04/05/2026ACPMP's Jim Carroll & Dr. Laura Lambert joined @socsurgonc.bsky.social's podcast to discuss the International Patient Manifesto for Peritoneal Malignancies, what it means for #AppendixCancer & #PMP patients, and how we move forward together. Listen → surgonctoday.libsyn.com/sso-educatio...surgonctoday.libsyn.comSurgOnc Today®: SSO Education Series—SSO, ACPMP, and PMP Pals: Educating the Medical Community & Patients on the International Patient Manifesto for Peritoneal MalignanciesIn this episode of SurgOnc Today, key components of the recently launched Patient Manifesto will be discussed by appendix cancer medical experts and advocacy organizations. The goal of the podcast is ... 011
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 29/04/2026We just updated our free #AppendixCancer Patient Kit. Specialist finder, clinical trials, treatment guides, #patientregistry and more. . Download: acpmp.org/wp-content/u... Share with anyone who might need it. 🔗 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 22/04/2026The 20th Annual #AppendixCancer Global Walk is happening June 13-21, and we're looking for businesses and individuals who want to be part of this milestone. Twenty years of making a difference. Help us make the next twenty even greater! Register: secure.acpmp.org/event/the-20... 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 07/04/2026As a part of #WorldHealthDay, check out this article from @mdanderson.bsky.social w/ insights from Dr. John Paul Shen & Dr. Beth Helmink. Their expertise highlights why #appendixcancer is so difficult to diagnose and why continued education and research matter. www.mdanderson.org/cancerwise/3...mdanderson.org3 reasons appendix cancer is hard to diagnoseAppendix cancer is now known to be distinct from colorectal cancer. But it can still be difficult to diagnose. Why? Gastrointestinal oncologists John Paul Shen, M.D. and Beth Melmink, M.D., weigh in. 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 02/04/202620 Years of Making a Difference: Join the 2026 #AppendixCancer Global Walk. Walk where you are or join a State Walk event! June 13-21, 2026. Register today: secure.acpmp.org/appendixcancerwalk2026 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 05/03/2026Join our upcoming webinar with Dr. Laura Lambert & team at NYU Langone Health reviewing #NCCN updates relevant to #AppendixCancer. Evidence-based guidance supports informed care decisions. Register today: events.zoom.us/ev/ApL5GXBWt... #RareDisease #CancerGuidelines 010
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 04/03/2026The first dedicated #AppendixCancer Patient-Powered Registry is advancing research through real-world data. Participation helps researchers better understand diagnosis, treatment, and survivorship. Learn more: acpmpregistry.iamrare.org 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 28/02/2026On @rarediseaseday.bsky.social , we’re proud to spotlight a new #CME course developed in partnership w/ @medicalcollegeofwi.bsky.social: The Neoplastic Appendix: When to Watch, When to Act, When to Refer. Learn more & Register here: ocpe.mcw.edu/node/229093... #AppendixCancer #AppendicealCancer 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 19/02/2026Have you been diagnosed with cancer in the past 2 years & met with a surgeon about possible surgery? Researchers at UAB are conducting a brief, anonymous survey about how patients experience conversations around cancer surgery. uab.co1.qualtrics.com/jfe/form/SV_... #appendixcancer #cancerresearch 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 19/02/2026Honored to be a sponsor yet again for the 2026 @socsurgonc.bsky.social ACT Conference! ACPMP funded the $100K Lisa Kurtz Luciano CIA grant, awarded to Dr. Beth Helmink & $25K YIA awarded to Dr. Jeremy Sharib. Congrats also to ACPMP-funded travel award recipients at #ACT2026! #AppendixCancer 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 12/02/2026ACPMP is proud to yet again fund two 2026 @socsurgonc.bsky.social research grants focused solely on #appendixcancer & PMP. Congrats to Beth Helmink, MD, PhD recipient of the $100K Lisa Kurtz Luciano Appendix Cancer and PMP CIA grant, and Jeremy Sharib, MD, recipient of the $25K YIA grant! 012
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 30/12/2025Join us on Thursday, January 29th, at 7 PM for upcoming webinar: HIPEC vs. PIPAC: Exploring a New Clinical Trial for #AppendixCancer Patients Not Eligible for Cytoreductive Surgery, led by Dr. Wagner & Dr. Altpeter of Allegheny Health Network. Register Today: acpmp.org/hipecvspipacacpmp.orgHIPEC vs PIPAC: Exploring a New Clinical Trial for Appendix Cancer Patients 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 23/12/2025We are proud to announce Michael Foote, MD of @mskcancercenter.bsky.social as the first-ever recipient of our $150K ACPMP Changemaker Research Grant for his research project, “Targeting the Surface Proteome of Appendiceal Cancer Peritoneal Metastasis.” This research is made possible by our donors!🎗️ 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 18/12/2025Why are more young adults getting appendix cancer? Check out @mdanderson.bsky.social Cancerwise podcast featuring Drs. Beth Helmink and JP Shen as they offer a clear overview of #appendixcancer and current approaches to care. 📷 Watch the episode here: youtu.be/ot5dbXsKIvgyoutu.beWhy are more young adults getting appendix cancer?YouTube video by MD Anderson Cancer Center 010
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 18/12/2025🌟 Day 5 of 12 Days of Impact: Expanding Awareness at Medical Conferences In 2025, ACPMP exhibited at leading medical conferences to raise awareness about #appendixcancer, correct misconceptions, and engage directly with clinicians and researchers. 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 18/12/2025🌟 Day 4 of 12 Days of Impact: Patient Stories We’re honored to be a trusted source of support and information for those affected by #appendixcancer. Your support makes this possible! 💛 acpmp.org 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 18/12/2025🌟 Day 3 of 12 Days of Impact: Research in 2025 In 2025, your support powered major investments in appendix cancer research. Your generosity makes this progress possible. Thank you for fueling #appendixcancer research. 💛 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 18/12/2025🌟 Day 2 of 12 Days of Impact: #AppendixCancer Awareness Month A huge thank you to our volunteers, supporters, and partners for your dedication this past August! 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 18/12/2025Join us for 12 Days of Impact! 🌟 Each day, we'll share stories and milestones made possible by your support. #Appendixcancer affects 2-9 people per million annually, but it is serious and on the rise. Let's raise awareness, inspire hope and advance research. 010
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 09/12/2025Remembering Stuart Scott today. His #appendixcancer journey touched so many and brought rare visibility to this disease. @espn.com honors his legacy Wed, Dec 10 at 9 PM ET with the 30x30 film Boo-Yah: A Portrait of #StuartScott. Preview: www.espn.com/video/clip?i...espn.com30 for 30: 'Boo-Yah: A Portrait of Stuart Scott' trailer - ESPN VideoCatch the historic 30 for 30 premiere: 'Boo-Yah: A Portrait of Stuart Scott' on Dec 10 on ESPN. 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 02/12/2025Congratulations to the Top 3 Winners of the @givingtuesday.bsky.social 2025 Shades of Amber: Creative Contest for a Cure! Thank you to every artist who shared their amber-inspired work and to everyone who voted in support of #appendixcancer awareness. learn more: acpmp.org/event/shades... 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 02/12/2025"I want to help spread awareness, share knowledge & offer support. ACPMP has given me a platform not only to learn for myself, but to help others navigate this journey."- Melissa This #GivingTuesday, your support helps more patients find hope when they need it most. secure.acpmp.org/campaign/726... 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 06/11/2025A major milestone for the #appendixcancer community! The #NCCN has released dedicated Guidelines for Appendiceal Cancer, officially recognizing this #raredisease as distinct from colorectal cancer. Read more about this important step forward: oncodaily.com/insight/nccn... @oncodaily.bsky.socialoncodaily.comNCCN Guidelines for Appendiceal Cancer: Defining a New Standard of Care 2025 - OncoDailyNCCN Guidelines for Appendiceal Cancer: Defining a New Standard of Care 2025 / appendiceal cancer, cancer, Cancer Management, NCCN, NCCN guidelines, NCCN 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 05/11/2025Missed the live sessions from the 2025 #AppendixCancer Symposium? Recordings are now available! Catch fundamentals education, research updates, and expert sessions at your own pace. Watch the recordings: youtube.com/playlist?lis... @yaleschoolofmed.bsky.social @huntsmancancer.bsky.social 001
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 24/10/2025The voice of patients unites at #PSOGI2025! On Oct 30 in Barcelona, patient advocates from 🇪🇸🇬🇧🇫🇷🇺🇸 will present the 1st Patient Manifesto on Peritoneal Malignancies, highlighting shared needs, challenges & hopes. #PatientVoice #RareCancer #AppendixCancer @pmpsurvivor.bsky.social @mesouk.bsky.social 010
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 14/10/2025Learn why cancer immunotherapies sometimes fail—and how a new study out of @osucccjames.bsky.social could lead to improved treatments.cancer.osu.eduWhy cancer immunotherapy fails: Ohio State researchers link it to protein quality control collapseIn what experts are calling a paradigm-shifting landmark study, scientists from the OSUCCC – James report key findings about the underlying mechanisms of 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 13/10/2025The voice of patients unites at #PSOGI2025 🇪🇸 On Oct 30 in Barcelona, the first International Patient Manifesto on Peritoneal Malignancies will be presented - a global, patient-led initiative co-developed by 7 orgs from 5 countries, including ACPMP. @pmpsurvivor.bsky.social @mesouk.bsky.social 022
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 08/10/2025New to the Appendix Cancer Symposium? Here’s what to expect: ➡️ Expert presentations on diagnosis, treatment & research ➡️ Mock Tumor Board discussion of real patient cases ➡️ Live Q&As throughout the day ➡️ Regional breakout sessions focused on practical needs events.zoom.us/ev/AlbNeGm7q... 010
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 29/09/2025In this insightful Q&A, Dr. Kiran Turaga discusses the increasing incidence of #appendixcancer cases & the progress being made in research & treatment. Dr. Turaga will also be joining us as a moderator for our Appendix Cancer Symposium on Oct 17! Read more: www.yalemedicine.org/news/from-sy...yalemedicine.orgFrom Symptoms to Survival: What to Know About Appendix CancerAppendix cancer remains rare but incidence is growing, as is knowledge about the likely causes. A Yale Medicine expert offers insights on symptoms that should not be ignored, diagnosis, and therapi... 022
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 22/09/2025What’s next for PIPAC in the U.S.? 🌎 Dr. Mustafa Raoof of City of Hope, Duarte Cancer Center, will share the latest updates and future directions at the 2025 #AppendixCancer Multi-Regional Symposium. Save Your Spot: events.zoom.us/ev/AlbNeGm7q... #PIPAC #CityofHope 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 18/09/2025The AROD Strong Kickball Tournament, Walk, and BBQ raised more than $7,300 to honor Anthony "AROD"’s memory and support appendix cancer research, education, and awareness. Thank you to everyone who joined, played, and supported this amazing day. 💛 #AppendixCancer #ARODStrong 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 16/09/2025💛 #AppendixCancer Awareness Month 2025 = Global Impact. ✨ 143 landmarks lit in 4 countries ✨ 58 new recurring donors ✨ 332 news outlets + 101 radio stations ✨ 8M reached in our first global ad campaign Thank you for standing with us. Watch the full recap! #AmberforAppendixCancer 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 10/09/2025This clinical trial of a vaccine as a potential new treatment for PMP is supported in part by an ACPMP Catalyst Research Grant awarded to Dr. Flatmark. We are grateful to our donors for making this support possible, and to Dr. Flatmark and her team for their years of dedication! #pseudovax 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 27/08/2025🎗️ History Made in Wisconsin 🎗️ @govevers.wisconsin.gov has issued an official proclamation declaring August as #AppendixCancer Awareness Month in Wisconsin - Our first-ever statewide proclamation! This was made possible by Deborah Stalsberg, ACPMP volunteer, patient, and proud Wisconsin resident 💛 010
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 18/08/2025Please join us in celebrating ACPMP Medical Advisory Board member Dr. John Paul Shen, a physician-scientist at @mdanderson.bsky.social, for being recognized by @conquercancer.bsky.social, for his work to improve outcomes for patients w/ #appendixcancer! Read more: www.conquer.org/cancer-resea...conquer.orgJohn Paul Shen, MD | Conquer Cancer, the ASCO FoundationOf the approximately 78 organs in the human body, there are a handful that scientists have ultimately deemed unnecessary for survival. Of these, few are more problematic—or confounding—than the append... 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 14/08/2025ACPMP is proud to fund two $50K Catalyst Research Grants through the @nordrare.bsky.social #RareDisease Research Program. These grants will support scientific and/or clinical research related to #AppendixCancer/PMP Apps due: October 12, 2025 Apply now: rarediseases.org/advancing...... 023
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 13/08/2025#Appendixcancer patients & caregivers: we want to hear from YOU 💛 Dr. Kimberly Kopecky's new CRS/HIPEC study aims to improve care & support, and your feedback can help shape it. 10 mins to complete: uab.co1.qualtrics.com/jfe/form/SV_... *Funded by ACPMP: $25K @socsurgonc.bsky.social YI Award*uab.co1.qualtrics.comQualtrics Survey | Qualtrics Experience ManagementThe most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today. 011
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 11/08/2025Registration is now open for the 2025 Appendix Cancer Symposium – our biggest educational event of the year! 📅 Friday, Oct 17 | 10 AM–4:30 PM ET | Online & Free events.zoom.us/ev/AlbNeGm7q... Moderated by Atrium Health Levine Cancer, @huntsmancancer.bsky.social & @yaleschoolofmed.bsky.social 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 08/08/2025ACPMP is yet again funding the $100K Lisa Kurtz Luciano Clinical Investigator Award + $25K @socsurgonc.bsky.social Young Investigator Award—both focused solely on #appendixcancer & PMP. Applications now open: surgonc.org/resources/re... #RareCancer #RareDiseaseResearch 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 07/08/2025Join us TONIGHT at 7 PM EST! Get your questions about CRS/HIPEC answered. events.zoom.us/ev/AkYvSm_lq... 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 16/07/2025Facing appendiceal cancer brings tough decisions & emotions for patients and caregivers. Join us for an open convo with Drs. Greenbaum & Kopecky on what to expect before surgery & the important role caregivers play. This free webinar includes a live Q&A - Register: events.zoom.us/ev/AkYvSm_lq...events.zoom.usAll-in-one virtual event platform | Zoom Events 000
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 30/06/2025Our Scientific Advisory Board Chair, @drholowatyj.bsky.social, recently spoke with @nc5official.bsky.social about the new research showing that Gen X-ers & older Millennials are 3-4 times more likely to be diagnosed with #appendixcancer compared to previous generations. Watch:newschannel5.comNew study shows appendix cancer on the rise in young adultsIf you're a Generation X-er or a Millennial, local experts like Dr. Andreana Holowatyj say you may have a higher chance of getting appendiceal cancer. 041
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 12/06/2025A study led by our Scientific Advisory Board Chair, @drholowatyj.bsky.social, found that #appendixcancer rates have quadrupled among Millennials. ACPMP is proud to have contributed funding to this research alongside NIH. www.acpjournals.org/doi/10.7326/... @nytimes.com @oncodaily.bsky.socialacpjournals.orgBirth Cohort Effects in Appendiceal Adenocarcinoma Incidence Across the United States | Annals of Internal MedicineBackground: Incidence rates of appendiceal adenocarcinoma (AA) are increasing across all age groups in the United States. Birth cohort patterns of AA can provide new, etiologic clues into increasing r... 120
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 30/05/2025Join us in congratulating the Chair of ACPMP's Scientific Advisory Board, @drholowatyj.bsky.social, on her well-deserved '40 Under 40 in Cancer' award! Dr. Holowatyj's research is focused on early-onset cancers, including #appendixcancer #raredisease @natrevcancer.nature.com @oncoalert.bsky.socialnews.vumc.orgAndreana Holowatyj named ‘40 Under 40 In Cancer’ winnerThe award identifies and recognizes contributions across the field of cancer by rising stars and emerging leaders under the age of 40. 020
Appendix Cancer PMP Research Foundation @acpmpresearch.bsky.social · 30/05/2025So many cancer patients share the same emotional struggles, yet often feel alone in them. 💛 #PatientPower shares real insights in this survey from those impacted by cancer and loss. #NoOneFightsAlone #cancersurvivoracpmp.orgIn Your Own Words: The Emotional Impact of Cancer and Loss – Survey Results - ACPMPPatient Power recently invited cancer patients to share their individual thoughts, feelings, and experiences from diagnosis and beyond. The responses were then reported in the article below. They are ... 000