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1970ang.bsky.social

@1970ang.bsky.social
49 followers 87 following 21 posts

Retired renal nurse & kidney patient

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1970ang.bsky.social @1970ang.bsky.social · 13/04/2026
An excellent appointment
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Kidney Research UK @kidneyresearchuk.org · 06/03/2026
Dr Patrick Walsh & Dr Emily Bowen have received a £40,000 grant for research into haemolytic uraemic syndrome (STEC-HUS), the most common cause of children's kidney failure. STEC-HUS is caused by E. coli infection & affects around 100 children per year in the UK. Read more: bit.ly/4d6tPLr
A close-up of petri dishes with purple cultures. Text over the image reads, "£40,000 grant received to find new ways to treat infection-related kidney disease in children."Colourful microscopic image showing cells with purple and blue highlights. A text overlay reads: "Dr Patrick Walsh will look at how changes in protein production might cause haemolytic uraemic syndrome (STEC-HUS)."A close-up of a microscope and lab equipment, with text: "STEC-HUS is a type of kidney damage caused by E. coli infection and affects around 100 children each year in the UK."
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Kidney Research UK @kidneyresearchuk.org · 28/02/2026
People with rare kidney diseases face significant diagnosis delays, inconsistent care & long waits for new treatments. This Rare Disease Day, we are encouraging these conversations & sharing our findings with you. Read our rare kidney diseases report here: bit.ly/47Wdp5Z #RareDiseaseDay
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Collectively common, rare kidney diseases report - Kidney Research UK
A report about the impact of rare kidney diseases in the UK including diagnosis delays and waits for new treatments.
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Sarah Sanghavi @sarahsanghavi.bsky.social · 09/02/2026
Urine microalbumin getting Super Bowl star treatment with Sofia Vergara and Octavia Spencer.
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Northern Counties Kidney Research Fund @nckrf.bsky.social · 07/02/2026
Missed out on the ballot for #greatnorthrun ? We have spaces. Min £250 to raise including price of place. Fundraise for a northern regional charity to support kidney research. We support pioneering world class research. Check us out www.NCKRF.org.uk
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Kidney Research UK @kidneyresearchuk.org · 03/02/2026
What are we looking forward to in 2026? We caught up with four of our funded researchers to hear how their projects are progressing, what they've achieved so far and how their work can give hope to people living with kidney disease in the year ahead. Read the full article: bit.ly/3NU7kyO
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Kidney Research UK @kidneyresearchuk.org · 23/01/2026
We’re recruiting a data science programme lead to help develop and deliver a bold data science and AI strategy that will position us at the forefront of innovation. For the full job description and to apply, click here: bit.ly/4rrsEKL
Promotional graphic from Kidney Research UK announcing recruitment for the position of Data Science Programme Lead.
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Kidney Research UK @kidneyresearchuk.org · 08/10/2025
We’re still reflecting on what has been our most successful Driving Discoveries event to date. The response and feedback have been overwhelming. Next year will take place in Manchester. Register your interest to be among the first to receive updates as details are confirmed: bit.ly/3KYakbP
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1970ang.bsky.social @1970ang.bsky.social · 24/09/2025
Dear Mr Farage. I am also not a scientist but I am aware that it’s because of what happened with thalidomide that we now have robust testing and advice on what drugs are safe to use in pregnancy. Paracetamol is one of these.
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Northern Counties Kidney Research Fund @nckrf.bsky.social · 21/09/2025
Who could not love our Christmas cards “Sledging” and “Dear Santa”. Only £5 for 10 cards. Size A6. Buy here ▶️ www.nckrf.org.uk/christmas-ca...
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Kidney Research UK @kidneyresearchuk.org · 09/09/2025
The allied health professional and psychologist-led master of research awards are now open! The grants aim to help AHPs and psychologists engage with research early in their careers and build confidence and skills in research methods. Closes: 15 Oct 2025 Find out more and apply bit.ly/4kHeilE
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Allied health professional and psychologists-led research grants - Kidney Research UK
A new research grants round drive to develop and enhance allied health professional and psychologists led research.
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The Green Party of England & Wales @greenparty.org.uk · 22/08/2025
🤯 Most people seeking asylum are not allowed to work and are forced to rely on state support—as little as £6.43 a day. 🤔 What might be a good way to help asylum seekers out of hotels? 🤝 Maybe let them work, gain financial independence and contribute to their communities!
REAL HOPE. REAL CHANGE.
LET THEM WORK
Green Party
Promoted by Chris Williams on behalf of The Green Party, both at PO Box 78066, London SE16 9GQ
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Rare Disease Research UK @rdrukhub.bsky.social · 20/08/2025
🧩 Are you involved in rare disease research in the UK? RDR UK & @lifearc.bsky.social are building a tool to map the rare disease research landscape — and your input matters! Researchers, patients, families, carers & rare disease advocates — 📝please take the survey tinyurl.com/RDRLDproject
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Jyoti Baharani @renalpages.bsky.social · 08/08/2025
🧬 Up to 30% of adults with CKD have an inherited form—yet family history is still underused. 10 tips to do this well 🍎 It’s free, powerful & can change the whole pathway. #Nephrology #CKD academic.oup.com/ckj/advance-ar…
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Kidney Research UK @kidneyresearchuk.org · 04/08/2025
Our Master’s of research grants for pharmacists and nurses are now open! We want to help nurses and pharmacists engage with research early in their careers and build their confidence and skills in research methods. Click here to find out more and apply: bit.ly/3v6q7tC
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Susie Dent @susiedentwords.bsky.social · 01/08/2025
Hosting the British Transplant Games at a sunny Blenheim Palace was such a privilege. Organ donation is needed now more than ever, and the results of such generosity were on display everywhere yesterday. To the audience of 2,000 or more, thank you. And to those who were remembered, thank you too.
Hosting the British Transplant Games.Such a wonderful audience of athletes and familiesThe Transplant Flame which was lit at the opening ceremony.
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Northern Counties Kidney Research Fund @nckrf.bsky.social · 24/07/2025
Our latest newsletter is out 🥳 If you’d like to receive our newsletters please get in touch via our website and we’ll add you to our supporter database. Rest assured your information is kept confidential and we do not share your information with anyone 😁 www.nckrf.org.uk/contact-us
nckrf.org.uk
Contact Us
NCKRF aims to raise funds and award grants for research into kidney disease, kidney transplantation and its treatments in children and adults.
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1970ang.bsky.social @1970ang.bsky.social · 09/07/2025
I always feel reassured that there are still people like this in the world fighting the small battles 😂
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Kidney Research UK @kidneyresearchuk.org · 26/06/2025
The @amrc-uk.bsky.social (AMRC) have developed an annual infographic, showcasing the collective impact of its member charities for which we are proud to be part of💜 We’re excited to see what more can be achieved. #CharityImpact
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1970ang.bsky.social @1970ang.bsky.social · 16/06/2025
In Shetland they will respond to something you say with ‘I doubt that (pronounced doot). It took me a while to realise this meant they were actually agreeing with me and not just being narky
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Kidney Research UK @kidneyresearchuk.org · 12/06/2025
Huge congratulations to our chief executive, Sandra Currie, who officially received her OBE from HRH The Prince of Wales yesterday at Windsor Castle. 🎉 Sandra was awarded an OBE in the King’s New Year Honours, in recognition of her services to people affected by kidney disease.
Sandra holding a medal in a presentation box, smiling proudly wearing a light blue dress and cream hat.
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ISNkidneycare @theisn.org · 09/06/2025
📢 Launched at #WHA78, ISN’s new fact sheet highlights the overlooked burden of rare kidney diseases (RKDs) and urges coordinated action to improve outcomes for patients and families. 🧾 Read more: lite.spr.ly/6... ⬇️ Download: lite.spr.ly/6...
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Kidney Research UK @kidneyresearchuk.org · 15/05/2025
Mrs Karen Nagalingam, has been awarded a nurse-led start-up grant award to identify ways to improve social interaction and reduce isolation and loneliness in young adults receiving haemodialysis. Read more: www.kidneyresearchuk.org/2025/05/15/h...
kidneyresearchuk.org
How can we improve young adults’ experiences of haemodialysis? - Kidney Research UK
Karen Nagalingam is researching ways to improve social interaction and reduce isolation and loneliness in young adults having haemodialysis.
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1970ang.bsky.social @1970ang.bsky.social · 11/05/2025
Such a depressing statement. Our care system is crumbling and this has knock on effects on healthcare systems and the only plan appears to be make it worse 😡
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Kidney Research UK @kidneyresearchuk.org · 06/05/2025
Are you an #EarlyCareerResearcher? We have created a Facebook group aimed at #Kidney research #ECR, providing a space for scientific collaboration, networking, discussion, updates, and opportunities relevant to ECRs. Join here: www.facebook.com/groups/13374...
A lab researcher concentrating on a sample. In her right hand she is holding a pipette and in her left appears to be samples. Infront of her are lots of tubes, measuring jugs and other equipment. A glass shield separates her from the samples, with an opening below that allows her arms to reach through. She is dressed in a white lab coat and gloves, and her long dark hair is tied back in a ponytail.
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Chris Addison @mrchrisaddison.bsky.social · 02/05/2025
Several areas of England now run by the worst people in a golf club.
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Dr Rebecca Linnett (she/her) @rebeccalinnett.bsky.social · 02/05/2025
We're looking for disabled people (incl. people with mental health conditions & neurodivergent people) to be part of our advisory group for a project @uniofeastanglia.bsky.social aiming to improve clinical trial accessibility. Email me at r.linnett@uea.ac.uk if you'd like more info. Please share!
A recruitment flyer with the "Funded by NIHR" logo and University of East Anglia logo at the top. There is a headline in large bold black letters that reads "Disabled people are often excluded from clinical trials. Can you help us change this?" Underneath, in smaller navy text it reads "We need disabled people and their carers to help guide our research and give us feedback on the resources we create". "Disabled people and their carers" is highlighted in pink text. Underneath are two pink boxes; the first says "We're creating a course that gives researchers tools to improve the accessibility of their trials" and the second says "We will ask you to attend our online consultation meetings or give feedback via email". To the right is a large pink circle; in the centre in white text it reads "You will be paid £25 per hour for your time". In the bottom right, white text on a navy background reads "If you're interested or want more information email Rebecca: r.linnett@uea.ac.uk". To the left is the address for the website for the project, practicalsproject.wordpress.com
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Prof Paul Gill @paulgill.bsky.social · 25/04/2025
Latest funding call for nursing research awards from Kidney Research UK: www.kidneyresearchuk.org/research/res...
kidneyresearchuk.org
Nursing research awards - Kidney Research UK
We welcome proposals from nurses who aim to improve experiences and outcomes for patients living with or at risk of, kidney disease.
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Becky Bonfield @beckybonfield.bsky.social · 23/04/2025
KRUK - Nursing Research Awards - the next round of grant applications will open to EOI on 30 May 2025 and close to applications on 27 June 2025. Lots more information available via this link www.kidneyresearchuk.org/research/res...
kidneyresearchuk.org
Nursing research awards - Kidney Research UK
We welcome proposals from nurses who aim to improve experiences and outcomes for patients living with or at risk of, kidney disease.
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Dr Hema Chaplin @hemachaplin.bsky.social · 01/04/2025
Our survey on #kidney information/education is still open: app.onlinesurveys.jisc.ac.uk/s/salford/ph... We need to hear more from people who are #SouthAsian and/or #African/#Caribbean with #KidneyDisease, #HighBloodPressure or #Diabetes to capture all experiences so please share widely. Thank you!
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1970ang.bsky.social @1970ang.bsky.social · 31/03/2025
Are you a runner who would like to raise funds for research into kidney disease? @nckrf.bsky.social have spaces available for this year’s #GNR www.nckrf.org.uk/get-involved...
nckrf.org.uk
Great North Run
NCKRF aims to raise funds and award grants for research into kidney disease, kidney transplantation and its treatments in children and adults.
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1970ang.bsky.social @1970ang.bsky.social · 30/03/2025
I can’t help think it’s not his role to provide forgiveness - I wonder what the real victims think of that
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Kidney Research UK @kidneyresearchuk.org · 27/03/2025
We have written to the producers of #Emmerdale, #CoronationStreet, and #EastEnders to acknowledge the growing visibility of #CKD in their storylines. While soaps have the power to change public understanding, we are concerned about misleading portrayals 👇 www.kidneyresearchuk.org/2025/03/27/g...
Infographic reading: As the leading charity dedicated to kidney disease research in the UK, we work closely with patients, clinicians, and researchers to improve outcomes for those affected. CKD affects an estimated 7.2 million people in the UK – many of whom are unaware they have it. With cases rising, it is crucial that public awareness is based on fact, not fiction. 
 
While we welcome the increased visibility of kidney disease on prime-time television, and the need for drama in any good storyline, we are concerned that some recent plots have misrepresented key aspects of these conditions, contributing to fear, misinformation, and misunderstanding. With millions of people tuning into the drama each week, through accurate portrayals, there is a distinct opportunity to change the story for the millions of people CKD affects. 

The current storyline in Emmerdale, where Joe Tate orchestrates a stabbing and kidnapping to secure an illegal kidney transplant, is particularly concerning. Letter continued: The portrayal of theft of organs as a viable option is implausible, illegal and dangerous. Organ trafficking is a serious criminal offence, and any individual involved in such an act would face severe legal consequences. 

The storyline risks undermining public confidence in the transplant system at a time when we desperately need more people to consider living kidney donation. It is also a missed opportunity to spread positive awareness when six people in the UK die every week waiting for a kidney transplant. We cannot support storylines that could negatively impact efforts to increase the availability of organs for transplant.  

Similarly, while we were pleased that Coronation Street initially sought medical input for a kidney transplant storyline, we were disappointed that key aspects of real-world transplantation - such as the extensive compatibility testing, waiting times, and emotional complexities of the process - were sidelined for dramatic effect. Letter continued: This has caused frustration within the kidney patient community, many of whom face years of uncertainty, life-limiting dialysis treatment and complex medical procedures before receiving a transplant. 

We do, however, want to acknowledge more considered portrayals, such as EastEnders’ ongoing storyline about Nugget Gulati recovering after acute kidney injury, which did reflect some of the realities of dialysis and its impact on daily life. 

To support greater accuracy in future storylines, we would like to extend an offer to connect your writing and production teams with medical experts, researchers, and real kidney patients who can provide first-hand insight into the complexities of living with kidney disease. We believe that with better consultation, soaps can deliver compelling, emotional storylines without sacrificing medical realism or reinforcing harmful misconceptions and at the same time, challenge misunderstandings held by the UK population about kidney disease. Final page of the letter: Soap operas have come a long way in recognising the importance of sensitive and accurate portrayals of events that affect a character’s mental health, and it is time the same approach applied to devastating conditions like kidney disease. 

We would welcome the opportunity to discuss this further and explore how we can work together to ensure kidney disease is portrayed responsibly and sensitively. Please do not hesitate to contact us if you would like to arrange a meeting or receive further information.  

We appreciate your consideration and look forward to hearing from you.  

Yours sincerely 

Lucy Sreeves 
Executive director, Kidney Research UK
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Kidney Research UK @kidneyresearchuk.org · 26/03/2025
We’re excited to recruit for a chief operating officer. This is a fantastic opportunity to help shape our future as we grow, and oversee, support, and develop a diverse team across the organisation. Learn more and apply: bit.ly/3Xz93vz
infographic to say kidney research uk are hiring. 'Join the leading kidney research charity in the UK' with 'chief operating office' at the bottom of the image.
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1970ang.bsky.social @1970ang.bsky.social · 21/03/2025
healthandcareresearchwales.org/about/news/r...
healthandcareresearchwales.org
'I feel like I've got my life back' – new research improves quality of life for patients with overnight dialysis
A new research trial is underway at Ysbyty Gwynedd in Bangor aimed at improving the quality of life for adults with kidney disease by conducting overnight dialysis.
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UK Kidney Association @ukkidney.org · 21/03/2025
💻Join the next patient data webinar next Friday (28 March), exploring Kidney Data Analysis using national datasets. Hear from experts on the UK Renal Registry, patient involvement & how RaDaR drives research for patient benefit. Register for free now: www.ukkidney.org/hea...
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Jaimie Kaffash @jkaffash.bsky.social · 19/03/2025
This is a lovely piece of writing. I’m biased, as it is by my wife, but it is lovely all the same kidneycareuk.org/kidney-disea... @kidneycareuk.bsky.social
kidneycareuk.org
My fistula story
Health writer and kidney transplant recipient Allie Anderson shares her complex feelings about living with an arteriovenous fistula.
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Dr Hema Chaplin @hemachaplin.bsky.social · 05/03/2025
📢Do you or a family member have #KidneyDisease, #HighBloodPressure or #Diabetes? 📒 We would like to hear about what information you have received about your #kidneys - what was good & what could be improved! 🔗https://app.onlinesurveys.jisc.ac.uk/s/salford/phase-1-patient-survey 🙌Thank you!
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1970ang.bsky.social @1970ang.bsky.social · 04/03/2025
Caught #OliverMusical at the Gielgud Theatre tonight & it’s a long time since I enjoyed a musical as much. Just what the doctor ordered in these uncertain times
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1970ang.bsky.social @1970ang.bsky.social · 01/03/2025
If I went to a book festival every day we’d be bankrupt in a month. That’s me sorted for a while thanks to @baytales.bsky.social #BayTales25
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Susie Dent @susiedentwords.bsky.social · 28/02/2025
Word of the day is ‘huff-snuff’ (16th century): a hectoring bully or braggart.
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John Sayer @jasayer.bsky.social · 27/02/2025
from.ncl.ac.uk/newcastle-ra...
from.ncl.ac.uk
How Newcastle experts are advancing rare disease research
Discover how Newcastle University is driving rare disease research, advancing treatments, and improving care. On Rare Disease Day and beyond.
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Northern Counties Kidney Research Fund @nckrf.bsky.social · 17/02/2025
Welcome to the new chair of our charity, Professor John Kirby, and to our new Bluesky account. Together we can raise funds for #KidneyResearch #KidneyDisease
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Northern Counties Kidney Research Fund @nckrf.bsky.social · 17/02/2025
Are you looking for a place in the 2025 Great North Run ? Please join our team - minimum £250 to raise, one of the lowest targets you'll find. Get in touch via www.nckrf.org.uk/contact-us and help us raise funds for kidney research. #GreatNorthRun #KidneyResearch #KidneyDisease
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Kidney Research UK @kidneyresearchuk.org · 13/02/2025
In a moving Valentines tribute, 90-year-old Vidur has funded a new research award in memory of his wife of 60 years. “It’s important to me to leave a gift and keep Sabita’s name alive. I know she’d be delighted that she continues to help & inspire people." www.kidneyresearchuk.org/2025/02/12/s...
A black and white photograph of Sabita and Vidur. She is in a white lace dress, holding a bouquet, with a tiara on her head which has a veil attached. Vidur is in a suit behind her, he is gently placing his hand on her arm. They are both posing for the photo.
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1970ang.bsky.social @1970ang.bsky.social · 08/02/2025
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Kidney Care UK @kidneycareuk.bsky.social · 14/01/2025
🗣️ Your voice matters! Got 5 minutes? Take our new survey & help us fight for better emotional & social support for people living with #ChronicKidneyDisease (CKD). Open to UK residents who are 18+ & living with CKD. Let's make a difference. Survey link: www.surveymonkey.com/r/HCHZYQM
An infographic from Kidney Care UK featuring a message in a speech bubble that reads, "Do you have chronic kidney disease? Please tell us about your experiences of receiving social and emotional support." Below the text, there's a note indicating that a family member or carer can also complete this on your behalf. The logo of Kidney Care UK is visible at the bottom left of the image.
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Kidney Research UK @kidneyresearchuk.org · 27/01/2025
Fantastic chance to join us for a symposium with The Francis Crick Institute. Our one-day conference is filled with the latest on renal research, ground-breaking technology, and exciting innovations! Register here: bit.ly/40Fk7cn 📅 Tuesday, 11 March
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Crick Symposium Registration - Kidney Research UK
Register to join us for a day of inspiring renal research at the Crick Symposium 2025
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