ME/CFS Science @mecfsscience.org · 06/10/20265) IMHO past overstatements and bad studies such as PACE have created a skeptical subcommunity that became more involved in the scientific process. They check references, download the supplementary material, and re-analyze the raw data. 1316
ME/CFS Science @mecfsscience.org · 06/10/20266) Canson uses ME/CFS as an example to show that patients are often competent and well-informed. She criticises Elizabeth Barnes who argued that a knowledge imbalance is a good reason" for physicians not to trust patients about at least some of their own narratives." 1222
ME/CFS Science @mecfsscience.org · 06/10/20267) One limitation of the paper is that it doesn't go into the problem that the patient community often shares incorrect views, overstatements and hype. This can have negative consequences for advocacy and patients (i.e. trying harmful drugs or surgeries). 1291
