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The African and Caribbean Elders (ACE) Study

@acestudy.bsky.social
115 followers 101 following 16 posts

Research seeking to understand experiences of African and Caribbean people - who are experiencing memory problems - of seeking support, and existing social care provision at four sites #Dementia #Alzheimer's #African #Caribbean #SocialCare #Ethnography

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The African and Caribbean Elders (ACE) Study @acestudy.bsky.social · 09/09/2026
16/09 - join us online for the second in a series of Community Conversations focused on having challenging conversations around care. Open to those providing care and support for a family member experiencing memory problems, as well as to those with lived experience of receiving care and support.
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The African and Caribbean Elders (ACE) Study @acestudy.bsky.social · 03/06/2026
On 21 May ‘Dementia in Colour: Voices from the Margins’ brought together voices from lived experience, the voluntary and community sector, and health and social care to explore how dementia care’s commissioned, delivered and experienced within Black and South Asian communities.
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The African and Caribbean Elders (ACE) Study @acestudy.bsky.social · 29/04/2026
A reminder - 21 May, 10-2pm. Dementia in Colour: Reflection on experiences from the margins. Bringing together voices from lived experience, voluntary+community sector & health+social care to explore how dementia care’s commissioned, delivered & experienced within Black & South Asian communities
Thursday 21 May 2026 - Dementia in Colour event. Times: 10-14:00. Speakers are: Jazz Browne, Shadreck Mwale, Ronald Amanze, Jagdish Brar, Dee Morrison, and Shad Haibatan

Click on this link to visit Eventbrite https://www.eventbrite.co.uk/e/1985262254846
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The African and Caribbean Elders (ACE) Study @acestudy.bsky.social · 27/03/2026
Save the date! 21 May, 10-2pm. Dementia in Colour: Reflection on experiences from the margins. Bringing together voices from lived experience, voluntary+community sector & health+social care to explore how dementia care’s commissioned, delivered & experienced within Black & South Asian communities
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Andy Northcott @andynorthcott.bsky.social · 19/03/2026
The full report into our study into the use of restrictive practice on people living within dementia in hospital is now available: www.journalslibrary.nihr.ac.uk/hsdr/GJKF0714
journalslibrary.nihr.ac.uk
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The African and Caribbean Elders (ACE) Study @acestudy.bsky.social · 12/12/2025
We held our annual Christmas party @Fulham Palace House & Garden this week. We sang, we danced, we ate food, we dressed up for the occasion. We loved spending time together, talking, giggling, reminiscing & living in the moment. Wishing you a restful Christmas break & excited for activities in 2026
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The African and Caribbean Elders (ACE) Study @acestudy.bsky.social · 06/11/2025
“They used to slam them dominoes down when they knew they’d won! It was LOUD, and they were shouting and laughing. My father and my uncles. Them were the tiiiiimes!” Marking #BlackHistoryMonth we hosted the Reminiscence Room exhibition and stepped back in time with local older people & care partners
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The African and Caribbean Elders (ACE) Study @acestudy.bsky.social · 22/10/2025
Calling all UWL staff, students and invited guests - come to the CE student social space Tues 28 Oct and step back in time with the Reminiscence Room exhibition. This 1960s Caribbean living room's part of an event for older people living with dementia + care partners & we're opening to you for a day
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The African and Caribbean Elders (ACE) Study @acestudy.bsky.social · 09/10/2025
Amazing 3 days @ #35AEC with @giam-uwl.bsky.social colleagues. @shabanaroscoe.bsky.social shared findings from our evidence review which were co-produced together w/ people living w/ dementia, family members & care partners @alzheimereurope.bsky.social @drdeborahe.bsky.social @wcebc.bsky.social
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The African and Caribbean Elders (ACE) Study @acestudy.bsky.social · 28/07/2025
That's a wrap! Two successful events, co-producing higher-level findings for our systematic review - with people living with dementia, family members & care partners @shabanaroscoe.bsky.social @drdeborahe.bsky.social @giam-uwl.bsky.social @cardiffuni.bsky.social @wcebc.bsky.social
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Deborah Edwards @drdeborahe.bsky.social · 25/07/2025
Great co-production event yesterday at the Nubian Life Centre with 18 African & Caribbean community members with experience of dementia care, helping us group categories for our systematic review. @acestudy.bsky.social @shabanaroscoe.bsky.social @wcebc.bsky.social
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EMPOWER Dementia Network + @empowerdementianet.bsky.social · 26/06/2025
🕐 Just over 2 weeks left! EOIs open for Small Research Project Fund close on Friday 11th July at 1pm (GMT). We’re funding small collaborative research projects that address inequalities in dementia care. 🔗 Apply now: empowerdementia.co.uk/grants-and-f...
empowerdementia.co.uk
Small Research Project Funding | EMPOWER Dementia Network+
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The African and Caribbean Elders (ACE) Study @acestudy.bsky.social · 10/06/2025
“Everybody from the beginning seemed quite joyful, quite happy. We had an opportunity to talk to people we hadn’t met before.” Another joyous and successful ACE Study celebration with our local partners! @giam-uwl.bsky.social
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Richard Hull @richardhull54.bsky.social · 08/04/2025
This looks to be an excellent new journal from @bupjournals.bsky.social, edited by @sumingkhoo.bsky.social, Harriet Shortt, @sophierwoodward.bsky.social, consulting editor @drhelenkara.bsky.social #Academic #ResearchMethods #Creativity bristoluniversitypress.co.uk/journals/jou...
bristoluniversitypress.co.uk
Journal Of Creative Research Methods
The Journal of Creative Research Methods is a space for the creative research methods community; it publishes critical and engaged work on creative research methods and welcomes contributions from aut...
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EMPOWER Dementia Network + @empowerdementianet.bsky.social · 08/05/2025
🌟 Join us on June 2 2025, 11:30–12:30 for the launch of the EMPOWER Dementia Network+ Small Research Projects Fund! 💡 Apply for funding to co-produce inclusive dementia research tackling inequalities in care. 🔗 Register here: lnkd.in/er7HCJBW #DementiaResearch #FundingOpportunity #Inclusivity
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Julian Harrison @julianharrison.bsky.social · 09/05/2025
Also, have a look here: arc-em.nihr.ac.uk/events/neuro...
arc-em.nihr.ac.uk
Neurodiversity in Research Webinar
This webinar will explore how research projects can better involve neurodiverse individuals by making thoughtful and effective adjustments.
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The African and Caribbean Elders (ACE) Study @acestudy.bsky.social · 02/05/2025
Also presenting at the 'Forging New Connections' event was ACE Study's Principal Investigator Dr Shadreck Mwale - talking about previous events held in collaboration with local community partners + explaining why the research is important and timely #dementia #alzheimers #African #Caribbean #London
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Centre for Ageing Better @ageingbetter.bsky.social · 24/04/2025
Are you looking for age-positive icons to use for your digital or print work? We have a set that you can download on our website that represent older people in a positive light. Download here: buff.ly/i8XFZyS #Ageing #OlderPeople #PositiveAgeing #Age #OlderAge
An age-positive icon showing two older people chatting on a park bench and walking a dogAn age-positive icon showing an older person gardeningAn age-positive icon showing an older person at a cafe using a laptopAn age-positive icon showing an older person riding a bike
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Dementia Community @dementiacommunity.bsky.social · 01/05/2025
The Call for Presentations for UK Dementia Congress 2025 is now open - Deadline 1 June 2025. We welcome proposals from everyone in the wide #dementia community. Information and application form can be found at: buff.ly/C3iZG8e
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Neil Chadborn @neilchadborn.bsky.social · 01/05/2025
Dementia-Friendly Music Night for all the family May 9th 7-10pm Royal British Legion Hall, 16 Hall Croft, Beeston NG9 1EL. Cabaret, sing along, dancing! Raffle, bar &samosas. parking on site. Fundraiser for Sporting Memories, Book online buytickets.at/dementiastud...
buytickets.at
Buy tickets – Dementia Studio
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The African and Caribbean Elders (ACE) Study @acestudy.bsky.social · 01/05/2025
The ACE Study team thoroughly enjoyed the Geller Insitute of Ageing and Memory's 'Forging New Connections' event - presenting past and ongoing research projects and building new collaborations with the local West London community #dementia #WestLondon #UniversityofWestLondon #community #Ealing
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Dementia Community @dementiacommunity.bsky.social · 24/04/2025
Researchers at the University of Liverpool are investigating the support available for athletes living with young-onset dementia. They are looking for people who have participated in high-impact sports to contribute to their study. Read More: buff.ly/cWYQceg @liverpooluni.bsky.social
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EMPOWER Dementia Network + @empowerdementianet.bsky.social · 01/04/2025
Last week, we hosted a Policy Lab focused how can we reduce the most significant inequalities in care for people living with dementia and their families who need greater support. Thank you everyone for contributing to such an impactful day of meaningful discussions and actionable insights.
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The African and Caribbean Elders (ACE) Study @acestudy.bsky.social · 10/04/2025
Hello Bluesky! 👋 Welcome to The ACE Study, funded by @nihr.bsky.social Between 2025-2027, we’re hearing the experiences of African & Caribbean people – who are experiencing memory problems – of seeking support, and observing existing care provision Find out more 👇 www.uwl.ac.uk/research/res...
uwl.ac.uk
The African and Caribbean Elders (ACE) study | University of West London
The African and Caribbean Elders (ACE) study: Understanding the support needs of African and African-Caribbean people living with dementia and their care partners and families: identifying inclusive s...
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Dementia Community @dementiacommunity.bsky.social · 10/04/2025
🎥 Missed our ‘Culturally Meaningful Engagement in Dementia Care’ webinar? You can catch the full recording now on our YouTube channel 👇 buff.ly/3ORLN8G #DementiaCare #Dementia
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